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Genetic Discrimination in the IT Workplace

MisterTut writes "In what could be a troubling trend, one employer- the Burlington Northern Santa Fe Railway -was found to have secretly run unproven genetic tests on workers suffering Carpal Tunnel Syndrome. The company was trying to prove that they were not culpable for cases of Carpal Tunnel Syndrome from which the employees were suffering. The ethical considerations of such testing, covert and illicit or not, are profound for those of us working in the IT industry."

27 of 556 comments (clear)

  1. And what if... by daveschroeder · · Score: 5, Insightful

    ...a company is not culpable for, say, Carpal Tunnel in a particular worker, because it ultimately is shown to have a genetic component, and the company has already taken reasonable, industry- and regulatory agency-accepted, good-faith steps to mitigate it, but can't be prevented with this type of work in this type of employee (except by taking extreme measures and/or changing the person's job completely)?

    That makes a lot of assumptions, but in that event, why would/should the employer be responsible? Should an employee have to pay worker's compensation claims for events that it is not primarily responsible; i.e., events that it has already taken steps to prevent? (Sure, you can argue "Well, Person X wouldn't have gotten Carpal Tunnel at all if they weren't in that job, even if they were genetically predisposed to it", assuming that is established at some point, for the sake of argument. But is the employer always, then, responsible? Under what conditions are they not responsible?)

    And further, especially for an at-will employer, why would it not want to avoid workers who won't be able to effectively perform certain tasks, or workers who statistically may become liabilities in the future? What is the source for the reasoning that everyone has a "right" to work, and to work for a particular employer, to those who believe that?

    I'm most certainly not saying employers should run secret genetic tests without employee consent. I'm also not making an argument that such testing, even with consent, should necessarily become commonplace. These are larger questions.

    And on another note, why is every trend always "troubling", every impact "profound"? I find it amusing that those who would, say, be fully in support of embryonic stem cell research, apparently throwing any ethical concerns to the wind, all of a sudden see "troubling" ethical implications for employers trying to use the same essential tools.

    Employers aren't always bad; aren't always in the wrong. You can make assertions that they might gravitate that way, and cite examples, but that doesn't automatically mean all employers' decisions are always wrong and worthy of suspicion, and all employees' decisions and actions are always right and worthy of protection. Note again that I am NOT defending Burlington Northern Santa Fe Railway's decision, or anything having to do with this specific case. I'm speaking in generalities here, and am honestly curious as to peoples' thoughts.

    1. Re:And what if... by Peyna · · Score: 3, Insightful

      And on another note, why is every trend always "troubling", every impact "profound"? I find it amusing that those who would, say, be fully in support of embryonic stem cell research, apparently throwing any ethical concerns to the wind, all of a sudden see "troubling" ethical implications for employers trying to use the same essential tools.

      Who are these "those who would"? I don't recall any information on the number of people who fully support all embryonic stem cell research also being troubled by employers engaging in the practices in this article.

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      What?
    2. Re:And what if... by Peyna · · Score: 4, Insightful

      I'm still waiting for evidence. It's just so popular to say that people on Slashdot are hypocrites without actually providing any evidence other than you remember from a past discussion a lot of comments advocating one point of view, and now in this discussion there are a lot of comments advocating another point of view.

      I'm kind of tired of comments like that.

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    3. Re:And what if... by 99BottlesOfBeerInMyF · · Score: 4, Insightful

      Employers aren't always bad; aren't always in the wrong. You can make assertions that they might gravitate that way, and cite examples, but that doesn't automatically mean all employers' decisions are always wrong and worthy of suspicion, and all employees' decisions and actions are always right and worthy of protection.

      Have you ever heard the phrase, "power corrupts?"

      Employers have a lot of power over a great many individuals. Employers get bigger and bigger, consolidating into fewer opportunities for work. It is at the point where a few major players control all opportunity to work in certain fields. Collective employment is only occasionally balanced by collective employees in the form of unions. Even when it is, power usually concentrates into a few hands within the unions and corruption and collaboration are commonplace.

