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Schizophrenia Experiences and Suggestions?

Jagercola asks: "My sister was recently diagnosed with Schizophrenia. It's a chronic, severe, and disabling brain disease that we don't know a lot about. The movie, A Beautiful Mind, paints an accurate picture of how the disease affects someone in a best case scenario. I would like the vast audience here to help me understand the disease through experiences and that it might help me aid my sister. If you know someone how has the disease, how has it affected your and their life? How have you been able to cope with it? What are the long term implications for quality of life?"

9 of 1,128 comments (clear)

  1. Re:Schizophrenia by jenne · · Score: 5, Interesting

    Well....let me think of it this way. I was diagnosed schizoprhenic about 6 years ago....I am a hallucinatory schizophrenic, which means on top of hearing things, I see things. Makes life a bit difficult. Things people take for granted, I find a challenge. Imagine, if you will, driving down the street, and not knowig if the people you see walking in the street are real or not. I haven't been on meds for quite some time, due to lack of health coverage, and the fact that those things can get expensive. If you have any questions, my email is open for anyone who wants it.

  2. Dating a schizophrenic by Anonymous Coward · · Score: 5, Interesting

    My ex-girlfriend is a schizophrenic. When I met her, I could tell she was a very unique person, but I'd honestly never have guessed that she was so seriously ill. When properly medicated (antipsychotics, antianxieties, antidepressants), she was for the most part a normal person.

    For the most part. 6 months couldn't go by without some sort of psychotic lapse. She could always feel it coming on days or weeks prior, and could voice her anxiety about it, but was terrified because she couldn't do anything about it. Doctors would up her doses of medication, but it wouldn't help. Before I knew it, little episodes would become more common...we'd be in the middle of a conversation and she'd be staring off into space, her voice would lower to almost mumbling, and I'd not be able to get her attention for up to a minute or two. She'd have no recollection of it, deny that it happened. She'd spin around to catch people that she 'saw' in the mirror behind her. These were the signs that a real lapse was coming.

    The real psychotic lapses were the dangerous ones. Self mutilation, overdoses on massive amounts of pills, or worse...finding her screaming, clawing at her skin, not able to recognize anyone (myself included) from whatever horrible visions she was in the midst of. I got used to visiting the "behavioral medicine" department at all the general hospitals in the area, as well as the full-blown mental hospitals.

    She turned out to be generally terrible with long-term personal relationships (surprise.), whether with a friend or a boyfriend, and I stuck around much longer than I should have. It's very difficult to fall in love with someone so internally tortured.

    Oh, and the medication they use to dull a schizophrenic's brain with have some horrible side effects. She slept 12 - 15 hours a day, and couldn't enjoy sex because the antipsychotics prevented her from ever having an orgasm.

    Hrmph, posting anonymously for the first time ever because this post actually chokes me up.

  3. A friend of mine was scizofrenic by trezor · · Score: 5, Interesting

    He got gradually worse, to the extent that we didn't really notice. First of all he was wierd to begin with. Second, he was a horny fucker, no doubt. We used to say that he would fuck anything (not anyone). Third, we were partying a lot. Not to mention that we smoked weed on a quite so daily basis.

    All in all, we were used to weirdness from his this guy. It took some time until we figured.

    So when he started saying that "he could see that those girls wanted him", from hundred meters distance or so, nothing less , he wasn't mental in our eyes, he was just horny and weird.

    In the end his mother realized he needed help, and he agreed.

    When he got committed, he was pretty much in his own delusional world. From his point of view, and he loves talking about this, so this is not speculation, he were held captive by agents trying to manipulate him. I am not kidding.

    And he believed that he were part of a big syndicate smugling heroin, so he really couldn't talk to these agents. Which ofcourse were the people attending him at section 8.

    He also believed he had raped, extremely brutaly, a not so little amount of young girls. He believed these agents were trying to tag this onto him, but he did not want to get caught. So he shut up as much as he could.

    He also was manicly trying to control his own thoughts. Believe it or not, he thought that others could see what he was thinking, and he wouldn't want to embaress himself in front of others. After all he was quite a perv.

    When I called him at the instituition, he talked to me somewhat refusingly. He believed I was in on the agent plot... You get the picture.

    But with time and medication, he is returning more to his old self. It has taken a couple of years, but now we can hang out and have fun.

