HHS Plans To Delete 20 Years of Critical Medical Guidelines Next Week (thedailybeast.com)
An anonymous reader quotes a report from The Daily Beast: The Trump Administration is planning to eliminate a vast trove of medical guidelines that for nearly 20 years has been a critical resource for doctors, researchers and others in the medical community. Maintained by the Agency for Healthcare Research and Quality [AHRQ], part of the Department of Health and Human Services, the database is known as the National Guideline Clearinghouse [NGC], and it's scheduled to "go dark," in the words of an official there, on July 16. "Guideline.gov was our go-to source, and there is nothing else like it in the world," King said, referring to the URL at which the database is hosted, which the agency says receives about 200,000 visitors per month. "It is a singular resource," Valerie King, a professor in the Department of Family Medicine and Director of Research at the Center for Evidence-based Policy at Oregon Health & Science University, added. [She] said the NGC is perhaps the most important repository of evidence-based research available.
Medical guidelines are best thought of as cheatsheets for the medical field, compiling the latest research in an easy-to use format. When doctors want to know when they should start insulin treatments, or how best to manage an HIV patient in unstable housing -- even something as mundane as when to start an older patient on a vitamin D supplement -- they look for the relevant guidelines. The documents are published by a myriad of professional and other organizations, and NGC has long been considered among the most comprehensive and reliable repositories in the world. AHRQ said it's looking for a partner that can carry on the work of NGC, but that effort hasn't panned out yet. Not even an archived version of the site will remain, according to an official at AHRQ.
Medical guidelines are best thought of as cheatsheets for the medical field, compiling the latest research in an easy-to use format. When doctors want to know when they should start insulin treatments, or how best to manage an HIV patient in unstable housing -- even something as mundane as when to start an older patient on a vitamin D supplement -- they look for the relevant guidelines. The documents are published by a myriad of professional and other organizations, and NGC has long been considered among the most comprehensive and reliable repositories in the world. AHRQ said it's looking for a partner that can carry on the work of NGC, but that effort hasn't panned out yet. Not even an archived version of the site will remain, according to an official at AHRQ.
They just can't stop themselves. Sad.
Nix has been helping coordinate an effort to get some outside stakeholder to take over the site's operations. She said she's still hopeful, and even days before the siteâ(TM)s scheduled demise, AHRQ spokesperson Hunt told the Daily Beast that the search continued.
So if it were truly a valuable resource where are the charities or groups of large insurance firms or hospitals willing to pay for this to be kept up?
The article mentioned how the database had been heavily politicized in the past, is it possible the value of this database is less than we are being told by the article writer?
"There is more worth loving than we have strength to love." - Brian Jay Stanley
This sounds like just the kind of content a private company would love to host. Lots of influential, wealthy eyeballs on it each day. Hell, they could probably sell a backup of the site to someone to get them a quick start.
Nullius in verba
and anti-science administration. I'm not saying this to troll. We (or the 45% who voter for him) knew exactly what they were getting. Americans have been kicked around non stop for 40 years and unfortunately instead of blaming the billionaires that outsourced their jobs and brought in cheap labor to replace what they couldn't outsource they blamed "elites"; e.g. scientists and college professors. You know, nerds. And, well, this is the result.
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It may have no commercial value, so no-one can make a profit from it.
But it can still have huge social value as general knowledge for medicine.
This is just the kind of thing the government should do.
This was announced officially back in April.
Back in February the HHS, which runs the office which runs this, released its budget request for the upcoming year. In it, they identified this as being duplicated in other governmental agencies and requested money to transfer the duties and money to different offices or agencies.
The office than in April decided to kill this database even before any of that request to kill it off was approved by Congress and divert the money they were spending on it to something else.
The article being linked to is yet another worthless opinion piece being passed off as actual journalism. The truth is no one really cares about this database and given four months for someone to come forward take it over no one has. The only reason it is being posted here is as a political hit piece.
for one thing less than 50% of us choose that fate. It's only because of a messed up political system designed specifically to favor wealthy land owners (seriously, look it up, the electoral college, senate and even the SCOTUS were all checks not on the president but on the voters).
There's a lot out of folks hands. Hell, I'm stuck in a red state with a ton of problems I wouldn't have healthcare wise if I lived back east or even California. Why am I stuck here? Mom moved me here when I was 6 and by the time I was old enough to know better I couldn't afford to move. This country crushes people, and when it does you can't just go where life doesn't suck. You've got to make due with what you got.
