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Most Doctors Don't Think Patients Need Full Access To Med Records

Lucas123 writes "While electronic medical records (EMR) may contain your health information, most physicians think you should only be able to add information to them, not get access to all of the contents. A survey released this week of 3,700 physicians in eight countries found that only 31% of them believe patients should have full access to their medical record; 65% believe patients should have only limited access. Four percent said patients should have no access at all. The findings were consistent among doctors surveyed in eight countries: Australia, Canada, England, France, Germany, Singapore, Spain and the United States."

13 of 659 comments (clear)

  1. Conspiracy! by mwvdlee · · Score: 4, Insightful

    What could possibly be in my medical records that they don't want me to know about?

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    1. Re:Conspiracy! by Smallpond · · Score: 4, Insightful

      The mistakes

    2. Re:Conspiracy! by Anonymous Coward · · Score: 5, Insightful

      Notes.

      For example:

      "Patient responds well to placebos"

      "Patient is a looney hypochondriac, but has lots of money. Recommend all possible expensive tests."

      "Patient is an addict, faking symptoms in order to get painkillers."

      etc.

    3. Re:Conspiracy! by Anonymous Coward · · Score: 5, Insightful

      Unfortunately, doctors are generally woefully unequipped to treat pain, particularly long-term pain. Plenty of addicts are made by the medical profession, something they don't like to admit.

      Posting as AC for obvious reasons but... Yes I would agree that a lot of addicts get their drugs directly from a doctor. It just takes one injury that causes chronic pain and you're often left with two choices in the end: Try and live with the pain, or become an addict. I don't necessarily mean mental addiction, but there is no way to avoid the physical addiction. I was hurt, and was on narcotics for years. They finally were able to perform a procedure that didn't remove the pain, but got it down to the bearable level it was at when I was medicated. I was virtually pain free, even at the lowest dose of my medication. I asked the doctor to take me off completely and we spent months and months weening me off. Within 3 days of taking that last dose, I thought I was dying. It was the most miserable experience in the world. At least, I thought so at the time. It's been almost a year since I've touched the stuff, but the first few weeks were the only time in my life where I ever thought I needed a drug to live. I had to flush my stockpile of medication down the toilet for fear that I would, in my weakness, use it.

      Unfortunately for me, the procedure was only a temporary fix. It will help me for 6-24 months. I've also discovered that I still have bad days. Days where I can't get out of bed in the morning due to pain. So, now I find that I am going to have to ask my doctor for a limited supply of meds anyway, just to deal with this occasional issue. I could have gone on long term disability years ago, but I prefer to work. I can't keep a job if I can't get out of bed, however. It's a terrible situation to be in, and I would never wish it upon my greatest enemy. I wouldn't even subject the man who did this to me to this kind of life.

    4. Re:Conspiracy! by bl968 · · Score: 4, Insightful

      I observe every single thing done to my car. I am there in the shop as they do them; not in the waiting room. I have seen belts put on backwards, i have seen a mechanic raise my hood into the ceiling. I also come out with a full understanding of what needed to be done on my vehicle and why. Healthcare is the same. You should have full access to YOUR records.

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    5. Re:Conspiracy! by Col+Bat+Guano · · Score: 4, Insightful

      Both of my two children were born around 31 weeks. The first was in a ICU for 3 weeks, and humidicrib for about 4 weeks.
      My second was healthier (wife managed to get steriods to improve the baby's lungs before birth), but was still in hospital for around 5 weeks.
      My wife was admitted to hospital during both pregnancies multiple times due to excessive vomiting.

      We calculated the total cost to us for both pregnancies - it was around $200. Thankfully we live in Australia were there is a proper health care system.

  2. But no mention of why by kdataman · · Score: 5, Insightful

    I was surprised that in the article and in the linked survey article there was no mention of WHY a doc would want to restrict information.

  3. Re:I develop an EHR by toebob · · Score: 5, Insightful

    The easy way around this is to treat a medical records system like an accounting system. You can't delete any record you can only add corrections. Anyone reading the record would be able to see the "erroneous" entries as well as the justification for correcting them.

  4. Not really surprising by Overzeetop · · Score: 4, Insightful

    Some doctors will argue that by allowing the patient full access to the notes in the system, a doctor may be less frank about the mental condition of the patient or be reluctant to place information in the record which reflects poorly on the patient's demeanor, such as cooperativeness, a tenancy toward hypochondria, or just plan belligerence. In their defense, this honesty could lead to lawsuits (in the worst cases). Even in the instance where it's a simple difference of opinion, some patients are going to be fairly vocal about having the records changed or modified to suit their version of reality (correctly or not), resulting in more time spent by the doctor and administrative staff on uncompensated work.

    Now, the best way to combat this is to allow comments on the records by patients. It will keep some of the sillyness out of records (http://www.smithsonianmag.com/arts-culture/The-Last-Page-UBI-in-the-Knife-and-Gun-Club.html) and will allow legitimate differences of opinions. A chart which is riddled with patient comments contradicting past providers will be just as valuable to a future provider as a note that the patient is difficult or uncooperative in treatment decisions.

    Another item of concern is from the insurer's side. There will be people who attempt to expunge their records of items which decrease their insurability or increase their rates (and this will only get worse with mandatory insurance without cost caps or guaranteed rates). The way the questions were worded wasn't mentioned in the fine article, so if write/erase access was included in "full access," then continuity of care may be jeopardized by those seeking to minimize the impact of previous conditions on current health care rates - or simple embarrassment.

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  5. Re:Necessary for MD's to do their job by ATMAvatar · · Score: 5, Insightful

    The problem with limited access and the record keepers determining what is/isn't available is that it creates a strong pressure to hide things that should normally be available for less-than-honest reasons. Just look at all the information our government classifies and the types of things we've seen declassified years later. It's as likely as not that information is being hidden not to protect the patient, but rather to protect the doctor.

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  6. Re:doctors are overpaid by Anonymous Coward · · Score: 4, Insightful

    Are you kidding? To become that pediatrician that doctor went to 4 years of undergraduate college, then 4 years of medical school (which has an average cost of >100,000), then completed 3 years of residency (making around 45k/yr). So now they are in their mid 30's, have a mortgage payment due every month, and all so they can work 120 hours a week so they can see enough patients to keep the doors to the practice open and pay their insurance company the ludicrous amount needed for malpractice protection from the sea of parasitic attorneys looking for a quick settlement.

    Get real, the waste in the healthcare sector is not in doctor's earnings. If anything, they deserve more for all the crap they have to deal with day in and day out.

  7. Re:Obvious reason by haystor · · Score: 4, Insightful

    John Edwards and his kind are the reason. Many malpractice suits don't have any scientific basis, it's just a matter of running a sympathetic "victim" in front of a jury.

    http://www.washingtontimes.com/news/2004/aug/16/20040816-011234-1949r/?page=all

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  8. Possible compromise? by Millennium · · Score: 5, Insightful

    Split the record into a "data" section and a private "remarks" section. Patients get unrestricted access to their own data sections, but require a court order to see the remarks. Establish clear rules for what can go in the remarks section: everything else must go into data, and inappropriate use of the remarks section itself counts as a minor form of malpractice.

    This should strike an appropriate balance. Patients can still get at the significant stuff, and they have recourse to get the rest if it's truly necessary. Doctors can continue to comment frankly about patients-from-Hell, without having to worry about being embarrassed unless they already have much bigger problems.