Scientists To Post Individuals' DNA Sequences To Web

isBandGeek() writes "With shocking disregard to their personal privacy, at least 10 people volunteered to release their entire medical records and DNA sequences in order to get their DNA decoded and analyzed. 'They include Steven Pinker, the prominent Harvard University psychologist and author, Esther Dyson, a trainee astronaut and Misha Angrist, an assistant professor at Duke University. They have each donated a piece of skin to the project at Harvard University and agreed to have the results posted on the internet. The three are among the first 10 volunteers in the Personal Genome Project, a study at Harvard University Medical School aimed at challenging the conventional wisdom that the secrets of our genes are best kept to ourselves. The goal of the project is to speed medical research by dispensing with the elaborate precautions traditionally taken to protect the privacy of human subjects."

Comments

Re:I'd do this in a second

[Swift Kick]

It's not just about the medical aspect of it, you know. It's amazing what you can do with someone's information when they're freely giving it to you.

In a legal setting, you'd be surprised at the lengths that law enforcement agencies go through to collect DNA samples from individuals who may not want to cooperate with them. The old "Would you like some coffee, soda, smoke" bit comes to mind when you want to collect DNA from a suspect.

Something like this stunt, while great from a PR perspective, just simply makes it possible for insurance companies to deny them coverage in the future, allows law enforcement agencies to add their genetic profiles to their databases, etc, and they can't argue against it with the 'invasion of privacy' line. They volunteered it themselves.