      This leaves the average individual worker in a very precarious place. Individuals in general don't have the money, influence, or voice to fairly balance their interests with those of a large employer. Given all of the above, it is indeed troubling when an employer is shown to be abusing that power in a new way. When that power is abused in a way that invades the privacy of individuals and opens the door to even more prejudice (which already abounds) then it is profoundly troubling.

      ...employers trying to use the same essential tools.

      Tools are only a means to an end. I don't object to people owning firearms. I do object to people murdering innocent people with firearms. Those beliefs are not contradictory.

      I'm speaking in generalities here, and am honestly curious as to peoples' thoughts.

      In general employers are only interested in making the largest profit possible for themselves and sometimes for their shareholders. As powerful entities motivated solely or for a large part by greed and with no inherent interest in the welfare of their employees, they need to be watched carefully and regulated by the people to protect the people. Theoretically the government acts in the best interests of the people, but it has been shown time and again that large companies have significant influence over the government even when acting against the interests of the public.

      Basically, large companies have proven themselves untrustworthy (in general) and dangerous to the well being and rights of the individual. They have also been able to corrupt the government to the detriment of the individual. I'd say any behavior they show that is damaging to the individual is troubling, wouldn't you?

    4. Re:And what if... by GlassHeart · · Score: 3, Insightful
      why would it not want to avoid workers who won't be able to effectively perform certain tasks, or workers who statistically may become liabilities in the future?

      You mean like black people, who are statistically more likely to get pulled over when driving? Or perhaps like women, who are statistically more likely to become pregnant and cause downtime at work?

      The first observation might concern a trucking or taxi business more, while the second one concerns nearly every industry, but society forbids this sort of discrimination. Generally, we allow an employer to make decisions based on what the employee or applicant has done (prior arrests, bad credit, etc.), not what they are statistically likely to do in the future.

      Not all laws should be written for the maximum convenience of corporations. We require them to do all sorts of things, from cleaning up their toxic waste to giving a mother some time with her newborn baby without losing her job. As long as a significant portion of people with such genetic dispositions do not actually develop the illness or can be effectively treated, I expect discrimination to remain illegal.

  2. Life Imitates Art by Anonymous Coward · · Score: 3, Informative

    Sounds like Gattaca. So how much would it cost to run these "unproven genetic tests," I'd imagine it's quite expensive. Besides how much of it genetics and how much is just plain wear and tear, if I spent most of my life hunched over a keyboard typing or "playing racket ball" ... oh dammit. No genetic discrimination!

  3. dangerous by chez69 · · Score: 5, Funny

    when they find the slashdot reading gene, we are all screwed

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    1. Re:dangerous by JamesD_UK · · Score: 4, Funny
      slashdot reading gene

      It's okay. I've read that this gene is never passed on to a subsequent generation.

  4. Genetic Testing !Consent == Invasion of Privacy by TripMaster+Monkey · · Score: 4, Insightful
    I'm thinking that this issue should be fairly cut-and dry...genetic testing without properly obtained consent (or a lawfully obtained court order), should, and must, be considered an invasion of privacy.

    From TFA:
    In 2003 and again in this 2005 session, the U.S. Senate passed a bill to prohibit discrimination on the basis of genetic information with respect to health insurance and employment. That bill -- introduced by Sen. Olympia Snowe, R-Maine, but with co-sponsors including Sens. Maria Cantwell and Patty Murray, Democrats of Washington -- now awaits action in the U.S. House of Representatives. The legislation is supported by the Bush administration and if enacted into law would ensure that no one in America would lose their jobs or their health insurance because of a genetic test result.
    Granted, this legislation is certainly important, but it sidesteps the central issue: no one should have access to my genetic code without my permission or a warrant. Period. My company can't break into my house and inspect my personal belongings...what makes it OK for them to inspect my genome? Granted, if the above mentioned legislation passes, companies will not be able to overtly discriminate based on these findings...but all this really means is that if they want to get rid of an employee because of genetic considerations, they will just have to dream up some sort of pretense to remove the offending employee.

