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Social Security Administration Launches E-Health Info Exchange

Lucas123 writes "In what could be the start of a national health information exchange system, the Social Security Administration became the first federal agency to go live with a public-private electronic health records information exchange that will cut wait time for 2.6 million Americans who apply for benefits each year by weeks or months. The electronic exchange runs on a database operated by a non-profit organization in Virginia and open-source software deployed at the Social Security Administration. 'The goal of the NHIN effort is to enable secure access to health care data and real-time information sharing among physicians, patients, hospitals, laboratories, pharmacies and federal agencies ... regardless of location or the applications that are being used.'"

32 of 114 comments (clear)

  1. Miscategory? by perlchild · · Score: 2, Informative

    This should be in politics, not science.

  2. Do not want by Bob+the+Super+Hamste · · Score: 3, Insightful

    The thing that worries me is the amount of information sharing, it seems that this is just ripe for abuse, data theft, data loss, and misinformation. I would love it if just my doctor had access to my medical records instead of everyone and their brother.

    --
    Time to offend someone
    1. Re:Do not want by internerdj · · Score: 4, Interesting

      I've said before I'm mixed on this one. I worry about abuse but I also wouldn't mind the hospital having my medical history/allergy information if I'm rushed in incapacitated. I also wouldn't mind having to not fill out the same form every time I visit any doctor.

    2. Re:Do not want by jasmusic · · Score: 3, Insightful

      Yeah we would all love it but things never quite seem to work out that way. This shit ought never to have been created at the federal level.

    3. Re:Do not want by TubeSteak · · Score: 2, Insightful

      it seems that this is just ripe for abuse, data theft, data loss, and misinformation.

      Doctors and Hospitals don't exactly have the most secure networks,
      which effectively guarantees that botnets will have access to their L:P's.

      In other words, if it is accessible over the internet, just assume that it is public.

      --
      [Fuck Beta]
      o0t!
    4. Re:Do not want by GigsVT · · Score: 3, Insightful

      There are other ways to accomplish that without a big centralized database that everyone has access to.

      The insurance companies are going to love this.

      --
      I've had enough abrasive sigs. Kittens are cute and fuzzy.
    5. Re:Do not want by Shrike82 · · Score: 3, Insightful

      Provided sufficiently strong security is used then I don't see how this is any different from online banking or credit card purchases through online stores, except all that's being stored here is medical information. I do take your point that data duplicated online is exposed to greater risk, but someone breaking into the system and seeing that dates of my vaccinations and that embarrasing STD is still a better prospect for me than having my online banking details stolen.

      --
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    6. Re:Do not want by StevenMaurer · · Score: 4, Interesting

      A few comments on this:

      1] Given the way records in private medical databases are protected (or rather, not protected), this system will at least have the sunshine of many eyes making sure its security, data loss prevention, and procedures to correct misinformation, is all up to date.

      2] Invasion of medical privacy is only a major concern in the US because of the presently legal practice of insurance companies cherry-picking only the healthiest of people to insure. If the US had a national health care system like every other major first world nation, there would be little or no economic incentive to go sneaking peeks at people's medical records. So fix that instead.

      3] This will both increase the quality and decrease the price of medical care. It is a step up.

      4] Back to my point #2. This is one of the many kinds of efficiencies that are not dangerous only when you have a national medical plan. So long as we have economic incentives for doing bad things, those things will happen. Oh, but public-schools=socialism! libraries=socialism! public-health-care=socialism! It seems like the only thing that isn't socialism is covering the bad bets of right wing gamblers on Wall Street. All trillion dollars of it.

    7. Re:Do not want by Improv · · Score: 4, Insightful

      States would probably do a worse job of it, and we'd probably end up with 50 systems that don't talk to each other (well, actually, more likely 14 done, 5 that never finished implementation, 20 stalled in legislature, ...).

      It's most useful if it's seamless across the nation so if for some reason I'm injured in another state my information will be available with no fuss.

      --
      For every problem, there is at least one solution that is simple, neat, and wrong.
    8. Re:Do not want by PotatoFarmer · · Score: 4, Informative

      This accurately describes how states currently handle immunization registries. The CDC sets up federal reporting guidelines, but each state has its own registry implementation. This leads to all sorts of fun when trying to do stuff like transfer records when people relocate to another state, or tracking disease infection rates across state lines.

      I'm not saying that having a national medical database is necessarily a good thing, but it's immeasurably better than having individual state repositories.

    9. Re:Do not want by VE3OGG · · Score: 4, Informative

      While I agree with your sentiment about doctors (after all, their expertise is medical (chemistry, bio), not technical). However, I am betting that your comment about hospital info security is borne from not having worked in such an environment.

