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Neural Feedback Training as Therapy for ADHD?

jamesh asks: "I asked Slashdot (anonymously) a while back about my daughter, who has been diagnosed with ADHD. The Ritalin has made a lot of difference but things are still not quite right, and she has developed various vocal tics (grunting, odd little noises, words and so forth... think Tourette's Syndrome, only not nearly as bad), which is one of the side effects of stimulant medication. She's now a lot less of an outcast and appears able to better interact with other kids, but we're still looking at alternate treatments. It may be the trendy new thing, but we've now started down the road of neural feedback therapy. Does anyone out there have any experience in this treatment? First hand 'I've tried it once and it changed/ruined my life' anecdotes would be great, but if you have a child, friend or acquaintance who has been through this treatment, it would be really useful to hear about their experiences." We also discussed ADHD treatments in another related Ask Slashdot but I don't see any mention of such a therapy in that discussion. Has anyone heard of studies or reports on patients of Neural Feedback Therapy?

"If you haven't heard of it, the idea is that by attaching sensors to the head, brainwaves can be measured, and by providing visual feedback, you can actually train your brain to regulate its activity. An ADHD person supposedly has a brain which isn't very good at keeping itself in 'concentration' mode. In a child, the feedback takes the form of a game or in the case of an infant, a pleasing pattern on the screen (an infant would probably be treated for sleep disorders, not ADHD, in case you were wondering). When the brainwaves are in the 'right' state, the game proceeds or the patterns get prettier. When the brainwaves are erratic, it all slows down.

Because it is a trendy new thing, it's been put forward as a possible treatment for many other things including sleeplessness, epilepsy and other disorders, but one of the better successes has been in the treatment of ADHD.

The whole thing sounds quite plausible, but it is also quite expensive. All of the stuff I've read has been either from the suppliers of the treatment, or from people trying to discredit it."

7 of 864 comments (clear)

  1. My experience... by Peyna · · Score: 4, Interesting

    My parents adopted a young boy who was diagnosed with ADHD and was taking Ritalin (which then caused severe Tourette's like symptoms, so they diagnosed him with Tourette's and gave him drugs for that.)

    As soon as the adoption was final, my parents had him taken off of all of the drugs, and while he still has behavioral problems, the Tourette's has all but gone away, and he is generally happier than he was before.

    Billions of people survived just fine with Ritalin, and I personally see no use for it in any situation.

    --
    What?
  2. Re:Not a disease by NanoGator · · Score: 4, Interesting

    "I always call attention to the fact that many of our greatest minds, a perfect example being Albert Einstein, would today have been diagnosed with ADD..."

    I agree with your point that ADD is not a disorder. Well, I should rephrase that, the diagnosis of ADD is probably faulty. There may be a disorder or condition where the human brain just cannot stay focused on something or another. I doubt, though, that a lot of the people diagnosed with it really have a neural wiring problem. Rather, the content is just not interesting.

    I find myself tuning out people at times. It's like they talk too slow. I've noticed this problem especially with the older generation. They feel they must talk in very precise terms and verbally illustrate their ideas. Problem is, I often get their point long before they've finished babbling. So I find myself drifting in and out of attentiveness with them.

    Honestly, I don't think this is a neural problem. I think it's an artifact of growing up in a generation where we're expected to understand stuff faster. So yes, I agree, 'treating' it would be a bad idea. Instead, I'd rather learn at the speed my mind will allow.

    --
    "Derp de derp."
  3. Not every ADHD sufferer agrees with this statement by MaineCoon · · Score: 5, Interesting

    I suffered from ADHD as a child as well, and believe I still do suffer from it in some form as an adult, although I have many of the problems under control through conditioning and strong willpower. I disagree very strongly with your statement that it is not a disease.

    I also do not believe those stimulants (none of which I take) are a hindrance. As a child, I was on ritalin, and I was still in the gifted and talented program. In Kindegarten, I had ADHD issues so severely, I was originally suspected to be suffering from a mild form of mental retardation (ADHD didn't cross their minds at the time). As a result of this suspicion, I was given an IQ test. I was discovered to have a high IQ (~145 range at the time in Kindegarten), which ruled out mental retardation, and brought up suspicion of ADHD.

