Slashdot Mirror


YouTube Breeding Harmful Scientific Misinformation

Invisible Pink Unicorn writes "University of Toronto researchers have uncovered widespread misinformation in videos on YouTube related to vaccination and immunization. In the first-ever study of its kind, they found that over half of the 153 videos analyzed portrayed childhood, HPV, flu and other vaccinations negatively or ambiguously. They also found that videos highly skeptical of vaccinations received more views and better ratings by users than those videos that portray immunizations in a positive light. According to the lead researcher, 'YouTube is increasingly a resource people consult for health information, including vaccination. Our study shows that a significant amount of immunization content on YouTube contradicts the best scientific evidence at large. From a public health perspective, this is very concerning.' An extract from the Journal of the American Medical Association is available online."

24 of 816 comments (clear)

  1. Big deal by wealthychef · · Score: 5, Insightful

    I don't see why the fact that this misinformation is on youtube is a big deal. It probably just reflects actual public perceptions of science. Educate people, don't act shocked when uneducated people say stupid things.

    --
    Currently hooked on AMP
    1. Re:Big deal by Hatta · · Score: 5, Insightful

      Because before YouTube it was harder for the uneducated or misinformed to get an audience, and that limited the damage they could do. What's particularly troubling is how the misinformed get better ratings and more hits than the well informed. Which indicates that if the NIH started posting actual educational videos on YouTube they'd probably just be written off as propaganda from "the man".

      It's the blind leading the blind out there. And not only that, they distrust the sighted.

      --
      Give me Classic Slashdot or give me death!
    2. Re:Big deal by Russ+Nelson · · Score: 4, Funny

      it was harder for the uneducated or misinformed to get an audience,

      Oh? The newspapers cover their every word up to the time when one of them gets elected.
      --
      Don't piss off The Angry Economist
    3. Re:Big deal by enjahova · · Score: 5, Insightful

      Insightful? please.

      Before the printing press it was harder for the uneducated or misinformed to get an audience.
      Before the television it was harder for the uneducated or misinformed to get an audience.
      Before websites it was harder for the uneducated or misinformed to get an audience.
      Before blogs it was harder for the uneducated or misinformed to get an audience.
      Now its before youtube...

      You know, maybe we should go back to the old system, where the only form of written/tangible communication was bible scriptures copied in monasteries. That way the "sighted" could keep leading all of us poor little blind folks in their infinite wisdom.

      As for your "Insightful" cynicism about NIH videos being disregarded, I doubt that would have anything to do with their "the man" factor. I wonder why you can't find any medical information from "the man" in a google search, oh wait, you can. You can also find information (and misinformation) from independent sources! Not only can you search out a source you trust, you can compare what you find with the opinions, research and facts presented by other sources.

      Once people actually start thinking "oh, I'm feeling sick, I'm going to see if I can find something about my condition on youtube, instead of an easily searchable forum like the web" I'm sure there will be more accurate health related videos on youtube to balance it out.

      --
      "how can they call it a MINE if everything here is THEIRS?!?!" -Straight Jacket
    4. Re:Big deal by cayenne8 · · Score: 5, Insightful
      I think this begs a larger question. Are people really using YouTube as an authoritative source of information for ANYTHING???

      I mean, hell, I thought most people knew that wikipedia, while indeed a nice place to start looking up topics, is hardly an authoritative source to be trusted as the gospel truth?!?!

      On the other hand...I didn't realize YouTube had any real content other than kids doing stunts, bootleg videos, guitar lessons, and the like. I didn't know there was anything the purported to be 'serious' on there.

      --
      Light travels faster than sound. This is why some people appear bright until you hear them speak.........
    5. Re:Big deal by Altus · · Score: 4, Insightful


      I trust the government more than I trust the web site that brought us "Leave Britney alone!"

      Medical advice from YouTube... what the fuck? Who on earth would go there for definitive advice on anything (except maybe old TV shows).

      --

      "In America, first you get the sugar, then you get the power, then you get the women..." -H. Simpson

    6. Re:Big deal by Rei · · Score: 5, Interesting

      There is a lot, and I mean a *lot* of misinformation on YouTube. The Mythbusters forum gets posts every day from people who just saw a new way to "burn water" on YouTube and who are furious that we're still burning gasoline in our cars; people who saw that you can power your average TV by just wiring it up to a couple double-A batteries and believed it; and on, and on, and on. It's really bad. I'm starting to get a handle on just how gullible the average person is by looking at how readily people fall for these hoaxes.

