And now he has all the hassle of scrubbing that data from police systems. Well, I'm not sure if you can in NZ, but in the UK when this sort of thing happens you can get your DNA and fingerprints removed from the database with some effort.
There is some research that shows that people suffering from CFS have faulty mitochondria. That explains why they both feel tired and experience aching - their mitochondria are not delivering the energy their muscles need and they feel like they did too much exercise.
Exactly why they fail in that way and what, if anything, can be done to fix it isn't known. There has been some success with related conditions involving stuff like an immune system reboot (basically chemo, you kill your immune system and grow a new one that isn't broken) but there is no research into how it might help people with CFS, so it's all just desperate people paying for it themselves and no control at all.
There is the commercial aspect too. Monetizing social media tends to bring out the absolute worst, e.g. Lauren Southern made that "Great Replacement" conspiracy theory video and then the guy who murdered 50 people cites it in his manifesto and live-streams the whole thing to the same audience.
What we need is an open standard for this data. I should be able to buy any heart rate monitor and have it report data back, with manufacturers able to certify devices to agreed standards.
There isn't anything particularly special about the Apple Watch heart rate monitor, other than the price tag. If we can make this more affordable and accessible (i.e. no Apple lock-in) it could be a great tool that a lot of people could benefit from.
I think part of it is just that in maybe 7 out of 10 cases advice like "get more exercise" or "get some bed rest" appears to work because the person doesn't come back with the same complaint.
That's why there now has to be a rule that if someone comes in with chest t pain they MUST be checked for heart problems, because too many doctors were fobbing them off and then thinking they had done well when in fact they didn't come back because they were dead or had a severe stroke.
Unfortunately this is very much where we are at with CFS - lots of people saying things worked for them, but very little scientific evidence to back any of it up. I'm not saying it didn't work, merely that none of this stuff is ever done in controlled conditions so for example switching to a vegan diet was likely accompanied by other lifestyle changes and of course greater experience at managing the condition.
The other problem is that the few proven treatments are only partially effective and only for some people. and are often quite drastic. For example graded exercise therapy isn't something you can easily do while also working full time.
You have my sincere sympathies. I have found that management techniques work the best, learning to recognize when the cliff edge is approaching and having the confidence and strength to say "stop".
While I wouldn't defend this behaviour it's important to understand why even just suggesting that it is a psychological problem can be a real problem for people suffering from CFS.
If anyone puts forward evidence of it being a psychological condition then some doctors and even non-doctors will latch on to it. That stops people suffering from it getting the treatment they need, because it's cheaper to fob them off with some talking therapy (which they often have to pay for themselves in the UK) than say graded exercise therapy or making adaptations for them.
It even affects things like claiming benefits for their disability or getting their employer to make reasonable adaptations for them. It's very unfortunate that if someone loses a leg they get far more sympathy than someone who has a mental illness, but that's the world we live in.
This is a real problem. Mental health is an issue for many people with CFS, because feeling like shit all day every day tends to run you down a bit. But it's also a problem when the very very limited amount of money and effort available to research CFS is diverted away from addressing the physical causes. What is really needed is more money, but it's a fairly rare condition and you get the impression that half the doctors you talk to don't think it's real.
Seems like a better approach would be to replace systemd with something better. Make fork it, maybe start from scratch. Replace the existing functionality to the point where most stuff works, start adding support for the new system to apps.
If it really is better it should quickly gain support and replace systemd.
I actually have this condition and was involved with the community a little bit.
The problem is that for years it was written off as a purely psychological problem. It used to be called "yuppie flu" because it often affected people with high stress jobs. It was often near impossible to get doctors to take you seriously or get any treatment because they believed it to be physiological.
In addition there is no test for it. It's not well understood, all you can do is rule everything else out and CFS is the only thing left that fits the symptoms.
For that reason there are some people who spent literally decades of their lives suffering, in pain, miserable and fighting against doctors who wouldn't believe them or accused them of not trying the psychological treatments hard enough. There are a also a lot of snake oil cures and an endless stream of people asking if you have just tried getting more sleep or doing some exercise or changing your diet. Fortunately my doctors were quite good but even I'm fed up of the amateurs.
It doesn't excuse this kind of behaviour but it has created a somewhat toxic environment that both sides need to work at fixing.
Says the guy whose signature claims "Taking guns away from the 99% gives the 1% 100% of the power", despite the fact that the country where the 995 have guns is also the one where the 1% have the most power.
Between that and having to resort to bizarre Star Wars memes, satire really is dead.
Seems fairly low risk really. It's only a mile long, the tech is old and well established. I kinda wonder why Musk is even interested... Maybe as a way to refine a few tunnel building techniques at his startup.
Automation vastly improved the lives of people who were previously toiling manually outdoors all day all year round, for example. At least, eventually. There was a difficult transition for them.
