Google Health Open Platform Is Great — Or Awful
JackPowers writes "The Google Health APIs enable portable, standardized, open architecture, extensible personal health records, which is nice but boring if they're just used to manage the paperwork of the doctor/patient relationship. But once the data is set free, all kinds of Web 1.0, Web 2.0 and Web 3.0 apps are possible. This article looks ahead 10 years at Best Case Scenarios. A follow-up article lists the Worst Case Scenarios."
No private company should be so entrenched in society that it would be impossible to survive without the service they provide. If I can't get a job without a Google Health "badge", then something somewhere has gone horribly wrong.
This is already a big problem with credit companies becoming so pervasive. It's also bad enough that private companies are leading the American military around by the nose. But that pales in comparison to the actual, direct, and personal limits imposed by something like the system the article is talking about.
Considering that the site's about peoples' insides, shouldn't that be "offal"?
mcgrew's razor: Never attribute to stupidity that which can be explained by greedy self-interest
what's that?
btw..first
You don't think we'll be on Web 17.0?
Just what we need, more bullshit for buzzword fetishists.
Spelling mistakes, grammatical errors, and stupid comments are intentional.
This is one of the most (potentially abused) systems I can forsee. I really don't think losing our privacy where medical records are concerned is going to help society. this just stinks. google should be ashamed.
They're using their grammar skills there.
Web 3.0? That's just silly.
This sure does open up a world of possibilities...for better or for worse.
You gotta hand it to google though they never stop trying!
I <3 Gmail and google email hosting for domains.
Web 3.0? What is that supposed to be? A LAMP application hooked up to a cage of weasels?
There's a 68.71% chance you're right.
But that doesn't mean they're good. Diet monitoring? Try this, or any other free web service that does it *without* needing your medical history. Fitness Monitoring? Doesn't Wii Fit do this? How about a simple spreadsheet? Travel? Is it that hard to look at The Weather Channel before you leave?
Honestly, this just sounds like candy-coating a terrible idea so that people will buy into it. None of the ideas on that page are lacking a non-Google implementation assuming you're not too lazy to do some footwork.
Then again, if you are too lazy, maybe whatever ill effects you receive from using Google's service are deserved...
Proudly supporting the Libertarian Party.
Well then, I'm happy - or sad for them.
Slashdot Burying Stories About Slashdot Media Owned
Seems like a win-win to me.
"Trolls they were, but filled with the evil will of their master: a fell race..." -- J.R.R. Tolkien on Olog-hai
Has anyone ever seen Logan's Run? I am just waiting for my little RFID 'crystal' to be implanted so that I may authenticate to the Big Brother system. This is just one more step in the erosion of our privacy. When Homeland Security and CDC folks determine that they need access to your google health records, how quickly they will institute health care reform disease prevention legislation to force you to do things with your body against your better judgment. "Your gov't and your health care provider have determined that you must conform to this medical procedure to ensure that you are not posing a risk to the financial and physiological wellness of the nation." "If you do not comply, your children will be taken by social services for not having risky vaccinations and you will be criminally charged."
Scientists are baffled by the realization that most things that matter are either Good - Or Bad.
Finally, a use for the marketing department! They can power the LAMP application!
At least until PETA complains it's cruel to the application...
[badum-ching]
A Human Right
Is 4.1 supposed to be the actual usable release, or have they shifted it to 4.2 now?
I don't want any of that -- ever.
What are they talking about? Even the "best case" scenarios sounded worst-case to me.
I don't want MY health data "set free"...
As someone who deals with paper medical records all day, I welcome standardized electronic medical records. Not only would e-records be portable, they would also allow for greater continuity of care between healthcare providers. Obviously, security is an issue and I'd like to see more measures taken to ensure that our medical records are protected. As for the possibility of these records raising insurance premiums I think the best way around this is to create a national healthcare plan. I would think that in countries where there is national healthcare services, electronic medical records would be of great benefit since it's inevitable that such a large beaucratic undertaking would need centralized patient information. I would take issue with basing rates on people with healthier lifestyles. There are many in this country that aren't living healther lifestyles due to socio-economic factors. People that live in in poorer areas don't always have access to proper healthcare, are often not educated in the ways of maintaining health and don't have access to nutritional foods.
You think? Hmmm. How about someone in government realizes that AIDS costs the public treasury a huge amount of money, so they start penalizing a gay lifestyle? Or being unmarried, which shortens up your life? Or amusing yourself rock-climbing or bicycle racing, which are more dangerous than going to the gym and riding a stationary bicycle to nowhere?
More plausibly, how about someone in government thinks that lifestyle X is bad for you, and starts handing out tax penalties and rebates accordingly -- but he's wrong. Not like we've ever had any health fads that turned out to be nonsense, right? And no government bureaucrat would dream of making decisions when he doesn't really have enough information to make a good one, right?
When you start getting more emails for Viagra after you've been diagnosed by your doctor for having ED?
You're thinking that it takes a physician the same time to read through your history and pluck out the important stuff that it would take you, a complete amateur with nearly zero understanding of how medicine works.