      --
      "I can't tell, do you feel bad or proud?" "No." "No to which one?" "Feel."
    7. Re:Big deal by kestasjk · · Score: 5, Funny

      That's a nice idea, but unfortunately contradicted by reality. We are the subjects of a plutocracy, our government is wholly owned by corporations, and the constitution gets little more than lip service these days. [Citation needed]
      --
      // MD_Update(&m,buf,j);
  2. Natural Selection by spleen_blender · · Score: 5, Insightful

    I'm not one to support eugenics, but... this might be nature's way of working out its own kinks.

  3. WTF? by Elemenope · · Score: 5, Interesting

    Who is stupid enough to go to Youtube for authoritative information about anything? I mean, I get why people might use something like Wikipedia for this (with all the pitfalls that can bring), but this just plain does not make sense to me.

    --
    All the techniques ever used to make men moral have been themselves thoroughly immoral... (Nietzsche)
  4. You've got it coming... by Erwos · · Score: 5, Insightful

    You honestly have to wonder how people can make super-important decisions for their children and themselves using _YouTube_ as their main provider of information. It's sad, but it's just like all those folks getting burned on their million dollar homes with sub-primes - you made a bad decision because you didn't do enough research, and you should be the one paying the price.

    You are simply never going to protect all the stupid people from themselves, and making the effort often only punishes the smart people who didn't make those mistakes. That's the unfortunate realization I've come to in my adulthood.

    --
    Plausible conjecture should not be misrepresented as proof positive.
  5. Funny you mention this by wamerocity · · Score: 5, Interesting

    ON my medical application, I coined the new word "Google-gnosis" describing the problem with people self-diagnosing based on information found on the internet, making the point that Doctors are now going to have to make more of an effort to know what information and misinformation is out there, and how Doctors are going to have to spend more time teaching people correct information to dispel popular myths that get spread around. This is case in point for me. Maybe I should bring this up in my next interview...

    --
    "Thank you for using Stop-n-Drop, America's favorite suicide booth since 2008"
    1. Re:Funny you mention this by 99BottlesOfBeerInMyF · · Score: 4, Interesting

      ON my medical application, I coined the new word "Google-gnosis" describing the problem with people self-diagnosing based on information found on the internet, making the point that Doctors are now going to have to make more of an effort to know what information and misinformation is out there, and how Doctors are going to have to spend more time teaching people correct information to dispel popular myths that get spread around.

      Sadly the verdict is still out on whether or not taking the first Google result is significantly less accurate than going to the doctor, and doctors are increasingly turning to Google themselves to help diagnose patients. The last study I saw placed Google's accuracy at about 65% and doctors at 69% for a first diagnosis. As someone who has spent much of the last year going to what are supposedly some of the better hospitals in the nation with little luck, my faith in the medical community is pretty much obliterated. Most any rational person would turn to Google and research their symptoms and possible diagnosis. The sad part is when you go back to the doctor and realize they spent half an hour reading one of the many articles you did and they are unable to answer any additional questions and don't even know some of the information you do. Taking a look at studies of how long it takes to be properly diagnosed if you have anything unusual (several years of seeing doctors) is just depressing.

      Personally, I wish doctors would ignore what information their patient knows or thinks they know, but I sure wish they'd do some research themselves and actually have a fucking clue what they're talking about after you spend a week playing phone tag while violently ill, only to find out they haven't bothered to do their homework on your condition.

    2. Re:Funny you mention this by zstlaw · · Score: 4, Interesting

      Actually there is a difference between what you can access and what documents a really good doctor has available.

      Recently a close relative was diagnosed with stage IV medullary thyroid cancer. According to everything I could find (using only medical sites) his outlook was 100% mortality within 5 years.

      My sister works at a hospital and had access to journals that cost several-thousand per year (according to her) and she saw treatments that raised his life expectancy to 5 years with a 10 year cap on life expectancy.

      We went to the best thyroid surgeon we could find. He actually knew the doctor who had written the papers my sister had found as they attended the same conferences. Furthermore he had access to follow up studies detailing promising treatment plans that actually gave a 5% possibility of being completely cured. Now my relative was not 100% cured -- but I would put his life expectancy up in the 10 years category so he has 2 times longer to live than anyone could have expected and he might live even longer than that.

