Google Health Opens To the Public
Several readers noted that the limited pilot test of Google Health has ended, and Google is now offering the service to the public at large. Google Health allows patients to enter health information, such as conditions and prescriptions, find related medical information, and share information with their health care providers (at the patient's request). Information may be entered manually or imported from partnered health care providers. The service is offered free of charge, and Google won't be including advertising. The WSJ and the NYTimes provide details about Google's numerous health partners.
I for one won't be using it while their terms of service explicitly states that HIPAA doesn't apply to Google.
The real "Libtards" are the Libertarians!
I'm quite torn here. On the one hand, having so much information readily available in one spot is rather exciting. This is especially true if Google doesn't just cave in to "Big Pharma" and allows you to see "alternative" or "herbal" remedies for prescriptions or OTC drugs you have entered.
OTHO, Google having all that information about my medical condition in one place is somewhat disturbing... Aside from rational or irrational fears about Google having this information, aren't there HIPPA issues to be concerned about here, too?
Proudly supporting the Libertarian Party.
I can see "Need Liver or Kidneys?" coming about in the recommended searches.
Should I be afraid yet?
Sure put you confidential health data to a company that will give them away for on a simple whim of any goverment, probarly without you knowing about it. Great
Let's enter, Chest Pain, Left Arm Numb, Smells of Toast! Ohhh I can earn 950 a day working at home... Let's click that... hey I won a free Ipod... today is my luc. *beeeeeeeeeeeeep*
Still blindly trust Google?
Just wait till you hear about the plan they have to go after the Nigerian 409 scammers.
sed -e 's/Chuck Norris/Rajnikant/g' joke > fact
This reads like a joke.
I'm getting ready to start googling for an organ doner when my liver finally gives up on me.
Hopefully people will be smart enough to go visit a real doctor, rather than listen to the internet about all their life's little concerns. Sometimes symptoms may be generic to multiple conditions and self diagnosis can do more harm than help. Maybe this will set Darwinism to work at it's full potential.
so, google will have your surfing profile, your financial information, tons of images of you, your house, your friends, your networks, and how will add to it your health information. You know, Big Brother can be a government, but it can also be a corporation. Even one that claims not to do any evil.
-- All this knowledge is giving me a raging brainer.
Yes, Google Health supports advertising. Spamming, even. Read the developer guidelines. Google just doesn't run the ads themselves. That's outsourced to "affiliates".
There are some rules for affiliates, like "one spam per week per user" and "no popups or popunders". Other than that, consumers are fair game. In particular, affiliates are not prohibited from using Google health data to target ads, as long as they "disclose" that somewhere in their "privacy policy". The policy says "Only use Google Health user data for the purposes disclosed in your privacy policy, and obtain users' opt-in consent if personally identifiable health data will be used for ad targeting." So a bit of fine print, and the affiliate 0wns your health history.
It's a typical slimeball tactic - pretend to be the good guy, encourage "affiliates" to do the bad stuff.
I didn't realize it was mandatory for US citizens to use this service.
Good to know.
Also good to know that companies will be using our health history against us. Because they all care about us, individually.
I am dealing with a rare side effect from a fluoroquinolone, (think cipro, levaquin) called peripheral neuropathy. I plugged the antibiotic into google health and the side effect was not listed on the package insert. While its good to have drug interactions listed, lots of people have side effects from drugs and they need to be explicitly spelled out, not hiding in a sub menu.
I know for a fact that there is explicit warnings on the packages about this particular reaction and I'm livid it isn't warning about it on the package insert in google. Especially since it can be permanent.
I've racked up a couple thousand dollars in medical bills already from this side effect, and it was a pain to get doctors to admit it happened until I went to a major university hospital. At that hospital they diagnosed me right away and basically said I'd have to wait it out.
If you are curious, basically I couldn't walk for over a week, terrible joint pain for months along with numbness in my hands, face, and body. Its a known side effect with this class. Rare, but known.
You don't opt out. You have to sign up and opt in for them to get your records.
I agree 100% with GP. I even wrote Google to that effect. Not that I expect them to do anything with my feedback other than send it to the bitbucket.
This is a horrible, horrible precedent to set, allowing a 3rd party to have access to people's medical records without any protection under the law.
HIPPA *does* need to be updated, immediately, to cover online databases.
yet?
6. If it's free, how does Google make money off Google Health?
Much like other Google products we offer, Google Health is free to anyone who uses it. There are no ads in Google Health. Our primary focus is providing a good user experience and meeting our users' needs.
I've heard enough. I don't know what their long-term plan for monetizing Google Health is, and I don't really care now. I don't trust Google enough to consider even for a second entrusting my health care information to them (and I say this as someone who has thought very highly of the company since the beginning). And their weasly answer to the obvious question above, I think, justifies my mistrust.