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or hell, even Hilary Clinton. Yeah, she's a right wing corporatists bitch, but at least she isn't openly anti-science. As terrible as she was/is it's always better to pick the lesser of two evils.
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I wrote-in Bernie. Living in North Georgia, I knew that Trump would win Georgia anyway so I voted for the guy who would have wiped the floor with Trump.
I say that knowing that 90%+ of Trump's vote was actually ABC (Anybody But Clinton).
you do know we just spent the last 40 years systematically dismantling the social safety net so we could make way for tax cuts for billionaires, right?
In the entire history of humankind charity has never once solved any problem long term. It's always been civilization in the form of government that did. A few nice people at the middle can't make up for the bad done by folks up at the top. Complex, widespread problems (like public health) need comprehensive solutions done an a society wide scale. You and me dropping change into a plastic bucket twice a year is not a viable solution to the world's problems.
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Is there any chance they will let the public sector copy this database before they just burn it along with all the books?
Not really needed by some pharmaceuticals lobby, maybe?
https://www.propublica.org/art...
Also you should remember:
"Price was the first director of HHS, AHRQ's parent agency, under the Trump Administration, before resigning under pressure last year over his spending on chartered flights."
And of course people appointed by Trump Administration think it's a duplicate. How convenient... Less money spent in research, more budget available for chartered flights!
What I see on Slashdot is an awful lot of non-doctors (myself included) pontificating on this move. Is it really widely used? I don't know. All *I* (and the rest of you) have to go on is the demonstrated value which currently is zero as there are no takers to carry on this data.
Not a doctor yet, but I am a biomedical nerd and aware of how useful those in the research area tend to consider best practices guidelines--and my first question about this actually was "Why is this not at NIH?"
The general rule of thumb is that the lag time is too long between where the research says are the medical best practices and what any published list anywhere will say--part of this is because, to put it bluntly, most doctors aren't particularly into research and don't keep up with it. Those best practices databases aren't going to be getting kept up-to-date and current, and I honestly don't think there's a solution for this short of starting from scratch--if nothing else, because each and every entry should have a date on it saying when it was last checked on and it should be routinely gone into to add data. There is no such thing as too much data if you're trying to figure out what works in which populations; the more you have, the more certain you can be...and the more likely you are to be able to pin down which populations that have strange responses, which is pretty much a basic requirement if you want to do anything more than shrug and move on...and it's also a requirement for improving and fine-tuning the evidence.
I say that knowing that 90%+ of Trump's vote was actually ABC (Anybody But Clinton).
I really don't get the attitude of "we hate clinton so much we'll vote for someone far worse!".
I also don't get the hate for Clinton (actually I do). I mean she's basically another poltician and has the same sort of patina that people grudgingly accept on most other politicians. And yet she gets far, far more hate for it. I wonder why...
SJW n. One who posts facts.
I really don't get the attitude of "we hate clinton so much we'll vote for [anyone else]!".
I'm not sure very many people have that attitude. The Trump supporters I know actively like him (that's why they're supporters). Everyone I've talked to who voted for him can articulate some reason why they think he is better than Hillary. It's not always a fact-based reason, but they feel like they voted for the best candidate.
"First they came for the slanderers and i said nothing."
Your current system guarantees nutball vs shithead elections.
You need a preferential voting system. Only your main parties can field candidates with any chance of winning and thus every vote for an alternative is a lost vote. You need a system where voting for a minority party is not equivalent to putting your vote in the bin.
Also you need compulsory voting. Your main parties no longer target the middle. They target the extremes. And the extremes DO NOT want to vote for anyone who would compromise with the OTHER guys. Until you force the middle to vote, nobody will want to attract their votes (by being centrist).
You are destined for the toilet unless you can get some centrists voted in. The only way to do that is to fix your voting system.
Or just give in and have that series of secessions and/or civil war that seems inevitable at this point.
Some might say you threw your vote away, but I like how you gave it meaning when it had no chance to affect the outcome of the election. I wish people would vote their conscience more often.
Any sufficiently unpopular but cohesive argument is indistinguishable from trolling.
I don't think it's because she's a woman, if that's what you mean. Remember Sarah Palin? And Obama was, well, you know...