      So basically each tier we went up the studies were more relevant and contained newer treatments. We were all reading articles by the same doctors, but my sister had access to newer data, and the expert knew what the study author was doing today.

      On one last note. It is worth noting that medullary thyroid cancer is hard to diagnose and the local doctors misdiagnosed it several times. My relative self-diagnosed it online and paid for the additional tests (which are not normally performed in the US) to prove that he had the rare, almost untreatable version of the disease. But he also became despondent because he _knew_ he had only a year or two to live from the same documentation I found. It was only the expert in the field that knew of any way to potentially cure him.

      So the web can help you look up possibilities. But the data you see and the treatments are quite old. When I have symptoms I go online to look up common maladies and when I go in to my doctor I tell her what I researched already to save her time. Often times she can dismiss a couple options quickly, but several times it has been quite useful. If my relative had not done the same, I wouldn't be visiting him this Christmas as he would be dead.

      Several doctors had misdiagnosed the type of cancer, and even at Mayo several residents were shocked that the patient had gotten the diagnosis as none of the residents had gotten it right on the walk-through session. So doing self-diagnosis might help, but even with the right knowledge and education the residents and local doctors were wrong. The patient has a more time and interest to look at every possible option while the doctor has several people he needs to see today so they tend to lean towards common maladies as they are just more likely to be right.

  6. Mainstream medicine and paywalls by dmarti · · Score: 5, Insightful
    What do you expect, when medical titles such as JAMA (where this appeared, but they won't show it to you, neener neener) and the Massachusetts Medical Society's New England Journal of Medicine are behind expensive paywalls, and the quackery gets the full search engine optimization treatment?

    If mainstream MDs and researchers care about getting their point of view out to patients, so that people who find out they have a disease don't have to learn about it from YouTube, spam, and pharmaceutical company sites, they're going to have to start using more Open Access journals or get their existing journals to go Open Access.

  7. Article makes a HUGE assumption by goldspider · · Score: 4, Insightful

    What makes these "researchers" think that people are coming to YouTube for medical advice? I'd bet that a lot (if not most) people are watching these videos for the absurd entertainment value they provide.

    It's one thing to simply count hits. It's quite another to infer the reason(s) behind them.

    --
    "Ask not what your country can do for you." --John F. Kennedy
  8. This will keep hapening by niloroth · · Score: 5, Insightful

    Sadly, this will continue to happen for a lot of reasons, but mostly, like all conspiracy theories, it actually is comforting to believe that a shadowy world government is in charge. Or to think that the reason people are autistic, or get cancer, is because of vaccines. It lets people know that there are reasons for otherwise random events, events that could happen to them any day now, or to those they love. But if you can have something concrete to blame it on, instead of just the randomness and uncertainty of life, well, then you can get angry at whatever tangible entity you want.

    And things like youtube are perfect for the type of disinfo that these theories represent. The question now is how do we counter these claims? I would highly suggest listening to the Skepticality podcast ( http://www.skepticality.com/p_listentopast.php )ablout the documentary Flock of Dodos. The main theme is a discussion about how real science needs to learn to present its information and findings in a far more entertaining and easily digestible format. Just throwing facts and numbers at people, while it makes me happy, turns off the majority.

    This is kind of like the whole 9/11 truth issue. People who have seen the conspiracy videos on youtube can be almost immune to evidence about physics, metallurgy, demolitions, and such. Their eyes just glaze over when you try to use facts and numbers and evidence. But if you point them towards a source like http://www.youtube.com/user/RKOwens4 which is comprised of simple arguments against the 9/11 truth theories, in easy to understand 3 minute chapters, then you start to make headway.

    This is the course science must take with the public. Like it or not. The alternative is far to dangerous.

    --
    09 F9 11 02 9D 74 E3 5B D8 41 56 C5 63 56 88 C0
  9. This is news? by overshoot · · Score: 5, Interesting
    A rumor is halfway around the world before the truth can get out the door.

    This weekend I had a chat with a fine gentleman who is one of the youngest polio survivors in the USA. He's in pretty good shape (he's in his 50s) but from visits with many others he knows what his future is like. Apparently, those who recover from polio do so by "swapping in" spare neurological paths -- the same ones that keep the rest of us functional as time takes its toll. Well, his "spares" are already used, so any additional losses as he ages are coming straight from function.