Actually yeah, it would be great if they stopped colour coding stuff for girls pink... But the real issue here is that gender equality leads to fewer children. Women in control of their fertility and educated will have fewer children, which is good for the climate.
Doesn't sound unreasonable. Americans consume a lot more than those in Europe but have a similar or lower quality of life, and much of Europe could actually do a lot better.
No, it will say something like "This photo originates from AFP" with a link to their original post. It's then up to you to decide if you trust AFP or Infowars or whatever.
It's a very clever idea because it's not commenting on the accuracy or truthfulness of the image at all, merely telling you where it originates from.
"I like being ignorant. I resent anyone trying to make useful information easier for me to find."
"Calorie counts on menus, the green light at a crossing, the safety information on medicine. All this is just nanny corporations trying to brainwash me, and I don't like it."
"However, additional video footage has provided further details of the incident, while student Nick Sandmann has denied mocking Mr Phillips."
""I did not make any hand gestures or aggressive moves," he said. "I believed that by remaining motionless and calm, I was helping to diffuse [sic] the situation.""
Weren't you the one complaining, after the 2016 election, that wikileaks only spilled (truthful) dirt on HRC and none on Trump, therefore they were biased?
It won't help... But if they ever do make it work, they have realized that they need significantly more computing power than is available in the current system.
It's impossible to ever improve any government infrastructure because it's automatically pork for someone. The government should therefore keep using hand-me-down TRS-80s for all its computing needs, to avoiding giving any pork to Dell and HP.
Actually what wrong with an abacus? They can collect stones for free from the side of the pork road and just make-do without the frame.
It's wrong because it's arse about face, as the Australians would say.
Is it the case that countries deploying renewable energy see costs go up, or is it the case that countries with expensive electricity are the first were renewables are cheaper than the alternatives?
If a country has to import a lot of coal, or subsidise a lot of nuclear, or even rely on oil for electricity, then it's going to be one of the first to switch to renewable energy which will be cheaper. As the costs for renewables come down other countries that are not properly accounting for their true energy costs will reach the point where wind and PV are cheaper too.
And now he has all the hassle of scrubbing that data from police systems. Well, I'm not sure if you can in NZ, but in the UK when this sort of thing happens you can get your DNA and fingerprints removed from the database with some effort.
There is some research that shows that people suffering from CFS have faulty mitochondria. That explains why they both feel tired and experience aching - their mitochondria are not delivering the energy their muscles need and they feel like they did too much exercise.
Exactly why they fail in that way and what, if anything, can be done to fix it isn't known. There has been some success with related conditions involving stuff like an immune system reboot (basically chemo, you kill your immune system and grow a new one that isn't broken) but there is no research into how it might help people with CFS, so it's all just desperate people paying for it themselves and no control at all.
There is the commercial aspect too. Monetizing social media tends to bring out the absolute worst, e.g. Lauren Southern made that "Great Replacement" conspiracy theory video and then the guy who murdered 50 people cites it in his manifesto and live-streams the whole thing to the same audience.
What we need is an open standard for this data. I should be able to buy any heart rate monitor and have it report data back, with manufacturers able to certify devices to agreed standards.
There isn't anything particularly special about the Apple Watch heart rate monitor, other than the price tag. If we can make this more affordable and accessible (i.e. no Apple lock-in) it could be a great tool that a lot of people could benefit from.
I think part of it is just that in maybe 7 out of 10 cases advice like "get more exercise" or "get some bed rest" appears to work because the person doesn't come back with the same complaint.
That's why there now has to be a rule that if someone comes in with chest t pain they MUST be checked for heart problems, because too many doctors were fobbing them off and then thinking they had done well when in fact they didn't come back because they were dead or had a severe stroke.
Unfortunately this is very much where we are at with CFS - lots of people saying things worked for them, but very little scientific evidence to back any of it up. I'm not saying it didn't work, merely that none of this stuff is ever done in controlled conditions so for example switching to a vegan diet was likely accompanied by other lifestyle changes and of course greater experience at managing the condition.
The other problem is that the few proven treatments are only partially effective and only for some people. and are often quite drastic. For example graded exercise therapy isn't something you can easily do while also working full time.
You have my sincere sympathies. I have found that management techniques work the best, learning to recognize when the cliff edge is approaching and having the confidence and strength to say "stop".
While I wouldn't defend this behaviour it's important to understand why even just suggesting that it is a psychological problem can be a real problem for people suffering from CFS.
If anyone puts forward evidence of it being a psychological condition then some doctors and even non-doctors will latch on to it. That stops people suffering from it getting the treatment they need, because it's cheaper to fob them off with some talking therapy (which they often have to pay for themselves in the UK) than say graded exercise therapy or making adaptations for them.
