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Doctors Seeing a Rise In "Google-itis"

It's one of the fastest-growing health issues that doctors now face: "Google-itis." Everyone from concerned mothers to businessmen on their lunch break are typing in symptoms and coming up with rare diseases or just plain wrong information. Many doctors are bringing computers into examination rooms now so they can search along with patients to alleviate their fears. "I'm not looking for a relationship where the patient accepts my word as the gospel truth," says Dr. James Valek. "I just feel the Internet brings so much misinformation to the (exam) room that we have to fight through all that before we can get to the problem at hand."

29 of 368 comments (clear)

  1. Hypochondria? by idontgno · · Score: 5, Funny

    There's an app for that!

    --
    Welcome to the Panopticon. Used to be a prison, now it's your home.
    1. Re:Hypochondria? by ducomputergeek · · Score: 4, Informative
      --
      "The problem with socialism is eventually you run out of other people's money" - Thatcher.
    2. Re:Hypochondria? by RingDev · · Score: 5, Interesting

      In a world filled with perfect Doctors, I would agree with you. But in today's world of general practitioners who spend as little time with their patients as possible, individuals must take some amount of the research on to themselves.

      My wife for example, is extremely flexible, to the point of being able to touch her fore-arm with her thumb on the same hand, dislocating joints, and other non-normal flexibility issues. She asked her doctor about it and got the basic "Is it causing you pain? No? Ignore it." But while researching another medical condition that she had been diagnosed with, she came across a reference to a genetic disease that causes this type of flexibility. She talked to her mother about it, 60 years old and still quite limber. She talked to her grandmother about it, 90 years old and she can still touch her toes with out bending her knees and join her hands behind her back (one over the shoulder, one under). It was pretty clear that the female side of her family was carrying this trait.

      So next time she went to see her doctor, she mentioned the disease and the family history, the doc laughed and told her to leave the diagnosis to the "pros".

      A month later when she was going to her new patient exam with her new general practitioner, she brought up the disease and family history. The doc listened, ordered some tests, and discovered that she did indeed have the disease. And it altered the treatment of her other condition.

      So I'm just saying, even a good general practitioner won't be able to suss out all of your ailments if they are trying to diagnose you based on a 5 minute interview and what's in your chart. But if you point out some of the research you've done, even if they don't take you at your word, it can be enough to make them want to investigate that same avenue.

      -Rick

      --
      "Most people in the U.S. wouldn't know they live in a tyrannical state if it walked up and grabbed their junk." - MyFirs
    3. Re:Hypochondria? by Kell+Bengal · · Score: 5, Interesting

      It's a good point. I've had a similar experience. I was told by my doctor that I had an incurable condition and would require expensive medication semi-regularly for the rest of my life. I immediately set out to learn more about the illness and upon doing further research I noted that some things didn't quite add up. I insisted on extra tests (just to be sure, doc) and sure enough they came back negative.

      Now, a bit of internet reading won't make me an expert, but during my consultation it allowed me to be an active participant and not just a recipient of diagnosis from on high.

      --
      Scientists point out problems, engineers fix them
      altslashdot.org: The future of slashdot.
    4. Re:Hypochondria? by PakProtector · · Score: 4, Insightful

      I don't think you understand. Your wife is a rarity.

      I am not a doctor. I am studying to be one. I talk to a lot of doctors. The patients who come in who have diagnosed themselves correctly, or close to correctly, such as getting the 'genus' of a disorder or disease correct while the 'species' is incorrect, are so rare that they tend to remember them.

      Compare it to a Help Desk worker -- how many callers, per centum, do you think that Help Desk worker gets who would call up, have a correct or nearly so idea about what is wrong, and be calling only to get instructions on how to fix it?

      --

      Edward@Tomato - /home/Edward/ man woman
      man: no entry for woman in the manual.
      "Qua!?"

    5. Re:Hypochondria? by Pax681 · · Score: 5, Funny

      What kind of joke is that?

      They omitted the sexual organs on a naked medical illustration?

      Pitiful.

      ah i think i might be able to assist you in understanding apples stance on that my friends

      the only prick allowed on Apple.com is Steve Jobs :P

    6. Re:Hypochondria? by Sad+Loser · · Score: 3, Informative

      IAAD, but an emergency physician so people generally don't have time to look stuff up. Or if they do, by definition, it's not an emergency. And the waiting room is in a Faraday cage, so their iphones don't work either, a very satisfactory arrangement.

