Neural Feedback Training as Therapy for ADHD?
"If you haven't heard of it, the idea is that by attaching sensors to the head, brainwaves can be measured, and by providing visual feedback, you can actually train your brain to regulate its activity. An ADHD person supposedly has a brain which isn't very good at keeping itself in 'concentration' mode. In a child, the feedback takes the form of a game or in the case of an infant, a pleasing pattern on the screen (an infant would probably be treated for sleep disorders, not ADHD, in case you were wondering). When the brainwaves are in the 'right' state, the game proceeds or the patterns get prettier. When the brainwaves are erratic, it all slows down.
Because it is a trendy new thing, it's been put forward as a possible treatment for many other things including sleeplessness, epilepsy and other disorders, but one of the better successes has been in the treatment of ADHD.
The whole thing sounds quite plausible, but it is also quite expensive. All of the stuff I've read has been either from the suppliers of the treatment, or from people trying to discredit it."
Pardon my ranting, but this issue hits rather close to home.
:)
I'm of the opinion that ADD/ADHD is not a disorder, and should never be "treated". Perhaps having been prescribed various stimulant medicines which shortly turned into an addiction, which in itself transformed into dependency on methamphetamine (which I finally quit in March thanks to Rational Recovery) has influenced me in distrusting chemical treatment, the idea of treatment at all, and, most importantly, the disease model that most people seem to apply to Attention Deficit, but perhaps it is just from having been someone who could very aptly be described as the "Poster Child" for ADD.
Based on the experience of myself and many others, I have come to the conclusion that Attention Deficit is not a disorder inasmuch as it is a different form of thinking and interacting with the world which can have both its downsides and its blessings. We may have trouble in the standard school and work paradigms that most seem to be able to deal with successfully, but we also tend to be very insightful, creative, and interesting folks
I always call attention to the fact that many of our greatest minds, a perfect example being Albert Einstein, would today have been diagnosed with ADD, prescribed stimulants, and had the insights that they would have otherwise shared with the world snuffed out and replaced with mindless conformity.
Please consider changing your daughter's school, and adapting her environment to her very special mind, instead of trying to cram a square peg into a round hole and possible damage her intellect forever.
I've actually tried the sofware, as I have an uncle that's into this stuff. I couldn't seem to "train" my brain waves in the short time I tried it, though. And those sensors pressing on your head HURT after a while :(
Seriously, I'm sorry this is happening to you and it sucks, but go talk to someone who knows how to help you. Please.
Web2.0: I love when people Flickr my cuil and digg my boingboing until my google is reddit and I start to yahoo
Is this why nobody replies to my /. posts?
No, but have you considered showering more often?
740916
Ritalin is speed, don't give it to kids. I realise why it works for this "disorder" but that's no reason to use it. I'm 32 now but have every reason to believe that I suffered from ADHD when I was a kid, and I think I still do to a certain extent, but I got through it without drugs. Actually, I didn't get through anything, this is just me, I have an overactive mind that means I sometimes jump from one thing to another very quickly.
My parents adopted a young boy who was diagnosed with ADHD and was taking Ritalin (which then caused severe Tourette's like symptoms, so they diagnosed him with Tourette's and gave him drugs for that.)
As soon as the adoption was final, my parents had him taken off of all of the drugs, and while he still has behavioral problems, the Tourette's has all but gone away, and he is generally happier than he was before.
Billions of people survived just fine with Ritalin, and I personally see no use for it in any situation.
What?
My uncle who uses this treatment has a bicycle "race" where you go faster if you generate a certain type of brain waves. He brought it to a family party and my relatives checked it out. The people who seemed to be best at it (who actually didn't have ADD) were ones who could meditate, did yoga, or otherwise had some experience trying to relax.
I'm ADHD and took Ritalin as a child to treat it. Bad idea, because it activated apparently dormant Tourettes Syndrome. Like the poster said, the tics were mild, all physical (rolling my eyes compulsively still continues today at age 19). After the Tourettes diagnosis treatment became a bitch since most ADHD meds aggravate it.
I am borderline ADHD, and I only found out several years ago afte I began having trouble with class and general management of time while in college.
/. to research it.
My mom had a friend who had recently gotten certified in using this type of therapy on her daughter (who was severely ADHD), and they arranged for me to show up at their house knowing that because I was a computer science major and a geek, that I would be extremely interested in the whole setup. I walk in, express interest, and they offer to hook me up, and while they're explaining what's going on, they run a quick diagnostic which shows I could use some work on the machine (and that my brain waves are "sloppy").
To make a long story short, I went through three months of training using the machine, the whole time believing it was a placebo, but my entire family noticed the difference. I also began noticing that I was sleeping better and could work for periods of time longer than 30 minutes without feeling like i HAD to take a break.
To sum up, this is a very groundbreaking type of therapy that does work, and I encourage anyone on
$45 per U Colocation Special
I don't know about the Neural Feedback Training, but I'd suggest finding an alternative to Ritalin ASAP.
There are many studies out there about the inefficient conversion of ALA To EPA and DHA in people with ADHD, leading me to believe that pumping your kid full of stimulants is a (very) wrong answer.
Try Mercola.com, which has some very informative articles on ADHD. As a start, make sure your kid isn't having a lot of sugar and caffeine (ie drinking fruit juices and soda).
This is what a colonic irrigation is.
Procedure in which very large quantities of liquids are infused into the colon via the rectum through a tube, a few pints at a time, in an effort to wash away and remove its contents. CI differs from an ordinary enema which involves infusing a lesser amount of liquid into the rectum only. A "high colonic" may involve the use of twenty or more gallons pumped by a machine or transmitted with an apparatus that relies upon gravity to achieve its purpose. Liquids used in colonics may include coffee, herbs, enzymes, wheat grass extract, or many other substances. Proponents of the procedure advertise that "all disease and death begin in the colon," that colonics "detoxifies" the body, and that regular "cleansing" is necessary to maintain one's health. None of these claims are true.
I would recommend Abuse it - Lose it. There are some additional articles Dr. David Keirsey has written about this problem as well.
IMarv
Trusting software vendors is no smarter than trus
I am a psychology undergrad, and though I have no serious experience with the study or treatment of ADHD, I can recommend some starting points for gaining the facts on this condition. Where I in your position, I would head to the nearest university, put some cash on a copy card, and start using their online article databases. In particular, MedLine and PsycInfo have the most expansive databases on psychology research. Start simple - run some basic searches using keywords like ADHD and Neural Feedback Training. When you find an article or two that nail the topic you're exploring, move from those databses to the ISI (Web of Science) database. The most powerful feature of this database is its reverse-searching feature, where you can enter in an article, and retrieve a list of articles that have been published citing the one you have. This is a literature search (the first major task in designing a study). Moving back and forth between these databases, narrowing your keywords, following citations, and even searching for authors publishing pertinent studies, is going to return a massive quantity of data.
Unfortunately, links to these databases are going to be useless, because you need a subscription to search them. This is why you need to run your searches from a university library. Once you've got some promising references, start pulling articles, and educating yourself.
I hope this helps. I'm a firm believer in the power of psychology and medicine to improve the human condition. Your daughter doesn't have a disease, but she does have the physiological deck stacked against her. Being a fan of psychology over psychiatry, I'm happy to hear that you're persuing a non-drug-based treatment in addition to her medication regimine. I hope that this is where you'll find true long-term improvement.
Best of luck to you, your family, and your daughter.
There are actually several studies that link playing video games to improvements for ADHD. http://www.cet.edu/gstw/adha.html (center for educational technologies)
I would like to salute the ashes of american flags, and all the fallen leaves filling up shopping bags.
First, find out which sub-type she has. There are many different subtypes that each have different treatments. Take the on-line tests at: http://www.amenclinic.com Second, check out the pioneer in non-drug therapies: http://www.drakeinstitute.com If you do have to resort to drugs, try Strattera, which is a new, non-addictive, non-stimulant treatment that looks very promising: http://www.strattera.com/index.jsp
As the computer programs provide a similar type of activity (teaching the brain how to work properly) I believe it would work as well.
