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Why Johnny Can't Speak: a Cost of Paywalled Research

theodp writes "That there's no easy way for her to get timely, affordable access to taxpayer-funded research that could help her patients leaves speech-language pathologist Cortney Grove, well, speechless. 'Cortney's frustration,' writes the EFF's Adi Kamdar, 'is not uncommon. Much of the research that guides health-related progress is funded by taxpayer dollars through government grants, and yet those who need this information most-practitioners and their patients-cannot afford to access it.' She says, 'In my field we are charged with using scientific evidence to make clinical decisions. Unfortunately, the most pertinent evidence is locked up in the world of academic publishing and I cannot access it without paying upwards of $40 an article. My current research project is not centered around one article, but rather a body of work on a given topic. Accessing all the articles I would like to read will cost me nearly a thousand dollars. So, the sad state of affairs is that I may have to wait 7-10 years for someone to read the information, integrate it with their clinical opinions (biases, agendas, and financial motivations) and publish it in a format I can buy on Amazon. By then, how will my clinical knowledge and skills have changed? How will my clients be served in the meantime? What would I do with the first-hand information that I will not be able to do with the processed, commercialized product that emerges from it in a decade?'"

15 of 189 comments (clear)

  1. Simple by bondsbw · · Score: 4, Insightful

    Taxpayer-funded research should be accessible by taxpayers.

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    All my liberal friends think I'm a conservative, all my conservative friends think I'm a liberal.
    1. Re:Simple by girlintraining · · Score: 4, Insightful

      Taxpayer-funded research should be accessible by taxpayers.

      It is, technically. By technically I mean, it was published once, in a 'free' publication, sent to a few libraries, and thus the public access requirement was met. But since you'll never find it there because it isn't indexed, searchable, or in any way known... it's effectively useless. See, once again our shitty co(r)p-y(a)-right system fucks us; They make it so if you assemble a collection of works together into a database, that now counts as a unique and copyrightable work unto itself. So... although the study is 'free' to the public... the "doesn't have to drive 500 miles to a library in the boon docks and find it on a shelf" convenience is what they charge for access.

      What we need is a 'google' of science/medical studies. Unfortunately our government's archaic and purposefully not updated methods of publication mean that if you want to get a digital copy... you have to contribute the labor to re-digitalization. Of course, you can get a digital copy... for a small additional processing fee. -_-

      --
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    2. Re:Simple by noh8rz10 · · Score: 4, Informative

      you mean like adam schwarz? that didn't end well.

    3. Re:Simple by pepty · · Score: 5, Informative

      By technically I mean, it was published once, in a 'free' publication, sent to a few libraries, and thus the public access requirement was met. But since you'll never find it there because it isn't indexed, searchable, or in any way known... it's effectively useless.

      What???

      The Policy implements Division G, Title II, Section 218 of PL 110-161 (Consolidated Appropriations Act, 2008) which states: SEC. 218. The Director of the National Institutes of Health shall require that all investigators funded by the NIH submit or have submitted for them to the National Library of Medicine’s PubMed Central an electronic version of their final peer-reviewed manuscripts upon acceptance for publication, to be made publicly available no later than 12 months after the official date of publication: Provided, That the NIH shall implement the public access policy in a manner consistent with copyright law. The Public Access Policy ensures that the public has access to the published results of NIH-funded research. It requires scientists to submit final peer-reviewed journal manuscripts that arise from NIH funds to the digital archive PubMed Central (http://www.ncbi.nlm.nih.gov/pmc/). The Policy requires that these final peer-reviewed manuscripts be accessible to the public on PubMed Central to help advance science and improve human health.

      NIH/ NSF sponsored research published since 2008 is available on Pubmed for free 12 months after it is first published. Most of the rest you can rent from DeepDyve.com for about a buck an article.

    4. Re:Simple by Anonymous Coward · · Score: 5, Interesting

      It's probably incredibly sad, but I think I probably have more pirated research papers than I do music, movies, or other content.

      "Back in the day," piracy was the single most common way to distribute scientific research. In fact, I still have three filing cabinets full of articles I xeroxed either from a library or from a fellow researcher. We call it fair use. The modern system is much better - higher quality type and images, fewer dead trees, and no more $0.10/page xerox fees. All NIH funded research is available for free no more than 1 year after publication. see http://science.slashdot.org/comments.pl?sid=4382101&cid=45249551

      Honestly, every time I see one of these "paywalled research is hurting patients" bits on /. I wonder how the submitter, supposedly a health-care expert, has managed to stay ignorant of the 10-year-old requirement for archiving in PubMed Central and the resulting massive trove of free books and journals at http://www.ncbi.nlm.nih.gov/pmc/

  2. NIH has addressed this by TXISDude · · Score: 5, Insightful

    NIH funded research must be put into PubMed Central, the NIH public portal, within 12 months of publishing in a journal.