      Having run the IT side of a hospital's foundation, and having to interface with their network security, I can say that most definitely they are very competent with data security. Now mind you, this is in Canada -- but I doubt the competent sys admins are only born north of the border.

      Hospitals (and the several sys admins I have known that run them) are very much on top of their game -- even the the point of being a pain in the ass to work with (which is both good and bad). Many doctors and nurses absolutely hated the arcane network security protocols in place, but they worked, and the hospital network maintained triple-9 uptime.

      Take my anecdotal evidence with a grain of salt, but from my experience, hospital networks are QUITE secure.

    10. Re:Do not want by JCSoRocks · · Score: 3, Insightful

      Then those 99% of people can suffer the consequences. It's no different than asking you if you're on any new meds when you go in to see the doctor. If you say "no" and then they prescribe you something that mixes horribly with what you're on, it's your own fault for not saying anything.

      The potential for abuse is far too high here. I'm sure that not all medical staff are happy with their current pay. Why not supplement it with some nice data grabbing? This also creates one very big target for attack. The more people's data you have in one place the more likely it is that someone's going to try and get it.

      The GPs mention of the potential for abuse by insurance companies is right on. Look at credit - how easy is it to fix your credit score if it's been all jacked up? It's not. I can't wait for "health scores" that are similarly disastrous. That'll be all kinds of fun. :-/

      --
      You are using English. Please learn the difference between loose and lose; they're, there, and their; your and you're.
    11. Re:Do not want by Jah-Wren+Ryel · · Score: 2, Interesting

      I'm not saying that having a national medical database is necessarily a good thing, but it's immeasurably better than having individual state repositories.

      I tend to agree, but I think you have a different definition of 'immeasurably' - my definition is "not measurable" because there ain't nothing there.
      They say Mussolini made the trains run on time.
      I think that this sort of information does not need to be networked. Sure standardization of formats is good, but networking is not. Put it on a usb fob that hangs off your keyring and password protect it.

      Based on gut instinct alone, I believe that the number of people who will be unconscious in an emergency situation and without any family member available to provide the password for the fob would be at least an order of magnitude smaller, probably 2 orders, than the number of people who will suffer ill consequences from the abuse of their private data via illegitimate network access. All it will take is one big swipe of an entire hospital's worth of patient history for a decade or so to bring the numbers into line with my gut here.

      --
      When information is power, privacy is freedom.
    12. Re:Do not want by glueball · · Score: 2, Insightful

      I understand the "if there's an emergency" argument but a country-wide health care information system would not solve that issue effectively.

      There are very few (very, very few) true health emergencies where a physician spending time reading notes will be more helpful than hands on treatment. I am defining an emergency as "you'll be dead in 10 minutes."

      Per your example: Allergy attack? There is a standard treatment. Allergy attack after life-saving procedure? There is a protocol.

      MI/arrhythmia? There is a protocol. Would it be nice to know if there was a relevant history? It might. But the first line treatment to stabilize will not likely change.

      Stroke? There is a protocol.

      Overdose? There is a protocol.

      If you have multiple stab wounds to the head, your history doesn't matter. And if you have multiple stab wounds to the head, they won't make you fill out forms.

      I always thought forms were put in place to make sure you really wanted to be there. I mean, if you can't be bothered to fill out your name and check 10 boxes, should someone else be bothered to pick up a tab for the visit?

    13. Re:Do not want by Cro+Magnon · · Score: 2, Insightful

      But if they really want to do the job right, they'll shoot you AND change your blood type in case you live long enough to get a transfusion.

      --
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  3. Sounds good to me by Improv · · Score: 2, Insightful

    I realise that a lot of geeks care a lot more about their privacy than I do, and this might be bad news for them, but personally I would love not to have those endless forms to fill out every time I see a new doctor, and it would be very handy if I had access to all my medical records through a web browser.

    The difference between having this and not having this is akin to investments/banks that provide web interfaces and those that don't - I have one credit union account that's not on the web and it's kind of irritating that I have to physically show up (or wait for a statement) to check the balance on it. All the rest are conveniently available to me whenever I want to bother logging in.

    --
    For every problem, there is at least one solution that is simple, neat, and wrong.
    1. Re:Sounds good to me by uberdilligaff · · Score: 2, Insightful

      The problem is that you only see the benefits. Others point out the prospect for insecure systems and operators being breached, and your information getting loose -- that's a concern. But I worry much more about the the absolutely certain demand that will come from the insurance companies to get wholesale access to all patient data from any physician who 'participates' with the insurer. The financial incentives will make it impossible for doctors to refuse. The result will be major increases in insurance companies' ability to identify and correlate all sorts of pre-existing conditions, and selectively deny coverage on a scale that has never been seen before. Be careful what you wish for....