    I couldn't sit still in class, I couldn't focus, I couldn't pay attention, I couldn't learn. What good is intelligence if one can't manage to focus long enough to learn how to read and write? What good is intelligence or brilliance without an educational foundation and the ability to focus and employ one's abilities?

    Ritalin was a godsend for myself and my parents - I could finally focus in class, and my mother wasn't being driven crazy by an overactive 5 year old. I was in the gifted and talented program in elementary school, and began reading material well beyond my grade level.

    Now, that is not to say I believe Ritalin is a wonder drug. I am merely stating my experience with it during my childhood. Misdiagnoses of ADHD IS a problem. Treatment of correct diagnoses is not.

    You can listen to what this person has to say, not treat your daughter, and put her school years at risk of being wasted time. Or you can seek treatment for your daughter.

    - MaineCoon

    --
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  4. People like you make my life more difficult by metalhed77 · · Score: 4, Interesting

    I was diagnosed with ADD in elementary school and have been on and off drugs at various points in my life. I will say that they most definitely DO make a difference in my life. I take adderall and I have a really rough time going to class without it. I'm less attentive and get far less out of the experience without meds. Upon taking an IQ test my score went up a full 30 points when drugged. That kind of thing has real world effects on my life.

    Is ADD overdiagnosed? It's probable given the lax screening practices I've heard of. I myself spent weeks being diagnosed at great expense and had to submit to a battery of tests. In response to another user in this thread posthumous diagnoses are considered speculative and not conclusive.

    I find it disconcerting that you have formulated your judgement without any real world evidence other than your own personal experience. I have a rough time dealing with people upon admittance of my ADD as a result. It's terrible when people suddenly percieve you as having an imaginary illness. For me life is more 'real' when I'm on Adderall. I can think clearly, have conversations without being distracted and am generally more productive. The only downside to being on Adderall is a bit of drymouth and sleep problems (which don't occur if you take it in the morning as I do). I have no symptoms of addiction, in fact I occasionally forget to take Adderall and usually choose not to on the weekends or for low key events. I can live without Adderall; but my life is just so much more fulfilling being able to use it.

    I implore you and everyone who reads this to take into consideration the seriousness of ADD for certain people, and ask that you not spread invalid, generalizing, anecdotal evidence about what is an important part of my life.

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    Photos.
  5. Re:Not a disease by Wolfstar · · Score: 5, Interesting

    Perhaps you ought to try alternatives to chemical therapy regimens before you discount them.

    I was diagnosed with Attention Deficit in the 4th Grade, and after that diagnosis, my teachers worked with me to accomodate the issue. I went from barely passing to very nearly acing my classes, without a change in class difficulty.

    Unfortunately for me, the information was lost in a move from one state to another, or never forwarded. I've been on chemical therapy in the past, and frankly, I got more comments about how the medication seemed to be working well after a week or two off of it than I did when I was on it. (This doesn't even BEGIN to mention the fact that someone with a tendency to absentmindedness is particularly unsuited to a regimen that requires they remember to take a drug to remember incidentals.)

    I have to agree with the previous poster. Anything that affects the better part of 20% of the world's population isn't properly classified as a disorder. Medicating us is not the answer. Working with us to make sure we adapt to the society that the other 80% have created is where we should be going. As it is, far too many kids get medicated these days because their parents don't want to take the time to raise them properly, and the prevalence of Ritalin for "hyperactivity" is one of the main causes of this.

    If parents and educators looked at this as a "Leadership Challenge", as the military would call it, and not a disease or flaw, then more people would be well-adjusted individuals without a need for prescription medications.

    --
    You thought that this sig was what you think that I thought you wanted me to think. I think.
  6. Re:Not a disease by T5 · · Score: 4, Interesting

    As the father of a son with ADHD, I have to disagree that ADHD is not a disorder and, therefore, should not be treated.

    A little background is in order here. I am absolutely certain that I am/was ADHD myself and that I made it through school because of the nicotine in the second-hand smoke (5 pack a day combined habit of my mother and father) at home. Nicotine, except for its highly addictive tendencies, is an wonderful stimulant. I hit college away from home and the smoke and I felt as if I was completely disoriented and unable to concentrate on anything - this from the high school valedictorian who had never struggled with any learning issues except for pensmanship (a clue that I have/had ADHD, as I was to discover 20 years later).

