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VA Mistakenly Tells Vets They Have Fatal Illness

An anonymous reader writes "Thanks to a computer glitch and bad diagnosis coding, the VA sent a letter to thousands of veterans telling them they have Lou Gehrig's Disease. Some were right, but many were mistakes. From the article, 'Recently, the VA determined ALS to be a service-connected disability and generated automatic letters to all veterans whose records included the code for the disease. However, since the coding contained both ALS and undiagnosed neurological disorders, some of those letters were erroneous.'"

35 of 108 comments (clear)

  1. hate when that happens... by iamagloworm · · Score: 2, Insightful

    next time, face to face is a good idea...

    1. Re:hate when that happens... by stoolpigeon · · Score: 3, Informative

      The way the VA medical system works they'd probably die waiting to find out they were dying. The automated letter system is probably to save costs and time - that they completely hosed it up is no surprise.

      --
      It's hard to believe that's how Micronians are made. Why don't we see it right now by having you both kiss one another?
    2. Re:hate when that happens... by cthulu_mt · · Score: 2

      [Citation Needed]

      --
      Virginia is for lovers. EVE is for griefers.
  2. Not amusing by Max+Romantschuk · · Score: 4, Insightful

    ALS is basically a slow and unpleasant death sentence unless you are lucky and can afford proper care. You really don't want to be told you have something that will lock your working brain into your body until you suffocate without a breathing apparatus.

    I'm perfectly aware many people can live for ages with ALS, but a significant portion aren't as lucky...

    --
    .: Max Romantschuk :: http://max.romantschuk.fi/
    1. Re:Not amusing by mc6809e · · Score: 4, Insightful

      ALS is basically a slow and unpleasant death sentence unless you are lucky and can afford proper care.

      It's still horrible, even if you're lucky. There are so many "better" fatal diseases I'd rather have.

      And unfortunately there really isn't a lot of public research being done to find a cure. A great deal of medical research is driven by politics and popularity, and ALS just doesn't get the attention it deserves. The cynic in me believes that the lack of research dollars is due to the short average expected lifespan after diagnosis -- those with ALS just aren't around long enough to make enough noise to get the attention needed to boost funding and research interest.

    2. Re:Not amusing by stoolpigeon · · Score: 2, Informative

      I had a friend who was diagnosed and dead in less than a year. He went from excellent care to being unable to pick up his kids in a few months. It was one of the most horrible things I've seen a person go through. I think his wife and kids are doing pretty well now, it's been 8 years since he died, but I wouldn't wish that on anyone.

      --
      It's hard to believe that's how Micronians are made. Why don't we see it right now by having you both kiss one another?
  3. Re:it happens, by mc6809e · · Score: 4, Insightful

    If I got a random letter saying I had a fatal neurological condition, I'd be slightly sceptical. Maybe that's just me though.

    Yeah, but these aren't random letters. These are letters from the government. The VA is basically the government health care system for veterans.

    If they sent me a letter, I'd think I'd take it seriously.

  4. Re:it happens, by mpoulton · · Score: 4, Insightful

    If I got a random letter saying I had a fatal neurological condition, I'd be slightly sceptical. Maybe that's just me though.

    Except these patients already had "undiagnosed neurological conditions". If you had neurological problems, were seeking a diagnosis, had been evaluated inconclusively before, and received a notice from your hospital that you have ALS, you might be less skeptical and more devastated.

    --
    I am a geek attorney, but not your geek attorney unless you've already retained me. This is not legal advice.
  5. Re:it happens, by Anonymous Coward · · Score: 2, Funny

    The VA is basically the government health care system for veterans.

    Oh veterans, not veterinarians. That's a really unfortunate use of an abbreviation.

  6. Even better by Anonymous Coward · · Score: 3, Insightful

    It'll be awesome when all of our health care is, by law, just as efficient and personal.

  7. Re:I smell a rat by stoolpigeon · · Score: 3, Informative

    People who serve in the military are twice as likely to get ALS as people with no military service. I don't think anyone knows why but apparently the government is agreeing that they should help out vets who contract it. ALSA has a pdf with information about it - ALSA military paper.