      When I talk to my GP (family physician) colleagues about this, they say you have to work with it, and this phenomenon always occurred to a certain extent, it's just that in the old days the nutters had to go to the medical libraries, and so were easier to identify. Nowadays, quite rational people look up their symptoms and get things right, and this is good.

      There are real medical problems with the internet and increased accessibility of information, but far more than increasing anxiety, I would say worse problems are:
      • Astroturfing by pharmaceutical companies - pressure groups, patient groups with suspiciously slick websites
      • quack cures
      • aggressive libel laws stifling scientific debate which in the old days would have been shielded from lawyers.
      • looneys can find each other and associate more easily, and act aggressively to those who do not share their very strange view of the world - e.g. 'Myalgic Encephalitis sufferers' (an alleged condition that is neither myalgic or encephalitis and it is everyone else who does the suffering).

        Patients usually give you a clue that they are a looney though, which is very helpful. Favoured tell-tale signs are wearing tinted glasses, a soft neck collar or making notes in purple ink or with RANDOM capitalised words, or using one of those obesity scooter things. But if they seem relatively normal, I listen carefully and explain, because quite often they are right.

        BTW, I presume you were referring to this? Although some other conditions can do this as well.
      --
      Humorous signatures are over-rated.
  2. Rarity score by UndyingShadow · · Score: 5, Insightful

    I think every website that lists all these varied diseases should put a rarity score next to each illness. That way when you think you've got Wilson's disease, you can look and see with a simple number how unlikely it is.

    1. Re:Rarity score by treeves · · Score: 4, Insightful

      Nice idea, but it probably wouldn't work very well. One, people are notoriously bad at estimating risk. Two, if you really think you have the symptoms that fit a particular disease, you'll just assume that "yes I really am that one person in 2.5 million that has this disease". Three, if one in a 100,000 is a "high-risk disease", because very few conditions have higher rates, it'll make it easier to convince yourself that you have it. Four, there is no fourth point.

      --
      ...the future crusty old bastards are already drinking the Kool-Aid.
  3. Google-itis by oldspewey · · Score: 5, Informative

    As made up words go, google-itis is particularly stupid, since it literally means "inflammation or irritation of the google."

    --
    If libertarians are so opposed to effective government, why don't they all move to Somalia?
    1. Re:Google-itis by psychicninja · · Score: 4, Informative

      Also, when I first saw it my brain was pretty sure it said "google-tits", which is probably an even more common problem...

    2. Re:Google-itis by bunratty · · Score: 4, Funny

      Malamanteaus are the latest Internet fad. Haven't you heard?

      --
      What a fool believes, he sees, no wise man has the power to reason away.
  4. Bing and decide... by Dracos · · Score: 3, Funny

    ...which disease you have.

  5. What?! by jo_ham · · Score: 3, Funny

    You mean I don't have Ebala?

    No, sir, you googled a typo.

    I'm sure I have it! Typos are one of the symptoms!

  6. Indeed, but... by dmbasso · · Score: 4, Insightful

    for those scientifically oriented, and aware of our natural cognitive bias, it is a fantastic tool to pin down the real problem, bringing relevant information to discuss with a doctor.

    --
    `echo $[0x853204FA81]|tr 0-9 ionbsdeaml`@gmail.com
  7. You have to be a real moron by Tony+Stark · · Score: 4, Funny

    Google obviously isn't the best place to get medical information, these people are twits. If you watch all the past seasons of House you'll figure out what's wrong with you. (hint: it's not lupus.)

  8. Let the anecdotal counterpoints begin. by StikyPad · · Score: 5, Interesting

    I'll start. My wife had intense abdominal pains which her GP diagnosed as an intestinal blockage, and prescribed liquids, laxatives, and rest.

    When she didn't get better, she "Googled" her symptoms, and found that the birth control Yaz had been linked to gallbladder issues, which fit the symptoms. She told her GP -- who had never heard of these side effects -- and had her liver enzymes checked. Sure enough, they were below average. My wife was scheduled for a ($20k) liver function test, and simultaneously taken off Yaz. The symptoms subsequently disappeared, enzyme levels returned to normal, and she opted not to get the test.

    Now this may well be a coincidence, as I myself have pointed out, but if it wasn't, it's a clear case where Google-itis saved us 20 grand, since she never would have had the idea to stop taking Yaz if she hadn't found similar cases online.