    --
    Hope is the worst of evils, for it prolongs the torment of man. -- Friedrich Nietzsche
    1. Re:NIH has addressed this by nbauman · · Score: 5, Insightful

      That's right. The journal that Cortney Grove gave as an example, Topics in Language Disorders http://journals.lww.com/topicsinlanguagedisorders/pages/default.aspx , does provide free access to papers funded by NIH, Wellcome Trust and Howard Hughes http://journals.lww.com/topicsinlanguagedisorders/_layouts/oaks.journals/nih.aspx

      I feel for her. I've been in the same situation as her and I've made the same arguments. Years ago it was even worse.

      That said, I think she's exaggerating the situation somewhat. I think she should have a talk with a good reference librarian in her field.

      (I do similar research, not in speech pathology but often in visual pathology, orthopedic handicaps, etc. She may have different needs, but I track down a lot of papers, with varying degrees of success.)

      You might want to have access to 100 journals, but nobody reads 100 journals cover to cover. I read a half dozen core journals every week, and I got access to a good database and a few journals through a couple of professional organizations. The New York Public Library has a few good databases online free to its cardholders, and the EBSCO Academic (or whatever they call it) has some good journals too. Every week or so I come across a journal that isn't included, so I email the author, or ask my friends. It used to be easy to get into an academic library, but now that universities are monetizing, it's getting difficult (but not impossible). The public library has all kinds of arrangements for ordering papers from other libraries.

      I think I know what Grove is doing. She's reading journal articles, looking at 200 footnotes, and she wants to read the ones that look interesting. I've done it myself. It's the sign (or maybe the vice) of a good scholar.

      Just to get an idea of the kind of articles we're talking about, here's one of the free articles in
      http://journals.lww.com/topicsinlanguagedisorders/Fulltext/2013/01000/Morphological_Awareness_Intervention_in_School_Age.4.aspx?WT.mc_id=HPxADx20100319xMP

      But there's a lot of redundancy. I used to collect a dozen articles, read them, and they all seemed to be saying about the same thing. A review article in the New England Journal of Medicine is about the same as a review article in The Lancet. If you've read one, you don't have to read the other (or the other six). If you can't read it in Topics in Language Disorders, you can probably read it in another dozen journals.

      So (since she's not doing research in an academic institution) she probably doesn't need 100 articles. She needs a professor or librarian or somebody to steer her through the literature and give her a half dozen articles that she should read.

      It's also an exaggeration to say that her clients won't get the benefit of the latest research. A practicing clinical speech therapist doesn't have to follow the basic research and theoretical arguments in the academic journals (although it's nice, and it's the sign of a good practitioner). You should be treating people according to consensus statements and guidelines. A lot of the latest stuff turns out to be wrong.

      You should find everything you need for clinical practice in a half a dozen core journals and a few professional meetings. If you want to be up to date, you have to take continuing education -- no way out of it. And the people who give continuing education courses can guide you through the literature.

      But if she takes the current research that seriously, she should have some academic affiliation, which would also give her library access. Admittedly, some charge exorbitant fees. But some universities used to give free library access to their alumnae, and even if they do charge

    2. Re:NIH has addressed this by Theleton · · Score: 4, Interesting

      That said, I think she's exaggerating the situation somewhat. I think she should have a talk with a good reference librarian in her field.

      There's another approach as well, though it's probably more for researchers than practitioners: just ask the authors to send you a copy of the article. It's not like they get royalties from the publisher, so they don't care whether you pay or not. They just want to get their research out there. Plus, every researcher who reads it is someone who might cite it, which they do care about.

  3. Corporations by cphilo · · Score: 4, Insightful

    The United States has become a nation of public financing and private profits.

  4. I believe the intent... by tlambert · · Score: 4, Informative

    I believe the intent... is that all healthcare practitioners do not have private practices, but are instead employed by large healthcare conglomerates like Connecticut Life, United Healthcare, etc., and that those conglomerates have online access to the journals from their networks.

    As long as you do not hang out your own shingle, and remain a wage-slave to a large corporation, you will have no problem accessing the necessary publications.

  5. Having worked for a Springer journal, by aussersterne · · Score: 5, Informative

    as a managing editor, I can tell you that they do not incur substantial expenses, and that academics provide the important parts of the service, essentially for free in the cases of most journals. It's not like putting out a magazine; we didn't even have copy or layout editors for our journal, the most inexpensive components of editorial labor. It paid the university department that hosted the journal a mere thousands (single digits) per year. There were two "paid" staffers—myself and one other person, The rest of the "editorial board" consisted of faculty of our and another several universities doing the work for free, under the auspices of the "professional duties" of the academics involved (not as paid by Springer, as paid by their respective institutions). Peer reviewers—free. Editorial labor (copy, layout to production files according to specs, submissions queue, even rough line editing, style work)—graduate students looking for a title to add to their emerging CVs.