    --
    It's hard to believe that's how Micronians are made. Why don't we see it right now by having you both kiss one another?
  8. Re:The VA would like to apologize for any.. by iluvcapra · · Score: 4, Interesting

    health insurance policies refused

    If you're getting a letter from the VA you already have free liftetime health insurance, and in the US it's illegal to decline someone a job on account of their medical condition, insofar as it doesn't interfere with performance, which for someone who doesn't have a disease, it won't.

    I'm sure there's some sort of latent point in this about "socialized medicine" or something, but for every one of these letters with the wrong diagnosis, I assure you a private insurer has cancelled the policy on dozens of people for no goddamn reason. And those people sometimes commit suicide too.

    There are many scary anecdotes about the VA, but they're just that, anecdotes. Customer satisfaction within the VA health system regularly outscores customer satisfaction in the private health insurance/care system.

    PS. If you get a letter saying you have an incurable disease, damn the letter. You must hear it from your doctor's own lips, and then only after you have had the outcome of the tests throughly explained to you.

    --
    Don't blame me, I voted for Baltar.
  9. "Close Enough for Government Work" by RobotRunAmok · · Score: 2, Funny

    An especially scary phrase when it applies to healthcare, no?

  10. Re:The VA would like to apologize for any.. by stoolpigeon · · Score: 4, Informative

    This is good info. but just to point out one thing- not everyone who is in the VA system necessarily has free lifetime care for everything. Many people receive care for lower levels of service connected disability. Many veterans use the VA and other health care systems - including public hospitals, private insurance, etc.

    --
    It's hard to believe that's how Micronians are made. Why don't we see it right now by having you both kiss one another?
  11. Awww by dkf · · Score: 3, Insightful

    There I was, looking for a story about veterinarians in Virginia...

    --
    "Little does he know, but there is no 'I' in 'Idiot'!"
  12. Re:The VA would like to apologize for any.. by stoolpigeon · · Score: 2, Insightful

    Satisfaction surveys are not necessarily the best metric to use in determining quality of care. I think this has been shown in a few studies and many health care providers have tried to move to metrics that more accurately tell if care is actually good or not. I don't bring this up to enter into your argument about socialized medicine but just to try and look at the whole picture.
     
    More importantly, your point about it being free couldn't be more mistaken. For the vets it either cost becoming disabled or a minimum of 20 years of full time service. The monetary costs are covered by tax payers. as RAH would say tanstaafl - there aint no such thing as a free lunch.

    --
    It's hard to believe that's how Micronians are made. Why don't we see it right now by having you both kiss one another?
  13. Re:The VA would like to apologize for any.. by nateb · · Score: 4, Informative

    More importantly, your point about it being free couldn't be more mistaken. For the vets it either cost becoming disabled or a minimum of 20 years of full time service.

    This is incorrect. My father spent 4 years in, and due to his income, receives (nearly) free health care. He must requalify every year, fwiw.

    --
    -- Nate
  14. Very low accuracy mailing... by geomobile · · Score: 3, Insightful
    I loved that phrase:

    Some were right but many were mistakes.

    Government should just mail an official looking letter to everybody:
    Dear XY,
    You are not suffering from any fatal neurological conditions.
    Regards.

    This would vastly increase the accuracy of the mailing and would also be better for the general mood.

    1. Re:Very low accuracy mailing... by Sebilrazen · · Score: 3, Funny
      If they're sending it to everybody it should probably read:

      You are most likely not suffering from any fatal neurological conditions.

      --
      "There are no facts, only interpretations." --Friedrich Nietzsche.
    2. Re:Very low accuracy mailing... by geomobile · · Score: 3, Insightful

      You are most likely not suffering from any fatal neurological conditions.

      Telling everybody that they're most probably healthy is not as good... it improves the accuracy of the mail even further without having the same valuable positive effect on the mood.
      Why sacrifice the positive effect on mood for that little extra accuracy? You'll probably only send out a fraction of a percent false negatives, when you tell everybody that they don't have a fatal neurological condition!

  15. Re:it happens, by Sebilrazen · · Score: 2, Insightful

    Shenanigans.

