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Terry Pratchett Considers Assisted Suicide

cHALiTO writes "Beloved science fiction and fantasy writer Terry Pratchett has terminal early-onset Alzheimer's. He's determined to have the option of choosing the time and place of his death, rather than enduring the potentially horrific drawn-out death that Alzheimer's sometimes brings. But Britain bans assisted suicide, and Pratchett is campaigning to have the law changed. As part of this, he has visited Switzerland's Dignitas clinic, an assisted suicide facility, with a BBC camera crew, as part of a documentary that will include Britain's first televised suicide. Pratchett took home Dignitas's assisted suicide consent forms."

33 of 838 comments (clear)

  1. Well shit by Dyinobal · · Score: 4

    Well shit that sucks.

    1. Re:Well shit by jd · · Score: 4, Insightful

      Alzheimer's is the result of tau protein brain plaques crushing neurons to death. Tau proteins seem to form around foreign particles in the brain. It is quite plausible that this process is some form of very primitive "immune" response that evolved in single-cell lifeforms or some sort of colony (a jellyfish would probably benefit from toxic chemicals being engulfed even if it meant part of the colony being destroyed).

      This leads to two questions:

      1) How did the foreign bodies get into the brain in the first place?
      2) Would it be more harmful or less to deactivate the immune response?

      It may be that solving (1) would be sufficient. It is certainly necessary, especially if (2) shows that removing the response would actually lead to a worse condition due to toxic buildup. (1) is certainly sufficient for some forms of Alzheimers, such as that caused by aluminum toxicity.

      --
      It's a small world and it smells funny; I'd buy another if it wasn't for the money; Take back what I paid (SoM)
    2. Re:Well shit by Chris+Burke · · Score: 4, Insightful

      Don't say that. It's false hope.

      Right. I prefer to go with the real hope, which is: If we* keep busting our asses like we are, then maybe in 50 years we will laugh at Alzheimers. Or at least be able to do something about it. We need hope to pursue this cause, but we can't act like it's a foregone conclusion.

      * I mean "we" as in "humanity".

      --

      The enemies of Democracy are
    3. Re:Well shit by Bobfrankly1 · · Score: 5, Funny

      Well shit that sucks.

      Well there's a good chance he might forget the whole idea...

    4. Re:Well shit by jd · · Score: 4, Interesting

      I'm actually citing my late father's research papers on the subject. And, yes, he did have considerable expertise on the subject and taught me about the various mechanisms and transport modes involved -- long before Wikipedia existed, I should add. I also attended a number of the conference talks he gave on the subject and helped develop software for distinguishing isotopes that gave similar AMS results that required high levels of expertise (not something doctors usually have) to tell apart.

      So, yes, I do know what I'm talking about. I've been studying those lab notes and papers of his, together with the rival research and the findings by geneticists, for 15 years - 15 years more than you have studied the subject, I might add. I may not be the top expert in the field, but I'm probably the closest to an expert a layman could ever hope to be.

      --
      It's a small world and it smells funny; I'd buy another if it wasn't for the money; Take back what I paid (SoM)
  2. Every person's right by smileygladhands · · Score: 5, Insightful

    It is every person's right to decide how they die. Not the governments.

    1. Re:Every person's right by vlm · · Score: 4, Insightful

      It is every person's right to decide how they die. Not the governments.

      Its the UK, a different culture. There they believe its the governments right to totally control how you live... death is just the endgame, and not surprisingly, the govt wants to stay in charge right till the end.

      The situation in the USA is weirder, with religious whackos trying to write their gods words into law, kind of an "American Taliban" thing.

      Neither side understands each other.

      --
      "Science flies us to the moon. Religion flies us into buildings." - Victor Stenger
    2. Re:Every person's right by mr_lizard13 · · Score: 5, Informative

      Its the UK, a different culture. There they believe its the governments right to totally control how you live...

      With respect, that's horse-shit.

