An Update on Patrick Volkerding
Noryungi writes "Patrick Volkerding, the maintainer of Slackware Linux has posted an update on his health problems on the ChangeLog of Slackware-Current. Unfortunately, it seems his health is getting worse and not better... Again, if you know some specialist in viral infections, contact Patrick ASAP. Hang in there, Pat!" Our original story.
I, like most of slashdot, send my well-wishes.
"Netcraft does not yet confirm it"
Great to see he's kept his sense of humour.
Pat is one of the heros of the Linux movement, like Donald Becker, or Andre Hedrick, people without whom running linux would be an impossible task. Pat, good luck, hang in there!
I want to delete my account but Slashdot doesn't allow it.
What does your actual Doctor think of everything that is going on? You do have a family doctor, right?
Keep this up and the next /. post is going to be your Obituary. Not being a troll, but you need to stop with the games and ge tthis fixed.
DAMN YOU OCTODOG! DAMN YOU TO HELL!
He thinks normal mouth baterial got into his lungs.
Which can happen.
Med Labs routinely ignore mouth bateria in samples.
Antibiotics tailored to leave them alone.
Antibiotics don't work on virii, at all.
Needs old fashioned or special antibiotics.
Some heart disease caused by infection.
Still learning how much disease caused by infection.
Doctors don't do unusual very well.
Needs to get lucky with right doctor.
Nothing wrong with defending yourself.
This fucking ridiculous.
If he is as sick as he says, _any_ physician would insist on having him hospitalized and having multiple consultants see him (notably, infectious disease and oncology.) He symptoms suggest a progressive disease that requires agressive intervention - and that doesn't mean trials of expensive antibiotics.
He has either failed to see a primary care physician, or he has refused appropriate treatment and admission to a hospital. In either case, as an educated, intelligent man he has made his own decision. Slashdot should not be contributing to his decline by enabling his poor decisions. He needs to be told flat out by his friends that they are not going to work with him until he agrees to admission and workup at a major teaching hospital (which, by the way, will have access to every antibiotic in the world.)
+--------------------- You idiot! I told you we were facing the wrong way!
If this is the same NHS that wastes money on novacaine shots for people donating blood, who, after you donate, suggest that you go drink some caffeine, and if you have a non-life-threatening problem (ingrown toenail), you get bumped FOR YEARS waiting for surgery? I was there, I paid for it, I have the NHS card to prove it. And it sucks.
I want to delete my account but Slashdot doesn't allow it.
No, the problem is that he went to a doctor at the start, who told him nothing was wrong. He repeated that about 10 times. In the meantime, he tried to find out what was wrong with him because 1) he has more time than the GPs and crappy specialists he saw, 2) he cares more than them about his health, and 3) most doctors don't think creatively because they aren't trained to.
As someone who has had a hard-to-diagnose health problem, Patrick's course of action is the only one that works. You have to do your own research, and pester the hell out of doctors to get them to actually try to diagnose you. Otherwise, they either tell you nothing's wrong, or they refer you to someone else who repeats the whole process and refers you again.
Patrick didn't self medicate. He's just trying to get these damned doctors to take his condition seriously.
-Looking for a job as a materials chemist or multivariat
I think the general consensus among medical professionals on the last go round, is he needs a SPECIALIST, not an internest, not an ER doctor. He needs to go to someone with a plan, an Infectious Disease fellow who deals waith these kinds of illnesses. He apparently is near some world class medical institutions, I am not sure why he is not utilizing them.
Save a Life. Donate Blood. Please.
Enjoyment has been tied to improved immune function and when it comes down to it with or without anti-biotics his immune system is what has to kick the bacteria.
From time to time you read anecdotes about people kicking illnesses through humor or just deciding to kick back and have fun on the way out. (I guess, though, those are self selecting, You don't usually hear, "well, I tried that, but it killed me anyway...) Myself, as a kid I once got sicker and sicker for months, despite lots of medical treatment, the turning point for me was the b&w and silent comedies. Can't say for sure that's what did it, but at least it was entertaining. YMMV
Beta is broken and the link to classic doesn't work. Stop wasting our time or there won't be anybody left here.
Don't overdo the antibiotics? Are you in the US? Antibiotics (eg: tetracycline, penicillin and streptomycin) are used as growth promoters in cattle and other animals. Antibiotic resistance genes are being transferred from the environment into our bodies: New Scientist for the scary details.