That's as logical as thinking that it would take Linus Torvalds as long to understand a kernel patch as J. Random User who's never coded a line in his life. Or that your car mechanic needs to carefully listen to every sound your jalopy makes to know whether it needs a valve job. Or that the conductor of the Los Angeles Philharmonic would have to get out a tuning fork and go carefully around to listen to each of his 150 musicians to know whether the orchestra is playing in tune.
Romeo and Juliet share STD data. They are both clean (or so the record says). Great. They can now enjoy sex with each other.
Then, over time, they decide that this relationship is really a great thing and they want to start looking into marriage. They get married. Everybody is happy.
Now that they're married (because nobody would be stupid enough to share this type of data BEFORE marriage...would they?), they share their genetic information with each other as they are talking about children. But, what's this?! Juliet sees that Romeo has a high propensity for Down Syndrome (or any other "disease" - take your pick). Well, this isn't good.
So, instead, Juliet decides to get a divorce and go on her merry way.
The End
Tomorrow it will rain - or not.
Knowledge is power. Knowledge shared is power lost.
It's interesting that none of the "best case" scenarios deal positively with mental health but many of the "worst case" scenarios are based on a persons mental health records being revealed to the outside world. Are mental health diseases still so stigmatized that there could be no good to come from this?
Waltz, nymph, for quick jigs vex Bud.
When national health care arrives, as it will shortly, if the elections this November turn out the way they look like they will, then the government is going to be your health-care provider. There will be no need for passing actual legislation to force you to conform to any particular medical procedure. That can just be decided by the President, who, as head of the Executive Branch, is in ultimate charge of all national government agencies.
it's already bad enough that we allow the internet to expose our personal lives so much so that an employer can google your name and possibly dig up dirt on your social behavior (i.e. myspace, facebook, etc.). Now, insurance companies can keep track of your dietary habits and find yet another reason to deny you their service and jack up your insurance rates. Knowledge is power ... but it's always a dangerous tool when possessed by the wrong person(s).
You are thinking about health records in the sense that someone smokes a pack a day and shouldn't get the same paybacks on their care as other people. I applaud that, in terms of smoking, but in terms of everything else, you are dead wrong.
Some people are overweight because they eat too much and don't exercise enough. Others are overweight because they (truthfully) have a glandular problem. Some, like my sister, are the result of the epileptic drugs she takes which lower her metabolism. Should these later classes be penalized?
Also, penalties don't often work in situations like this. Make something look like an incentive, however, and it will work.
A federal law should be passed that information in these records and records like them cannot be used to create laws regulating state or federal health care systems.
"All great wisdom is contained in .signature files"
John Spartan: Get me a Marlboro.
Alfredo Garcia: Yes, of course... [pause] What's a Marlboro?
John Spartan: A cigarette. Any cigarette.
Lenina Huxley: Um, smoking is not good for you, and it has been deemed that anything not good for you is bad, hence illegal. Alcohol, caffeine, contact sports, meat...
John Spartan: Are you shitting me?
Computer: John Spartan, you are fined one credit for violation of the verbal moralities code.
John Spartan: What the hell is that?
Computer: You are fined one credit...
Lenina Huxley: Bad language... chocolate, gasoline, uneducational toys, and anything spicy. Abortion is also illegal but so is pregnancy if you don't have a license.
=====
John Spartan: Do you have the salt?
Lenina Huxley: Salt is not good for you, hence, it is illegal.
Have you driven a fnord... lately?
You must wait a little bit before using this resource; please try again later.
I wish I could say more, but... This is the worst idea ever. It is also one of the biggest money pits. No hospital I've ever worked for would let control of that data go. We just had a long drawn out battle with one of our vendors about that. 2 years later they still don't have access to our data.
Is it just me, or do teh best and worst cases seem almost identical?
Take the sex examples:
Best Possible Thing - Romeo and Juliet share STD information after getting to know each other, before having sex.
Worst Possible Thing - Lonesone Larry freely decides to share his STD information with prospective dates.
There isn't that much difference. And while we might think Larry's decision is stupid, he might have a good reason for it.
The same goes for some of the other issues.
There are some interesting precidence here but I think the article did a very poor job of comming up with worst case senerios.
Grandma Mini
How about the Chinese , or Russian , or German or American ( what have you ) have legalized euthanasia. Grandma mini's medical records indicate that she has become far too much of a drain on the nationalized medical system and that the taxes she and all of her immediate family pay into the government are causing a drain on society. Since obviously grandma mini can no longer expect a high quality of life the state puts subtle and not so subtle pressure on the family to
let Grandma mini "die with dignity" even though it is the last thing in the world Grandma wants and goes directly against her religious beliefs. She is cut off from state funded medical aid , not able to find a doctor and unless her family takes steps to ensure her graceful departure they will be required to pay back the whole of grandma mini's medical expensive for the last 60 years.
( Think it can't happen check out the Chinese population limitation laws. They are already there.)
âoeTolerance applies only to persons, but never to truth. Intolerance applies only to truth, but never to persons.
Personally, I think this is well overdue. A common health record system that all hospitals and patients is highly beneficial. I think any digtial system has the potential to be abused, so perhaps a third-party organization could oversee this, but truthfully I don't see that happening, as everyone wants to kill it before it can be effective.