      --
      "We live in a global world" - Harvey Pitt, former Securities and Exchange Commission Chairman
    3. Re:Every person's right by Anonymous Coward · · Score: 4, Insightful

      I would respectfully point out that giving the government the authority to forbid and even punish suicides and those who would assist them takes the rights away from the individual in the first place. The government already has the right to kill you through legal means, and it has the right to forbid you to end your own life if you are in a position you find to be a 'fate worse than death'. Neither political party seems to be interested in fostering or supporting individual rights, but rather want to take rights away. The concept that suicide is an unforgivable sin comes from an attempt to control the lives of people who have no hope; that we continue to foster this method of keeping slaves from escaping into death hints at a very distasteful framework supporting our society.

    4. Re:Every person's right by 0100010001010011 · · Score: 4, Interesting

      How to Die in Oregon.

      Very Very depressing (but good) movie. Don't expect to come out of it in a good mood.

      From its opening scene, where a terminally ill cancer patient takes a lethal dose of Seconal and literally dies on camera, it becomes shockingly clear that How to Die in Oregon is a special film. In 1994, Oregon became the first state to legalize physician-assisted suicide. As a result, any individual whom two physicians diagnose as having less than six months to live can lawfully request a fatal dose of barbiturate to end his or her life. Since 1994, more than 500 Oregonians have taken their mortality into their own hands.

      In How to Die in Oregon, filmmaker Peter Richardson (Clear Cut: The Story of Philomath, Oregon screened at the 2006 Sundance Film Festival) gently enters the lives of the terminally ill as they consider whether—and when—to end their lives by lethal overdose. Richardson examines both sides of this complex, emotionally charged issue. What emerges is a life-affirming, staggeringly powerful portrait of what it means to die with dignity.

    5. Re:Every person's right by KDR_11k · · Score: 4, Insightful

      The charter of Human Rights states that the right to life is inalienable. The UK, like any EU member state, is bound to it. Adding exceptions to a basic human right is extremely dangerous.

      --
      Justice is the sheep getting arrested while an impartial judge declares the vote void.
    6. Re:Every person's right by KDR_11k · · Score: 4, Informative

      The government does NOT have the right to kill you. The death penalty is illegal within the European Union and considered a human rights violation.

      --
      Justice is the sheep getting arrested while an impartial judge declares the vote void.
    7. Re:Every person's right by CharlyFoxtrot · · Score: 4, Informative

      The charter of Human Rights states that the right to life is inalienable. The UK, like any EU member state, is bound to it. Adding exceptions to a basic human right is extremely dangerous.

      "inalienable[in-eyl-yuh-nuh-buhl, -ey-lee-uh-]
      –adjective
      not alienable; not transferable to another or capable of being repudiated: inalienable rights."

      In other words the right to life rest solely in the hands of the individual, which would extend to the right to end that life. No other can decide on that right. I'm lucky enough to life in a state with euthanasia laws, hopefully I won't ever have to use them but I'm glad to have the option.

      --
      If all else fails, immortality can always be assured by spectacular error.
    8. Re:Every person's right by Dragon+Bait · · Score: 4, Insightful

      The situation in the USA is weirder, with religious whackos trying to write their gods words into law, kind of an "American Taliban" thing.

      Unfortunately, it's not just the religious whackos that want to tell you how to live. The "progressives" do as well -- to the point that as a liberal, I can't tell the real difference between the neo-fascist, religious whackos on the right from the neo-fascist, Progressive control-freaks on the left.

      Yes, sure, I know they have different positions, but they both want to tell me how to live my life.

  3. Last Wishes by Renraku · · Score: 4, Insightful

    If I were in his situation, I'd do about the same thing. I'd fill out the forms to be carried out in a few months. That way if he stopped progressing he could just do whatever, but if he kept progressing he may not be lucid so they could do their thing.

    We'll miss you, Terry, but you have the power over your own life and I respect that.

