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How Stephen Hawking Has Defied the Odds For 50 Years

Hugh Pickens writes writes "Now aged 70, Prof Stephen Hawking, winner of 12 honorary degrees, a CBE and in 2009 awarded the Presidential Medal of Freedom, is an extraordinary man — but what is perhaps most extraordinary about Hawking is how he has defied and baffled medical experts who predicted he had just months to live in 1963, when he was diagnosed with Motor Neurone Disease (MND), a disease that only 5% survive for more than a decade after diagnosis. Hawking started having symptoms shortly before his 21st birthday. At first they were mild — a bit of clumsiness and few unexplained stumbles and falls but, predictably, by the very nature of the disease, his incurable condition worsened. The diagnosis came as a great shock, but also helped shape his future." (Read on, below.) Pickens continues: "'Although there was a cloud hanging over my future, I found, to my surprise, that I was enjoying life in the present more than before. I began to make progress with my research, and I got engaged to a girl called Jane Wilde, whom I had met just about the time my condition was diagnosed,' says Hawking. 'That engagement changed my life. It gave me something to live for.' Another important thing in Hawking's life has been his work and at the age of 70, Hawking continues working at the University of Cambridge and recently published a new book — The Grand Design. 'Being disabled, or physically challenged, makes no difference to how my scientific colleagues treat me apart from practical matters like waiting while I write what I want to say.' Finally the grandfather-of-three continues to seek out new challenges and recently experienced first-hand what space travel feels like by taking a zero-gravity flight in a specially modified plane. 'People are fascinated by the contrast between my very limited physical powers, and the vast nature of the universe I deal with,' says Hawking. 'I'm the archetype of a disabled genius, or should I say a physically challenged genius, to be politically correct. At least I'm obviously physically challenged. Whether I'm a genius is more open to doubt.'"

35 of 495 comments (clear)

  1. Best care money can buy helps by blahbooboo · · Score: 5, Informative

    He also has access to an amazing amount of healthcare. Not many people can afford full time staff to maintain their lives both personally and professionally. He has people so desperate to work with him that they train for years to understand his unique communication.

    1. Re:Best care money can buy helps by Simon+Brooke · · Score: 5, Insightful

      Yes, the National Health Service is wonderful.

      --
      I'm old enough to remember when discussions on Slashdot were well informed.
    2. Re:Best care money can buy helps by Anonymous Coward · · Score: 5, Interesting

      There's something more here about his disease - I'm sorry the article doesn't really seem to go into it. Why, in particular, has he not had more significant diaphragmatic involvement leading to the respiratory failure that is typically seen at the end of life with ALS? I'm really glad he has an atypical case, but the money aspect pales in comparison to the luck he has with how his disease has progressed.

    3. Re:Best care money can buy helps by Sique · · Score: 5, Informative

      I don't know about the UK and the NHS, but at least in Germany, he would be considered Pflegestufe III (support level III, more than 300 mins per day necessary, including necessary support between 10pm and 6am), and it would be fully covered by the (mandantory) support insurance.

      --
      .sig: Sique *sigh*
    4. Re:Best care money can buy helps by Anonymous Coward · · Score: 5, Insightful

      Somebody else mentioned the "privileged care" angle to me earlier this week.

      Though it may be true Hawking has better access to care than others today, when he was diagnosed at 21 I doubt anyone was falling all over themselves to work with yet another young academic struck ill. It is nothing short of astounding that he has survived (without a respirator) in the face of ALS, and equally astounding that his will to continue working in the face of losing all motor control has not been fazed.

      No discredit to his staff a medical team, which I'm sure must be very able. He's beaten the odds against death, lost control of his physical body, and continued to do pioneering science work in the face of it. Those facets of Hawking have less to do with his current level of access to care, and more to do with his DNA and courage.

      Really, amazing dude.

    5. Re:Best care money can buy helps by Anonymous Coward · · Score: 5, Informative

      No, it's true it's basically all NHS.

    6. Re:Best care money can buy helps by JoeMerchant · · Score: 5, Informative

      He also has access to an amazing amount of healthcare. Not many people can afford full time staff to maintain their lives both personally and professionally. He has people so desperate to work with him that they train for years to understand his unique communication.

      Money and people who care do help, but a neighbor of mine came down with a related disease 3 years ago, she died 1 year ago, and not for lack of a caring family with the resources to do anything possible.