    My son was struggling to finish even simple assignments. I've watched him struggle for three hours to write five simple sentences! His grades were mediocre, far below what a child of his intelligence would be expected to score. The psychologist evaluated him as having a moderate case of ADHD and recommended Concerta (time-released Ritalin, essentially).

    I was as anti-drug therapy as you could imagine but decided to give it a trial run. Within a month, he was a new kid. His ability to concentrate allowed him to perform his homework with much more dedication and concentration. He had a fair amount of catching up to do, but over the last two years he's moved from a C student to all A's except one B (English, generally the most challenging for him) on his last two report cards (sixth grade).

    I would agree that there have been some very bright people who had ADHD and were never treated, your Einstein example, for instance. However, when ADHD begins to affect your ability to learn at an early age, given the requirements of the society in which we live dictate that some level of competency be achieved with basic intellectual skills, that the option of drug therapy, carefully monitored for progress and side-effects, be considered. I don't say this lightly. I can't emphasize how adamant I was that drugs were undesirable. I'd heard too many stories about Ritalin, its side-effects, and the dependency issues. But when the psychiatrist, a 30+ year veteran who himself has moderate ADHD and by his own admission no more than a 30 minute concentration span (!), presented me with a list of symptoms for adult ADHD, and I had nearly every one of them (!), I began to dig into why I did so well in K-12 school only to be so swamped in college. Well, I was on drug therapy of a sort in those early school years - nicotine. I suspect that this is why many people can't kick the habit; there's more than just an addiction issue here.

    I am sorry to hear of your subsequent methamphetamine dependency. I believe that is not an inevitable consequence, however, and that drug therapy can do wonders. But it is truly a two-edged sword.

  7. Re:Not a disease by mwa · · Score: 4, Interesting
    And here I sit without mod points..

    Instead a seeminly unrelated story. My father was a parapelegic (waist down paralysis) and in a wheelchair for 30 years from a broken back. He suffered horrendous pain for years. We lived in a small town. Small town doctor. Small town pharmacist. They new he was on pain medication, new what it was and if he asked for a refill, well, he must need it, so he got it. Hell, as I child I walked into the pharmacy and asked for it for him all the time and just got it.

    One day the pharmacist happened to actually read his refill history. He was taking enough on any given day to kill someone who'd never taken it before. Coincidentally, Dr. C. Norman Sheeley, author of "Occult Medicine can Save Your Life" and founder of the American Holistic Medical Association, was speaking at the local university. Dad went, and volunteered as a "test subject" for that very lecture. He was treated with accupuncture and completely, albeit temporarily relieved. (I'm talking 30+ years ago when acupuncture was as foreign to the west as open source is to Microsoft)

    So he started acupuncture treatements. It never worked again. He finally contacted Dr. Sheeley who invited him to his compound.

    Dr. Sheeley only took pain patients that everyone else had given up on. IIRC, the treatment period was 3 weeks, and required your spouse to attend if you where married. The program was simply "try everything" (well, except drugs - those had all been tried already). Acupuncture, faith healing, bio-feedback, massage, electro-stimulation, and I don't know what else. IIRC, he even had an African "witch-doctor" in occasionally. (I still have a pair of goofy, hand-made with parts from Radio-shack, dark goggles with lights inside that pulsate at alpha and theta frequencies. They will relax you completely or put you to sleep in just a few minutes. And I use them when I get migraines.)

    Bottom line -- Dad came back and never took another pain pill until he was on his death bed with cancer. The goggle thingy + bio-feedback + electro-stimulation was his cure. Other patients who where there at the same time had their cure.

    Sheeley's philosophy was "If it works, it works." So what if we can't explain it? The human physiology is extremely complex and the mind even more so. If we don't consider things just because we don't understand them then we are making a conscious decision to be bound by our own ignorance.

    His success rate, again on patients that "traditional" doctors had completely given up on, was over 80%.

    So, yeah. if the drugs work for you fine. If neural feedback works, fine. If stretching your left testicle over your right ear works, fine. If none of those do it for you, that doesn't mean they won't work for some one else.

    Except for the left testicle one. That only has around a 50% chance of working for everyone, and I don't recommend it anyway. It's really rough on your ear.