Did he inhale?
I wouldn't say hypochondria per se because something is obviously wrong with him.
However, doing self-diagnosis is a bad idea. Panic can set in and cause things to get worse: phantom symptoms, lowered immune system due to the stress, etc.
If he doesn't like or agree with a doctor, he should go to another one. I had to do that because my current doc at the time couldn't figure out what was wrong with me (burning from the waist down for 8 painful months!), nor a neurologist she sent me to.
I finally went to a doctor who happened to be an osteopath, and they look at things slightly differently than MD's do. He figured out it was a back injury and I was making it worse by stressing over it because I was looking up all kinds of weird nerve disorders on the 'net. It turns out my back went out and some nerves were being compressed just enough to cause the pain but not show up in the neuro's tests. The stress caused everything to tighten up more, and it was a vicious cycle. 6 months of physical therapy, and I was almost back to normal.
Anyhow, the point is that doctors can get confused and miss things. But looking online won't help it - it just makes you stress more and you start imagining things or everything becomes a symptom.
Keep going to docs and force them to figure it out. ER docs are also good at figuring stuff out, especially the weird stuff. So if you feel sick, go to the ER.
Keep off the self-diagnosis and med web sites.
Maybe you've never been through the medical industry before, but stories like these are all too common. Doctors don't like to admit when they don't know something, so the default answer becomes "there's nothing wrong with you". Has he overstepped his bounds and tried to self-diagnose? Well yes, obviously. But then again it sounds like that's his only option at this point. The health industry hasn't been able to help him, so he has to force them to help him by continued pestering.
AccountKiller
Seriously, I am on Cipro , second time for a bout of prostatitis myself, I waqs experiencing night sweats, heart pains and most disturbingly severe liver pain, after a ton of tests everything was Ok except I was still fevered and had the liver pain, all kinds of unexplainable and very serious seeming symptoms,
It turned out that My GALL Bladder is pretty much DOA , The coincidental timing with my prostatits was just bad luck.
I also have Reiter's Syndrome which can cause ALL Kinds of seemingly unrelated symptoms (INCLUDING HEART) AND IT generally goes hand in hand with prostatits in younger (under 40) men,
Mine was caused from a very serious bout as in nearly dead, case of Campylobacter.
Now I have just regined myself to taking lots of NSAIDS, for the arthritis part (but as many broken bones as I ve had its hard to tell if its from those or this) and dealin with a bout of the big P every other year or so. he heart issues are serious but treatable.
The Rife machine? Are you nuts? Next you'll be telling him to rub stones and magnets over his body. If this Rife stuff actually worked there would be people all over using it cure people. Is it FDA approved or is that due to some conspiracy by the medical establishment holding it down?
No wonder he didn't reply to you.
Chris
My experience has been that with any profession if you, not part of that profession, claim to know better or push them to do what you believe needs to be done, they will be infinitely less useful than they would be otherwise.
Think about computer technical support, as an example we are all familiar with. They are paid to solve your problem according to their standards as quickly as possible, then get the the next call.
Physicians are not different, due to hospital and insurance policy.
If you act belligerent, and insist that you know what's wrong and that they are to follow your orders, they will likely turn a deaf ear to your complaints, do the minimum necessary that won't get them in trouble, and hope that you bug some other physician next time.
Further, like a tech, if they hear that you are searching for the right doctor to diagnose you according to your desires, they will all the more easily dismiss your problem. Firstly because you may well be a hypochondriac, secondly because they know you won't stop until you're treated, and thus they don't need to be burdened with the thought that you might take their advice and then die.
The best way I've found to deal with people who essentially must operate according to a 'script' or 'SOP' is to approach them with my most major complaints/symptoms, avoid using any terminology that might show I know more than I'm letting on, and let them go through their normal procedures.
Doctors (and techs) are getting more used to the idea of self-help, so it can help sometimes to say something like, "I looked my symptoms up online and [reliable medical website] suggested something called 'technical term'. Is there a way to prove that I don't have that?"
The reason physicians and techs are so jaded is because in the vast majority of cases, the doctor hopping, belligerent, advice ignoring patient/client is wrong. Further, if they aren't willing to go through your normal procedure for knocking off the most obvious problems, there's no way in this world that they'll diagnose you for something that is rare.