    --
    Job? I don't have time to get a job! Who will sit around and bitch about being broke and unemployed then?
    1. Re:Last Wishes by jimicus · · Score: 4, Interesting

      If I were in his situation, I'd do about the same thing. I'd fill out the forms to be carried out in a few months. That way if he stopped progressing he could just do whatever, but if he kept progressing he may not be lucid so they could do their thing.

      Not as simple as that. AIUI, you have to be able to get there under your own steam and take the drugs (or at least ask for them to be administered) in the full understanding of what they are.

      So you can't leave instructions with a relative to cart you off when you get to the point that you're lucid for maybe an hour a day. You more-or-less have to go over there earlier than you'd otherwise like.

      (ICBW, mercifully it's not something I've ever had to look into in great detail).

    2. Re:Last Wishes by SMoynihan · · Score: 5, Interesting

      I heard an interview with Pratchett on the radio (Ireland). He stated that the singular tragedy was this: The guy in this film had to cut short his life while he could still enjoy it, for this very reason.

      He had to travel, and to end his existence, while still lucid and still capable.

      All for fear he would reach a point of no return, and no hope of exit.

  4. pterry by mseeger · · Score: 4, Insightful

    I was deeply saddened by the news last year when i heard of his illness. Terry Pratchett is still one of my favorite authors and i wish him a lot of time left.

    But i have to confess that i understand his reactions 100%. Rotting away with Alzheimer is my personal worst nightmare. Though i am not allowed to vote in the UK, i will give his initiative my full support whereever i can.

    I believe that, if you have don't have the right to end your own life, you are not free at all. My life belongs to me, but to no goverment, to no society and to no god.

    Yours, Martin

  5. Good for him by cpu6502 · · Score: 4, Insightful

    Speaking as a libertarian:

    Unless the government is claiming ownership of your body (which apparently the UK government is), you should be able to terminate yourself any time you want - especially if you're faced with a terminal illness. By not allowing him to commit suicide the government is basically making Mr. Pratchett the property of the queen. What year is this? 1772?

    "The state of slavery is of such a nature, that it is incapable of being introduced on any reasons, moral or political; but only positive law, which preserves its force long after the reasons, occasion, and time itself from whence it was created, is erased from memory: it's so odious, that nothing can be suffered to support it, but positive law." - Judge Mansfield, Queen's Bench.

    --
    My AC stalker: " I personally agree with your posts most of the time, but that won't keep me from modding you troll"
    1. Re:Good for him by vlm · · Score: 4, Insightful

      Speaking as a libertarian:

      Unless the government is claiming ownership of your body (which apparently the UK government is), you should be able to terminate yourself any time you want

      Nice try, but speaking as a libertarian worshipper of the free-market I would counter that you can't have a free market contractual obligation if one of the participants is bonkers crazy. And the assumption made by the doctors is anyone planning to off themselves is bonkers crazy. Furthermore that bonkers crazy dude, while perfectly sane, paid into the medical-industrial complex to receive mental health treatment when he's bonkers, just as he paid into the system to receive treatment for any other illness such as broken leg, so they need to uphold the contract and "treat" him. Much as a business contract is invalid if one of the signatories is bonkers crazy, a lunatic can't formally legally decide to off themselves.

      Most of the people trying to off themselves are, in fact, bonkers, which makes this pretty complicated. I suppose a legal competency hearing would probably be required for a judge to make a judgement that the dude is not, in fact, bonkers crazy.

      The place this needs fixing is in the mental health profession, not the contract upholding laws, etc. The other problem is the UK is horrifically infested with do-gooderism types of unnecessary laws, so you'd need to remove some clutter. The primary problem is the docs, not the lawyers/politicians.