    1. Re:Let the anecdotal counterpoints begin. by BobMcD · · Score: 5, Insightful

      This.

      The dirty truth that's seldom told is: Your doctor doesn't know any better than you do. He or she is making highly educated guesses, and that's about the end of it.

      Your tribal witchdoctor of years past had less knowledge, but was doing the exact same thing. Science came along and made medicine less of a guessing game, but it can never remove it completely.

      From TFA:

      No longer is it between a doctor who knows all and a parent who knows nothing.

      Show me the doctor who genuinely 'knows all' and I'll show you a miracle worker. It simply doesn't work that way, never has, and I'm sorry if it makes some practitioners sad that the patients have more tools.

      As in the case above, however, this is genuinely a good thing for us all.

    2. Re:Let the anecdotal counterpoints begin. by Grygus · · Score: 4, Insightful

      Not sure that's a counter, actually; I don't think that's the kind of behavior doctors are concerned about. When your wife found the evidence that she may have been misdiagnosed, she went to her doctor to confirm it and get his opinion; she didn't dismiss him as a quack and go all homeopathic on him, or assume that he was an idiot and stop taking his advice seriously.

    3. Re:Let the anecdotal counterpoints begin. by Anonymous Coward · · Score: 4, Insightful

      "Guessing"? To say that medical practitioners, as a whole, are "guessing" is incredibly naive. Does the bridge engineer guess on the load bearing capacity? Does the auto mechanic guess what the appropriate timing is on your timing belt? What about an airline pilot navigating from one airport to another and landing safely? No, no, and no. They use KNOWLEDGE, EXPERIENCE, TOOLS, and INTUITION.

      Likening these traits to a medical professional:

      • KNOWLEDGE: medical school, journals, CME
      • EXPERIENCE: rotations and/or residencies, practicing professionally
      • TOOLS: blood tests, ECG, CT, symptoms
      • INTUITION. The final one is gleaned through common sense, logic, knowledge, experience and tools.

      Guessing? While there may be those at the lower end of the spectrum that may lack in some of these areas, to generalize so is unfair and misinformed.

  9. Reginald Barclay by Itninja · · Score: 4, Funny

    A stinging sensation in the lower spine. It's Terellian Death Syndrome, isn't it?
    We agreed you'd come to me before checking the medical database.
    Well, this time I'm glad I did. Maybe we can stop the cellular decay before it's too late.
    Reg, you don't have Terellian Death Syndrome.
    - You're sure?
    - I'm sure.
    Then maybe it is Symbalene Blood Burn.
    No. I don't see anything wrong at all. Wait a minute. There is a slight imbalance in your K-3 cell count.
    My K-3s? No!
    Barclay, I'm sure it's nothing.

    --
    I judt got a nre Kinesis keybiartf so please excusr ant egregiou typos.
  10. I have a feeling by GilliamOS · · Score: 3, Insightful

    That is has been a problem of sorts since the bombardment of TV and print ads for Rx drugs. Why do they feel they need to advertise them? You can't just go and buy them OTC.

    --
    "There might be intelligent beings created by God in outer space even if there are none here on Earth." -Anonymous
  11. Google saved my sight by GreatDrok · · Score: 4, Interesting

    True story - I woke up one morning and my eyes were both full of floating debris and this circular ring. Also there were lots of flashes in my eye. None of this is a good sign so I googled the symptoms and it said I likely had a detached retina and I should go to hospital immediately. I did, and yes, both retinas had significant rips and needed multiple laser treatments, a couple of vitrectomies and a membranectomy before I was given the all clear. The morning I presented the doctor told me that it was very good that I had come in so quickly because it could quickly have deteriorated to a stage where it wouldn't have been repairable.

    Of course, my symptoms were pretty obvious and I had an idea what it was before I even started looking but the first hit said 'go to hospital. Now'. Very good advice. I wonder how often the opposite is true and people use Google and find that it suggests it is nothing to worry about and they don't go to the doctor? My guess is that is rather rare compared with the hypochondriacs who have nothing wrong with them.

    --
    "I have the attention span of a strobe lit goldfish, please get to the point quickly!"
    1. Re:Google saved my sight by gman003 · · Score: 3, Interesting

      I came down with the flu, I checked WebMD, it said not to bother going in to doctor unless the symptoms persisted or I became dehydrated. So yes, at least one person has followed the instructions not to go to the doctor.

