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IBM Vows Not to Genetically Discriminate

An anonymous reader writes "Today the New York Times is reporting that IBM announced the addition of genetic makeup (Genetic Registration Required) to its non-discrimination policy. It appears that IBM is the first company worldwide to do this. With congress considering genetic privacy legislation, and with projects like the National Geographic Genographic Project, are we nearing the time when we all need to worry about our genetic privacy?"

39 of 297 comments (clear)

  1. however... by Brunellus · · Score: 4, Funny

    they reaffirmed their commitment to constantly split infinitives...

    1. Re:however... by Anonymous Coward · · Score: 5, Informative
      Attaching this here anon 'cause I didn't see it elsewhere and it's pretty relevant.

      IBM hired it's first black employee in 1899, along with its first women employees. In 1944, IBM was the first corporation to support the United Negro College Fund. IBM began hiring women to work as professional systems service staff in 1935. Thomas J. Watson Sr. wrote: "Men and women will do the same kind of work for equal pay. They will have the same treatment, the same responsibilities and the same opportunities for advancement."

      Pretty damn progressive for the stereotypical big, uncaring megacorp.

    2. Re:however... by CapnGrunge · · Score: 3, Funny

      Unobligatory fortune reference:

      William Safire's Rules for Writers:
                      Remember to never split an infinitive. The passive voice
      should never be used. Do not put statements in the negative form.
      Verbs have to agree with their subjects. Proofread carefully to see if
      you words out. If you reread your work, you can find on rereading a
      great deal of repetition can be avoided by rereading and editing. A
      writer must not shift your point of view. And don't start a sentence
      with a conjunction. (Remember, too, a preposition is a terrible word
      to end a sentence with.) Don't overuse exclamation marks!! Place
      pronouns as close as possible, especially in long sentences, as of 10
      or more words, to their antecedents. Writing carefully, dangling
      participles must be avoided. If any word is improper at the end of a
      sentence, a linking verb is. Take the bull by the hand and avoid
      mixing metaphors. Avoid trendy locutions that sound flaky. Everyone
      should be careful to use a singular pronoun with singular nouns in
      their writing. Always pick on the correct idiom. The adverb always
      follows the verb. Last but not least, avoid cliches like the plague;
      seek viable alternatives.

      --
      I see 57005 people
  2. G.A.T.T.A.C.A? by alokeb · · Score: 3, Interesting

    The movie coming to reality? Hopefully not.

  3. Huh? by sdirrim · · Score: 5, Funny

    How would someone be discriminated against based on Genetic Material?

    Sorry, but you have a AGGTAGTGCACA sequence. We can't hire you.

    --
    Not only "land of the free" but "land of the lawyers" who love a good old 1st amendment smackdown. Shihar 153932
    1. Re:Huh? by muellerr1 · · Score: 5, Insightful

      More likely, "Sorry, but you had a genetic predisposition for carpal tunnel syndrome which makes it a pre-existing condition that our health care plan will not fund."

    2. Re:Huh? by Sad+Loser · · Score: 3, Insightful

      This is a brave stance, but they will end up having to weasel out of it, otherwise they will end up hovering up the shallow end of the gene pool
      There are some interesting sides to this though, as it might be more cost-effective to hire people who tend to die early, as long as they have no sick leave before hand. It would certainly save on pensions/ superannuation.

      Genetic health screening is already done to an extent when doctors ask you about illnesses in the family, what age did your relatives die, have you got any chronic health problems. Genetic screening will come in gradually as an extension to this, and I think companies will find themselves forced to use it by the market.

      People with a positive genetic test for something long and expensive like MS, mental health problems, or early Alzheimers would be pretty much unemployable, even before they developed the clinical signs of the disease. As all tests are fallible, some of them would not go on to develop the disease anyway. These sort of problems will need legislation to protect people from the worst excesses of such testing, but I don't see how we are going to stop it.

      As the developing world catches us up, and plenty of companies with no compunction about using such tests, I would be surprised if IBM is still saying the same thing in 20 years time.

      --
      Humorous signatures are over-rated.
    3. Re:Huh? by jafac · · Score: 3, Interesting

      The solution?
      Nationalize the Health Insurance Industry.

      If they insure everybody, then there is no such thing as a preexisting condition.

      --

      These are my friends, See how they glisten. See this one shine, how he smiles in the light.
  4. Money in mouth when it comes time by Anonymous Coward · · Score: 3, Insightful

    addition of genetic makeup (Genetic Registration Required) to its non-discrimination policy

    Until the company goes down the crapper because all the other companies are making billions by having lower health care costs and hiring people that correctly match their genetic makeup (yeah 3005 stuff).