    Measles? Look up the numbers. Case mortality for measles in the USA has been steady for over thirty years at 2/1000. In 1964, there were about 400,000 cases reported. Back when it was nearly universal, every state had well-filled schools for the deaf and blind -- most of them there thanks to neurological sequelae to measles, and which are still just as common as ever on a per-case basis. Those schools are empty now.

    I have a smallpox vaccination scar on my arm, and wear it proudly. Most of you don't. You're welcome.

    If you listen to the anti-vaccinationists, the vaccines are immeasurably worse than polio, measles, and smallpox. The best answer to that was stated by George Santayana. The rest is commentary; go and learn it.

    --
    Lacking <sarcasm> tags, /. substitutes moderation as "Troll."
  10. Misinformation is not the problem. by CaptainPatent · · Score: 5, Insightful

    There are a lot of people (see above) that are just saying "Whoda thunk there's misinformation on the internet," but this is not the point of the article. The point is that misinformation is being ranked higher than videos showing the scientific truth. Now for entertainment sake, that's fine. In this case however, many of the videos were meant to be informative or persuasive instead of strictly entertainment.

    We'll take a parallel into Hollywood. The fact that there's entertainment based off of lies or misinformation is no big deal. I don't know of too many people who think their car will randomly transform into a robot or their body is being used as a battery to power a giant ai network. The problem the article is hinting at is many of these videos are supposed to be informative and we break into the realm of documentaries or informational movies (i.e. Fahrenheit 9/11, An Inconvenient Truth, etc.) Now I don't want this debate to get political (although I think it may) but we'll further examine Fahrenheit 9/11. I personally am a democrat and when I saw this movie, I believed much more than I should of to be the absolute truth. Later on a fair portion of the movie was debunked, but because it was a compelling story in line with my own viewpoint, it was easy to believe.

    To add to this, I have heard many people tell urban legends to me (which I knew to be untrue) as the absolute truth. The point is that humans tend to believe what makes a good story and not necessarily the truth, which in many cases is too bad.

    I don't think it's unlikely or unheard of that there's misinformation on the net and I really don't feel that's what this article is getting at. Instead the article is pointing a blame-ful finger at the gullibility of human kind.

    Sometimes lies may be fun, but take them only at face value.

    --
    Well, back to rejecting software patent applications.
  11. YouTube is irrelevant by pudge · · Score: 5, Interesting

    When Jenny McCarthy goes on to Oprah, to the delight of millions of viewers, to say that "science" is wrong because "my son is the science" that proves vaccines cause autism ... I don't think YouTube is really a significant factor in this discussion.

  12. Wow. by mcmonkey · · Score: 5, Insightful

    If everyone around you is immunized, but you are not, there is ZERO BENEFIT to you getting immunized.
    Let me guess, you learned this from a video on You Tube? Immunization is like bricks in a dam. Strong bricks give you a strong dam. But one weak brick can spring a leak which can erode the dam until even the strong bricks fail.

    The only cases of polio were the ones caused by the immunization.
    Right. And so to prevent any more cases of polio, we just stop the immunization? It's the vaccine that's spreading the disease? Oh, I see, at the end. So I guess we just go to YouTube and a video there will tell us when we're at the end and can stop immunization for a particular disease.

    Going back to the first quote, let's just say for sake of argument you're right, about being a single person in the population who does not get immunized. Let's just say at that point you run a higher risk of getting the disease from the vaccine than from another source.

    How do you know when you're in that situation? How do you know, you're the ONE person, of all the people you may come in contact with, the one lone person who has system beat? (And of course that the only vector by which the disease will spread to you is through another unimmunized person.)

    Oh, that's right, you don't. So you've set up some fantastical situation that will never occur, even if your conclusion is correct.

  13. "Affect the entire society" by DesScorp · · Score: 4, Insightful

    Most things humans do effect the entire society. By that rationalization, you could justify pretty much any government control over our lives.

    People getting fat? Health care costs go up. Ban pizza. Mandate vegetable consumption.

    Auto accidents? Ban private cars. Mandate public transportation use.