      --
      Against stupidity, the Gods themselves contend in vain. --Friederich Schiller
    2. Re:Sounds good to me by keithjr · · Score: 2, Insightful

      You raise valid points regarding the problems of giving the insurance industry too much data to play with. However, I'm reluctant to start restricting our ability to share possibly life-saving data, in an efficient fashion, out of fear of our broken health insurance system.

  4. Current disability queue times by greg1104 · · Score: 4, Informative

    When you file for long-term disability with Social Security, they need to grab all of the recent medical records from your primary physician and all the specialists you're seeing. This process takes a long time, generates a ton of redundant paperwork (many dupes of lab work and such that went to multiple places), and isn't very accurate. I went through this a few years ago with my mother. One of the physicians didn't respond in time to the request they sent for more information, stuff that was pretty critical. We believe that was one of the factors causing her initial claim and first appeal to be denied.

    That was over four years ago; her case is just coming up for the final review now. That's how big the backlog is here, and medical records processing time is one of the big drivers to the process.

    At the point where you're applying for Social Security disability, your medical records are no longer really private anyway. They're going to scour everything available to confirm that what's happened to you is both permanent and real.

    1. Re:Current disability queue times by Em+Emalb · · Score: 3, Interesting

      4 fucking years?

      Are you serious? That's ridiculous to the point of being almost unbelievable. If I hadn't had to deal with a similar situation with my grandparents, I wouldn't have believed you.

      In their case, it was resolved in just a couple months.

      (which is also ridiculous)

      From a government worker's perpective, what's the big deal? I mean, you go in day after day and do the same job. No reason to hurry, cause if you do then there's just more files going to be waiting for you. Just like the DMV. *sigh*

      --
      Sent from your iPad.
  5. Re:Just another insecure system based upon SSNs by oneirophrenos · · Score: 3, Insightful

    A question from someone with limited knowledge of the American health system - how much information do your insurance companies get? I mean, they must have access to critical medical info if they are to pay for procedures, drugs and such.

  6. Competition between governments by qbzzt · · Score: 2, Insightful

    Don't you think western civilization is general would be stronger if we tried multiple approaches in parallel and saw which worked best?

    Paying higher taxes for more government service is good, people can move from the US to Europe or Canada. If you prefer to pay less taxes and get less, you can move from Europe or Canada to the US.

    --
    -- Support a free market in the field of government
    1. Re:Competition between governments by daem0n1x · · Score: 4, Insightful

      But the US-like health system is widely available in most 3rd World countries, so there is no lack of alternatives.

      Get a 1st World health care system. Those that don't like it can move to Sudan or Chad and be happy.

  7. Re:Pill Heads by Foobar+of+Borg · · Score: 3, Informative

    Hopefully this will keep those worthless Baby Boomers from prematurely bankrupting Social Security with multiple prescriptions for their endless psychological disorders and sports injuries.

    You were modded Troll, but you make a good point. Baby boomers have got to be the biggest pack of whiny, self-indulgent motherfuckers that ever lived on this planet. Even though they are all getting old now, they still act like a bunch of goddamn teenagers. The sooner they die off, the better America will be.

  8. Value of Data by TimeTraveler1884 · · Score: 4, Insightful

    It can be argued that personal medical information is potentially more important than you life savings. Just a few weeks ago some company in the UK was selling confidential data on worker's to building firms that illegally vetted new hires.

    There are probably many unscrupulous companies out there that would vet new hires based on health factors such as mental health history, insurance risks (for companies with private insurance), or simply the fact that the STD you have may indicate you are more likely to sexually harass coworkers.

    Someone having your online banking account information can only steal the money you have at that time. Someone having your medial information can steal your ability to make money.

  9. Re:True purpose by JCSoRocks · · Score: 3, Interesting

    What the!? Someone else that thinks Social Security shouldn't exist at all? I thought there were only two of us and that my second personality didn't technically count... hmmm.

    --
    You are using English. Please learn the difference between loose and lose; they're, there, and their; your and you're.
  10. line item opt out by vlm · · Score: 2, Interesting

    Has anyone ever anywhere suggested a line item opt out?

    I know there are people out there who feel the need to keep health secrets. Probably they are clinically paranoid, but that's not the issue I'm discussing here (although I will make fun of them anyway).

    Why not have a line item opt out?

    Normal or highly extroverted people would not opt out of any line item because they don't care. Most old people I know seem to greatly enjoy telling everyone about their operations and such, so the old people's unwillingness to learn something new would be no problem.

    People whom in my opinion are unbalanced would opt out of absolutely every line. And that's perfectly OK. Of course if a parent opts out a line for their kids stating they are allergic to bee stings, and the kid dies of a bee sting, who gets the blame?