      --
      "Science flies us to the moon. Religion flies us into buildings." - Victor Stenger
  6. Re:Not much else to say. by Yxven · · Score: 5, Informative

    http://catholicexchange.com/2011/06/14/154594/

    For those that don't want to read it, this is the argument:
    "If we adopt a law holding that a person has the right to kill himself, soon we will also adopt euthanasia; because if the individual has the right to say when his life is no longer worth living, soon society will claim this right as well."

    The rest just bashes the media, liberalism, and socialism.

  7. Re:Suicide by nbetcher · · Score: 4, Informative

    Suicide is mans attempt to keep control of what he never had any control of. Himself.

    I'm not sure I see any factual statement in that. Wanting to die with dignity and sparing the lives of others around him is not related to lacking control throughout life.

    Legal suicide is an invitation for the 'state' to decide who is worthy to live and die because it immediately puts law makers in the position of deciding who's life is worthy of being required to live.

    Many states already do that with the death penalty, but yet we are still not allowed to chose to legally commit suicide. In fact, it's illegal in many states to even attempt to commit suicide and you can be charged criminally if you attempt (and fail) to do so. Allowing someone to voluntarily commit assisted suicide does not put the government in control of that person's life, it puts the individual in charge.

    As has always happened in the past legal suicide will not be fully voluntary for long , because it will be used as an excuse to not take care of those people who choose not to use the 'option' when they are no longer 'worthy' of support.

    Again, we're talking about voluntary assisted suicide, which means that the individual chooses, not the government or care-taker. While it's entirely possible that the Power of Attorney could invoke assisted suicide on another individual, there could be laws placed against that if assisted suicide were to be made legal.

    Point being, if someone wants to die, it should be their choice. My father's life-long best friend committed suicide in his back yard the day after getting a terminal cancer diagnosis; while in his case it was a little selfish, he spared his family many years of grueling stress and granted them a positive feeling that he is in a better place now.

  8. Re:Well damn... by jd · · Score: 4, Insightful

    Personally, I'd prefer it if the stem cell researchers could find a way to reverse the damage and bring him up to full health. It's not an either-or situation. Every day TP is alive and well, there is a chance (however microscopic) of a breakthrough. However, I also respect the fact that you've got to draw the line somewhere and I respect where he's drawn his. The only question that remains is whether the US (the country capable of funding R&D at the necessary rate) will actually back stem cell research enough to save him and countless others. Not just from Alzheimers but from any death that results from a relatively small number of cells that cannot be repaired by the body unaided.

    --
    It's a small world and it smells funny; I'd buy another if it wasn't for the money; Take back what I paid (SoM)
  9. Re:Not much else to say. by Denogh · · Score: 4, Funny
    Look, I'm sure articles on by priests "catholicexchange.com" should be taken into consideration on matters of morals or ethics, after all, the church's record is sterling in that regard. But really, the Monsignor's argument appears to be:

    1. Allow terminally ill people to die (relatively) painlessly in a sterile, comfortable environment.
    2. ????
    3. Logan's Run.

    and that's plain silly.

  10. You can try, but... by ArcCoyote · · Score: 5, Funny

    "Beloved science fiction and fantasy writer Terry Pratchett has terminal early-onset Alzheimer's. He's determined to have the option of choosing the time and place of his death, rather than enduring the potentially horrific drawn-out death that Alzheimer's sometimes brings. But Britain bans assisted suicide, and Pratchett is campaigning to have the law changed.

    THANK YOU FOR YOUR SUGGESTIONS. PLEASE UNDERSTAND HAVE A VERY BUSY SCHEDULE. I'LL GET BACK TO YOU WHEN I FIND THE TIME. BUT REST ASSURED I _WILL_ GET TO YOU.

  11. Re:Suicide by danlip · · Score: 4, Insightful

    Which is to say we already have socialized medicine in the US, it's just very badly managed. Putting in a proper system of socialized medicine would be much better and cheaper. The only other choice is letting people die in the streets.