    So you're all up in arms about it, good for you. But instead of offering a solution, or saying something good like "This isn't how we should treat our veterans," you instead decide to lambaste a proposed program that I'll admit is a bit socialist.

    Given your attitude I expect you to return any social security payments you receive and decline any medicare coverage. While you're at it, stop driving on my roads and don't call emergency services when you need them.

    --
    "There are no facts, only interpretations." --Friedrich Nietzsche.
  16. Re:The VA would like to apologize for EVERY by EbeneezerSquid · · Score: 5, Informative
    hahahahahaha!

    There are presently 3 "single payer" health care systems in the US: The VA, IHS (Indian Health Services), and Medicare.

    The VA has a long history of misdiagnosis and hospitals that don't meet the cleanliness standards most McDonalds must keep, the IHS itself admits that it doesn't have the money to do anything put extremely urgent care, barely (as opposed to the full and complete care it is obligated to provide by treaty), and Medicare pays regular health care providers about 65% of the costs of treatment, does so 9-24 months late, and is on schedule to devour the entire federal budget by 2019 (assuming it is not expanded by ObamaCare).

    As a Military Servicemember, and the son of a vet who just became eligible for medicare, I want LESS government in Healthcare, and am not surprised in the least by these letters. I'm actually more surprised that they were reported in the media, this time.

  17. Re:Not "vets" but "veterans" by drinkypoo · · Score: 4, Funny

    "Vet" means a veterinary doctor, not a veteran. Stupid title.

    Slashdot is an American website, and as such, Vet most certainly does mean Veteran sometimes. When? When it does.

    If you don't like the Americanisms, fine. But don't try to correct us. You can't even fucking spell Aluminum. "for so we shall take the liberty of writing the word, in preference to aluminum, which has a less classical sound." That's right, you convinced the whole world to ignore the original name in favor of creative license! The English language is poisoned with the deliberate, poetickal misspellings of Chaucer and his contemporaries because when the dictionaries were Laid Down From On High by some pompous brits, the works were in fashion, and so every dictionary I open I have to see a bunch of made-up shit.

    Complaining about American English on an American website is stupid, and you are a stupid person for doing it. Go suck a calamansis lime.

    --
    "You're right," Fisheye says. "I should have set it on 'whip' or 'chop.'"
  18. Re:it happens, by drinkypoo · · Score: 3, Informative

    Point. In my experience, though, generally they like to give out "you're going to die" type news in person. Hell, even the results of a standard blood test require you to go in and pay the standard consultation tax.

    They don't make money when they see you at some broken-down VA medical center. My dad is a veteran with an arterial blockage. They won't give him the medication for some reason, and they won't operate because "it's not bad enough". They will do anything they can do NOT provide you any care at the VA; sending you a letter informing you that you probably have less than a year to live is just a cost-cutting measure.

    The VA is just a more societally acceptable alternative to shooting veterans dead on the white house lawn, it has nothing to do with helping people unless that's the cheapest way to get them out of your hair. The members of the military that they actually care about (commissioned officers) can afford real medical care. If they just built one less bomber and a few less cruise missiles they could afford to ramp up the care to be some of the world's best, as our veterans deserve (at least as much as anyone else!)

    If we're really the greatest nation on the planet, we should have the best medical care. To provide especially sub-standard health care to veterans (as we very much do) is a MASSIVE FAILURE to be great. It is, in fact, incredibly small and petty.

    --
    "You're right," Fisheye says. "I should have set it on 'whip' or 'chop.'"
  19. Re:it happens, by tibman · · Score: 2, Informative

    As far as i know there is no US government take over of healthcare? A US government run health insurance company, yes. Don't want it? ok.. don't use it.. it's voluntary.

    --
    http://soylentnews.org/~tibman
  20. Re:it happens, by sumdumass · · Score: 2, Informative

    actually, no it isn't voluntary. Under the currently purposed plans, if you opt out or for lesser coverage, you will be enrolled in a sponsored plan and receive a tax penalty for the costs. That's no where near voluntary.