  5. IBM isn't the one to worry about by w.p.richardson · · Score: 5, Insightful

    The companies that should institute such a policy are the Aetna's, KaiserPermanente's, and MetLife's of the world. However, that would not be wise, given the business models of said companies.

    --

    Curb CO2 emissions: Kill yourself today!

    1. Re:IBM isn't the one to worry about by Stile+65 · · Score: 3, Informative

      I think HIPAA already prohibits considering genetic information a pre-existing condition unless it is a factor in an existing condition that has manifest itself. This means that if you're genetically predisposed to diabetes but don't have diabetes at this point, health insurance companies can't exclude diabetes from a new policy for you as if you already had it.

      --
      I claim first use of "Error No. 0B" - or "No. 0B error." It'll be the new ID 10T!
    2. Re:IBM isn't the one to worry about by Coffee+Warlord · · Score: 3, Insightful

      I'm sure there's some sort of loophole (or will be when genetic
      testing inevitably becomes mainstream). Always is with insurance
      companies. Apply discounts to people who take (and pass) genetic
      screenings, et cetera.

      Basically, similar to how auto insurances companies screw you over
      if you had a lapse. They legally can't jack up the price on someone
      who had a lapse in coverage, but they CAN offer a discount to people
      who have not had a lapse in coverage.

  6. Good news! by nurhussein · · Score: 5, Funny

    Well that's good news for those of us who were born with a genetic anomaly that gives us a superhealing factor and retractable claws! We'll have no problems applying for work at IBM!

    *snikt!*

    1. Re:Good news! by SealBeater · · Score: 3, Informative


      Just to nitpick (this is slashdot afterall), Wolverine wasn't born with the
      claws -- they were implanted long after birth as part of the Weapon X project.


      Well, to nitpick further, he was born with the claws, they were just made out
      of bone, and were coated with adamantium as part of the Weapon X project.

      SealBeater

      --
      -- Its survival of the fittest...and we got the fucking guns!!!
  7. Hmmm... by Musteval · · Score: 5, Funny

    I'm only stupid because of genetic makeup! IBM, hire me or I'll sue you for genetic discrimination!

    --
    Note to mods: I'm probably being sarcastic.
    1. Re:Hmmm... by BrookHarty · · Score: 3, Funny

      I'm only stupid because of genetic makeup! IBM, hire me or I'll sue you for genetic discrimination!

      I'm sure they have a manager position on the OS/2 new markets division.

  8. Doesn't matter in some states by digitalgimpus · · Score: 4, Informative

    For those who actually bother to know the basics of business law (should really be a college gen ed) would know their states discrimination laws.

    In NJ for example, this practice has been illegal for several years already. I believe a few other states have also outlawed this practice.

  9. Examples by Infonaut · · Score: 4, Informative
    How would someone be discriminated against based on Genetic Material?

    It's not the material itself, but extrapolations based on analysis of the material.

    An analysis of your genetic material indicates that you have a higher than normal chance of becoming mentally unstable. We therefore will not hire you.

    Your genetic material shows a predisposition to a certain inherited disease that is expensive to treat. We don't want our health coverage plan to have to deal with a claim for this sort of disease, so we will not hire you.

    --
    Read the EFF's Fair Use FAQ
  10. Seems relavent by Zach978 · · Score: 4, Informative

    This came up in the NBA recently....

    And more articles from Google...

    --

    "I told you a million times not to exaggerate!"
  11. genetic discrimination may bring legislation by yagu · · Score: 4, Interesting

    Disclaimer: I am genetically an idiot.

    Well, if it's really true and IBM is truly dedicated to a non-discriminatory genetic policy, this could be a good thing. A couple of questions:

    • what makes a non-discriminatory policy (obviously hiring is one)? Do people of certain genetic "deficiencies" have the same health benefits? At the same cost?
    • what happens if IBM becomes the only company that commits to this, and a stampede of genetic malware knocks at their door only? Do they modify their policies? (it could become VERY expensive for them should they remain the only corporation committed to this policy.)
    • what and how are "defectives" (God! I hate this topic... very loaded) detected? Are they tested?, Is it mandatory?

    Much good can, will (and has) come from genetic understanding and it's important to remember what it brings. But from the article, there is a cautionary example (from the article):

    In a handful of publicly disclosed cases, genetic data has been used without workers' knowledge.

    This is a topic long sneaking up on current consciousness and conscience and at some point needs to be stared down. I'm not a socialist, but if we start seeing a society free to not hire, not talk to, not help, etc., simply because of some percieved defect in their genetic makeup, I'd support some public policy not allowing this.