  12. Good with the Bad by Thelasko · · Score: 3, Informative

    A buddy of mine had severe sinus congestion. His doctor told him to take Afrin. Over the course of several years, his sinus congestion became worse. His doctor performed all sorts of exotic therapies, and continued to recommend Afrin. Thanks to Google, and Wikipedia, he discovered that long term use of Afrin can cause a dependency, and actually make the symptoms worse. A second opinion by another doctor confirmed his internet diagnosis, and he is doing much better.

    --
    One of our competitors trademarked the term "hypothesis". From now on, we will call them "boneheaded ideas".
  13. People google because family doctor are useless by BurningTyger · · Score: 3, Insightful

    Family doctors are pretty much useless. Why do I need to book for an appointment, wait like 30-40mins at the clinic even though I have an appointment, and only able to talk to the doctor for 5mins?

    I went to do my annual check-up with the family doctor a year ago, and I complained to him about my day-time sleepiness. The doctor simply dismissed it as "bored at work". I basically had to google the symptom myself afterward to discover that I might have sleep-apnea, and then book another appointment to tell the family doctor to just give me a referral to see a sleep specialist to do more comprehensive test. Lord and behold, my self-diagnose was confirmed by the sleep lab, and I even knew that the treatment would be CPAP before the sleep doctor suggested it.

    The point of the story is, yes, there will be paranoid people who suspect they are dying of rare diseases because of their headache and whine to their doctor all day. For most people, they are better off googling their own symptom first, get a general understanding of what could be the cause of it, so that you can better talk to your family doctor on what test to do and which specialist to see.

    Hey, you don't go to see a car salesman before doing your homework, why go see your doctor without getting a better idea of your own health?

  14. It's called "cyberchondria" by tepples · · Score: 4, Informative

    Wikipedia lists sources that have referred to it as cyberchondria.

  15. Re:It wouldn't be so much a big deal... by Mindcontrolled · · Score: 5, Informative

    As much as I tend to encourage people to do a bit of science on the side, I have to make a couple of remarks on this, being a biochemist myself. First - your conclusion is wrong. You at best showed that penicillin stays active when stored in dry powdered form. Drawing conclusions to any arbitrary substance is a bit far-fetched. That is a very important thing that you have to learn when doing science properly - how to assess what conclusions you can actually draw from your data.

    Second - what where the concentrations you used? If you applied the penicillin at significant "overkill" concentration, you would basically see the statistical average amount of resistant cultures left in both cases. To be sure, you gotta do the experiment at different concentrations, and you gotta duplicate the plates for the experiment and the control, so you can compare the patterns of kill-off.

    Third, even if you showed that the potency stays roughly the same, you did not show if there are degradation products which could possibly be harmful for a patient - you would need to do a toxicity assay to be sure that it stays harmless for the patient.

    Forth, regarding the remaining colonies - did they survive because of innate resistance or because the antibiotic concentration was too low?

    Generally I think your conclusion is probably right, but the data you showed are not sufficient to make that conclusion. What you did is great for a college-level experiment, but in reality, there are more factors that you have to check for. That's why I sunk a couple of years of my life into studying that stuff. As I said, this is not to discourage you - doing science at home is great fun and you can learn a lot, but you gotta be careful evaluating your data. The most important part about science is, at least to me, that you gotta be aware that a single experiment might answer one question, but raises 10 others, on which you gotta follow up.

    --
    Ubi solitudinem faciunt, pacem appellant.
  16. Doctors don't like informed patients by jurgen · · Score: 3, Insightful

    Ok, I don't have any hard data, but it seems to me that in reality today for every patient with mis-informed "Googleitis" there are ten or more people who are getting better medical care because they are informed about their condition or even have already correctly self-diagnosed. Some of the comments right here to point.

    But doctors are upset because they are not used to having informed patients. They are used being the godlike arbitors of secret knowledge whose judgement will be trusted 100% because of their degree. But in reality of course they are human and all too fallible, and even more so nowadays that they are increasingly simply pharmaceutical salesmen rather than healers and don't really have or take the time to actually know their patients.

    Before doctors found it easy to be confident... because hardly anyone ever questioned them. Now things are getting a bit more difficult. Poor doctors? I'm finding it difficult to be sympathetic.

    There may be a lot of information of questionable quality on the Net, but overall I have not a shred of doubt that the empowerment the Net has brought to the individual in this regard has been a boon to public health.