  21. Do tyou know the difference between by geekoid · · Score: 3, Insightful

    this and a private medical company?
    You find out about the error when a government agency does it.

    --
    The Kruger Dunning explains most post on /. http://en.wikipedia.org/wiki/Dunning%E2%80%93Kruger_effect
    1. Re:Do tyou know the difference between by Ironica · · Score: 2, Interesting

      this and a private medical company?
      You find out about the error when a government agency does it.

      Not only that... the letter says "You've been diagnosed with X," whereas the letter from the private insurer says, "Your coverage has been terminated" without mention of the (erroneous) diagnosis.

      --
      Don't you wish your girlfriend was a geek like me?
  22. Re:The VA would like to apologize for any.. by geekoid · · Score: 2, Informative

    No, don't damn the letter. Immediately call your doctor. Regardless of public or private.

    --
    The Kruger Dunning explains most post on /. http://en.wikipedia.org/wiki/Dunning%E2%80%93Kruger_effect
  23. Re:it happens, by Stupendoussteve · · Score: 2, Insightful

    Welcome to universal healthcare. Don't worry, you too will soon be able to get the news of your imminent death via phone, email, or text message.

    Also, I hope you like vitamin M (that is, Motrin).

  24. First Hand Experience by bigattichouse · · Score: 4, Informative

    As a family caretaker of a U.S. Veteran (Vietnam and Iraq Round 1) who passed away from ALS, while under the care of the VA - I have to say that they really busted their butts to make sure he had all the assistance and medical care possible. They even called intermittently with questions about his service history to attempt to find out WHY so many people in his situation developed ALS.

    I have to say, for all the problems people have had with the VA they took care of Jim. He had everything from his medications to a IPAP, oxygen, even a hospital bed delivered and set up here at the house.

    Given the extremely bizarre nature of the disease, and that no-one clearly understands its causes, they did a damn fine job of trying to figure out what was wrong and making sure he had ample medical care.

    --
    meh
  25. Re:it happens, by Lord+Ender · · Score: 2, Interesting

    I don't understand. How is offering vets free healthcare IN ADDITION to the healthcare options available to every other American citizen anything at all like "shooting veterans dead on the white house lawn?"

    Having another option, even if its not ideal, seems like a good thing to me.

    --
    A slashdotter who didn't build his own computer is like a Jedi who didn't build his own lightsaber.
  26. Re:it happens, by Ironica · · Score: 2, Informative

    Oh, really? This is a government bureaucracy we're talking about.

    THIS is what we'd ALL get if Obama and the Dems win their attempt to have a government takeover of health care.

    Well, everyone who chose the public option. Which, at least to begin with, would mostly be people who have no healthcare at all right now. Healthcare with occasional administrative errors is probably going to save more lives than no care AT ALL.

    Besides which, I've had bad lab results and mistaken reports from private healthcare, too. Even large-scale errors. And it's certainly not simply healthcare that has this happen...I've gotten notices from utilities that my service was going to be cut off when I'd paid my bill, or that my credit card was stolen when it wasn't, or that I was denied for something when I was approved. It does happen, and it happens at least as often in private business as in government.

    --
    Don't you wish your girlfriend was a geek like me?
  27. Re:it happens, by Ironica · · Score: 2, Informative

    If you have no income, they can't charge against your taxes.

    If you have an income, you can pay out-of-pocket for private coverage, or you can pay (a lot less) for public coverage.

    Sounds like people have choices to me.

    --
    Don't you wish your girlfriend was a geek like me?
  28. Re:I smell a rat by Ironica · · Score: 2, Interesting

    2 If someones file has the code they should already be diagnosed right.

    We're still stuck using ICD9 coding. We were supposed to switch to ICD10 years ago, but it keeps getting delayed, mostly because of the arcane field of medical billing software. ICD9 is a half-assed system, based on decades-old knowledge of disease and injury, that you can't even be sure whether you'll find the disease you want under the part of the body it affects or its taxonomy.

    So it doesn't surprise me at all that the ICD9 code for ALS is ambiguous for other neurological diseases.

    --
    Don't you wish your girlfriend was a geek like me?