  12. Re:Not much else to say. by thePowerOfGrayskull · · Score: 5, Insightful

    The starting point for these evils is the liberal and materialistic view that man is the owner of his life; that he is free to choose the moment and manner of his death. Those who hold this view define suicide as “the last liberty of life.”

    Free will my friend. Your religion my decide that my suicide is a sin; that does NOT deprive me of the right to commit that final sin. That right and decision is mine alone. Even if you prove correct, and i have indeed stolen that life from your God, judgment is his. It is not yours, not the Church's and most certainly not the State's.

    If we adopt a law holding that a person has the right to kill himself, soon we will also adopt euthanasia; because if the individual has the right to say when his life is no longer worth living, soon society will claim this right as well.

    Wait what? This is a pretty egregious logic fail - even for a religious organization. Euthanasia and assisted suicide are nearly diametrically opposed. One leaves the final decision in my hands; the other in the hands of society. Stating that there is a connection between the two is not sufficient to prove that connection.

    Sorry, I stopped reading once I realized that the remainder of that "article" is based on both conflating the two actions, and upon the false premise that under your religion I do not have free will to sin or not.

  13. Re:Terry should look at these treatments by Ashe+Tyrael · · Score: 5, Informative

    PTerry already does a huge amount for Alzheimers projects. He doesn't expect the fix to come in before it's too late for him, and so he's making his plans and raising a stink about the issues while he still can.

    As for "he should look at these examples," he's already keeping abreast of everything that's going on in this field. In fact, right at the beginning of all this, he asked all the n-thousand people who would write to him going "have you tried X, Y or Z" option to please not do so, unless they were a neurosurgeon or brain expert, to keep the clutter down and the signal-to-noise ratio up.

    Amusingly, a disproportionate number of top-flight experts in these areas are fans. He effectively has a whole bunch of experts who keep him aware of the state of play.

    Put simply, he's doing everything he can in his position, including laying the ground work in the event it's not quick enough.

    --
    "How fine you look when dressed in rage."
  14. Re:Hmmm by MrNiceguy_KS · · Score: 5, Funny

    THERE IS ONE CHARACTER THAT WOULD UNDERSTAND COMPLETELY.

    (Note to the lameness filter: when discussing Terry Pratchett, all caps is not yelling.)

    --
    Redundancy is good And also good.
  15. Re:Well damn... by Luckyo · · Score: 5, Insightful

    There is a funny fact about assisted suicide. If Alzheimer/cancer/similar incurable painful disease would be monitored by a veterinarian without putting the animal down, he would be sued for animal torture. And lose.

    It's quite telling when our current "general" code of ethics is against torturing animals in this way, but not against torturing humans in the same way.

  16. Alzheimer's is horrifying by bzipitidoo · · Score: 5, Interesting

    In more ways than the obvious ones. My mother has it, so I've had no choice but to learn about it. She can't really do chores any more though she still tries. She confuses clean and dirty dishes. She puts them in the wrong cupboards. She can't operate the washing machines any more, but she can and does still open the doors, stopping them. So we've had to either stand guard, or wash by hand, or use them at night when she is asleep. She's always thinking that people are coming over, or that we have to hurry up and go somewhere to meet people. She's beginning to have trouble remembering people. She really took to email, and was our family's big communicator. But about 2 years ago she stopped using it. Now she can't write anything but the most banal fluff. They say an early warning sign is difficulty with finances, and it was about 3 years ago we had to take over all the bill payments. The trigger was being 3 days late with a credit card payment. First time that ever happened, and the credit card company (Chase) wouldn't give an inch. I suppose the crisis made them hard ass. I paid the late fees and interest, and the entire bill, then I cancelled that credit card. A year later I finished cutting all ties with Chase, and closed my savings account with them.