People, please don't discount mental disorders (including ADHD) as being just made up.. for those who are suffering from them and those around them they are very real conditions.
I, for one, welcome our new Attention Def--OH LOOK A SHINY THING!!!
C17H21NO4
Sedatives? The treatment for ADHD is *speed*. The symptoms of ADHD are similar to the short term effects of amphetamines, and yet they are used to treat ADHD, and give consistent results. And you are claiming that ADHD "is not real"? The facts do the flaming for me.
"[A] high IQ is like a Jeep; you will still get stuck, just farther from help!" --Just d' FAQs, c.g.a
Let me begin by pointing out that there is a correlation between ADD/ADHD and Tourette's. In other words, having one increases your chances of having the other.
... we'll never get a chance to perform that experiment, since now I'm all grown up. But I know from firsthand experience that it's possible to reign one's body in using only the power of one's concentration. So give it a shot. If it doesn't work, there's always the drugs.
I was diagnosed with mild Tourette's Syndrome when I was in sixth grade. It manifested itself similarly to your daughter's symptoms -- minor vocal and muscular tics. It wasn't a significant bother, but it impaired me enough that I sought medication for it. I began taking Clonidine transdermally (through a skin patch) to help ease my Tourette's symptoms.
A year after starting the Tourette's medication, I was diagnosed with ADD. This was ~1990, before ADD was a "trendy" disease. At the time, none of my family had ever heard of it before. So I began a regimen of Dexedrine, to help with the ADD.
I stayed on both medications for a further year, until I developed an allergy to the skin patch. At that time, my doctor recommended I try neural feedback therapy to help control the Tourette's. I went in for an hour of therapy every two weeks for a year. Over the course of the year I became better able to control my tics, but only with great concentration. If I became flustered or anxious or nervous or just plain stopped paying attention, I would lose control and the tics would come back. But, at the end of the year, I decided I was able to control the Tourette's well enough to stop therapy and medication.
I continued with Dexedrine throughout my junior-high and high school years, and gradually stopped taking it when I got to college. I firmly believe that the Dexedrine was a great help in high school; even though it exacerbated my Tourette's symptoms, it allowed me to finish high school having learned what I needed in order to get into college. Could I have used some other means to achieve the same ends? Probably. But the medication worked.
Today I'm a slightly disorganized, nervous and fidgety young man living a normal life and working a full-time job in software development. My duties expand every day and I find myself diverting more and more of my attention toward organization and self-management. But I can manage.
Will neural feedback therapy help your daughter? I'd say, give it a try. It could be that the techniques I learned to help control my Tourette's also gave me an edge in studying
P.S. I would recommend looking at alternatives to Ritalin. Dexedrine and Desoxyn , AFAIK, achieve the same thing but with fewer side effects (less of a methamphetamine-like effect on the human body).
I suffered from ADHD as a child as well, and believe I still do suffer from it in some form as an adult, although I have many of the problems under control through conditioning and strong willpower. I disagree very strongly with your statement that it is not a disease.
I also do not believe those stimulants (none of which I take) are a hindrance. As a child, I was on ritalin, and I was still in the gifted and talented program. In Kindegarten, I had ADHD issues so severely, I was originally suspected to be suffering from a mild form of mental retardation (ADHD didn't cross their minds at the time). As a result of this suspicion, I was given an IQ test. I was discovered to have a high IQ (~145 range at the time in Kindegarten), which ruled out mental retardation, and brought up suspicion of ADHD.
I couldn't sit still in class, I couldn't focus, I couldn't pay attention, I couldn't learn. What good is intelligence if one can't manage to focus long enough to learn how to read and write? What good is intelligence or brilliance without an educational foundation and the ability to focus and employ one's abilities?
Ritalin was a godsend for myself and my parents - I could finally focus in class, and my mother wasn't being driven crazy by an overactive 5 year old. I was in the gifted and talented program in elementary school, and began reading material well beyond my grade level.
Now, that is not to say I believe Ritalin is a wonder drug. I am merely stating my experience with it during my childhood. Misdiagnoses of ADHD IS a problem. Treatment of correct diagnoses is not.
You can listen to what this person has to say, not treat your daughter, and put her school years at risk of being wasted time. Or you can seek treatment for your daughter.
- MaineCoon
Hunt your preferred prey at Aliens vs Predator MUD. Join the war at avpmud.com port 4000
As a previous poster mentioned, this kind of stuff works by "training" your brain. It does this through biofeedback.
Biofeedback works by presenting data of interest from some sort of sensor array (EKG, or in this case an EEG) in a way your brain interprets on various levels (ex: colors, shapes, etc).
These guys usually do it (afaik) in the context of some sort of non-interactive game (well, it is interactive in that it's driven by your brain, not by a joystick/keyboard/mouse, etc).
Anyways, I don't want to say too much because I'm sure most of it was under some sort of NDA, but here's their sites:
- EEG Spectrum International
- NeuroCybernetics
This stuff is pretty amazing, you can actually feel it working, as potent (or more) than any medication I've ever popped. But it should only be done by a trained therapist (I tried it on myself a few times because I was sick of playing back the same old recordings and it gave me a bit of a headache, but under the control of a trained tech it doesn't cause much (any afaik) discomfort. Also, unlike another poster mentioned, I was never irritated by the connections, maybe they've improved over time).It's pretty cool stuff and I hope I have an opportunity to contribute more in the near future.
Disclaimer: I'm just a code monkey that developed some "front-end" stuff (the game side shown to the patient, not the nuts & bolts on the therapist's side). So, take my info in context of just a guy who coded from a spec and attended one of their conferences.
DONT PANIC
Be sure to check out Dr Hallowell. He is the coauthor of "Driven to Distraction" as well as their recent followup "Answers to Distraction".
I would recommend emailing him if there's nothing on this site about this particular therapy.
I spent three years in my graduate school days (which was now a decade ago... yikes!) administering the hardware/software for the Autogenics system in our community mental health center at Nova Southeastern University under Doil Montgomery, Ph.D. Neural feedback is also referred to as EEG biofeedback. Not only is there some good research in this area, but it's a nice, non-invasive and non-drug way to treat this disorder (which should be especially interesting to teens and children, where medications are less tested and proven).
Some basic positive empricial results supporting the use of EEG biofeedback in the treatment of ADHD from MEDLINE:
Neurofeedback treatment for attention-deficit/hyperactivity disorder in children: a comparison with methylphenidate. in Appl Psychophysiol Biofeedback. 2003 Mar;28(1):1-12.
Fuchs T, Birbaumer N, Lutzenberger W, Gruzelier JH, Kaiser J.
Institute of Medical Psychology and Behavioral Neurobiology, Eberhard-Karls-University, Gartenstr. 29, 72074 Tubingen, Germany.
Clinical trials have suggested that neurofeedback may be efficient in treating attention-deficit/hyperactivity disorder (ADHD). We compared the effects of a 3-month electroencephalographic feedback program providing reinforcement contingent on the production of cortical sensorimotor rhythm (12-15 Hz) and betal activity (15-18 Hz) with stimulant medication. Participants were N = 34 children aged 8-12 years, 22 of which were assigned to the neurofeedback group and 12 to the methylphenidate group according to their parents' preference. Both neurofeedback and methylphenidate were associated with improvements on all subscales of the Test of Variables of Attention, and on the speed and accuracy measures of the d2 Attention Endurance Test. Furthermore, behaviors related to the disorder were rated as significantly reduced in both groups by both teachers and parents on the IOWA-Conners Behavior Rating Scale. These findings suggest that neurofeedback was efficient in improving some of the behavioral concomitants of ADHD in children whose parents favored a nonpharmacological treatment.
The effects of stimulant therapy, EEG biofeedback, and parenting style on the primary symptoms of attention-deficit/hyperactivity disorder. in Appl Psychophysiol Biofeedback. 2002 Dec;27(4):231-49.
Monastra VJ, Monastra DM, George S.