  12. good. Good news for the Family! by Anonymous Coward · · Score: 5, Insightful

    With Huntington's disease ( http://en.wikipedia.org/wiki/Huntingtons_disease ) in the family, this has been one of my worries. Who would insure us, since we can be proven to have a catastrophic illness that we cannot hope to pay for the care of.

    As an example, my mom's nursing home costs more than her salary from when she was working. We need the help of big insurance, but they don't want to cover us. And if I get tested they will want to withold both life and health insurance, since I would be proven to be a poor risk.

    I can only hope that other companies follow IBM's lead. We need to have genetic privacy legislation.

    meh

  13. See, we don't need government regulation by Overzeetop · · Score: 3, Funny

    Here's a shining example. IBM has stepped up to the plate in the non-discrimination game. I say that we should table all legislation on genetic discrimination, and let the corporations police themselves. We know that they will all do the right thing. Those that don't will be judged in the marketplace for their decisions. The strong will prevail and the weak disappear. It's a win-win for everyone, and avoids needless government regulation where it can only be a hindrance to our economy.

    Besides, there's no need for government interference, unless you have something genetic you need to hide, right? :-)

    --
    Is it just my observation, or are there way too many stupid people in the world?
  14. Not yet, but... by Bullfish · · Score: 4, Insightful

    The time is coming when people will alter themselves or their kids. They are actually working on super drugs to increase brain power, muscle power etc. Like it or not, this is coming. Genetic research is coming along too. So... in 20 years or so, if it will give your kid a leg up (or allow him/her) to keep up, will you do it? If not, what happens? A two-tier society. The enhanced and unenhanced. Who will companies prefer to hire? Someone with enhancements to help them work longer and be more effective - or a standard human. Who will be able to afford the treatments? What will happen to those that can't? What will become of those that choose not to do it?

    The axiom of science is that if it can be done, it will be done. This declaration by IBM may be early, but in time it may be required.

  15. Two things by AviLazar · · Score: 3, Insightful

    Ok: 1) Referring to the movie Gattica? Come on, can't we do better. How about not refer to a movie, or at least not one so lame.

    2) While it is great IBM does this now. Two things to note: a) they can always change this policy b) imagine this scenario - the gov't allows genetic testing, and thusly discrimination - now it becomes an insurance companies policy "you want insurance, it is twice as expensive w/o a genetic test"...IBM may be forced to change their policy to avoid paying twice as much in insurance costs.

    I am happy IBM is doing this and hopefully it will push Congress to pass anti-genetic discrimination laws (which they should). In the end, what Congress does will make the difference.

    --

    I mod down so you can mod up. Your welcome.
  16. Expression vs gentic makeup by Red+Flayer · · Score: 4, Insightful

    Healthcare costs are a huge expense for employers, and this is good news for tons of workers -- genetic markers that indicate higher risk for disease, and therefore higher healthcare expenses for employers, will not be a factor in hiring/promotion practices.

    However, this doesn't give someone with bad genetics a free ride. If your genetics are expressed in a negative way that could be detrimental to your performance, then you can be discriminated against. It's only the alleles, not the expression, that won't be discriminated against.

    --
    "Trolls they were, but filled with the evil will of their master: a fell race..." -- J.R.R. Tolkien on Olog-hai
  17. Mutants still need to register by MECC · · Score: 3, Funny


    But won't be discrimitated against...

    --
    "We are all geniuses when we dream"
    - E.M. Cioran
  18. Re:This will be tested by NialScorva · · Score: 3, Insightful

    If it's 100% correlation, then they don't hire you because you ARE a sociopath, not because you're predisposed to sociopathy.

  19. Is it just me? by Franklinstein · · Score: 5, Insightful
    Is it just me...or would the simplest way to not discriminate against genetics be to NOT TEST FOR IT?

    I mean, correct me if I'm wrong, but isn't the only difference between a company that discriminates based on that (like in Gattaca) and one that doesn't (every company today) the fact that one had that little blood analysis machine at the door and the rest don't?

  20. Geriatric Discrimination by Genady · · Score: 3, Funny

    I read the article head as the above and thought, hey cool, IBM's not gonna be axing my old mainframer friends (yes a UNIX admin can have tn3270 friends). Imagine my surprise. Well, here's hopin' they'll eventually get around to helping the boomers keep their jobs.