    How and when do you take the car keys away? We saw suspicious paint marks on the bumpers and doors, and knew we couldn't let her drive much longer. Dreaded having an ugly scene where we forcibly took her driver's license away. Making it harder was that her daily trips to the mall got her out of our hair so we could work. But we found a neat way around it. She was always misplacing her purse, with keys, credit cards, and all. In March last year, she got paranoid that thieves might break in, and hid her purse. Took us a week to find it that time. We used that to end her driving. Told her she couldn't drive until she found her license and car keys, and she didn't blow up and come down hard on us as it was obvious to her that it was her fault she'd lost her purse. We did not tell her when we finally found it.

    Doctors, curse their greedy hides, are unable to do anything constructive about it. All they do is profit off our problems by selling us expensive prescriptions that may do nothing whatever. Aricept is a waste.

    All that is pretty typical. It will get worse. I read that in the advanced stages, victims no longer have enough of a brain to coordinate walking, even if their bodies can still do it. So they have to use wheelchairs. We may ultimately have to put her in a nursing home. But I haven't yet told of a less obvious horror.

    What I didn't know is how happy Alzheimer's victims are. She was always a moody person, prone to rampages over essentially trivial faults. She's a "sundowner", meaning that late afternoon is her triple witching hour so to speak. Her blood sugar bottoms out, and she becomes a hell of a grouch, more ready than usual to explode at any provocation whatever, and so ready to see provocation where there wasn't any. Got to feed her to calm her down and get her back to being just merely touchy and thin skinned. And then around 10 years ago, that changed. She became a much more pleasant, happy person. I took it as the wisdom of age. Thought she'd resolved to turn over a new leaf, and was succeeding. Everyone who met her told me how cool she was. And it gave me hope that people really can change, that genetics and formative events in our childhoods don't have to be our destinies. Now I understand that was the beginning of Alzheimer's. How can I express it? Horrifying to see that these improvements were thanks to irreversable brain damage, and that achieving happiness in life is perhaps not a worthy goal and not a real improvement.

    --
    Intellectual Property is a monopolistic, selfish, and defective concept. It is "tyranny over the mind of man"
    1. Re:Alzheimer's is horrifying by LatencyKills · · Score: 4, Insightful

      Sounds hauntingly familiar - we went through all of that with my mother. Taking away the car keys turned out to be easy. When she asked we told her the car was at the mechanics, and astonishingly quickly she forgot about it. Showers became a hazard as she would sometimes turn on the hot water full blast. Installed a locked temperature knob. The biggest hassle came when she started wandering off. The police would return her - she was found roaming the neighborhood, going to visit a friend (said friend had been dead ten years, and lived 40 miles away when she was alive - far too far to walk). When it started happening at night we had to move her to a locked care facility. Oy. She cried not to leave her there on that first night, like a child being left at camp for the first time. The second night was no better, nor the third, nor the fourth, but she did eventually settle in at the new place, though went downhill quickly. One day she simply refused to eat. No coaxing could get her to, and we refused to have her fed intravenously. And maybe two weeks after that, it was over. Her death was not a sad time; we viewed it as a time of release. This was a woman who was a trained nurse, a grand master at bridge, and ace at the NYT crossword puzzle, and a voracious reader, reduced to making belts woven out of leather strips in a day room. The woman who was my mother had been dead more than four years before her body finally caught up with her. A death I would not wish upon my worst enemy.

      --
      Jealously hoarding mod points since 2007.
  17. Re:Well damn... by Grishnakh · · Score: 5, Insightful

    It basically shows that our laws are written by religions. Putting an animal down when its terminally ill is seen as merciful, because we don't want it to suffer needlessly.

    However, people aren't allowed to commit suicide in the same circumstances to avoid needless suffering, and there's only one possible reason: religious proscriptions against suicide. And also because humans are seen as completely different from animals, a viewpoint which again is rooted in religion.

    It would be nice if the first-world nations (and maybe others too) would pour some more funding into research to combat these diseases. You'd think that maybe some of these greedy leaders would be interested in more treatments and cures for old-age diseases, considering most of them aren't that far away from old age themselves and thus have a significant chance of acquiring these diseases themselves.