FPI Attention Disorders Clinic, 2102 E. Main Street, Endicott, New York 13760, USA. poppidoc@aol.com
One hundred children, ages 6-19, who were diagnosed with attention-deficit/hyperactivity disorder (ADHD), either inattentive or combined types, participated in a study examining the effects of Ritalin, EEG biofeedback, and parenting style on the primary symptoms of ADHD. All of the patients participated in a 1-year, multimodal, outpatient program that included Ritalin, parent counseling, and academic support at school (either a 504 Plan or an IEP). Fifty-one of the participants also received EEG biofeedback therapy. Posttreatment assessments were conducted both with and without stimulant therapy. Significant improvement was noted on the Test of Variables of Attention (TOVA; L. M. Greenberg, 1996) and the Attention Deficit Disorders Evaluation Scale (ADDES; S. B. McCarney, 1995) when participants were tested while using Ritalin. However, only those who had received EEG biofeedback sustained these gains when tested without Ritalin. The results of a Quantitative Electroencephalographic Scanning Process (QEEG-Scan; V. J. Monastra et al., 1999) revealed significant reduction in cortical slowing only in patients who had received EEG biofeedback. Behavioral measures indicated that parenting style exerted a significant moderating effect on the expression of behavioral symptoms at home but not at school.
Treatment of attention deficit hyperactivity disorder with neurotherapy. in Clin Electroencephalogr. 2000 Jan;31(1):30-7.
Nash JK.
Behavioral Medicine Associates,
I was diagnosed with ADD in elementary school and have been on and off drugs at various points in my life. I will say that they most definitely DO make a difference in my life. I take adderall and I have a really rough time going to class without it. I'm less attentive and get far less out of the experience without meds. Upon taking an IQ test my score went up a full 30 points when drugged. That kind of thing has real world effects on my life.
Is ADD overdiagnosed? It's probable given the lax screening practices I've heard of. I myself spent weeks being diagnosed at great expense and had to submit to a battery of tests. In response to another user in this thread posthumous diagnoses are considered speculative and not conclusive.
I find it disconcerting that you have formulated your judgement without any real world evidence other than your own personal experience. I have a rough time dealing with people upon admittance of my ADD as a result. It's terrible when people suddenly percieve you as having an imaginary illness. For me life is more 'real' when I'm on Adderall. I can think clearly, have conversations without being distracted and am generally more productive. The only downside to being on Adderall is a bit of drymouth and sleep problems (which don't occur if you take it in the morning as I do). I have no symptoms of addiction, in fact I occasionally forget to take Adderall and usually choose not to on the weekends or for low key events. I can live without Adderall; but my life is just so much more fulfilling being able to use it.
I implore you and everyone who reads this to take into consideration the seriousness of ADD for certain people, and ask that you not spread invalid, generalizing, anecdotal evidence about what is an important part of my life.
Photos.
When you concentrate on something it becomes prettier. Where is this true? It's true when you're in an external space that's beautiful, for one. For instance, in a club with good live jazz, where you can fall into being more aware of the space the sounds are in than you'd normally be aware of any space - and yet meet yourself in that space, finding yourself also able to concentrate clearly on other stuff you normally leave far in the background.
Okay, so the therapeutic technique you describe is to simulate an aspect of reality that's pretty much there when you're in good external spaces.
It's also much like a standard form of meditation: concentrating on a candle flame. Or concentrating on an image of a diety. The object of concentration, like great live music, becomes richer in your experience at the same time as you're able to better resolve other aspects of life. (Thus has power often in the past been ascribed to statuary.)
Schools don't want concentration, don't want trained attention of this sort. They're mostly ugly spaces, something even less interesting than a factory aesthetic (where at least there's real production being done). That's why 2/3rds of our kids leave them for the factory jobs that no longer are there, instead of sloughing on through a few more years to pass through college - despite that colleges are more often decent aesthetic spaces.
William James wrote cogently of the need to teach concentration as fundamental to education. The problem for our current schools is that kids who can concentrate will mostly want out of them. Because when you can concentrate at will, your will is often not going to be towards the less rewarding concentration on a teacher who typically was among the stupidest cohort at college.
I'd suggest seeing if there's a descendent of the old "free school" movement in your area for your daughter. She's probably too smart for her teachers. But she should learn concentration, whether through immersion in art, practice of traditional concentrative meditative techniques, or the techno repackaging of those techniques that you describe.
"with their freedom lost all virtue lose" - Milton
I read some time ago that a study had been done where they took a group of hyperactive children, and put them on a very strict diet of natural foods (the four basic food-groups WITHOUT preservatives or dyes or any other additives) and the kids hyperactivity cleared right up.
Think about it; we ingest A LOT of chemicals in our diet these days, much more than a few generations ago, when this problem was non-existent.
I'm not saying that this is THE cure, but don't you think ou should at least check it out before subjecting her young, developing mind to even MORE drugs?
And this means NO cheating, ie. "snacks" or "treats" have to be out of the question.
Good luck, may your daughter find peace.
I don't know the meaning of the word 'don't' - J
EEG Spectrum is a group of practitioners and researchers. They have a page on the application of the technology for ADHD type treatments. Also a variety of other articles and links on the tech there.
The EEG Spectrum uses hardware and software from NeuroCybernetics which includes some games you play by brain wave control. I tried some of these out a few years ago while looking into EEG tech for Virtual Reality applications.
BioFeedback Home Therapy is the home page for a couple doctors using biofeedback.
My wife and I had my son try bio-feedback when he was about 16. I'll have to say that I did not notice much difference. This is probably because he did not really take it seriously. He later admitted that he thought the whole thing was a 'crock', and just goofed off during the sessions.
So, as with any psychololgical treatment, the person first needs to admit they have a problem, and want to do some work to 'fix' that problem. If this is not the case, don't even bother.
The treatments were very expensive, so I would not do something like this lightly.
Let me start off by saying thank you to the poster for not settling for a drug treatment. I am a very very outspoken anti-drugs for ADD person. As a child (starting at 4) I was diagnosed as ADHD (1982, so not in the middle of the 'every kid has ADD' phase). I would only sleep for a couple hours a night and the rest of the time I'd just rummage around my room, tearing off wallpaper, throwing things around or generally harassing my parents.
... just think of it as being amortized over the life of your child ... just pennies a day!
They put me on ritalin when I was about 6 after giving up on training me, and found it didn't work - it actually made me more hyper.
Thats when they moved me to Dexadrine. For the americans out there, it's the same drug some people use to lose weight. It immediately worked, helping me focus and not be so wired.
The downside was, I was moody and depressed. I was anti-social and angry a lot. but I was 8 and people didn't care really. They wrote it off as depression because my parents broke up. But when they took me off the pills for the summer, life was grand again. I was energetic to a fault and had lots of friends. Come school time, back on the drugs and back to quiet, boring, socially acceptable me.
Fast forward to highschool and I'm still on the stupid things. September was great, I'd start taking the pills and wouldn't eat for a weak (about the only upside to em, great weight loss). But around that age you start to become more self aware and I realized that I hated myself because I wasn't really me. I took these stupid pills every morning and I became who my parents and teachers wanted me to be, but I wasn't really me. I didn't laugh as much, I didn't talk as much, but I got good grades.
Around grade 11 I said 'fuck this' and started to not take the pills. Then my parents started threatening me and grounding me if I didn't take them. So I'd pop them in my mouth then spit them out. Then they started to check my mouth to make sure I swallowed them. So I found a new trick - you could pull apart the gel caps and all the little balls of medicine inside would fall out. So I'd quickly dump them on the floor or sink then take the pill. That worked well and I started to feel more like myself.
Except then my grades started slipping.
So thats when I turned to the psycho babble they'd been teaching me at my semi montly sessions. They called it 'coping strategies' and taught me how to recognize when I wasn't behaving well or focusing like I should. Instead of just throwing pills at the problem, they put me in control of my life and said 'these are the tools to make things better for you, but you need to do them'. They made me responsible for my behaviour and grades.
So I started with them. At this point I can't identify what I do, but my friends will notice when I *click* in and out of focus now. Apparently I'm much better and I can recognize when I'm having ADD moments. Sometimes I have ADD days. I've learned to work with instead of against the ADD. I now run dual monitors on my PC so I can do more than one thing easily. my desk has lots of distractions on it, but they're all little. I can jump from work to a distraction for 30 seconds to give my brain a break then back to work. I can focus much better now that I've learned these skills, and I dno't need pills to make me work well.