Every for-profit company's primary focus is - making a profit. There's nothing whatsoever wrong with this, and the ideal situation arises when "providing a good user experience and meeting [...] users' needs" is aligned with the profit motive.
So why they can't be honest about their motivations in undertaking an expensive, large-scale project like this -- whatever those motivations are -- instead of trying to make us believe that they're doing it "out of the goodness of their hearts?" All their mealy-mouthedness accomplishes is to raise the suspicion that they've got something nasty up their sleeves. And that ensures that many users, including me, will never entrust their most private of private data to Google.
Thats the service I want to see offered. With the posting of photos and movie clips allowed. They can build a virtual community of porno providers and consumers. Wait- thats YouTube.
After the way Google ratted out that guy who drew an unflattering picture of some Hindu saint and he got beaten and forced to eat out of the same bowl he'd used as a toilet, I think I'll pass on Google Health.
Having them turn any information I was stupid enough to give them over to an insurance company, cop, nosy government official or random thug on the street wouldn't be all that good for my health.
Let's see an iron-clad, carved-in-stone, sue-for-millions commitment from them and maybe we can talk. Otherwise, I'd just be begging to get myself hurt when they rolled over on me because some slimy insurance company whined that they didn't have enough access to my personal life.
I've calculated my velocity with such exquisite precision that I have no idea where I am.
so the first paragraph of the EULA:
I hereby authorize Google to share the health information contained in my Google Health profile(s) in its entirety, to only those entities and individuals I designate, for the purpose of providing me with medical care and for the purpose of sharing my information with others that I choose.
Your medical provider is covered by HIPPA and CANNOT release your records to a third party without your consent. When you go to a new doctor they generally make you sign something saying they can share it with your insurance company, who also cannot share it with Google without your consent.
The way Google Health works is you give them your data and they store it.
I'm waiting for someone to start defending with these gems:
"Your confidential information is and always will be secure and treated with respect."
"The benefits of big databases are worth the risks."
"Trust us."
These documents and subdocuments are so full of weasel words, Google could practically do anything they want. Example:
However, Google may only use health information you provide as permitted by the Google Health Privacy Policy, your Sharing Authorization, and applicable law.
"YOU did not provide this information. Your doctor's office provided the information, so it is exempt from these policies."
See? It took me just a quick glance to find a huge conditional that is subject to interpretation. Don't think that companies wouldn't make that argument. And Google does not have an "evil policy", so we don't have a "promise" that they'll not interpret things in a manner we didn't expect.
And that was just one example.
Hey,
Why don't we all just give them blood samples and fingerprints too? It will make it easier for all us sheep follow the herd!
Look, i use Google and i like a lot of their stuff but enough is enough.
I'm here for the experience, not the Hyperbole.
Having your records online and available anywhere is great, but also requires that you trust the third party hosting them. This is one of the hurdles that hosted software companies have to overcome to get companies to sign up. In the case of something like Salesforce.com, you give up control of your CRM data, pay them a fee and hope that they don't get hacked or decide to start selling your data under the table.
This issue gets thorny when you deal with personal data like medical records. Insurance companies would love to get their hands on something like this, even on an unoffical basis. For most people covered by group health plans at work, insurers have to take the risk and insure everybody who applies from that group. Individual life and health insurance is a whole different matter. In many states, your insurer is allowed to charge more to insure sicker people. In the case of life insurance, certain conditions make it nearly impossible to buy insurance.
On the flip side, having a comprehensive electronic medical record would lower the cost of care significantly by eliminating all the paper shuffling and processing needed to check someone's history.
Think about what might happen if Google decides to sell Google Health to Aetna or United Healthcare someday in the future. They couldn't deny you officially, but could have a look at what you're posted in the past and find some other reason to deny you coverage.
That's not to say the idea of an electronic medical record is bad. It's just more comparible with a non-free-market health care system. If there was no incentive for someone to use the records to determine cost of care, then it would work. Public services are for the most part run with no expectation that you get back anything except social benefits -- look at public transport. For an example from the health community, look at the VA's EMR system. That agency's primary focus is providing the lowest cost care possible, and it's a publically funded plan. So an EMR makes sense because it saves the plan time and money.
Remember that social site that fooled you to get your gmail account and password so you can "invite" all your friends? Remember that someone told you not to do so because is wasn't safe to make your password public but you didn't listen?
Well, now you just got a shinny new Penile Prosthesis Insertion - Non-inflatable AND a Penile Prosthesis Insertion- Inflatable.
Have a nice day.
really, others -will-, for whatever reason. Perhaps it's a $100 discount given on their treatment if they allow their info to be shared with google - perhaps it's free medication for a month... who knows, who cares, others -will- participate.
And then what happens?
Say your dad participates. Google now has info on your dad. They find that he has a heart condition, and that this is hereditary.