    I've got two children, and I've had them both vaccinated. But lets not pretend that there are no dangers with vaccines. Our doctors were, to their credit, very upfront with us about that. You're essentially taking a chance, playing the numbers when you take a vaccine, as a percentage of people will always have adverse reactions. Those numbers of adverse reactions are statistically low, and your chances are pretty good, but I do have a friend whose daughter lost the use of her legs from a vaccination. It does happen. And as for the HPV vaccine, you can't call all those parents nutjobs when Gardisil has had some unexpected side-effects. And should a vaccine for a sexually transmitted disease be mandatory anyway?

    Non-vaccinated people are a danger to no one but themselves. If everyone else is vaccinated, they're safe. And far from under-vaccinating, the New England Journal of Medicine suggests that we may be over-vaccinating . Increasing disease resistance to drugs and immunizations is a far greater threat to the populace than any parent withholding a vaccine.

    --
    Life is hard, and the world is cruel
  14. Meh. by SatanicPuppy · · Score: 4, Insightful

    I think a lot of it is the drug lobby. When I was a kid, you didn't get the hepatitis vaccine. I got mine on the way to college. Why? Because there was no need to get it. What are the odds of you getting hepatitis in this country? 1.5 per 100,000 and most of those are "high risk" people, because it's hard to catch without having sex with someone who has it, or using a dirty needle.

    But now I've got my doctor telling me I have to get my infant kid vaccinated quick quick right now! He could get hep at any second!!! What a crock of crap. It's even less likely now than it was when I was a kid, because the infection rates are still dropping.

    Likewise the chicken pox vaccine. The mortality from chicken pox is off the bottom of the chart, but none the less, unless I wanna home school my kid, I have to get them the shot.

    I'm sure by next year, they're going to be calling for all infant girls to go ahead and get the hpv shot, because you can never be too careful about protecting your infant from STDs.

    I think a lot of people are getting leery of having their kids turned into pincushions to meet an arbitrary timetable attached to low risk infections. I think it's 15 vaccinations before 1 year? Out of those, easily half could be pushed back a year or two or three (or 18 in the case or the 3 course goddamn hep vaccination), so why subject your kid to that kinda crap?

    --
    ad logicam Claiming a proposition is false because it was presented as the conclusion of a fallacious argument.
  15. Re:Cattle...? Thanks! by tungstencoil · · Score: 5, Informative

    I'm sorry for your family heartache.

    I recognize Wikipedia is not definitive, but everything linked below has references, so it allows these to be tied up with a bow quite nicely.

    However, correlation is not causation http://en.wikipedia.org/wiki/Correlation_causation. Assuming you're from the US or Europe, Thimerosal is not used in vaccines except for influenza (which isn't required) http://en.wikipedia.org/wiki/Thimerosal. In addition, the CDC, FDA, and WHO categorically reject any relationship between Thimerosal and autism http://en.wikipedia.org/wiki/Thiomersal_controversy. The CDC, Institute of Medicine, the National Academy of Sciences,and the UK National Health Service have determined no link between MMR and autism.

    The risks of not vaccinating children far outweigh even the real risks of the vaccine. Multiple-vaccine shots don't "overstimulate" the immune system. Not vaccinating your children can expose populations to previously squelched or heartier strains of disease. http://www.healthcentral.com/ency/408/002024.html
    http://www.boystownpediatrics.org/HealthTips/immunization.asp
    http://jama.ama-assn.org/cgi/content/full/285/12/1573 (warning, login needed)

    True, autism rates have been rising over the years. However, it's unclear how much of this is really "new" or incremental, and how much is due to attention paid to it and more advanced diagnosis mechanisms. http://en.wikipedia.org/wiki/Autism

    . There are many, less nefarious but more plausible explanations. The vaccine hysteria is simply not supported by any real evidence. To be honest, most mothers of autistic children also probably ate carrots during pregnancy or (more recently) used their wireless phones. That doesn't mean either caused the autism. I realize your family tragedies are tied closely with significant, stand-out events. Augment this with pseudo-scientific fear-mongering about vaccines, and I can see why you might feel this way. However, thoughts and beliefs simply don't equal fact - no matter what you (or anyone), well, believes.

    This doesn't mean you're an "indoctrinated idiot" - by your own admission, you're fairly biased based upon personal experience. I might be afraid to get back on a roller-coaster if I survived a horrible accident (or lost a close family member in one). However, I (would like to think that I) would not go so far as to suggest that my personal experience and bias ought to be construed as factual, even if it were in line with a bunch of people who were for the closing of amusement parks and dismantling of all roller-coasters.