While a private company developing technology like this could seem questionable; what I'd like to know is why has the medical industry NOT took the initative to create such a system themselves?
Regards,
MBC1977,
is Google's business plan. You are nuts if you put your medical record on their databases. No freaking way I will do this.
what I'd like to know is why has the medical industry NOT took the initative to create such a system themselves?
Perhaps because they don't want patients to start lying to their doctors because they're afraid of their insurance company going all Scrooge on them?
We already have HL7. Providers have the ability to exchange and consolidate your medical records directly and to provide electronic copies for the patient to physically retain to personally bring by sneakernet between their providers without the need for a proxy. The vast majority of people don't have that many medical providers, nor do they change them very often. It is neither necessary nor desirable to have a company like Google aggregate the records. Its only strength is in being the *only* repository, which is its greatest weakness as a single point of failure. If there are multiple companies like Google providing the service, how is that terribly different than polling the providers directly? Central clearinghouses might be useful, a la the credit reporting agencies. When someone has records on you, they publish that fact without publishing the actual records. So, in an emergency situation, a provider could ask the question "where does this person have records" and then proceed to retrieve them with proper clinical discretion on both ends.
We should all just fling ourselves out the windows. If we have windows. And if they open. And as long as no one is walking below. And that we'd be quickly bio-degradable upon landing.
OK, next post.
I just read
http://www.hl7.org/ Major medical records systems are pretty universally HL7 compliant. That means medical providers can uniformly interchange your charts without the help of Google. It has been around for a decade.
I don't see anything wrong with this. They are just trying something and seeing if it will work. They aren't saying hey "give us all your medical records". If you are concerned with your privacy or you have an STD that you are trying to hide...no one is pointing a gun at your head and saying give me all your medical records.
Maybe in the future hugely busy New York doctors could use it to keep track of their patients and become more paperless.
I could definitely see a nutritionist using this. I mean there is obvious benefits to this.
I myself being part owner of a Sports Nutrition Store already do web based nutrition planning for our customers. You sign into a web-based app and you can choose your meal plan for the day and pick from a list of foods.
Obviously if google could do something like this it would be quite successful. I already use google apps to host our corporate email (justsaymax.com).
I see at some point thumb print access to records, even at a cafeteria checkout. Imagine putting your thumb on a scanner to pay for your food, and then a warning pops up that says "Opps that slice of pie has sugar in it and you cant have sugar because of your condition, go back and get a yellow slice it has splenda in it".
You could make it chastise you at a supermarket checkout, perhaps in your mother voice, "Do you really need the big bag of cookies? Go get the 100 calorie pack right now mister". A sample if Jillian's voice form the biggest loser would do it for me.
I think a slower more deliberate development of this kind of database will provide much more useful. As long as these records are secure and modular, you can build cheap internet access to them that might just return warning flags instead of actual specific medical data, thus solving the privacy and usefulness arguments.
If you go on a cruise or stay at a hotel, you scan your thumb and the staff know you need a sharps container in your room, or you have a history of motion sickness, or that you have an allergy to Dial soap so make sure none is in the room.
See: http://www.hhs.gov/ocr/hipaa
Centralizing that information takes away control from us as individuals.
I specifically stated that your medical records themselves would not be centralized and that your consent to release would be required and would further fall under the clinical discretion of each of your medical providers.
The only thing I was suggesting is that for emergency purposes, it would be possible to quickly locate records sources that you have explicitly authorized. Whether or not any particular situation meets your consent requirements to actually release the records is a totally different story, which was the whole point you so cleverly failed to understand.
A lot of people go get mental health care and pay out of their own pocket so that it isn't 'in the system'.
Your method of payment has absolutely nothing whatsoever to do with your medical records and how they may -- or even MUST, with or without your consent (See: http://www.cdc.gov/ncphi/disss/nndss/PHS/infdis.htm ) -- be legally be released.
Sure, you can choose to go to witch doctors who keep no records to "stay off the grid." So what? Since the whole point of my post was "consent," what's your point? "I'm a super-secret rebel and I don't leave a paper trail?" Well, good for you, but what does that have to do with a single word of what I said?
No, seriously, USB drives or something equivalent. Get an 8GB USB drive and walk around with all your medical information on it. Make a standardized protocol for it. Then when you go to the doctor, you plug it in and sync it. With digital signatures, you could sign each entry (including, for example, an index of the entries with SHA-1 hashes of each entry) so that it's hard to mess with.
This debate could be avoided if access required a thumb-print or eye-scan so the "patient" must be present.
This would have the added benefit of being able to obtain medical records of a John Doe patient. (blood type, drug allergies, chronic diseases...)
Any third party access could be controlled on an individual basis for a set time period after a verified secure logon (prints, voice-match, eye scan...)
Hmmmm... I guess that would mean the government would already have your fingerprints even if you had never committed a crime... some lost "privacy" there I guess, but with the added benefit of solving criminal investigations quicker.
I normally would disagree with this kind of nonsense but as long as it is secure, I might be willing to make the sacrifice for the benefit of medical emergency situations.