Google also knows about you. It knows through social networking that your dad is, well, your dad.
Now insurance companies *may* (just because Google is not governed by HIPAA, doesn't mean they'll hand it out - nor does HIPAA prevent medical records from being 'oops' stolen).. know that...
1. Your dad has a hereditary heart condition
2. You're his son.
Ergo...
3. You may have this condition as well.
You think the insurance agency would do nothing with this? Hum.
---
Or, more broadly (and this can be a very interesting aspect of google health in general)...
Say that in your area, there's a 25% higher chance to develop lung cancer; as visualized on Google Health/Maps.
It doesn't matter, then, that you never participated - you live in that area, ergo.
This is already done with, say, crime statistics - charging you more for car insurance if cars tend to get stolen with some frequency in your area - it would be very naive to think that health statistics would not do the same.
And so forth. And so on.
Though most of the above the insurance agencies can already do anyway - google's just making it a heck of a lot easier for them.
So, has there ever been a centralized database where people enter their health problems and can be observed an analyzed for patterns?
I signed in, entered some health information (asthma!) and some prescriptions I take (albuterol, advair!), some basic info (white male), but did not enter my age, nor any doctors I use or places I've visited.
A lot of prior posters appear to be "ooogidy boogidy" over nothing.
Maybe patients can bolster privacy by inserting legal terms of access (like an end-user license agreement) into the content of their electronic medical records. The idea is not legal advice, just something to think about. --Ben -- Sample terms for public discussion: http://hack-igations.blogspot.com/2008/02/some-fear-law-will-not-accord-adequate.html
Benjamin Wright, Dallas, Texas, benjaminwright.us
I'd be ten times as sick if I started to write it down!
(And I'm not really sure G$$gle is my friend any longer, more like an acquaintance of some value)
If Google really cared they would fix Android Chrome to reflow text, instead of discriminating
:wq
Enough with the HIPAA scare. Most of these PHR vendors privacy policies are STRONGER than HIPAA and are governed by the FTC which is (IMHO) MUCH stronger than HIPAA.
...digital leakage...
It would be nice if they provided a way to export my health information to their CCR/G format so I could save it locally.
I also find it interesting that they are ready, willing and able to share my information with anyone THEY chose.
From the Agreement:
'11.2 You agree that this licence includes a right for Google to make such Content available to other companies, organizations or individuals with whom Google has relationships for the provision of syndicated services, and to use such Content in connection with the provision of those services.
11.3 You understand that Google, in performing the required technical steps to provide the Services to our users, may (a) transmit or distribute your Content over various public networks and in various media; and (b) make such changes to your Content as are necessary to conform and adapt that Content to the technical requirements of connecting networks, devices, services or media. You agree that this licence shall permit Google to take these actions.
11.4 You confirm and warrant to Google that you have all the rights, power and authority necessary to grant the above licence.'
This along with the obvious lack of standardized vocabulary use in their user input choices; i.e. two separate yellow fever vaccines just because of a misspelling, doesn't give me a "warm fuzzy" feeling about putting any REAL Personal Health Information (PHI) on their site.
I get the impression that they have decided that they know all about IT design and failed to learn from the many years of research that has gone into the complexities of healthcare information systems.
After [Queensland] Australia's & other "Doctor Death" tragedies (in which doctors' many errors have left patients much worse off, or dead...) and other situations, in which doctors sexually abuse or just undulu fondle patients, as part of their "treatment" - a partly public online data base might be just what we need to help find & eradicate "bad" medical professionals.
...ie, to see if practitioners and/or hospitals need retraining or further investigation.
;-)
Let Google Health be modified to compile results of medical procedures - by the practitioner(s), who perform them - and compare longer-term performance with expected failure & complication rates across the hospital...
and then compare each hospital's rates to "best practice" -
We could also get very useful (even valuable) data on risks of working / living in certain areas, eg, by post code... if correlations between location and diseases are available to all via Google Health.
Mapping sources of pollutions & overlaying incidence rate contour lines onto the same maps, might affect property prices... giving folks another [if economic] reason to cleanup the mess before people would move to a new development/location.
Gov't-held data is already held & analyzed, around the world, to support such analyses; eg:
While in South Australia, attending a Data Mining seminar (atop the EDS building in Adelaide), I heard some public sector IT managers report how Data Mining - even in -existing- Public Health Service databases - showed useful patterns of disease occuramces vs postcode...
but another public sector IT manager was quick to poit out that such results would not be made known to members of the public.
(Tell me: Does this kind of data hiding happen in such places as Sweden? I hope not... but give me the facts & some URLs where they are available; yes, some of us read Swedish here...
The fine print of Google Health mentions your privacy is protect according to the Google's Privacy Policy. If you read Google's Privacy Policy, about halfway through Google makes clear if the government asks for your records they will be turned over with or without your knowledge.