    --


    What if it is just turtles all the way down?
  21. what's the point of insurance then? by Wansu · · Score: 4, Insightful



    I thought the point of insurance was to spread risk. Since noody can afford the treatment for certain catastrophic illnesses, the idea is to put everyone in a pool to share the risk. If insurers are allowed to cherry pick, why bother even having insurance, other than for accidental trauma?

    --
    Wansu, th' chinese sailor
    1. Re:what's the point of insurance then? by Pichu0102 · · Score: 3, Interesting

      Insurance companies pick the lowest risk people so they get the insurance payments without having to pay for health bills. Is it ethically right? Probably not. Is it profitable? Hell yes it is.
      In the end, profit overcomes ethics.

    2. Re:what's the point of insurance then? by Godeke · · Score: 3, Interesting

      As someone who consults on the software side for insurance companies I can tell you why "spreading risk" is diminishing. The original intent was to take the "pool" of insureds and insure everyone based on the risks present in the pool. However, if I'm selling insurance based on the "pool" price and my competitor becomes selective (say, not insuring those who smoke) the competitor's pool risk rate is lower than mine and he can either sell at the same price and make more profits or he can sell lower.

      Now, the real profit in insurance is in the long term investments that the premiums are placed in, so they will sell at a lower price to gain more premium dollars to invest. (Free market selection by the consumer ensures the consumer will look to the lower cost options available.) We (the consumers) have accepted the fact that smokers and drinkers are going to be harder to insure. These are "lifestyle" choices. Likewise, I pay extra for my rock climbing: that fall outside the "norm". (I had to admit to it though because otherwise if I fell to my death they would have cause to not pay on my life insurance). People don't seem to mind dividing the risk pool on items that are *within the control* of the insured.

      What has become offensive to even some *within* the insurance industry is the idea of dividing the risk pool on "uncontrolled" factors. There is a reason why they ask about your family history of disease: it is to partition on your genetic probability for specific diseases. Where the gene testing takes things further is simply increasing the accuracy of those risk assessments and adding new assessments that were impossible before.

      Unfortunately, without state run insurance or strong regulations you end up with a competitive environment that selects for those companies that are "managing the risk pool" they accept. Fair it isn't (if your idea of insurance was based on the risk pool spreading costs) but it is the profitable way to go. I have written neural nets that take the risk pool and assess a new application based on the prior risks that were insured by the company. Some interesting trends came out of doing so: you end up doing ethnic discrimination as it turns out there are strong links between race and risk rates for some diseases. Eventually the idea of risk pools will be fully replaced with personal risk rates assuming no regulation to prevent it. (This is already true in the corporate insurance world where there are "uninsurable" companies and no law requires they be insurable for some types of insurance).

      --
      Sig under construction since 1998.
  22. Genetic privacy... by erroneus · · Score: 3, Insightful

    ... it's a really slipery situation now isn't it.

    But I have to wonder, though, if at the same time we arrive at a notion of "genetic health" and such how far off we will be from also being able to heal or correct such problems on a permanant basis? Would we be able to, then, repair everything from crooked teeth to a crooked spine?

    And if we could make such corrections, would descrimination be an issue? I suppose the very notion of a cure for genetic problem disposes of the idea of descrimination doesn't it... So far, I feel pretty lucky... my problems are somewhat mild -- one ear slightly (though barely noticably) higher than the other and crowded teeth... other than that, I'm a pretty healthy guy... as far as I know. Then again, my next genetic profile might reveal something more devastating right?

    Let's make sure that the insurance game remains as it is -- a gamble for the industry. After all, as gambling goes, they win more often than not. But the more they remove uncertainty from their game, the less valuable their services are -- if only "healthy" people can get insurance, then nobody needs it! Just build a large enough interest-bearing investment portfolio and never pay another premium again! In my life, I've probably paid ... well, more more money than I care to think about on insurance, and I've never used a dime of benefit to my recollection. Last time I did anything medical was when I was exiting military service, after that, I've managed to get by on bandaids(tm) and off-the-shelf remedies.... and even those are used with some rarity. (I did cut my finger last night though...so there's a bandaid(tm) on my finger now) But the point of my rambling is this: while we (USA people) don't really have an effective social medical system, competitive insurance is as close as we'll come I think. So I don't mind paying for health insurance even if I never utilize the benefits -- I recognize that I might one day and that there are people who need it now.

  23. Re:good. Good news for the Family! by Anonymous Coward · · Score: 5, Insightful
    With Huntington's disease ( http://en.wikipedia.org/wiki/Huntingtons_disease ) in the family, this has been one of my worries. Who would insure us, since we can be proven to have a catastrophic illness that we cannot hope to pay for the care of...

