(I was going to email this to the original poster, but I realized there may be other people reading these replies who may need this information, if they, or a loved one, are facing ALS or other serious neuromuscular diseases.)
Can't help with the husband-signaling device, but here's something everyone affected by this disease should know. The common perception is that ALS is a fatal disease; it is not. As long as the person with ALS has proper ventilatory support, they can live comfortably for decades. (Who knows, maybe they'll find a cure in that time.) For more information, please check out http://www.DoctorBach.com, specifically http://www.DoctorBach.com/als.htm.
Slashdot Mirror
(I was going to email this to the original poster, but I realized there may be other people reading these replies who may need this information, if they, or a loved one, are facing ALS or other serious neuromuscular diseases.)
Can't help with the husband-signaling device, but here's something everyone affected by this disease should know. The common perception is that ALS is a fatal disease; it is not. As long as the person with ALS has proper ventilatory support, they can live comfortably for decades. (Who knows, maybe they'll find a cure in that time.) For more information, please check out http://www.DoctorBach.com, specifically http://www.DoctorBach.com/als.htm.