    Essentially Springer's total cost for putting out the journal amounted to the several thousand (again, single digit thousands, split between myself and one other individual) that they (usually belatedly) paid our department annually for the entire journal in its substance, plus printing/distribution (a pittance given the circulation size of academic journals and the cost per print subscription—not to mention the increasing number of electronic-only subscriptions). They had one liason that handled our entire "account," and the level of labor involved allowed this person to be "over" several _dozen_ journals as just a single person. That's as much a labor footprint, in its entirety, as our journal actually had inside the "publisher."

    And for this, they held onto the reprint/reuse rights with an iron fist, requiring even authors and PIs to pay $$$ to post significant excerpts on their own blogs.

    Seeing the direction the wind has been blowing over the last half-decade, the department decided (and rightfully so) that it's basically a scam, that academic publishing as we know it need not exist any longer, and wound down both the print journal and the relationship with Springer several years ago, instead self-publishing the journal (which is easy these days) to much higher revenue for the department, and the ability to sensibly manage rights in the interest of academic production and values, rather than in the interest of Springer's oinking at the trough on the backs of academics.

    Oh, and many university libraries (particularly in urban areas) do not admit just anyone off the street; you must generally hold an ID that grants access to the library (often student or faculty, plus a paid option for the general public, either monthly or annually, that can vary from somewhat affordable to somewhat expensive). Not to mention that for many people, yes, it is a significant professional hardship to lose a day or two of work to be trekking into foreign territory and sitting amongst the stacks—and that this hardship is made much more irritable by the fact that the very same articles are sitting there online, in 2013, yet can't be accessed at reasonable cost.

    As an academic, I have the same frustration. We bemoan the state of science in this society, yet under the existing publishing model we essentially insure that only a rarefied few scientists and the very wealthy elite have access to science at all. $30-$60 is not a small amount for the average person—and that is the cost to read _one_ article, usually very narrowly focused, and of unclear utility until they've already paid the money, that is borderline unreadable for the layperson (or for the magazine author hoping to make sense of science _for_ the layperson) anyway. Why, exactly, would we expect anyone to know any science at all beyond university walls, under this arrangement?

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    STOP . AMERICA . NOW
  6. Paywalls ... strangulation of scientific progresse by Taco+Cowboy · · Score: 5, Insightful

    Whether or not taxpayer-funded research should be accissible to the taxpayers for FREE is a matter to be acertained, but the fact is that it is no longer possible for anyone, including the professional researchers, to know where to find the result of the various facet of related research on a given field.

    It is as if we are back to the pre-Internet days.

    Before Internet, it was a Herculean task to find out if there had been a research carried out on any particular subject, simply because there was no one central database.

    When Internet first arrived, the situation was greatly improved - although there were still no centralized database for all research results, at the very least we could search for it online.

    Now ?

    Not only the research papers are hidden behind paywalled, most of them don't even appear on search queries anymore.

    Paywall does not only representing GREED that is retarding the progress of the human society, it is actually STRANGLING the progress of scientific research.

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    Muchas Gracias, Señor Edward Snowden !
  7. Re:If you don't like the game, change the rules by paiute · · Score: 5, Informative

    If you don't like the fact that the current journals charge the rates that they do you have to take your research to a new journal that doesn't.

    What is the incentive for me to do this if I am an academic who is trying to get tenure or move to a better position at another university or compete for grants? The major ammunition in the CV of anyone trying to do these things is publications in big name journals.

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  8. Re:Ever hear of the university library? by Black+Parrot · · Score: 4, Informative

    A good science/engineering university library subscribes to hundreds of technical journals and keeps them in stacks going back decades.

    Lots of universities simply can't afford all the journals they ought to have.

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    Sheesh, evil *and* a jerk. -- Jade
  9. Re:Libraries by nbauman · · Score: 4, Informative

    That should have been the entire article right there.

    Almost all specialty libraries I've heard of offer visitor access or special (paid) access to professionals in affiliated fields.
    It sounds like this Doctor didn't put a lot of effort into trying to find a way around the pay wall.

    I just checked the websites of Medical School libraries in my State and neighboring States,
    they almost all have a way for people unaffiliated with the school to gain onsite access. /Though one requires an annual membership and charges extortionist prices for photocopying articles.

    I've been through that in New York City. Most of the medical school libraries in Manhattan don't allow public access. One of them offered to let me use their library for about $2,000 a year. It's a real problem.

    If you actually tried to do it, rather than just looking at their web site, I think you'd find it was difficult to impossible. Unless you happened to find a small friendly library that had everything you needed.