So, the moral of this story is that pills aren't necessary. They inhibit your mental and social and emotional growth by turning you into a little robot. I found that I could actually feel myself in a little tunnel when I took them and things seemed duller. Teaching coping skills is, I think, the key. Teaching your child how to recognize when they're not paying attention is the first step, then teaching them how to focus when needed, and let their mind go when not needed. If this Neural Feedback Training does that (and it sounds like it does), then go for it! Don't spare any expense
We emerge from our mother's womb an unformatted diskette; our culture formats us. - Douglas Coupland
"Mrs. Gallagher, I called you here today to discuss your granddaughter's problem. Now, upon reflection, I think a combination of prayer and Ritalin could eliminate her excess energy."
"How dare you! My Mary has no problem. My granddaughter is a star! Look at that face, she looks like a young Elizabeth Taylor. You may call her hyperactive but if the Good Lord gave her excess energy then, by God, no one's taking it from her! If you don't appreciate that, maybe the problem is not my granddaughter, maybe the problem is this school."
Not since Marie-Antoinette played milkmaid has looking simple and honest been so fake and complicated.
I am of exactly the opposite opinion, ADD/ADHD is a disorder and not treating it (when properly diagnosed) is just cruelty plain and simple.
I have ADD and went from being last in my class in High School and failing out of college to graduating with Honors and going on to graduate school at the finest university in the country, after being prescribed Ritalin.
I hold more than a dozen patents and have had research papers published at world class conferences, so as the poster says, I am a very insightful, creative, and interesting folk. And this is only enhanced not suppressed by medication.
I still suffer the effects of going so late in life before being diagnosed, I can't spell for beans having learned all the wrong spellings when I was young. Its all very nice to talk about not trying to harm her "very special mind", but failing to treat her WILL damage her intellect forever, while treating her will allow her intellect to develop.
-jon
There are several posts in this conversation saying that jamesh should just ask a doctor. Obviously their advice should be heeded (and the more diverse qualified opinions the better). Keep in mind that most doctors will not recommend the type of treatment that he's asking about, at the very least since it's their ass on the line. Also ADD is an interesting thing to ask a doctor about since their opinions are probably as diverse as the people in this discussion. I would recommend findind a doctor that's slow to prescribe.
I think he knew what he was asking for in this forum.
I don't try to be right, I just try to make people think
I have acute ADHD. When I was last tested (in college) I came out with like 17 of 18 characterics or something. I have been off and on various medications over the course of my life, including ritalin and dexadrine.
The problem with your argument is that it mistakenly assumes that treating the symptoms of a way of thinking and brain activity (loss of attention) inherantly involves the loss of any creativity n the same person. Essentially you draw an conclusive connection between two characteristics with NO evidence to support that conclusion.
According to your logic a "life of the party" guy who gets treatment for alcoholism will no longer be fun or interesting, because it is the alcoholic "party guy" component of his personality that makes him interesting. Isn't it possible he is an outgoing and interesting person who happens to be an alcoholic? And that he will STILL be so, sober or not?
What if many insightful and inventive people happen to have ADHD, but not all ADHD people are insightful and inventive? Isn't it actually both possible and likely that treating the lack of attentiveness will allow a truly creative person to concentrate on and further develop the creative ideas he comes up with?
In my experience I have found that this is the case. I am, like you state, a fairly creative and insightful person. I'm the kid who disassembled teh family television to figure out how it worked, who learns a new technology in ten minutes to help someone else, etc. When I take a methamphetamine like ritalin or dexadrine it just allows me to focus VERY deeply into whatever i am doing. Instead of doing something else every 30 minutes I can sit and churn out the same thing for like 3 hours at a go.
Yes, there are side effects, and I SPECIFICALLY don't like ritalin very much (it makes me feel like I'm tripping and makes me very socially uncomfortable). However, for someone whose productivity is that of a gnat without it the treatment offered by Meths is a god-send.
I'm sorry if you have an addictive personality and you fell into a hole as a result of a meth prescription. However, I see that more as a personal problem you had and not an indication of the merits or general problems associated with methamphetamines. Ironically the only people I've seen who get addicted to meth drugs are people who AREN'T ADHD positive (like some of my friends in college). ADHD folks usually couldn't care less.
-Rick
This is from one of JamesH's previous /. postings.
5 5602
It provides some supporting evidence that they have higher priorities in their life than their child.
Mhttp://slashdot.org/comments.pl?sid=91154&cid=78
" Me to wife: How the heck could you spend $400 on clothes?
Wife to me: Don't worry, I got about $1000 worth."
Take care of her! Do not use her for fucking medical experiments.
I think the problem with ADHD which somewhat invalidates is that it's far too broad. 10 different people with ADHD could have 10 different causes, 10 different collections of symptoms, and 10 different ideal solutions yet they're too often lumped together and treated the same way. That's why so many people in this discussion are able to say "I have ADD/ADHD and my situation is different from everyone else's". And that's why so many people that were treated for it wish they never had been.
I don't try to be right, I just try to make people think
Hello,
First, let me start off by saying that I have in fact taken this "feedback" therapy, or, more accurately known as EEG/EMG biofeedback therapy.
A little background information on ADHD... trust me, I've done my homework on this as I have the condition. The strongest medical explaination of ADHD (which encompasses the former ADD... more later) is a rapid decline of oxygen metabolism in the prefrontal lobe during periods of thought requiring concentration. This kind of conditition can lead to two forms of ADHD: inattentive and overactive... I happen to fall into the former category. Basically, EEG waves can be measured through the skull/scalp in the picovolt range by use of an amplifier connected to a small probe stuck to the scalp by use of electrolytic gel similar in consistancy to vaseline. When EEG signals are filtered, they can be separated into waves in the .1 second duration and .5 second duration. ADHD individuals show a marked amount of "slow" wave amplitude over "fast" wave amplitude.
Someone mentioned earlier in the post that he was unable to alter his brain function in a short period of time; a just statement. I attended therapy for nearly 3 weeks after diagnosis before seeing any kind of large changes in brain activity while concentrating. The excercises used started off with concentrating on an object in a video monitor to mentally "push" it along... and later was changed to academic study of exceedingly boring material. As my scores improved, so did the quality and depth of the notes I wrote during a timed interval of study.
Now, coming down to it. ADHD is usually a male-dominant trait, passed from father to son... explaining the vastly larger amount of males with the condition.
I specifically did NOT choose drug therapy as it would have prevented me from service in the Marine Corps. Simply put, I'm a rock in a traditional education environment, but continue to score in the 130 range with reputable IQ tests. My doctor in fact was the person who encouraged me to satisfy my "thrill seeker" personality (which is somewhat common in ADHD individuals). Since my diagnosis, I continue to be a United States Marine, having endured training such as aircrew school and SERE, and now get to fly around in KC-130 tactical aerial refueling aircraft as a Crewchief/Flight Mechanic. I have also attained my private pilot's license, parachute jump license, and have started racing a stock RX-7 in autocross. Major "Pappy" Boyington of the Black Sheep squadron was also of the ADHD personality. What can I say? It feels good to go fast.
It is my firm belief that your daughter does NOT need stimulant therapy, and would benefit from the somewhat unconventional EEG biofeedback therapy. If you contact me privately at my email address, I will be happy to converse with you over the phone about my doctor and how to contact him for more information.
Hope this clears up any doubts you had about this somewhat unconventional therapy method
CheersWith the amount of people out there doping up to try and avoid every sign of being human, I would definitely consider a second or even third opinion on the ADD diagnosis. I seriously hope that there has been more than one opinion. I can't say because I don't know your situation.
If my folks would have taken me to a doctor as a kid because I spaced out on the gym floor, I would surely have been diagnosed with ADD. But the real truth is that I wasn't a jock.
Going back to my first statement (about people doping up for everything under the sun), think about it:
1. I've got a few age lines in my face. Solution? Inject toxin just under the skin to make it swell and fill in the wrinkles for a few months!