    Yes, I'm sure that if genetic testing of individuals without their consent were to be outlawed, some companies would continue doing it in secret, just as if discrimination was outlawed, some companies would circumvent the law as I outlined above. But the point remains valid: if outlawing discrimination based on genetic tests protects employees to some degree, then it folllows that outlawing the genetic testing of individuals without their consent in the first place would enhance that protection considerably.

    More importantly, if this issue isn't nipped in the bud firmly and immediately, we couold find ourselves on a slippery slope of truly brobdingnagian proportions. Imagine a world where you are under constant surveillance by law enforcement...not because you have a history of violent crime, but because you have a genetic predisposition to violence. You find it difficult to get a job because of your genetic predisposition to adult ADD, and you can't get health insurance because you are geneticlly predisposed to heart problems.

    A line in the sand must be drawn now, before Gattica becomes an uncomfortable reality.
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  5. This could backfire... by Kevin+Burtch · · Score: 4, Insightful


    If they find someone has a genetic flaw that means they are likely to develop CTS, wouldn't they be protected by the disabilities act?
    If so, the business would really have to accomodate them with an altered, and likely expensive, work environment.

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    1. Re:This could backfire... by techno-vampire · · Score: 4, Interesting

      Depending on what's needed to avoid problems, it might be cheaper to do the testing and provide the safer environment for those who need it. The testing is a one-time expense, and any different equipment is a capital expenditure; medical benefits for carpal can last for months, or even years. I have a friend who's been unable to work for over ten years now because she made the mistake of "working through the pain" of carpal, and will never be able to work for the rest of her life. Her last employer will be paying for that as long as she lives. I'm not faulting them, she could have complained about the pain sooner but chose not to. If she has a genetic predisposition and it were known, this would probably have been avoided because they wouldn't have given her the tasks (copying large numbers of pages of various files in a legal firm) that caused this.

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  6. Well duh by Anonymous Coward · · Score: 5, Funny

    What good is science if you don't use it for evil? There are too many goody-two-shoes scientists out there. Come on, more evil science please.

  7. Is this really a problem? by Blindman · · Score: 4, Insightful

    People are leaving genetic material all over the place all the time. From a practical standpoint this is like anything else that you discard, it doesn't belong to you any more. That being said, I wouldn't appreciate someone using my blood, sweat and tears (always available at work) for testing purposes, but what can I do?

    If I were being cloned that would be different. However, I don't think ethical rules cover any of these situations.

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    I don't practice what I preach because I'm not the kind of person that I'm preaching to.
    1. Re:Is this really a problem? by Abcd1234 · · Score: 3, Insightful

      First you say:

      People are leaving genetic material all over the place all the time. From a practical standpoint this is like anything else that you discard, it doesn't belong to you any more.

      Then you say:

      If I were being cloned that would be different.

      So, why is it different? You just threw the genetic material away, remember? If someone manages to clone you from it, what can you do?

  8. And this is a surprise...how? by HangingChad · · Score: 4, Insightful
    You all line up to pee in a bottle to prove a negative but are shocked at something like this? It's not really that much different. Proving you don't have some genetic condition isn't that much different than proving you don't do illegal drugs. If you don't have genetic defects there's nothing to hide, right?

    Once you open the door to proving negatives as accepted social policy, there's no real end in sight.

    Land of the free, home of the piss test.

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    That's our life, the big wheel of shit. - The Fat Man, Blue Tango Salvage
    1. Re:And this is a surprise...how? by mscnln · · Score: 4, Insightful

      I'm sorry, but there's a big difference between genetics, over which one has no control, and taking drugs, which is (at least certainly in the beginning) a voluntary action.