      When your diaphragm is paralyzed, it's over, or at least very unpleasant to continue. Hawking has been unusually lucky that his disease did not spread to basic autonomic, or extensive cognitive functions, as it all too often does.

    7. Re:Best care money can buy helps by Night64 · · Score: 5, Insightful

      It's funny when americans are faced with public healthcare systems that work. Actually, it's not funny, it's sad.

      --
      Grey's Law: Any sufficiently advanced incompetence is indistinguishable from malice.
    8. Re:Best care money can buy helps by tverbeek · · Score: 5, Insightful

      But even a not-great one routinely outperforms the US system. There are horror stories to be found in both, but they're a lot easier to find in the US.

      --
      http://alternatives.rzero.com/
    9. Re:Best care money can buy helps by rAiNsT0rm · · Score: 5, Insightful

      And if you explain that these system cost *less* than what we currently spend as a country on healthcare everyone ignores it and continues ranting on about entitlement and welfare and other bullshit divisive issues ingrained in their feeble minds.

      --
      http://teasphere.wordpress.com - A little spot of tea
    10. Re:Best care money can buy helps by Anonymus · · Score: 5, Interesting

      I wish I had mod points to mod you up, because that's a very succinct way of putting it.

      I've lived both inside and outside of the US, and in my experience nearly every medical story that takes places in the US is a horror story that ends in pain, bankruptcy, disability, or death, while most stories coming from elsewhere are merely horror stories about inconvenience, delays, or the occasional mistake.

    11. Re:Best care money can buy helps by Anonymous Coward · · Score: 5, Informative

      If you think NHS is a pillar example of public healthcare system that works you are hugely mistaken. I am a big believer in socialized medicine,but NHS is not a great one...

      Well, let's ask Steven Hawkings about the NHS himself then, shall we?

      I would not be alive without the NHS

      Seems clear enough to me...

    12. Re:Best care money can buy helps by jbeaupre · · Score: 5, Informative

      In the US, being poor and/or elderly makes it easier to get health care. Medicare/Medicaid covers a lot.

      If Hawkings decided to take a job tomorrow in the US at some university, group health care would likely provide similar care to what he has now. Even before the recent laws, group health for large organizations paid for preexisting conditions.

      It's folks that aren't poor but don't get benefits from other sources that are left out in the US. The poor and the elderly already have socialize medicine.

      --
      The world is made by those who show up for the job.
    13. Re:Best care money can buy helps by Swampash · · Score: 5, Insightful

      It's amazing listening to Americans discuss the care of people with medical conditions. They just have... no... idea.

    14. Re:Best care money can buy helps by Anonymous Coward · · Score: 5, Insightful

      (Psst... It shouldn't matter whether or not they're thinkers, writers, etc. There be dragons down that road.)

    15. Re:Best care money can buy helps by Anonymous Coward · · Score: 5, Interesting

      From that article:

      "An American newspaper subsequently used Prof Hawking as an example of the deficiencies of the NHS. "People such as scientist Stephen Hawking wouldn't have a chance in the UK, where the National Health Service would say the life of this brilliant man, because of his physical handicaps, is essentially worthless," it claimed."

      I think a Babbage quote fits this best (slightly adapted):

      I am not able rightly to apprehend the kind of confusion of ideas that could provoke such a statement.

    16. Re:Best care money can buy helps by adonoman · · Score: 5, Informative

      You're missing the GP's point - the US government already pays more for healthcare per citizen than most countries with single-payer universal health care. You don't need to redirect billions, there's already enough being spent to provide health care to every citizen in the US. We just need to dump the insurance bureaucracy that is costing so much overhead.

    17. Re:Best care money can buy helps by Urkki · · Score: 5, Insightful

      can't afford their own healthcare

      So your solution is to force others at gunpoint to do it? I'm all for helping others but making it mandatory is evil. The ends don't justify the means.

      IMNSHO, "help to maintain the society you live in, as agreed by the society collectively, while doing your small part to steer the society to the direction your want, or GTFO" is perfectly fair deal. From this follows, it's perfectly valid to decide on what needs to be done, then collect taxes to do it, even when "it" is public health care system. And, same as for example requiring kids to be taught to read and write, ultimately everything required by so called civilized society is "at gunpoint".

    18. Re:Best care money can buy helps by BStroms · · Score: 5, Interesting

      What's sad is when I see people of all stripes debating against public healthcare, forgetting that they're condemning future thinkers or leaders or writers just because they (or their families) can't afford their own healthcare.