    But recovery takes time. Just a few months ago when talking to us, he realized for the first time that people actually cannot see his thoughts.

    And he still isn't entirely customed to "being sane" as he himself put it, so it happens he makes a few bloopers. But all in all he is recovering quite well now.

    If I hadn't known that he had been committed, and hadn't seen him since he was, I wouldn't see the difference.

    If you are lucky and get good treatment, all you need is patience.

    Hope this helps in some ways. Feel free to ask any other things if you like.

    --
    Not Buzzword 2.0 compliant. Please speak english.
    1. Re:A friend of mine was scizofrenic by MourningBlade · · Score: 5, Interesting

      Schizophrenia is thought to be exacerbated by isolation and social separation. There is an early stage where the person will start having "odd" thoughts and beliefs, and they will feel apart from others, and become increasingly exclusively involved in their own affairs.

      And it goes downhill from there.

      A big issue is making sure that your sister, your friend feels like they can trust you, talk to you. It will keep them from feeling so lonely.

      When I had a bad episode several years ago, it wasn't until after I was on anti-psychotics that I realized how little I was talking to anyone else. Much of the destabilization was at night, alone in my apartment with the voices and thoughts. Things start to make sense that really shouldn't.

      A major component of schizophrenia is belief. The person is unable to not believe what they believe. Watch The Caveman's Valentine which is a fabulous movie anyways. The schizophrenia in that movie is pretty accurate in that in spite of all evidence to the contrary, he continued to believe his crazy thoughts. Tried to tone it down sometimes because he knew it didn't look good, but nevertheless believed.

      Having someone to talk to can help provide a focus point, and keep some of the beliefs from cementing.

    2. Re:A friend of mine was scizofrenic by Deli-X · · Score: 5, Interesting

      This sound very similar to what happened to me. During my wild and reckless youth, I "partied" all the time and it eventually lead to my demise of going insane. During this time, I believed that I was an android that was malfunctioning. I lived with my parents at the time and they lived in a nice housing development. To me, this housing development was an "experiment" and that men in lab coats monitored the activity behind the scenes.

      The time when the sh!t hit the fan, I was working on my Commodore 64 (yeah, I still used a commie in 1991) and I was loading a game from a disk (load"*",8,1...or if you had and Epyx Fastload cartrige like me, c= key+runstop). While this was loading, lyrics to the Doors, "Light My Fire" was scrolling across the screen horizontaly and then would drop down when it got to the middle of the screen. I thought I was getting hacked or something.

      Well, it was kinda freaking me out so I looked outside the window. There was a Chemlawn truck and a cable TV van parked on the street. There were men in lab coats in these trucks. I "knew" that they had hacked my C=64 and was broadcasting my thoughts on the screen. That's when I freaked out, and ran outside screaming my head off.

      My parents took me to the hospital (they were part of the conspiracy) where the men in lab coats were there to fix my defective android self. I saw them cut me open and expose my internal wiring.

      Eventually, I got sent to the psych ward where I got treated. 6 months, inpatient. I got slapped with the label of "Paranoid Schizophrenic." During this time, I was stoic, couldn't express myself. Couldn't talk, almost catatonic. I couldn't trust the men in labcoats and the way they were broadcasting my thoughts over the TV, radio, and hospital intercom(thought broadcasting). Of course they could do these things because they worked with the cable company.

      Anyhow, moving forward...I eventually got better through treatment and medication. For the first three years after I was released, I was still paranoid and hallucinating. It's been a long and difficult road to trudge but today I am well and it's been great for the past several years.

      Today, I still take medication and still see a doctor about once a year. The men in lab coats went away about 9 years ago as well, as the halluciniations. Today I live a normal life. I was admitted when I was 17 and today I am 30. I work a full time job in the IT industry (I've been at this job for over a year now...my previous job was during the dot com days and there was a time of unemployment because of the bubble/911...but that's a different story.), I'm married, I just had a baby boy a little over 2 months ago...

      So yeah, I live a normal functional life. I could not be any happier! Yeah, there are times where I don't feel so well but those time are so much easier to cope with these days because of the treatment and experience I've gone through.

      Hopefully this can help someone out.

      deli-x

    3. Re:A friend of mine was scizofrenic by Dr.+Descartes · · Score: 5, Interesting

      My mother was diagnosed with schizo-effective disorder when I was very young. With the right prescriptions and the regular intake, one can lead a relatively normal life. The impact that it had on myself and my siblings is that one really has to have check up and make sure that the medication is being taken at regular intervals.