There were a few iffy things in her past - nothing proven, but mud sticks. She has the charisma of a tepid lettuce. And the whole dynasty thing, though I suspect we ain't seen nothin' yet on that front.
The survivors in 2050 or so might speak of 1776 as being the First American Revolution.
Confucius say, "Find worm in apple - bad. Find half a worm - worse."
Clinton had to fix what Reagan and Bush sr did driving up the debt; Obama had to fix what Bush Jr did basically fucking up everything, crashing the economy and driving up the debt.... he just didn't have enough time; for Trump, it's going to probably take 16-20 years of democrats to fix his fuckups so far, let alone all the shit he's going to fuck up tomorrow.
This country works much better under Democrats...except for the neo-nazi's and other fascist and bigots, but they all need to go fuck themselves.
Fascism: An authoritarian and nationalistic right-wing system of government and social organization. See also: NAZI's
Everyone I've talked to who voted for him can articulate some reason why they think he is better than Hillary. It's not always a fact-based reason,
Well, that's part of the problem. Lots of people here seem to be willing to believe outright lies in order to justify the thought that Trump was less bad than Hillary. The thing is they have an irrational hatred for Hillary and won't vote for her no matter what.
SJW n. One who posts facts.
What you say is true. The way they go on about Benghazi you'd think she was on sentry duty. But she somehow failed to win people over on those issues. A lawyer who can't defend herself, FFS! Maybe she was just too old, by about 8 years.
The way the primary (I almost wrote primatary - Freudian slip?) was biased against Bernie probably turned some natural Dems against her too.
300 million people and those two were the least bad they could find? Then again, Boris ...
Confucius say, "Find worm in apple - bad. Find half a worm - worse."
One hundred thousand dollars a year is enough to fund roughly one full-time senior engineer with the the broad skills to automate heavily and keep a bulky site with critical data alive. Anohter hundred thousand for one broadly skilled developer to keep the front end working and compatible with new browsers and new standards is also conservative. If we assume servers in AWS, at roughly $1/hour to support the necessary storage, backups, and web traffic for such a bulky system, hat is roughly $17,500/server per year. If we assume roughly 4 servers to allow one host to be down while others are supporting the load, that is also almost $100,000/year.
This is not a service that can run from someone's laptop. The fact that a physician is looking up specific information about a specific disorder at a specific moment is sensitive, so it has to be encrypted, which adds computational requirements which translate to fiscal requirements. Hardening it with a commercially supported load balancer, say an AWS load balancer, is another expense.
Very true:
Hillary told lies so I voted for an much bigger liar. My point exactly.
SJW n. One who posts facts.
about "fiscal conservatives" is while claiming people will take that extra 25% and solve the world's problems they simultaneously believe that raising wages (especially the minimum) is pointless because prices will just go up.
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Gerrymandering has almost ZERO impact on US Presidential elections.
Unless one considers state borders to be gerrymandered. Because 48 states use a winner-takes-all method for allocating electoral college votes. That is, the person receiving the most presidential votes within a state gets all the EC votes from the state. Maine and Nebraska have different rules that are impacted somewhat by district lines, but they have so few districts that its hard to figured gerrymandering has much impact. Maine has all of two districts, with Augusta and Portland and the section of the state between them comprising one district, and the rest of Maine the other, and Nebraska has 3 and their map is hardly what I'd consider gerrymandered, with the tow countries comprising Omaha in one, the suburbs of Omaha in another, and the rest of the state comprising the 3rd.
Further, gerrymandering does not impact Senate seats either. Senate seats are at-large within each state (no districts, only state borders).
Gerrymandering does impact the House of Representatives. It also impacts State legislature seats.
But please stop throwing gerrymandering around as a problem for Presidential elections...
You're suggesting a strong social safety net with guarantees of healthcare, food and shelter would result in miserable and isolated people. As if people can only make friends if they're in a constant state of desperation. No matter what you saw in a jug band once poverty does not bring people together. Money is the #1 cause of divorce you know? People can be economically secure and happy.
/.?
San Fransicso's problem is that it's stuffed with people who don't want to live there but do so because that's where the work is. They're unhappy because the city is a bad fit for them, but when you've got no social safety you can't take risks like moving to a smaller city with less job opportunities and worse schools for your kids. So you suck it down. For the people who _want_ to live in San Fransisco it's a paradise and they'd never leave.