  9. Gattaca by mnemonic_ · · Score: 5, Funny

    Thanks for mentioning that movie. You are the first to suggest such a connection.

  10. Re:Life imitating art? by winkydink · · Score: 5, Funny

    Because you are heavily influenced by Hollywood, science fiction & pop culture and incapable of independent, creative thought?

    --

    "I'd rather be a lightning rod than a seismometer." -Ken Kesey

  11. No risk by jav1231 · · Score: 3, Insightful

    The problem is no one wants to assume risk. Shouldn't this be an insurance issue instead of a workman's comp issue? You have insurance companies that don't want any risk but yet want premiums. Part of the recipe for insurance is that you are paying them to assume a risk and they are betting on that risk not falling through. Further, they are making profit off your money via investment. In the case of employers, they are making these deposits on the chance that something does happen. I understand that you don't want to lose at poker, but you're playing the game. I realize this analogy breaks down at some point but isn't it equally unethical to collect insurance premiums from people who have predispositions to ANYTHING? Insurance companies are largely evil entities and unfortunately, necessary evils. My opinion, FWIW.

  12. It's essentially a "pre-existing condition" by PIPBoy3000 · · Score: 5, Insightful

    Insurance companies and businesses have long flip flopped on the concept of "pre-existing conditions". Those are cases where a person is hired who has medical conditions that are potentially expensive to treat (e.g. diabetes, cancer, AIDS, etc.).

    It used to be that insurers tried hard not to pay for conditions that existed before the person came onto the plan. As you might expect, it was hugely unpopular (insurance companies really do listen to people) as well as expensive to administer (it's expensive to decide what's pre-existing and what isn't).

    I see this as the same way. When you hire a bunch of people, they'll have a range of health issues, some obvious and some hidden. Sure it's possible to try and figure out who might get what conditions, but it's not worth it. When dealing with millions of people being insured, it's typically easier to simply manage the overall risk and adjust prices accordingly. Micromanaging at that level is expensive and wasteful.

  13. The difference is informed consent by ChipMonk · · Score: 4, Insightful

    Not all employers require drug screening. My employer right now has never required me to pee in a bottle. Furthermore, if they tell me tomorrow that I had to, I would have the option of walking away.

    The case in question had neither information nor consent. The nature of the test isn't in question; the means used to obtain the testing sample is the problem. In that respect, it is very different from typical drug screening.

  14. Re:morality vs. science: equality vs. inequality by 99BottlesOfBeerInMyF · · Score: 4, Informative

    On the one hand we espouse the notion that "all people are created equal." It's an excellent core belief for the basis for civilization, government, law, etc. Yet science makes a mockery of this belief because we are not geneticaly equal and those differences impact outcomes that have legal, governmental, and social implications.

    It does not take science and genetics to show that all men are not created equal in the sense that you are using the term. Even back in the 1700 some people were born bigger, stronger, smarter, prettier, etc. than others. Everyone has strengths and weaknesses, and inherent advantages and disadvantages due to circumstance.

    The phrase, "all men are created equal" is followed by the phrase, "that they are endowed by their Creator with certain unalienable Rights." It then goes on to enumerate some of those rights. Men are created equal in that they are all deserving of life, liberty, and the pursuit of happiness, not in that they are all equally strong, smart, or resistant to cancer.

  15. End discrimination now! by Locke2005 · · Score: 4, Funny

    While we're at it, I hear that strip clubs discriminate against disabled dancers when hiring, and supermodels discriminate against geeks when selecting sex partners! This blantant discrimination must end! I say we demand legislation now to mandate quotas for supermodels dating slashdot readers!

    --
    I've abandoned my search for truth; now I'm just looking for some useful delusions.
  16. Act now, before we lose the opportunity to act. by jevvim · · Score: 5, Insightful
    How much have you given up to work at your present employer?

    Did you agree to random drug tests, at their whim? Perhaps they wanted to see your credit report?

    In my experience, companies are constantly trying to gain more concessions from their employees, often without granting anything to the employee in exchange.