2. I've got reflux (probably the fallout of too many antibiotics and a bad yeast infection in the digestive tract) disorder. Solution? Get the purple pill that costs an arm and a leg and I will have to stay on for life lest my symptoms get worse.
3. I'm going bald. (Hey... we all get old eventually) Solution? There's just too many to go into, but I'll point out that the list of side effect for Propecia is mind boggling. Especially the one that says to not even TOUCH Propecia if you are pregnant!
I'm not denying that there ARE people with problems out there. I'm not even saying that this guy's kid may not have problems. But let's step back a bit. Back to the time when kids were allowed to be kids. When they didn't have to "perform" in a certain way by a certain age lest they be considered "freaks". Hell... most of us were considered "freaks" but I think we fared pretty well over our lifetimes. Haven't we? The first thing I would say is that this child may just normally be less social and more introverted. Is that REALLY a problem? Do we REALLY need to drug people who just don't get on well with other people?
The other thing is the expectation people place on their kids these days. And the ridiculous level of activity kids are expected to be involved in. (Baseball, Soccer, Football every F*cking day?!! WTF?!) Kids should be allowed to do things like sit in the backyard baking mud pies or making snowmen. They should be allowed to make "chemistry sets" with water, food coloring and old bottles. They should be free to dig holes in the ground in hopes that they will reach whatever it is they believe to be on the other side. But most of all they should be allowed to dream. Because those dreams will take them farther than any drugs they are getting pumped into them.
Un-news
Now, I've since been looking into neural feedback as a potential treatment - more from the geek-side of things though, than as a patient. (I'm looking at building a home-made EEG-like device with input to my computer via either a serial or parrallel device.)
I'm sure that you're aware of all the technical information on EEG's and biofeedback, but for the benefit of the other readers:
A typical electroencephalogram (EEG) is where the electrical activity in your brain is recorded over generally a 1.5 to 2 hour session. During the test, the brain can be applied with different stimuli to see how the brainwaves react. Uses for this include detection of epilepsy, and determination of clinical brain death.
Neurofeedback is an extension of typical brainwave monitoring wherein the brainwaves are represented to the patient in a way that facilitates learning how to control them, i.e via a game of some description. Current methods include controlling the doppler effect on a virtual pool, or cloud generation/manipulation.
The brainwaves are approximately:
People with ADHD can exhibit brainwaves that have an unproportionally high period of time spent in the Theta state - essentially daydreaming. So if the patient is taught how to modify his brainwaves to between mid-Alpha and mid-Beta, then a lot of the symptoms can be reduced.
For instance, with the doppler effect method, more ripples could indicate a more higher-cycle brainwaves, and can thus be observed and trained.
There is also strong clinical evidence that shows that neurofeedback is an effective tool for people with ADHD, with a lot less of the harmful side-affects of the drugs, such as Ritalin.
For me personally, I had an EEG performed when I was 12 for suspected epilepsy. An EEG is non-invasive, and non-painful. No icky injections, nothing that felt really weird. Particularly for children this can be a very important point.
I would recommend following this path highly, as it shows a lot of promise, and there is little to show it being harmful in any way.
I wish you, your daughter and your entire family the best through this, and I think that you'll be very happy with the results you'll find.
Just FYI, I'm still on Ritalin, but I do intend to go down the path of neurofeedback, but I'd rather do it via my home-made one. I'm a geek, after all.
There is already a zillion comments, and I have bad Karma, so most likely, nobody will see this, but I do have one idea you may want to look into. A friend of mine adopted a mentally retarded girl. (Fetal Alcohal Syndrome, sad story). She was having a terrible time in school, and the school insisted that the girl be put on medication, so that, even if she couldn't learn, at least she wouldn't be a bother. Contacting DCFS and having the kid taken away was what the school threatened doing. So, (and I don't know why) my friend taught her daughter sign language. She started an after school club where a bunch of girls get together, and do sign language performances of songs. It turned around several lives. Nobody is exactly sure why it works, but for some reason, mixing language, movement, rhythm, music, and such together into one performace has helped several of the kids function. My friends daughter went from "she may never be able to walk properly" to riding a bicycle. She is doing quite well in her studies. (Not quite top of her class, but for a kid with Fetal Alcohol Syndrome, it's damned impressive!)
I would reccomend trying something similar with your kid. It may not work, as everybody's brain is a bit different, but I have seen sign language song to *wonders* for several kids now. I haven't seen any literature on the subject, or anything else, and as far as I know, my friend invented it as a therapy.
I know, I have bad karma, so some of you mods (if anybody even reads this) will probably assume I'm full of crap. I swear, I only have bad Karma because of a single "I welcome our XXX overlords" joke. So far, it just happens, that's the only comment of mine that has been moderated!
Both myself and my S.O. have been diagnosted with ADHD and find that the "your just":
...
A. Undiciplined
B. Lazy
C. Just different
D. All of the above
(take your pick) explination really fustrating. You really don't know what it's like until you've been in our headspace.
Now as for medication. I agree in a perfect world being intellegent and ADHD would be great. We could be the thinkers, excentric scientists and artists. Unfortunately we live in a world that demands that we "stay focused" and have great "organizational skills", so the practical considerations must be taken into account.
That being said I belive there is an over diagnosis in children (hey kids are a real PITA and can be hard to manage) and an under diagnosis in adults. I wasn't diagnosed until I was 31 since I have found many ways to cope and be successful.
Oh look something shiny
(couldn't resist that one)
A friend of mine has suggested I look into the work of Dr.Michael Persinger at Laurentian University, and Todd Murphy. Some of the machines Murphy sells (cheap, he's obviously not trying to become a millionaire off this stuff) might be useful in home treatments, especially if you can get a neuropsychologist to help you determine a protocol. (with standard disclaimers: IANAD, neuro-scientist/psychologist. Nor am I associated with Laurentian University, Persinger or Murphy)
Information: "I want to be anthropomorphized"
It is facinating reading all of the different theories revolving around the two camps. ADD/ADHD IS real and ADD/ADHD IS NOT real. The is not real have "helpful" ideas such as: Turn off the TV. Kids will be kids, let them be. It causes Tourettes, addiction, panic attacks, dumb children, more idiots, drug society. The hardest falsehood to overcome is the one that is only partially or potential true. For example, Tourettes syndrome can be aggrevated by Ritalin. However there are children taking it to alleviate the symptoms of the syndrome. The other concerns are all possible, but not ALWAYS a problem. Many people who say it does not exist do not have it themselves, and do not know someone suffering from the affliction. I was totally anti-drug, anti-ritalin before I met my wife. She was diagnosed while before we were married. I was against her taking Ritalin (she was still in college). She, fortunately, disagreed. Her school performance inproved dramatically as did some associated conditions such as depression and anxiety (depression because she was failing and anxiety because she could not change it no matter what she did or how she studied). She is not addicted, in fact hasn't taken it for quite a number of years. She developed some coping skills that were as important as the ritalin. As with most medicine, it works for some people, dramatically. For some it works without major side-effects. For others who have this affliction, let us hope there is an alternative. For those that don't have this affliction, let's hope they or there parents have a clue and not medicate something that is normal. However, to say it doesn't exist is mere elitism from those that are not afflicted. Something along the lines of a white person living in a majority white country saying there is no racism simply because they don't experience it.
It is dangerous to be right on a subject on which the established authorities are wrong. - Voltaire
My son is also ADHD and we had him try bio feedback for a year. He is attention deficit and not hyperactive. We stopped the bio feedback because after a year we had seen absolutely no change. However, our best friends son is also ADHD, and also not hyperactive, and he has been using bio feedback for about a year and a half with some good results. My suspicion is that the difference may be mostly how hard the person tries at it. The rub here is, of course, that staying focused and "on task" is exactly what ADHD kids have a problem with. We did get results by switching him to Adderall XR. If you haven't, you may want to try out a few different medicines with your kid and see which ones she responds to. It's worth a try. The down side of trying is that she may not be treated for a week or two, if one meds fails, and the up side is that you find a medicine that works much better. Keep her on the bio feedback, it can't harm and it may do some good. Give her every chance there is! Don't forget to take care of your self too. I used to think I was a patient person until I had an ADHD kid. Now I know that I'll never have enough. Best of luck to you!!!