Basic income's a great way to solve this. People could live where they want to instead of where they have to to find work. Also, it would be a nice way to distribute the productivity gains from the last 40 years (which have doubled).
Or we could do your way and keep giving all the gains to the rich plus a huge chunk of what the working class already has. That's what we've been doing for 40 years. How's that turning out for you, Mr takes time out of their day to post a bitter rant on
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Is there anything stopping somebody from just downloading everything and hosting a mirror?
> First, require all eligible voters to vote as they do in Australia.
> There is a financial penalty for not voting.
Yes, there's a fine for not voting here. It's only ever paid by those too stupid to tick the "I was too sick to vote" box on the "Why didn't you vote?" form you get sent - i.e. almost nobody.
This might seem pointless, but it has the effect of making not-voting almost as much work as voting. Actually, an equivalent amount of work since it's trivially easy to ask for a postal ballot so you can vote by mail. It also reminds you that it's your duty as a citizen of a democracy to get off your fucking arse and vote - it's less than an hour once every few years.
Every electorate here has polling booths in local schools and town halls and other places anyway, so even voting in person rarely takes more than half an hour or so. On a Saturday (not a fucking Tuesday - which disenfranchises many workers). Voting is open all day up to 6pm. Or you can vote early at your local town hall or by post.
Both early voting and postal votes are still anonymous, your vote is inside a sealed envelope which is inside another sealed envelope with your name on it (matching your electoral enrolment). When the votes are tallied, the external envelope is checked to make sure it's a valid enrolment and to prevent multiple-voting, and the internal envelope is added - unopened - to the pile of votes to be counted.
and if you don't like any of the candidates you can always invalidate your ballot (i.e. vote "informal") by writing some "fuck you all" or some shit on it.
The ballot papers are randomised so that nobody gets the advantage of being the first on the ballot paper - some fuckwits just vote 1 2 3 4 5 ... in order down the page. AKA donkey voting
BTW, our last federal election was an anomaly with much lower voter turnout than usual (about 9% didn't vote), but Australia routinely gets 95+% voter turnout in every election.
Not what I meant and you know it. Compare her to when she ran against Obama. Can't you see the difference? She's clearly past her prime.
Same with McCain. I think he'd have been better than Shrub, but when he ran with Palin he just looked kind of frail. Then again maybe it was being around her...
Confucius say, "Find worm in apple - bad. Find half a worm - worse."
The Republicans have been building a hatred for Hillary Clinton since 1993 when he took office. The 2016 elections were over two decades of hatred erupting. You can see it how they still go on about Hillary even after she hasn't been in or running for public office for 20 months. They will STILL go on about her supposed crimes and how horrible she is. They turned her into a boogeyman (boogeywoman?) representing all evil in the world. Now that she's gone from public life, they need someone else to focus their hate on. Yes, they can direct hatred at Nancy Pelosi, Chuck Schumer, or Elizabeth Warren, but it's not the same as the hatred they've had for over 20 years.
My sci-fi novel, Ghost Thief, is now available from Amazon.com.
Hillary and Trump really represented two opposite types of people. Hillary loved getting into the details on policy and learning everything about it. Her problem here, though, was that she wasn't really good at boiling that policy knowledge down to catchy statements and energizing speeches. "Read my twenty page policy proposal on Immigration on my website" doesn't exactly draw crowds to the voting booth.
Trump, on the other hand, has zero knowledge of policy and no desire to learn. He seems to go based on whatever pops into his head at that moment or whatever someone told him last. However, much as I hate him I've got to admit that he seems to know how to fire up a crowd. He might not know how to deal with the complex immigration issues, but he can shout "Build that wall" and get people cheering for him.
This election was between no flash/all substance and no substance/all flash. Flash won and substance lost. Yes, this is a huge simplification, but I think this was a big part of it. Trump actually won by about 77,000 votes in Pennsylvania, Wisconsin, and Michigan. Had just over half of those votes gone to Hillary instead of Trump, she would be President now. Had Hillary been able to resonate more with those people, she might have won the election. Sadly, this isn't the only instance. All too often, Americans seem to go for a flashy option even if the "more boring" option is better in other ways.
My sci-fi novel, Ghost Thief, is now available from Amazon.com.