Remember when AltaVista was the top search engine. Seeing Google trying extend their reach into this part of someone's life makes me wish the worst for Google. Maybe it is time for everyone to start using a new search engine.
Bah. For anything drug-related, you'll find hundreds of big-pharma studies saying their pills are the only thing that'll cure you, and hundreds of other studies saying their pills will do nothing but kill ya. Personally, I love big pharma...but only for recreational purposes.
I've read this argument plenty of times, and I used to think this way myself, so I want to explain once why it misses the point. You're equivocating "big pharma" palliative and analgesic products, with "big pharma" pharmacological research, development, and production for severe, debilitating, or life-threatening medical conditions.
If you've never been sick, it's an easy mistake to make. I was completely healthy for my whole life, and used to think drug companies were nothing more than pill pushers. Then I got sick -- very, very sick. As in, nearly-died sick. The only thing that spared my life, aside from expert care from my physicians, were the drugs that I was prescribed. Without the medications that I was given, I would likely be dead. I'm not talking about aspirin or amoxicillin, I'm talking about finely-tuned steroids, anti-inflammatory drugs, and last-line-of-defense antibiotics. When you're wheeled into the emergency room with pain so severe that you literally can't breathe, "rest, tea, and herbs" don't even begin to cut it.
I'm not giving all pharmaceutical companies carte blanche. There have been, and continue to be, serious ethical problems with regard to how drugs are marketed to consumers and physicians, or how some drugs are rushed through clinical trials without the necessary levels of scrutiny. If you've never needed the big iron that pharmaceutical companies and the researchers that work for them develop, count yourself blessed. Having been in a position where I did need them and my life depended on them, I have a much greater appreciation for "big pharma," on a whole.
(On a side note, I'd like to add that my medical care would have been unaffordable if not for my being privileged with good health insurance. We need universal health care coverage so that expert medical attention isn't just a matter of privilege.)
Google health explained by Eric Schmidt at the HIMSS conference. See for yourself.
and won't be putting my information online. However the possible benefits of this are.. 1. I can go travel anywhere in the world that has net access and be comfortable that if I have an unexpected illness/injury (makeing me unconscious) that the local doctor and my wife can pull up what medications I have severe allergic reactions to and not kill me accidently. 2. Verification of data. Let's say the next evolution of this google health is that I can request 'electronic data capture' of my medical records/history uploaded to my google profile to an inbox. I have the option of reviewing this information and if it is correct then including it to my complete profile. How many people know what was written in that folder the doctor and nurses write in gives to his staff to file away. This gives you an opportunity what kind of probe they stuck in you and how far up or in. This is also a check on the doctor's and staff.. they better record the right dosage, which in some hospitals is barcoded and can be scanned to a recording device before applying the medication. The scanning of medication also leads to being able to track what batch certain immunizations came out of. Tracking the batch number can verify if someone had a bad reaction to an immunization whethere that batch had a contaminate in it. 3. Pooling of data. We can see what percentage of google health users have X disease and see trends.... ie one zipcode starts getting a flare up and an investigation can be done to see what the causation of said disease is in that area is. As I said before though.. some serious protections will have to be in place before I ever use this service or I get really old and don't care about my privacy anymore and more worried about my health.
Beware of those who profit off the docile and persecute the unbelievers.
If Google wants to be in the business of making it easier to deny people health care based on pre-existing conditions, why doesn't it just buy the Medical Information Bureau?
Google give you a place to enter literally all of your private medical information. maybe this isn't such a good idea.
since the information should be private, why would you voluntarily give that information out?
There doesn't seem to be any purpose to the site other than collecting your personal information.
They're using their grammar skills there.
Every hypochondriac's wet dream come true.
Knowing Google's lust for data collection, the Soviet Union is still alive and well inside the psyche of Sergey Brin....
Comment removed based on user account deletion
Largest userbase for Google Health would be Microsoft employees..
If you include the legislative branch, the government can get any information they want from Google or any other private corporation.
So if you trust Google or any other corporation with your data, you implicitly trust the government
Osteopathic doctors are fully licensed to practice traditional western medicine and they for all practical purposes are indistinguishable from mds. Its a very strange history of how it transformed itself from quackary to second tier doctors (basically those who can't get into a md school end up in osteopathic schools).I went to school at the birthplace of osteopathy : kirksville, Missouri. There isn't a single md in the entire county. I injured my neck while I was at school. I was pretty nervous that the hospital would just make an adjustment, give me acupuncture, or magnets to heal it, but they just took a brief look and gave me a neck brace, muscle relaxers, and pain killers.
Well.. maybe. Or Maybe not. But Definitely not sort of.
It's HIPAA, not HIPPA
THE MAGIC WORDS ARE SQUEAMISH OSSIFRAGE