I have a list for adults with ADHD (AADD @ yahoogroups) that any polite adult with ADHD is allowed to join (newbies are moderated until they've shown they won't try to enlarge our penises).
We do have one specialist on board who has ADHD herself and is quite knowledgable about treatments. You're apt to get much more helpful advice than querying /. where so many people have obvious impulse control disorders...
Bioneurofeedback has been helpful for many people and several of them are on my list. Meds just don't work for everyone, and I'm one of those people. I hope to try feedback some time in the future.
The last four months of my life have been, literally, a living hell. Panic attacks to the point of screaming and shaking in fear, tranquilizers by the tubfull. Welcome to the world of [what was diagnosed as] Generalized Anxiety Disorder and it's fun big brother, Acute Panic Disorder.
The reason I mention them is because they have many of the same physical symptoms as ADHD: Trouble sleeping, racing thoughts, inability to focus, irritability/easy to upset, etc.
It was only when that connection was made, in the last week or so, that I appear to be finding my way out of it...
You see, I had what most people would call ADHD when I was a kid. Pretty much every symptom, which are pretty much the same symptoms as anxiety disorder and panic disorder in adults, I had.
Then, it being the 70s in England and Ritalin not being as popular, my mother looked around for other remedies and found the reports on Yellow 5 allergies. She took me off Yellow 5 (tartrazine) and I started to chill out. The scientists may be divided on whether it's a factor but the emprical evidence suggests it was for me at least.
It's only been in the last week or so that we put two and two together. I was ordered off caffeine the moment I got ill. I swapped to Minute Maid lemonade from diet Coke. The stuff is full of Yellow 5 - the problems snowballed.
Since Sunday I've been off anything with Yellow 5 (or Blue 1). What do you know? The physical symptoms are getting better by the day.
The point of all of this is that Yellow 5 and ADHD may or may not be related, who cares. What does seem to be the case though is that a Yellow 5 allergy can manifest with the same symptoms as ADHD or Anxiety Disorder.
All the tranquilizers in the world, SSRIs, you name it, weren't going to help when I had the equivalent of someone slipping me speed or an acid tab in every can of soda. Ditching the soda (and other things that have Yellow 5) has already had a profound affect in, what, 72 hours?
My advice would be - try cutting out Yellow 5. It might not make a difference but it will only take two weeks to find out so it doesn't really cost you anything much and you can try it in conjunction with her other treatments. But can you really afford not to try it? Imagine if the ADHD was a misdiagnosis and you'd put her through all the Ritalin and everything else when just changing out the lemonade and Sunny Delight she drinks could cure it?
Yeah, it's an unproven theory at the moment (then again, people once argued smoking wasn't bad for you too). But it risks nothing to try it and there's one person who'll serve as empirical evidence right here.
I pasted a few abstracts below. The first is a neuroimaging study that shows anatomical differences between ADHD and normal patients. The second describes a genetic mechanism form ADHD. The third is another neuroimaging study. It shows that different areas of ADHD patients brains light up compared to normal patients when asked to perform a task that requires attention. You could do a lit search on Pub Med to find more:
Am J Psychiatry. 1994 Dec;151(12):1791-6.
Quantitative morphology of the caudate nucleus in attention deficit hyperactivity disorder.
Castellanos FX, Giedd JN, Eckburg P, Marsh WL, Vaituzis AC, Kaysen D, Hamburger SD, Rapoport JL.
Child Psychiatry Branch, NIMH, Bethesda, MD 20892.
OBJECTIVE: Because the caudate nuclei receive inputs from cortical regions implicated in executive functioning and attentional tasks, caudate and total brain volumes were examined in boys with attention deficit hyperactivity disorder (ADHD) and normal comparison subjects. To gain developmental perspective, a wide age range was sampled for both groups. METHOD: The brains of 50 male ADHD patients (aged 6-19) and 48 matched comparison subjects were scanned by magnetic resonance imaging (MRI). Volumetric measures of the head and body of the caudate nucleus were obtained from T1-weighted coronal images. Interrater reliabilities (intraclass correlations) were 0.89 or greater. RESULTS: The normal pattern of slight but significantly greater right caudate volume across all ages was not seen in ADHD. Mean right caudate volume was slightly but significantly smaller in the ADHD patients than in the comparison subjects, while there was no significant difference for the left. Together these facts accounted for the highly significant lack of normal asymmetry in caudate volume in the ADHD boys. Total brain volume was 5% smaller in the ADHD boys, and this was not accounted for by age, height, weight, or IQ. Smaller brain volume in ADHD did not account for the caudate volume or symmetry differences. For the normal boys, caudate volume decreased substantially (13%) and significantly with age, while in ADHD there was no age-related change. CONCLUSIONS: Along with previous MRI findings of low volumes in corpus callosum regions, these results support developmental abnormalities of frontal-striatal circuits in ADHD.
Biol Psychiatry. 1999 Nov 1;46(9):1234-42
Attention-deficit/hyperactivity disorder (ADHD) as a noradrenergic disorder.
Biederman J, Spencer T.
Pediatric Psychopharmacology Unit, Massachusetts General Hospital, Boston 02114, USA.
This review revisits the thesis that a dysregulation of the central noradrenergic networks may underlie the pathophysiology of ADHD. We review the pertinent neurobiological and pharmacological literature on ADHD. The noradrenergic system has been intimately associated with the modulation of higher cortical functions including attention, alertness, vigilance and executive function. Noradrenergic activation is known to profoundly affect the performance of attention, especially the maintenance of arousal, a cognitive function known to be deficient in ADHD. Data from family, adoption, twin, and segregation analysis strongly support a genetic hypothesis for this disorder. Although molecular genetic studies of ADHD are relatively new and far from definitive, several replicated reports have found associations between ADHD with DAT and D4 receptor genes. Brain imaging studies fit well with the idea that dysfunction in fronto-subcortical pathways occurs in ADHD with its underlying dysregulation of noradrenergic function. A wealth of pharmacological data (within and without the stimulant literature) provides strong evidence for selective clinical activity in ADHD for drugs with noradrenergic and dopaminergic pharmacological profiles. Available research provides compelling theoretic, basic biologic and clinical support for the notion that ADHD is a brain disorder of likely genetic etiology with etiologic and pathophysiologic heterogeneity. Neurobio
2) Evaluate your daughter's teachers. I have a background in education thanks primarily to my mother being a Title I reading teacher. She brings her work home with her and the whole family is greatly involved in it much of the time. I've also worked for 3 educational institutions, mainly as an IT guy but also as a aide. I can think of numerous teachers that have neither the training nor the patience to work with a ADHD child. Simply put, if my child was diagnosed with ADHD and happened to be in one of their classrooms, I'd have them moved to another teachers room. Failing that I'd pull them from my local school district and drive them to a school district that has staff capable of effectively teaching an ADHD child. You should determine if your daughter's teachers can cope with her disorder. Would the school put her into special ed (very bad idea)? Does the school have any past experience with ADHD children? Is your daughter's class size small enough to get an adequate amount of attention from the teacher or her aides? Does the school have any special programs for students of such disorders than can offer the individualized attention she needs without the negative treatment of being placed in special ed?
You have a long road ahead of you. The good news is you are not alone. The Internet is filled with information about ADHD, the possible treatments, support groups, and much more. Consider looking into the services of institutions that specialize in child care such as Shriners. You may not need their financial assistence but you're sure to benefit from their knowledge. Best of luck to you and your family.
The clothes thing was a joke. Laugh.
And even if it wasn't, $400 is not a lot to spend on clothing for 2 adults and 3 kids. One of which has feet which don't fit comfortably in any but reasonably expensive shoes. (take note - take care of your kids feet when they're young. $100 is nothing to spend on shoes if it saves a heap of problems later!!!)
None of which adds up to me not taking care of my kids. I don't see how you can gather enough evidence one way or another from anything i've ever posted to slashdot, even if you take it grossly out of context.