      I'm normally a very staunch conservative, but healthcare is one of my most liberal viewpoints. Even so, public healthcare isn't necessary to fix the US system. Nor is it a solution by itself. Unless we fix the other major issues, it won't solve the insanely cost inefficient US system. Profits and executive salaries make for a very small fraction of health care cost. (I believe less than 5% combined, although I'd have to research the exact numbers again to confirm.) There are some big issues that need to be addressed however to reign in cost. All three of the following individually add more to costs than the evil profits and executive salaries combined.

      1. Wasted administrative costs - Centralize and standardize records, billing, procedure codes, pretty much everything you can. The process should be the same regardless of who your insurance is so less staff and training needed to handle all the different procedures.

      2. Lawsuits - The cost of this is twofold and huge. First there's the actual insurance costs, which for high risk practices like neurosurgery can be astronomical. Second is the overly defensive medicine practiced. Doctors will perform more expensive tests and scans even though they know there's no need for them just so that if something does come up down the road, they've covered their rears. Mistakes happen. Caps should be put on the size of payouts against doctors and they should only have any payout if gross negligence can be proven.

      3. Fraud - Whether it's homeless people calling 911 for free room and board for night and taking an ambulance to save on cab fair, or those leaving phony names and addresses with the emergency room to skip out on the bill, fraud adds significantly to cost. It can take up bed/staff/ambulance resources that can be needed in real emergencies as well. If we could properly deal with the homeless problem, it would solve part of the issue, and universal healthcare would solve more. No need to skip the bill if you're not paying. Still, we do need to go after and prosecute serial abusers of the system.

      Now, if you solve all the issues above, I think you'll find the cost efficiency of the US system will come more in line with other countries. Then you can solve the other gaping problems without bankrupting the nation. Obviously universal healthcare, but you don't need to make it public or single payer. First regulate standard coverage that [b]must[/b] be covered by all insurance providers. Then require everyone to purchase health insurance (the government subsidizes the cost for those of low income.) There's no denial for preexisting conditions, and no dropping people or refusing to pay the mandated coverage.

      Now, insurance companies can only compete it cost and value added services, such as covering no mandatory procedures like certain cosmetic surgeries or the like. You can even have nonprofit insurance organizes like co-ops compete with banks if people are really afraid of the cost of profits.

       

    19. Re:Best care money can buy helps by pnutjam · · Score: 5, Insightful

      I was forced at gunpoint to wear clothes to work this morning, I feel your pain.
      I was also forced at gunpoint to drive the speed limit and slow down as I went through a school zone.

      Where are my rights!

      you can play too!

    20. Re:Best care money can buy helps by operagost · · Score: 5, Insightful
      What's sad is when I see people of all stripes who trot out straw men, assuming that there is no other way of paying for health care other than using the state to take the money from other people.

      thinkers or leaders or writers

      I'd prefer engineers, scientists, or artists. We're already doling it out to the politicians and liberal arts "Occupiers".

      --

      Gamingmuseum.com: Give your 3D accelerator a rest.
    21. Re:Best care money can buy helps by FreeUser · · Score: 5, Insightful

      Having lived in Germany, England, and the United States, and used all three, I can say that while the NHS may not be perfect, it is lightyears ahead of even top-end private care in the United States (which I've also used). The UK would be complete fools to follow the US model (as some conservatives in government seem to want). People complain about 2-week waits in the UK for elective non-life threatening procedures, while in the US somone in my family had to wait 6-8 weeks for an angiogram after failing an EKG and having acute symptoms of heart trouble, and another waited 5 weeks for an appointment with a neurologist after having what may have been a mild embolism, complete with excruciating headache and shockingly low body temperature.

      Americans who think our "free market ueber alles" system works better than Germany's strictly regulated market, or the UK's (or France's, or Canada's) are either idealogically blinded idiots, or have never taken a serious look beyond our borders. And I say that as one with a "cadallac" level of insurance in the US, which pales compared to what we had with the NHS when we lived in England (and what I received from the German system when I lived there).

      --
      The Future of Human Evolution: Autonomy
    22. Re:Best care money can buy helps by Anonymous Coward · · Score: 5, Insightful

      Sure, the US has awesome care if you are lucky enough to be able to afford it. But a HUGE chunk of the country isn't that lucky, and of the ones who can, they often pay a HUGE price to be able to afford it. And even then, once they've got it...yeah everything often goes great until things really get bad, and then that is when the insurance companies get creative in finding ways to cut you off.