    As an example, my mom's nursing home costs more than her salary from when she was working. We need the help of big insurance, but they don't want to cover us. And if I get tested they will want to withold both life and health insurance, since I would be proven to be a poor risk.

    My deepest sympathies go out to you and your family for this misfortune, but at the same time I would be remiss if I didn't point out that that's pretty much the point of insurance in a capitalist society - it's essentially a bet, and nobody who doesn't have a burning desire to lose money is going to bet on somebody with this disease.

    Remember, the topic of whether or not the citizenry should collectively bear the costs of caring for someone with this catastrophic illness is a different debate. If we work under the assumption of insurance companies operating within a capitalist framework, then it's just business. People start insurance businesses to make money by offering you a bet that you will get sick disproportionate to their estimate of the actual odds of that happening. Under normal circumstances, it's designed to cover accidents and acts of god, not things they can see coming a mile away - and if they can see it coming a mile away, then the price for their service goes up in proportion to the estimated cost of treating your ailment (which is why nobody except smokers really complains when their insurance company asks them whether or not they use tobacco).

    Taking out policies when they know them to be losing bets will lose the insurance company money, and drives up prices for everybody (usually disproportionately to the loss they've taken to boot - people generally see a loss of $5 as a good opportunity to jack up the price $6), which means the citizenry is effectively collectively paying for that health insurance anyway.

    Asking companies to insure someone whom they know will have this disease in the future is the same as going up to a doctor and asking him to operate for free. We can debate about whether or not the state should get involved and operate health care as a collective, but under a capitalist framework that policy, while pleasant-sounding, is at its core unfair (after all, let us be honest here: if you ran an insurance company, you wouldn't want to have an estimate of your customers' total cost of care that is orders of magnitude more accurate than the one you currently have?)

  24. Re:This will be tested by nekoniku · · Score: 5, Insightful

    BUT, being a sociopath provides you with the perfect skill set for a career in marketing!

    --
    "It's a wonderful idea. But it doesn't work." -- Tad Danielewski
  25. You know what they say... by An+Onerous+Coward · · Score: 4, Funny

    We don't need genetic privacy. If your genes aren't doing anything wrong, then you have nothing to hide, right?

    --

    You want the truthiness? You can't handle the truthiness!

  26. Re:good. Good news for the Family! by Shajenko42 · · Score: 4, Insightful
    Remember, the topic of whether or not the citizenry should collectively bear the costs of caring for someone with this catastrophic illness is a different debate.
    Except that the insurance companies have linked them, by opposing any sort of single-payer health care at every term.
  27. Re:This is a subtle change... by RexRhino · · Score: 3, Insightful

    That is being a bit sensationalistic and innacruate. IBM Polish subsidiaries supplied equipment to the Nazis, who then used it to track Jews (amoung other things... the equipment could have been used to track anything). And lets remember that the people working for the subsidiaries in Poland were given "an offer they couldn't refuse". (i.e. there is no question that they and their families would have been tortured and killed if they refused to supply the Nazis with what they wanted).

    To illustrate the double standard, China uses Linux based equipment to run it's police state. No-one is saying that Linus Torvolds is responsible for China oppression. (and yes, Linus Torvolds has the power to explicitly forbid the use by specific governments by changing the licence... which he has chosen not to do. And he most certainly knows that China uses Linux to facilitate oppressive policies.) The only difference is that no open-source geeks and their families are going to be tortured and killed if Linus forbid the use of Linux by China... which makes Linus far more responsible than IBM.

    Once again, people blaming someone else for the oppressive policies of governments. No-one will dare blame genocide or oppression commited by governments ON GOVERNMENTS... because most people are in love with big oppressive governments in some form or another.

  28. Re:Isn't this mainly a public health policy issue? by michael_cain · · Score: 3, Insightful
    Sure, other uses will be found for genetic markers... but... the biggest and most obvious use for this info is to deny health "insurance" coverage to people likely to need it. This quite simply isn't a factor in systems where everyone is entitled to health care.

    Indeed, uses that have already started. Women with a particular BRCA-1 marker have an 80% chance of developing breast cancer before age 65. Assuming a cheap test, most women should probably be tested. Even with a more expensive test, women with a family history should probably be tested. Positive test results may indicate that differences in health monitoring and/or treatment are appropriate. It seems likely that as tests for genetic markers become cheap, they will be incorporated along with other mandatory blood tests performed on newborns -- eg, PKU screening.

    I'm beginning to think that it's a national disgrace that the US will be spending energy on the question "How do we keep this technology from being used to deny people health care?" while the rest of the industrialized countries get to ask "How can we use this technology to provide cost-effective health care?"