It even affects things like claiming benefits for their disability or getting their employer to make reasonable adaptations for them. It's very unfortunate that if someone loses a leg they get far more sympathy than someone who has a mental illness, but that's the world we live in.
This is a real problem. Mental health is an issue for many people with CFS, because feeling like shit all day every day tends to run you down a bit. But it's also a problem when the very very limited amount of money and effort available to research CFS is diverted away from addressing the physical causes. What is really needed is more money, but it's a fairly rare condition and you get the impression that half the doctors you talk to don't think it's real.
Seems like a better approach would be to replace systemd with something better. Make fork it, maybe start from scratch. Replace the existing functionality to the point where most stuff works, start adding support for the new system to apps.
If it really is better it should quickly gain support and replace systemd.
I actually have this condition and was involved with the community a little bit.
The problem is that for years it was written off as a purely psychological problem. It used to be called "yuppie flu" because it often affected people with high stress jobs. It was often near impossible to get doctors to take you seriously or get any treatment because they believed it to be physiological.
In addition there is no test for it. It's not well understood, all you can do is rule everything else out and CFS is the only thing left that fits the symptoms.
For that reason there are some people who spent literally decades of their lives suffering, in pain, miserable and fighting against doctors who wouldn't believe them or accused them of not trying the psychological treatments hard enough. There are a also a lot of snake oil cures and an endless stream of people asking if you have just tried getting more sleep or doing some exercise or changing your diet. Fortunately my doctors were quite good but even I'm fed up of the amateurs.
It doesn't excuse this kind of behaviour but it has created a somewhat toxic environment that both sides need to work at fixing.
Quite inaccurate, in fact the Jews in the 1930s were armed and it didn't really help them.
https://youtu.be/gfHXJRqq-qo
Says the guy whose signature claims "Taking guns away from the 99% gives the 1% 100% of the power", despite the fact that the country where the 995 have guns is also the one where the 1% have the most power.
Between that and having to resort to bizarre Star Wars memes, satire really is dead.
This thing is only a mile long. It's basically what they have to shuttle people between airport terminals.
Seems fairly low risk really. It's only a mile long, the tech is old and well established. I kinda wonder why Musk is even interested... Maybe as a way to refine a few tunnel building techniques at his startup.
Automation vastly improved the lives of people who were previously toiling manually outdoors all day all year round, for example. At least, eventually. There was a difficult transition for them.
Actually yeah, it would be great if they stopped colour coding stuff for girls pink... But the real issue here is that gender equality leads to fewer children. Women in control of their fertility and educated will have fewer children, which is good for the climate.
Did you actually stop reading in the middle of that sentence because you were so offended by the first half of it?
Doesn't sound unreasonable. Americans consume a lot more than those in Europe but have a similar or lower quality of life, and much of Europe could actually do a lot better.
How is giving you extra information any kind of censorship?
Are you saying that knowing an image came from 4chan is censorship because it might cause people to doubt its authenticity?
Ignorance is strength, apparently.
No, it will say something like "This photo originates from AFP" with a link to their original post. It's then up to you to decide if you trust AFP or Infowars or whatever.
It's a very clever idea because it's not commenting on the accuracy or truthfulness of the image at all, merely telling you where it originates from.
"I like being ignorant. I resent anyone trying to make useful information easier for me to find."
"Calorie counts on menus, the green light at a crossing, the safety information on medicine. All this is just nanny corporations trying to brainwash me, and I don't like it."
Worthy of Infowars.
4th and 5th sentences of TFA:
"However, additional video footage has provided further details of the incident, while student Nick Sandmann has denied mocking Mr Phillips."
""I did not make any hand gestures or aggressive moves," he said. "I believed that by remaining motionless and calm, I was helping to diffuse [sic] the situation.""
Weren't you the one complaining, after the 2016 election, that wikileaks only spilled (truthful) dirt on HRC and none on Trump, therefore they were biased?
No, you have me confused with someone else.
It won't help... But if they ever do make it work, they have realized that they need significantly more computing power than is available in the current system.
It's impossible to ever improve any government infrastructure because it's automatically pork for someone. The government should therefore keep using hand-me-down TRS-80s for all its computing needs, to avoiding giving any pork to Dell and HP.
Actually what wrong with an abacus? They can collect stones for free from the side of the pork road and just make-do without the frame.
It's wrong because it's arse about face, as the Australians would say.
Is it the case that countries deploying renewable energy see costs go up, or is it the case that countries with expensive electricity are the first were renewables are cheaper than the alternatives?
If a country has to import a lot of coal, or subsidise a lot of nuclear, or even rely on oil for electricity, then it's going to be one of the first to switch to renewable energy which will be cheaper. As the costs for renewables come down other countries that are not properly accounting for their true energy costs will reach the point where wind and PV are cheaper too.