The fact that your are doctor hopping and hospital hurts you more than it helps. At the minimum you need to get a copy of your medical record from every provider you've visited and then choose a doctor/health system and stick with them. Changing doctors is resetting your medical care. A new doctor has to start from scratch.
Lastly, make sure the 'trouble ticket' isn't closed until you are satisfied. If the doctor gives you a clean bill of health, then ask them why you still have these symptoms. If they won't give you a clear answer, then ask to be bumped up to the second tier of support. There are only three reasons why you might continue to have these symptoms, and ask them point blank which one it is: 1) You have an unresolved medical problem or 2) You are imagining your medical problem or 3) You are considering something 'normal' to be a medical or resolvable issue (ie, there is no treatment)
Tell them this is causing a quality of life issue, and if the problem is 1 then you need it to be resolved. If it's 2 then ask them to send you to a qualified psychologist (who can rule out or resolve hypochondria). If it's 3 then ask them who can help you resolve your pain and suffering so you can be productive again.
I'm sure I don't have the whole story from this side of the issue, nevermind the doctor's side of the issue, so I can't really weigh in on this particular case. My gut tells me that if this was a serious (ie, death at the door) case, then portions of his body would be failing in a detectable way. Especially if he's had this 'bacterial infection' for this long. Perhaps systems are failing and doctors haven't been given the chance (or time before switching) to find them. Funny thing about 'normal' levels of [measurement x] is that normal is a large band, and while you may fall in that band, it may not be normal for you. Until you have a comprehensive case h
I can't disagree with this strongly enough. This is very true for common illnesses, but very untrue for rare ones. I should know: I was recently diagnosed with Hodgkin's Lymphoma, a rare cancer of the lymph system that about 8,000 people will be diagnosed with this year in the US [1]. I had the symptoms of it (swollen glands, itchiness; ie very nonspecific symptoms) for nigh on 3 years, and had presented repeatedly to multiple doctors, all of whom missed the forest for the trees. I knew something was wrong with me (even, I think subconciously, that I had cancer), but I believed the doctors when they diagnosed allergies, or mononucleosis, or some other prosiac illness. It was not until the disease had spread extensively until it was drop dead obvious that something was really wrong.
I agree with the spirit of your post: he should let the doctors do the diagnosing. However, he should very strongly try to find the right doctors. Just like programmers, there's a huge disparity in talent between the good and the mediocre. Luckily, I found some good ones (I work at Mayo Clinic), and I'm doing much better now.
-c
[1] http://www.lymphomainfo.net/hodgkins/incidence.htm l
"If you are an idealist it doesn't matter what you do or what goes on around you, because it isn't real anyway."-R.P.W.
Dude. The other day, a porn site popped up on my computer. Just popped up ; I didn't click anything. I ran Norton Anti-virus. I ran AVG. I ran ad-aware and spybot. I checked Windows update, I rebooted, I swore. Everything told me my computer was fine. Clearly it is, and I am mistaken.
i-name =twylite [http://public.xdi.org/=twylite], see idcommons.net
quack quack quack, what a load of crap.
www.quackwatch.org
Frequently the problem isn't the needs of the big pharmaceutical companies or what have you. It's that nowadays one of the biggest driving motives for a doctor is to not get sued. When you go into the hospital, you are most likely going to get handled in a very by-the-book, mechanical manner, and this is because stepping out of line even a little bit looks terrible in court.
I have noticed this too. Now before I say what I'm about to say let me just preface my comments by saying that I'm a conservative with a lot of doctors in my family, and in the past I have been staunchly against socialized medicine and gov't involvement in medicine. However recent events involving my mom's medical condition have led me to change my views.
A few years ago my mom was having lots of problems and went to her general practitioner (g.p.). The gp wanted to do all kinds of strange tests and procedures that didn't seem to really relate to the symptoms she was describing (my dad is an ophthalmologist so he had some idea that something strange was going on). It seemed to me that the doctor was trying to do procedures and tests that he knew my mom's insurance would cover and that he would get paid for. This went on for a while and my mom never could find out what was wrong.