I don't know if you have kids or not, but it is so hard to see them having a hard time with day to day things (eg getting dressed in the morning), and being completely at a loss as to what to do about it. I've already answered on another post about why I asked the slashdot community. This isn't a substitution for professional advice, it's an addition to it.
Diabetes is treated with medication. Epilepsy is treated with medication (some of which has side effects far nastier than Ritalin). Various other psychological diseases are treated with medication. People are irrationally touchy about ADHD though.
Hope I didn't just feed the trolls!!!
I think this hits at the heart of the problem, and the real reason such drugs are being overused nowadays: 5 year olds are supposed to be overactive. From the time they can walk, all non-human mammals are running around, playing/fighting with one-another, etc; this is extremely important, as those that don't get regular exercise and learn precise muscular control will soon become prey.
21st-century humans, however, are being put in school at extremely young ages. When they're supposed to be running around, getting exercise, and having fun, they're forced to sit in classroom and stare at a book. Naturally, the teacher can't do her job when the kids won't sit still, so the school will pressure the parents into giving these drugs to their kids.
Damn right 5-year-olds get distracted, and why shouldn't they?
I made a PHP/MySQL library that prevents SQL injection & makes coding easier!
2) It has a genetic component. It's trackable in the genome. Hey, it even shows up on a PET scan, for those of you non-believers. "It's just something they're making up" does not show up on a PET scan.
3) ADHD can be easily overdiagnosed. I tend not to trust diagnoses made without the use of a CPT (Continuous Performance Test) or a TOVA (Test Of Variables of Attention). These are real performance tests, not answering some questions.
4) I know a guy who did some large project on the way to his Ph.D. in psychology on using biofeedback for ADHD. He had ADHD and the subject was of interest to him. Basically, he found that people with ADHD couldn't maintain the focus to make biofeedback work. Biofeedback can be very useful, but, to use a loose analogy, in this instance it is like having someone try to build up their biceps through weightlifting if they are paralyzed from the neck down.
"That being said I belive there is an over diagnosis in children"
And this is why, I think, there are so many of the comments you hear... because there are so many 'problem' children who are just labelled as having ADHD to explain disobedience.
My parents were foster parents for many years while I lived with them, and they were often sent the 'problem' children as they were seen to be excellent in handling them. I remember one girl in particular who came to us labelled as having ADHD and a 'handful' and unable to focus or be handled.
Within ONE WEEK my parents had her happily ensconsed reading books, playing with toys etc. for ages at a time with no drugs, no fancy methods... just good old parenting, and a firm hand where required. (I don't mean physically a hand as such, I mean sticking to your ground when you say things like "No, you can't have that" or such things... not giving in to demands etc.)
So very many cases are like this, and it's THOSE cases that cause you the grief... I can't help but have the same feelings about most ADHD diagnosed kids because just so many of them have nothing wrong, it's just a convenient out for parents... which is wrong of me as there are real issues at hand here, but until doctors stop throwing the label about willy nilly, the stigma will remain.
Speaking for my loving girlfriend... "I interned with a biofeedback therapist that specialized in the neural feedback training. I worked with children who were diagnosed with everyting from ODD, ADHD, Autism, and many other behavioral problems. In the short time that I was there I saw an amazing improvement in my children with ADHD. The improvement was so drastic that many were taken off ritalin, and only used neural feedback therapy as their only treatment. From my history in Psychology and my background knowledge in Neuroscience, I would hightly recommend you place you daughter in Neural Feedback Therapy. I believe our youth is over-medicated and NFT is going to be our future answer to genetic, neuronal, and behavioral problems. Good Luck!"
i think i may have posted on here before about this, but i'll mention it again anyway.
My little sister does neuro-feedback/bio-feedback therapy, and its improved her life a lot more than flooding her brain with amphetamines like they do to most of the poor little bastards that float through the US "education" system. Keep in mind that ADHD is a pretty subjective thing to diagnose someone with, and people are quick to medicate for it, although very few of the people diagnosed with it really need to be taking meth every day to keep it under control. Psychotropic drugs are not really designed to help anyone, just make their behaviors easier to manage for those of us in the human services field.
Anyway (sorry about that soapboxing) my little sister is supposedly bipolar, ADHD, and emotionally disturbed. She's been taking biofeedback therapy and karate lessons for a few years now, and the benefits from the therapy were apperant very quickly (i'd say a month or two, but your milage may vary). After the series of "games" that the therapy takes the form of, with "points" to be earned towards reinforcers (money, ice cream, charts with stickers on them, etc), the therapy simultaniously simplifies and complexifies into computer-aided transcendental meditation. pretty nifty.
Many insurance providers now cover this (but by no means the majority), Oxford insurance in CT comes to mind, but without insurance the therapy usually costs about 1000 a year with a mix of simple use of the machine and sessions with the therapist (which cost more per session). Its easy to learn how to calibrate the machine (its similar to polygraph calibration, but cooler), making sessions with the therapist an excellent option but by no means nessisary.
The equipment can be purchased at www.brainfingers.com for around 2000 (last i checked, maybe its lower now). The equipment they sell there even has a neuro-to-midi program and the SDK included in the package!!
Anyway, anybody considering poisoning their children just so they can deal with them easier should look into therapy like neuro-feedback that results in actual growth and change rather than homeostasis and chemical restraint.
Thats not to say that these drugs don't have their place, i have another family member who wouldn't be with us right now if not for depakote and wellbutrin, but think twice before drugging someone up just because they don't think the same way you do and give neuro-feedback a shot. its -FUN-.
Its interesting to note that the research and development that resulted in this therapy originated in the fallout of the ill-conceived and unconstitutional prohibition on the scientific research of LSD. The people who didn't get locked up moved their equipment to study people practicing yoga and found that using their equipment, the same states of mind could be reached in 2 weeks that would have taken 2 years unassisted by neuro-feedback. chew on that for a while.
In response to Cliff's original post and questions, I have used neurofeedback in the past to support me in overcoming ADHD like symptoms. Due to a general fear in our family about psychology in general, I never was formally diagnosed with ADHD, but have been told several times by friends that are licensed psycologist that I had all of the signs of this condition. (As an example, to do my homework as a kid I turned the radio and the TV on at the same time). As an adult I continued to have problems with this. Because of my general concern about medicating this issue, I chose not to go down a medication path. I was concerned with my perception that medication seemed to cut the performance curve of what was possible for me to do... I worked for a while with neurofeedback, and was truly suprised that it helped my concentration. From there, given its expense, I was not able to afford a lot of treatments. I never was able to find a medically proven device (other than the one from EEG Spectrum that the psychologist that I worked with) that was inexpensive enough for me to buy to go forward with further treatments after my cash supply ran out for this. However, the limited number of treatments did seem to really make a difference. It is noteworthy, at least in my case, that I also dealt with some of my issues through exercise 4 days a week in a rigorous martial art class. (specifically Aikido). Moreover, after the neurofeedback, I also enrolled, and now have been a student of a meditation practice (for the last 4.5 years- zazen) that has been of continuing support for me. I still have difficulties at times from wanting to get up, go to the bathroom, look outside, read my mail, check slashdot, and then repeat in the next 20 minutes, especially when I get off of my routine of exercising in Aikido and meditation... You might look into several different directions on this, not just neurofeedback. Good luck.
I went to Drake institute, summer 2002. (http://www.drakeinstitute.com/)
:)
Visual bio-feedback and all.
I also, on the advice of my japanese wife who saw study done in japan on ADD and the relationship with the brain when under video-game mode and Alzeimer's, and their treatment was three-ball juggling. For ten minutes straight.
I couldn't juggle, at all.
I got the hang of it, slowly, trying every day. If I did 5 I was happy.
That was summer of 2003.
On Dec 20, 2003 I hit 1150 juggles.
Last week, I did 1900 straight.
Now, I stop at ten minutes, and don't even count.
The level of concentration is insane when you get to above 500. The brain wants to stop, to roam, to defocus and wander.
Yet 1/2 second of defocus, and the ball is on the floor.
