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Apple's Plans For Your DNA
An anonymous reader writes: MIT's Technology Review breaks news that Apple is working with scientists to create apps that collect and evaluate users' DNA. "The apps are based on ResearchKit, a software platform Apple introduced in March that helps hospitals or scientists run medical studies on iPhones by collecting data from the devices' sensors or through surveys." A source says Apple's plan is to enable users to easily share their DNA information with medical workers and researchers performing studies. "To join one of the studies, a person would agree to have a gene test carried out—for instance, by returning a "spit kit" to a laboratory approved by Apple. The first such labs are said to be the advanced gene-sequencing centers operated by UCSF and Mount Sinai."
I give out my DNA all the time. As long as I don't have to pay child support, I am not concerned.
The guy with a mac.com email address nay-saying the cautious. Funny.
Sure, until insurance companies and governments start demanding access to it.
You don't need to be much of a conspiracy nut to realize the potential for privacy invasion and abuse of this data is absolutely staggering.
There simply are way too few legal controls on how this stuff is used to safely make it as commonplace as that.
Essentially, corporations and the government will have massive databases of the DNA of pretty much everybody ... and it will be used to deny you service, in criminal proceedings because they can demand it, and who knows what else.
DNA samples on an iPhone is a hell of a way to get the fully distopian future and Big Brother .. because you can bet your ass that secret warrants will be used to force companies to hand this stuff over and then have it collated into one big giant database.
I don't care if it's Apple, Microsoft, Google, or anybody else ... this is a creepy idea which will have enormous implications to society.
Lost at C:>. Found at C.
They aren't taking the DNA sample FROM the iPhone. You are mailing a sample of DNA to some lab which will link your SNP profile with your iTunes ID number.
Now, think of this for a minute. The ability to associate SNPs with buying proclivities. An "Apple gene", if you will.
Now folks, this is a marketing executives wet dream complete with hookers and blow.
Faster! Faster! Faster would be better!
Oh, man, that would make for an awesome dating app! Swipe right, and it renders your potential children.
1) The potential for abuse and discrimination in employment and insurance is immense. Good luck proving that you were discriminated against. It is really hard to prove biases and judgments based on stereotypes. The GINA Act that the Americans seem to think will protect them, is full of loop holes. For example, GINA does not cover life insurance, auto insurance and a few other types. It only covers health insurance. Good luck proving discrimination even in case of the health insurance.
2) I see that most common people (even the otherwise smart ones not trained in genetics) seem to have a lot of trouble understanding the nature of genetic data, the interactions of variations, and its multiple functional interpretations. If a child in school is found out to have a SNP that according to even an unvalidated/dubious study, renders a 'proclivity to aggression', or 'a tendency to depression', or 'lowers learning abilities by x%', he/she will be discriminated against. Doesn't matter if he has ten other redeeming SNPs that nullify the effect, or even makes it better. Doesn't matter that there are complex epigenetic, metabolic and even microbiomic (from our gut microbes) interactions. There are unambiguous genotypes, but those are far and few compared to the vast ocean of genetic variation. And if a child has any supposed 'suicidal' variation, that's even more trouble for him.
As a society we are far away from being mature about genetic variation. Hell, we haven't even accepted our racial differences. Some day we will all grow up collectively to handle our diversity. Just like we have learned to ignore photos on facebook profiles. But with genetic data which is immutable throughout our lives, I don't see that day being anywhere near.
I have seen a couple of pompous types at genomics conferences who were bragging that they put up their data and their kids' data online. It's just stupid. Even apple, with all their supposed stress on security and privacy, I cannot trust. I say this as an iPhone and iPad user.