    23. Re:Best care money can buy helps by JasterBobaMereel · · Score: 5, Informative

      That's NICE overriding no-one ...because they *are* a panel of medical experts ...

      They have not refused him because he is too young, they have refused him on the medical grounds that the drug has not been proven to work except in moderate stage patients, and when he gets that far (hopefully not for some time) will let him have it ...

      He is on medication, just not Aricept

      Assisted suicide is illegal in the UK ... Something Terry is campaigning to change

      --
      Puteulanus fenestra mortis
    24. Re:Best care money can buy helps by maple_shaft · · Score: 5, Insightful

      I've not had a ton of experience with the government supplied healthcare.

      other than what I get through the military, which is GREAT

      My wife had to get on Medicare because I lost my job and she was pregnant and NEEDED some type of coverage

      Maybe I am missing something but both military healtchcare including the VA and Medicare are both essentially government provided healthcare. Of course the military healthcare is top-notch, our boys in uniform putting themselves in harms way deserve no less. Medicare for your wife too means it is government subsidized so while they pay out lower to providers you have the security of knowing that some scheming health insurance company isn't going to try and find a way to deny you coverage. Medicare will always be there (for the near future at least).

      I am fortunate enough to have a good job which provides me private health insurance and the care I get is excellent but what really sucks about private health insurance for most people is that they live in fear of being dropped or priced out of the plan if they end up needing it too much. The appeal of a nationalized system to me is that I don't have to worry about engaging in grueling battles over the phone with insurance companies for tens of thousands of dollars when they just decide that they are not going to pay for your medical bills. Thats BS, in a civilized society I should be able to go to the hospital, leave after treatment and go on with my life. I would gladly pay higher taxes for that kind of luxury than live in fear that going to the hospital for a major problem could result in my going bankrupt.

    25. Re:Best care money can buy helps by Beardo+the+Bearded · · Score: 5, Informative

      Meanwhile in Canada:

      When my wife was pregnant with our first kid, there were some complications. We ended up getting a dozen ultrasounds over the course of the pregnancy. It cost us a total of $10 for the printouts, and those were optional. The first us was at 10 weeks when she looked like a little gummy bear. (She'll be 8 in 4 weeks.) The second kid had the same set of concerns so we get another dozen ultrasounds. (He'll be 6 in a few months.) Both times the complication was pre-eclampsia, excess fluid, and they were both too big so we got C-sections. (4.5kg, 38cm head circumference) For the first, the doctors used prostaglandin and oxytocin to induce labour, but it wouldn't work so we moved to an emergency c-section. The boy was late, so VBAC was canceled and we got another c-section.

      Total cost, including hospital stay: $0.

      I get my iron levels checked routinely, I've got my annual physical coming up (I call to make the appointment on my birthday) and it's 100% covered including any bloodwork. My wife gets several hormone levels and her iron levels checked on a regular basis too.

      Now, it's not all free. We pay $120 a month for our family coverage. It covers basic services but not ambulance rides. (Some people were using them for taxis, so they put in a $65 fee for ambulance pickup. They bill you later, you don't have to whip out the traveller's cheques to get in like the time we my brother got hurt in the US.)

      One time the kids got hit by a car and we were about 300m from the ambulance dispatch station. There was another family there, and I think the dispatcher said "send everybody...everybody" and everybody came. Five ambulances, less than a minute. The stroller was destroyed, the kids were rushed to the hospital, scanned and examined, and released that night. They even brought them stuffies to play with and keep them happy. (To this day we celebrate the stuffies' birthday.)

      Total cost: $65 for the ambulance ride.

      --

      ---
      ECHELON is a government program to find words like bomb, jihad, plutonium, assassinate, and anarchy.
    26. Re:Best care money can buy helps by rhakka · · Score: 5, Insightful

      if individual charity was adequate to solve these kinds of societal problems we wouldn't be having this debate because the problem would already be solved. Obviously there are not enough Ron Pauls out there to solve it through their own selflessness.

  2. Remarkable by overshoot · · Score: 5, Informative
    How many physicists have written best-sellers? About physics?

    To join in wishing him the best: may he live as long as life brings him joy, and joy for as long as he lives.

    --
    Lacking <sarcasm> tags, /. substitutes moderation as "Troll."
  3. Desperate people .... by Anonymous Coward · · Score: 5, Funny

    Not many people can afford full time staff to maintain their lives both personally and professionally. He has people so desperate to work with him that they train for years to understand his unique communication.