You can't blink, you can't let your mind wander, you can't let your eyes stray.
Now, when I am feeling myself drift, I imagine that I am juggling fast (at 4/sec or so), and I get very focused very fast, and I can concentrate on the task at hand.
About biofeedback: It's a way for you to train yourself to relax yourself (I imagine my hands and feet are warm and do deep breathing exercises) and to focus your mind. It visually lets you know the spot you want to be at. Once you "get it" you know it, then don't need the visual feedback to know you're focused.
But like everything else, if you don't use it, you lose it.
Ultimately it's worked for me. My relationship with my wife has improved dramatically, my job is not suffering, my firends have all noticed a difference, and my schooling is progressing rapidly.
I'm 35. Yes it was expensive ($5500 for 40 1 hr sessions), yet in the grand scheme of things, it's not.
Oh, and My driving has improved greatly (I had 3 accidents in 4 years, but nothing, not even a scratch, since).
To poster: If you want to contact me, it's chris_mahan hat yahoo dotte com.
PS: The first 10 sessions were for stress reduction, learning how to drop stress levels. Very effective even though I slept through 3 sessions
"Piter, too, is dead."
False. poorly labled, over-diagnosed, missunderstood, overmedicated, yes. Unreal no.
I have what is called add/adhd, I know others with it and others without, it's very deffinately real.
It's bad to call it a dissorder however. I can do things many cannot because of it and there are somethings that are nearly impossible that many can do also.
I can track and keep up with a larger number of things than most for one (one could argue that intelligence plays a roll in this, but that alone is insufficient.) but narrow to one item and I usually just cannot unless It absorbs me and I hyperfocus (a known trait of 'add/adhd', what others above call a 'death march').
I've noticed the tendancy for add people to higher I.Q.'s than 'normal' people as well, It's one of my pet hypothesis that the brain, like other machines, when run in high performance modes all the time are more likely to develope issues. Kinda like race car engines and such, they need a lot of maintenance. My other idea was that since alot of how we think is by association and interconnecting data that add may just be more so, with the attendant lots of extraneous info/data floating through the concious mind as a result.
I know I'm probably feeding a troll, but I knew I would be posting somewhere in this anyway.
Mycroft
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I understand your skepticism of my earlier remarks. Attempting to stay on topic, I shortcutted my explanation of why I believe I am/was(?) affected by ADHD.
I was high school valedictorian. I rarely, if ever, had any homework. I never felt challenged by any of my school work. So my work ethic vis a vis homework was not as tuned as I needed it to be for college. That certainly had something to do with it. In retrospect, I was a bit immature as well. However, according to a quick consultation with my son's psychistrist, who himself has ADHD, (1) ADHD is inherited, and my son's mother has little to no symptoms herself (class valedictorian a year ahead of me), and (2) I show almost all of the signs of being ADHD, however mild, in a twenty question list that the psychistrist provided. My one scholastic weakness was in my handwriting. It was terrible. The processing required to properly write characters in order is immense, far more than I originally thought. That was my first clue about my son as well. His handwriting was abyssmal, but the real problem was that he could not write sentences. He could speak them well enough, but couldn't even dictate to himself and get them onto paper! I didn't have the pen-to-paper problem, but my writing was nearly illegible.
College is an startling experience for most kids, me included. But there were times, especially the first couple of quarters, when I thought I had forgotten to pack my brain when I moved off to college. I could not concentrate at a level that I could before. Fiercely academically competitive, I found that I could not perform at a level that I was satisfied with, one that approximated my earlier results. I expected college to be more difficult, but not to the point that I just didn't grasp the material. Something was clearly wrong here. It was about 15 years later when my son's problem cropped up that I recognized ADHD as the cause of much of my problems in college.
Based on this new revelation that I have/had ADHD, I believe that to a large degree my symptoms were mitigated by the intense exposure to second hand cigarette smoke that was pervasive throughout my childhood. Nicotine has been shown in many experiments to sharpen many mental tasks, including concentration. My notes from my first quarter of college show a moderate but distinct decrease in the legibility of my handwriting over my senior high school work. I'll admit that these signs are by no means rock solid evidence, but I certainly believe them to substantiate that I was positively affected by nicotine (no, this is not a pro-tobacco stance - let me make that perfectly clear. I had to deal with my mother's cancer operations and chemotherapy enough in my childhood) enough to lessen the severity of my ADHD.
I can't claim this as a revelation in the field of cognitive science, either. I don't have a reference handy, but I have seen studies to suggest that some people return to tobacco use after kicking the habit precisely because of their diminished ability to concentrate, some after even years without tobacco. Anyone who's been around a tobacco addict or is one can attest to their behavioral differences based upon their nicotine levels.
My wife is a Child Psychiatrist and medical researcher. In addition to reasearch and clinical work, she works 10 hrs a week with an agency that helps foster and adoptive parents.
I have heard stories from both ends of the spectrum. One where a foster parent wanted to medicate a perfectly normal child just so they could more easily manage an inquisitive child in a boring environment.
And an other case where the parents were strongly opposed to med's but ther little boy was literally climbing the walls knocking books of the self in a 15 minute interview. After meds the boy was much, much, much better, and happier. The parents could not believe the difference and felt bad about the boy suffering so long.
True ADHD is socially very difficult on the child. Untreated, an ADHD child has an increased chance of drug abuse.
I mentioned Cliff's post to my wife and she, like an other poster, recommend Strattera. Strattera is a non stimulant ADHD drug that is as effective as Ritalin.
ADHD is both the most under-diagnosed, and over-diagnosed childhood desease. As much as 30% of ADHD children are left undiagnosed. Many times their parents think "boys will be boys" or "I was like that" (Umm there is strong genetic basis). On the over-diagnosed side, upto 15% of diagnosed children may actually be bipolar. If your child is not responding well to ADHD Meds, talk to a Child Psychiatrist. A pediatrician is not as trained to make the distinction between ADHD and Bipolar Disorder.
There is a spectrum ADHD severity. There are very severe cases where it is totally unfair and hurtful to call it "bad parenting". And there are mild cases where coping strategies alone may help.
Also confusing matters in the mild cases, sometimes "labeling" the child as ADHD can make the difference in getting extra reasources to an acedemically struggling child.
My son, however, is another matter entirely. He's a great guy, but he's got ADHD in a FAR more acute form than I do. Lesson one, not everyone diagnosed with this disorder is in the same boat. Like good parents, we took our little darling to the doctor soon after he started kindergarten, where the teacher didn't appreciate his caroming off the walls like a biological billard ball. Ritlin, of course, was prescribed immediately.
My happy little fireball turned into a mopey, depressed little jellyfish. The teachers were happy -- he was now easy to control! Back to the doctor -- adjusting dosages gave big improvements, but never was just right. The side-effects were as bad as the ADHD.
They changed drugs, Adderol(sp) and several others. The doctor was getting testy, saying we should be satisfied with "good enough". We changed doctors. Lesson two: Keep trying!
FINALLY, a doctor tried Imapramine. It's an old-style antidepressant, with some interesting side-effects (like "slowing down" the mental machinery a bit). My son never had the anger problems and antisocial behavior frequently associated with ADHD, he just couldn't concnentrate - my wife would make him literally sit on his hands while she tried to help him with school work, and he'd just vibrate with unspent energy. It was a long-shot, but the doctor thought my son's symptoms might respond to the side-effects of Imaprimamine. It worked beautifully. He's still pretty "bouncy", but he's in control of himself. His grades are, frankly, not stellar. He's happy, productive, inquisitive, and alert, not doped-up on the typical ADD drugs. Lesson three Decide what results you want, realizing that the goal isn't necessarily to make your kid "just like everyone else", but to the best version of them they can be.
Anyway, ADD/ADHD IS a serious problem, unless you have a mild case like mine, and every treament has plusses and minuses. During the years we were trying different treatments, I got to see my son put through an emotional and physical taffy-puller, but we found a treatment that seems to fit HIS situation well, reducing the symptoms that are limiting to him without impairing or redefining who he is beneath it all. Keep working at it, and you should find something that works for your daughter.