A couple of months later we were in Rome and my mom collapsed in St Peters Basilica. We took her to an emergency room in Rome and a young doctor talked to her and my dad and asked them what her symptoms were. He seemed genuinely interested and listened to what she had to say. Since she had described symptoms that seemed to relate to circulation and her heart he did the obvious: he did an ultrasound of her chest area and found that she indeed had a circulation problem and isolated exactly where it was. Why didn't the American doctors think of doing this simple and obvious test?!? Well I may be cynical, but I believe they didn't do it because there was no money in it for them to do an ultrasound since it probably wasn't on the HMO/PPO's list of 'approved' tests that the doctor would get paid for.
By the way, the italian ER doctor gave my mom some medicine and advice about how to proceed when she went back to America, and didn't charge her a dime. It was incredible to have a doctor genuinely care about a patient and do everything he could for her, and have the issue of money not even come up at all (although my parents were willing and able to pay if they had been asked to).
After returning to America my mom was able to explain to her American doctors what the problem was and is now able to actually get proper treatment.
Now don't get me wrong, there are many good doctors in America, however their attitude towards their patients is affected by the environment that they do business in. For example, one of my relatives (who is a doctor) told me that with HMOs your doctor ceases to be your advocate and becomes your adversary. Why? Because of capitation; the doctor gets paid a set amount per month and if more patients than usual come in one month then his profit per patient is lower. It is in the doctor's best interest (business-wise) to see you as little as possible because he gets paid the same whether you're there or not. This and many other rules that insurance companies force upon doctors force the doctors, no matter how much they want to care for their patients, to view the patient as an adversary that is costing them money.
I don't know if socialized medicine (a la 'Hillary') is the answer, but certainly our current medical/insurance industry is a problem.
I've noticed that in the last few years (maybe it's just my perspective, I don't know) computer support seem less and less likely to actually listen to their users. I have recurring popups in my PC that I get at least once a day and usually more. I have been going through this since the PC was new, when the techies refused to change the hard disk even though I wanted them to. Now I have too many files to make it a safe operation. Anyhow, I know what needs to be done and what I am suffering from, as I've been dealing with this for years. However, I find that I have to make appointments with 3 or 4 techies before I find one that listens to me at all. The others will go 'uh huh, uh huh, yeah, uh huh.' Then they give me some spyware checkers, or antivirus, or something else that doesn't help me get better. Why is it that even if we use technical terms, techies won't listen? Mr. Volkerding clearly at least has *some* idea of what he's talking about, and I find it sickening that his techies are paying so little attention to what he says. I don't even like it when it happens to me with a much less serious condition, I can't even imagine the frustration I would feel if my PC was hosed and the techies treated me with that much contempt. Tech support costs keep rising, techies keep getting fired, and the ones who are left don't listen to (or even seem to care about) their users... This is a serious problem that needs a solution fast.
Maybe if you americans stopped suing your Dr's - they wouldn't be so afraid to misdiagnos people.
Usually what you see sold in places like vitamin shops etc is a concentrated oil diluted with olive oil. Typically, you will get a 1 or 2 percent solution. And it is relatively high priced.
That said, you can order reasonable concentrations online if you google around for a while. Note that these are usually marked for aromatic use only, as the concentration is regarded as too intense for actual internal consumption.
There is enough spread that someone could find a profit margin in there someplace.
"It is a greater offense to steal men's labor, than their clothes"
I've been noticing that people have been modding down the posts about holistic remedies. I'm not saying that they're the only answer, but I certainly think that in the interest of saving someone's life, we should be making it EASIER to find more varied information, not harder.
Please stop stalking me, bro.
Only idiots think in black and white. There are middle ways. Most of Europe is using it. You don't have to have a stalinist regime to have a social healthcare. It's even cheaper in the long run. Going broke for the rest of your life because you *think* you have an unknown infectual dissease would even scare me off.
In a world where 1% of the people provides food and another one prevents housing, why can't you get free healthcare in America. It would cost a few percent of the war in Iraq (which will flood the hospitals in the years to come, even if the fighting would stop now).
Anyway, the repuplican party is showing the whole world that a country led by companies and bureaucratics can be equally bad to those regimes you just mentioned. It just takes most of the public in the US some time to catch up with the rest of the world on this.
And as a last point, yes, I would go to my doctor, and if he can't fix it or points in the direction of a specialist, THEN I would go to that doctor. How the hell should I know what I've caught if I just feel sick. I would check the diagnoses of the doctor as well though.