    That's what grad students are for!

  4. Lame by BlackPignouf · · Score: 5, Funny

    No Nobel prize. Less range than a Prius. Lame.

  5. Re:Amused being an example of "death panels". by GauteL · · Score: 5, Informative

    "*Ahem* you don't know a thing about ALS, do you ? He was probably perfectly healthy until 21, at which point 1 diagnosis was (and is) pretty much all that could be done. As for disability aids, those were designed, operated and built by his "employer".
    And as far as I believe that house he has as part of his position comes complete with a butler (read : he gets to hire someone for that)."

    Rather than speculate, let us read Stephen Hawking's own words about his debt to the NHS.

    The telling paragraph:
    "I wouldn't be here today if it were not for the NHS," he said. "I have received a large amount of high-quality treatment without which I would not have survived."

    I would say the last sentence qualifies as evidence for the parent's statement about Stephen Hawking owing his life to the NHS.

  6. Re:Creationists by mrsurb · · Score: 5, Insightful

    I'm a Christian but not a creationist. I have a degree in physics and a degree in theology. And I thank God for Stephen Hawking and the insight that his incredible mind has given us into the universe, despite his defiance of God. I read his book "A Brief History of Time" and it blew my mind, it was one of the factors that led me to study physics. I used his latest book, "The Grand Design" in my honours thesis for my theology degree which was an investigation into the appearance of fine-tuning in the universe.

    Not looking for an argument, just want to point out that not all Christians have the anti-science attitudes that seem so prevalent in American evangelicanlism.

  7. Re:Amused being an example of "death panels". by jo_ham · · Score: 5, Informative

    In what respect? The healthcare he received you mean?

    That's the beauty of a universal healthcare system - everyone has access to the same treatment. They didn't treat him specially because he had international fame (in fact, the fame didn't come until later - it didn't affect his treatment by the NHS at all).

  8. Re:Amused being an example of "death panels". by Anonymous Coward · · Score: 5, Interesting

    i can give you a personal example of the FANTASTIC care available on the NHS here in Scotland

    i was diagnosed with cancer in my bowels due to some villeous adenomas gone back. within a week of the diagnosis i was in an NHS hospital in Edinburgh getting them removed.

    i then had a course of chemotherapy which was a wonderful treatment which didn't cause hair loss.. apparently the same stuff Iain dury had.. his cancer however was too far gone for it to help sadly but it certainly worked for me

    ALL my treatment in hospital and the support care at home along with counselling, as i am telling you, NOTHING shakes the foundations of your being like a brush with mortality with the big C.

    i also have arthritis in both my knees for which i get physio and medication and i paid NOTHING FOR ANY OF IT not even the medicines adn the standard of care was and if VERY high indeed.

    i have been told that due to the advanced crepitus in my left knee that i will have to have a new left knee in the next 18-24 months..... and that and the support and follow on care will be provided to me for free

    My kids were born at the new Edinburgh royal infirmary maternity unit,a fanfastic and very high tech and well appointed place with BRILLIANT staff.. again.. no charge.

    the follow on care for the kids.. health visits froma district nurse type that monitors the health of the child and offers advice and help was also free.

    i have paid my taxes and my national insurance payments and this is why i think it's a fantastic investment , not only for myself and my family but also from an employers point of view.......... a healthy employee is a happy and productive one especially when he doesn't have to worry about doctors or dentist fees

    the care and treatment i have had would cost hundreds of thousands of pounds if i had been in the likes of America where profit for the HMO's comes before giving a fuck about your fellow countrymen/women and children.
    long live the NHS and even though i am not a religious man at all .. bless them for the brilliant work that they do BECAUSE THEY CARE!

  9. Hawking: I would not be alive without the NHS by chrb · · Score: 5, Informative
    Stephen Hawking: I would not be alive without the NHS. This was his response to the amusing mistake by U.S. financial newspaper Investor's Business Daily, which claimed that Stephen Hawking was American, and that if Stephen Hawking were British, he would be dead.

    The controlling of medical costs in countries such as Britain through rationing, and the health consequences thereof, are legendary," read a recent editorial from the paper. "The stories of people dying on a waiting list or being denied altogether read like a horror script...

    "People such as scientist Stephen Hawking wouldn't have a chance in the UK, where the National Health Service would say the life of this brilliant man, because of his physical handicaps, is essentially worthless."

    Stephen Hawking both British and not dead.