      The biggest impact, is now that everyone's up and moved out, someone from family must always stay in town to keep an eye on her. That also means being prepared to drop everything you're doing for about 24 hours during a breakdown. The legal system is a reactive entity. That means that one has a choice of either spending quite a bit of time attempting to get someone submitted based upon symptoms the legal system won't necessarily view as insanity or waiting for that person to hurt themselves or someone else. There's no clean method for dealing with someone who's stopping take their meds and is on that slippery slope to mental breakdown.

      Oh, yea. In my experience, schizos are pretty crafty about hiding their lack of medicine intake.

  4. Re:commonly seen by logicnazi · · Score: 5, Interesting

    You're right the description given sounds just as likely to be mania (with the associated paranoia) then skizophrenia. Before I went around encouraging someone to take their anti-psychotics I would make sure they had tried lithium and the other medicines used to treat mania.

    While anti-psychotics are the only choice for those truly far gone unfortunatly they have very unplesant effects. They cause permenent brain damage (the new atypical anti-psychotics aren't as bad) can cause permanent facial ticks and other issues. Also they often cause extreme depression and those taking them find marijuanna is the only thing which makes them content.

    I find it disturbing that people are happy to tell individuals they have never met that they need to be taking their anti-psychotics. This reveals one of my basic disagreements with most of the psychiatric community. Most psychiatrists (conciously or uncouncisly) seem to put as their first priority the normalcy of their patient. Perhaps they believe normalcy is equivalent to good but this simply isn't always true.

    Having had both depressive and psychotic episodes myself I would rather be commited and psychotic then sane and sufficently depressed. To be fair this would have to be a fairly extreme depression but this really is a choice each person needs to make for themselves. If an individual decides he doesn't want to take his anti-psychotics anymore that should be his choice (although he should alert care providers).

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    If you liked this thought maybe you would find my blog nice too:

  5. Re:commonly seen by maximilln · · Score: 5, Interesting

    Psychologists suck as evidenced by quotes from this article in The Sun (Baltimore, Maryland, page 7A) (21-May-2004)

    HELD 6 YEARS WITHOUT CHARGES

    "Nobody told us", official says.

    A 45-year-old man remains locked up in a state hospital even though the charges against him were dropped six years ago.
    When [he] protested and insisted that he should be released from his locked ward because the charges no longer existed, state mental health officials concluded he was delusional. The proof of his insanity, they said, was his repeated insistence that the charges had been dropped.
    [Attorneys] with the Disability Law Center said they discovered [the man's] plight when they were doing a review of other cases. Noting that he had been confined for a long period, they began to look into the details of his case.
    "When I heard about it, I though well, I'll just go and check it out," [the attorney] said, but when she got to the facility a cocial worker called her aside and offered a friendly warning.
    "You shouldn't listen to him," the social worker told [the attorney]. "He's delusional."
    In fact, [the attorney] said, every single thing that [the man] told her turned out to be true.
    "He was telling the truth the whole time," said [the attorney],"But no one believed him." Though he has slurred speech because of [previous head injuries], [the attorney] said [the man] was "perfectly lucid."

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    Just goes to show. Once the head-shrinks get their hands on you, for any reason, claiming to be normal is proof of your insanity and reason for them to hang on.

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    +++ATHZ 99:5:80
  6. Re:what are some good books on the topic? by Verteiron · · Score: 5, Interesting

    On Google Answers there was once a guy who asked a question that alarmed many of us researchers...

    It started off innocently enough; a question on how to block radio waves in his home. An odd request, sure, but... Faraday cages and such were being talked about, and someone asked in passing if there was some particular frequency he wanted to stop...

    He basically stated that there was a group near him that was using some sort of broadcasting equipment to play thoughts in his head in an attempt to brainwash him. He didn't know what the frequency was, so he needed to block everything.

    In addition he stated that he had been recommended to various psychologists, but since they were a part of the group doing the broadcasting he could not accept their diagnoses. I think the final answer to that question was a detailed explanation of radio physics, faraday cages, and also a caution suggestion that radio broadcasts can't be received by the human brain directly. I hope that guy, whoever he is, found some help...

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