    Personally I couldn't care less if everyone on slashdot learns I am allergic to amoxocilian and I had a mild bout of pneumonia back in 04 that was cured in about 4 hours with a three pack of zithromycin. But IF I had something to hide, I'd just log in and click "hide" and away it goes like it never happened.

    Doesn't seem like much of a technological challenge.

    Another interesting option would be a nationwide registry of stuff you'd WANT to publicize, like allergies. Sign a release form and the dr will post it. That seems like a blindingly good idea in general.

    --
    "Science flies us to the moon. Religion flies us into buildings." - Victor Stenger
  11. Learn from the past: GJXDM, NIEM, N-DEX by Andy_w715 · · Score: 2, Interesting

    lets hope this doesn't turn into the cluster-f that we have with justice data. A schema the length of the bible, 4 different versions that no one is sure which to use, and a competing system running down the same path. And this is all dealing with intra-governmental agencies! No private sector here.

  12. Re:Pill Heads by ptbarnett · · Score: 4, Insightful

    Baby boomers have got to be the biggest pack of whiny, self-indulgent motherfuckers that ever lived on this planet. Even though they are all getting old now, they still act like a bunch of goddamn teenagers. The sooner they die off, the better America will be.

    A correction: "Social Security" is OASDI, a "trust fund" of government debt that will start to be drawn down in 2017 and exhausted by 2041, at least according to the last projections by the Social Security Trustees.

    "Prescriptions for endless psychological disorders and sports injuries" are covered by Medicare: a separately funded program. It in even worse shape -- the "trust fund" is expected to be exhausted by 2017.

    Some of us baby boomers have been pointing out the problems with both programs for the last 30 years, and have been effectively told by previous generations to STFU. But at this point, Social Security alone has collected about $500,000 from me (assuming a modest rate of return).

    I didn't plan to depend on Social Security benefits. But, my expectation is that I will need them just to pay the increased income taxes that will be required to fund the current administration's spending spree. So, I will offer you the same advice given to me when I was in your position: STFU.

  13. That's a LOAD! by Bunderfeld · · Score: 2, Informative

    Sorry friends, but this is just plain wrong.

    Being someone that has just finished going thru the whole damn Disability process, this is mis-information designed to make the SSA look good.

    The problem isn't that the records don't arrive in a timely manner, the real issue is the ridiculous way SSA goes about processing requests.

    After filing my Disability Claim, two months later, SSA asks me to go see one of their "approved" Doctors. I arrived for my appointment, was taken to an exam room, and when the Doctor came in was greeted with, "So, what brings you to my office?" I had to explain to him I was here for a Disability exam. He asked me why I was in pain, to which I replied I had ACM (http://www.wacma.com) and he said, "What's that?" This is when I figured out the government sent me to a Physiarist (Muscle Doctor) when my issues are Neurological. This Doctor gave me a10 minute exam, not even a Neurological Exam, and then said "Thanks, you can leave". Of course, his report claimed I was fine, and of course, SSA denied my claim.

    After this I filed my appeal, got an attorney to handle it, and waited, and waited, and waited. Three years went by, and finally I got my Disability Hearing this past February. I received my Disability Hearing Results in 2 weeks, and was found to be fully Disabled and part of the record reads that the Judge gave NO WEIGHT to the Govt., Doctor because he didn't exam me correctly.

    The facts speak clearly for themselves. 99% of the first filing for Disability are Denied. Those that file an appeal, 75% are approved. The problem, and of course this is govt. so that explains a lot, is that the SSA is denying claims hoping to get rid of the fakers, but then making millions of people wait for hearings when they know they are disabled.

    Sorry, this "getting records" quickly BS won't make anything quicker, knowing the govt,. it will somehow slow it down.

    One last fact for you to chew on, when I got notice of my Hearing, it was 30 days before the hearing. The Court and Atty., were able to received updated Medical Records from my Hospital and Doctors in a timely manner and were there quickly enough to be added into the record and burned on a CD. Not sure why they now claim they don't get records in a timely manner.



    Bob

  14. Re:Pill Heads by shentino · · Score: 2, Interesting

    Another problem is the "tax base" thingy that effectively makes FICA one of the most regressive taxes in existence.

    Taking a smaller slice of a bigger pie would make things fairer.

    But oh noes, it would make the rich fatcats actually notice how much they are paying.

    Get rid of the stupid cap and make sure the rich chip in their two cents. If you're freaking rich, a few thousand dollars in SS taxes will be to you what a handful of change is to the average joe.

    In fact, if we got rid of the cap and made SS taxes a mere 1 percent of your income, I would propose that there would be a net gain.

  15. Open Source? by PBPanther · · Score: 2, Interesting

    I can find no source, open or otherwise.

    I can also find no mention of the standards that are being used.