    It's natural, then, that they're moving on to these genetic test - at least from the company's perspective. Employees, however, are balking at this brand new intrusion for now. But how long until it's just like that drug test that everyone else seems to be OK with, simply because they aren't looking for you?

    If you don't speak out for others, no one will be left to speak out for you. This is why Unions are still a good thing - it allows workers to speak up against policies such as this while protecting themselves from direct retribution at work, since the company doesn't know who, exactly, started the complaint.

  17. BN-SF sucks anyway - this isn't a surprise by Just+Some+Guy · · Score: 5, Informative
    My mom worked at a smaller railroad that got swallowed up by BN. She rose through the ranks to become Wire Chief (think electrical engineering supervisor), the first and probably only female in that job at that railroad. As she grew closer to retirement, though, her new job assignments become increasingly horrific. For example, her last job included cleaning toilets in the crew shanties in the railyard.

    Was it because she was a bad employee? Nope - her work record was spotless and her evaluations were impeccable. No, it was because BN-SF went out of their way to try to make people quit before they reached retirement. They did this to everyone in hopes of avoiding paying those hard-earned pensions.

    Therefore, it doesn't surprise me at all to hear that they're trying to screw over yet another set of employees. That's been their SOP for years, so I can't imagine they'd turn tail now.

    By the way, if you want an example of a completely incompetent union, there you have it. I'm not pro-union to begin with, but I'd expect one to at least try to help its members.

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    Dewey, what part of this looks like authorities should be involved?
  18. I have a "pre-existing condition" by crovira · · Score: 5, Interesting

    As an older worker, I have a pre-existing condition, multiple sclerosis.

    My mobility is affected and I certainly can't dance anymore. (The cane was getting to be a hazard to the others on the dance floor. I know because I danced at a XMas party a couple or jobs ago. :-)

    Trouble is that I am probably working on the last job I will ever be able to get. I'm not that old, 50, so what am I supposed to do what that job 'goes away' as all consulting tech jobs that I ever worked on over the past 25 years have done.

    I'm too handicapped and I may be too old for retraining, despite the Associate's in Business that I am currently getting (at week's end thank you.)

    I am just getting tossed out. Its nothing personal but that's just the way it goes. The software I was working on (a CRM system written in Smalltalk,) has been end-of-lifed.

    What am I supposed to do for money? I don't want a free ride but odds are that, if I wouldn't hire someone disabled like me, nobody else will either.

    I'm not dead yet, but some days, I sort of get the feeling that everybody else wishes that I was. so they wouldn't have to be bothered.

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  19. Re:suggestions for taking charge of your health by Shihar · · Score: 3, Interesting

    I would suggest taking alternative methods of healing very carefully. A friend of mine tried some alternative methods of dealing with his bi-polar disorder. He was on drugs that were kinda-sorta doing the job. They kept him stable and relatively happy, but they had some unpleasant side effects, namely weight gain and very bad acne. So, he decided to try an alternative method of dealing with it. He saw a glowing article on a certain vitamin therapy, started taking massive quantities of vitamins, dropped off his drugs, and eventually tried to kill himself.

    The problem with 'alternative' medicines is that too few of the alternatives have been properly studied, they have been debunked, were studied by biased groups, or were studied using poor methods. Conventional medicine, while rarely offering up magic bullets, does a pretty good job telling you the sort of odds you are walking into. Alternative medicines on the other hand tend to be like setting off through a mine field. You might get something really that works, but you also might get some new age hippie bullshit.

    So, if you have exhausted what conventional medicine has to offer, it isn't bad to branch out and explore a little. That said, I would be damn weary about dropping off drugs. The drugs might not be improving things, but they might be slowing down the progression of your illness or holding it steady. Further, you can try some alternatives without dropping off your drugs. There isn't a reason in the world why you have to drop off your drugs while you are trying acupuncture, meditation, or an improved diet.