Slashdot Mirror
Preserving Memories of a Loved One?
An anonymous reader writes "My wife is dying of metastatic (stage 4) cancer. Statistically she has between one and two years left. I have pre-teen daughters. I'm looking for innovative ideas on how to preserve memories of their mother and my wife so that years down the road we don't forget the things we all tend to forget about a person as time passes. I have copious photos and am taking as much HD video as I can without being a jerk, so images and sounds are taken care of (and backed up securely). I'm keeping a private blog of simple daily events that help me remember the things in between the hospitalizations and treatments. In this digital age what other avenues are there for preserving memories? Non-digital suggestions would be welcome, too."
I'm sorry to hear about your wife's condition. Truly.
For your daughters, I would recommend that your wife starts a diary, recording her thoughts. The little things, the big things. Looking at video and pictures is one thing, experiencing the feelings of a loved one as they wrote it is another. Together they may give your children something to look back upon for the rest of their lives.
I'd go with a formal interview to complement the daily life recording, to preserve for the kids a sense of how she felt on major issues, philosophy, personal achievements, things that might not come up when recording a daily routine.
Non Digital: Handprints in clay...
a simple 35mm film camera (one time use if you have to) developed into prints.
This is a retarded question for slashdot.
You might as well have asked it on 4chan FFS
I know you want to preserve her memory for your kids... but there's only so much you can do, and apparently only a limited amount of time left. If you spend too much of your time simply documenting her life, you may one day regret not spending more one-on-one time with her, unencumbered by things like worrying about videotaping and documenting every last second. No matter what, you will have regrets, but you should spend quality time with her while she is here, and not worry so much about documentation. This is all part of life - it sounds like you may have already done enough documentation for the time being, and perhaps now you should allow yourself and your kids to actually experience her as she is. Memories become distorted but still there is no substitute for real experience.
- elgo
Do an old fashioned album of the places you've been the things you've seen, then sit with your daughters on your wedding anniversary and tell them stories. Your story telling will make those memories come alive. Relive the joy of her being alive, not the pain of her death.
Put photographs, little bits of whatever, theater tickets, and so on. My father in law did this for my kids as he was dying while they were being born.
Great family history and lots of memories in those albums.
The best thing I had from some older relatives (now gone) were CDs of them telling stories. One of my cousins took the time to get a few of the aunts and uncles together on the phone and asked a few questions to get them to reminisce. After a few minutes they forgot about the tape recorder and began really talking to each other. That set of CDs one of the nicest remembrances I have of them. My wife wishes she had done this with her parents. They grew up during the great depression and had a lot of interesting stories on the way things were and tales of every day living. Unfortunately her mom developed Parkinson's and lost the ability to speak clearly, and her dad died of a sudden heart attack, so we lost all this oral history, as well as the sound of their voice.
On a back porch or whatever. Then the kids can stand in their mom's shoes and compare their feet.
It does help make a connection.
Handprints are more convenient and can hung on a wall if you do them with plaster in pie tins. This also makes them portable in case you move to a new house.
In theory you could make molds of hands, feet, whatever. But people seem to see more realistic depictions such as this or lifesize cutout standees as being creepy. Not so with hand/footprints.
http://lkml.org/lkml/2005/8/20/95
Perhaps she may want to leave something written, her memories. I have been talking to my dad about doing precisely that for years, not pressing but not stopping mentioning it from time to time. I don't want his life and that of his ancestors to vanish in background noise. I think it's fair to want a record of what the passage of those people through life was like, even if neither of them won a Nobel prize or became president of the country.
On the other hand, perhaps what remains for you to do is to live the time she has with her and your children. In other words, it's good to preserve things as you are already doing, but don't let that take away time or attention from the life that still has to be lived. Find an equilibrium.
Finally, I salute your courage and attitude.
You might forget to actually live with her while that's still possible. To make memories instead of trying to preserve...the preservation efforts.
Which is impossible to be anywhere "complete" anyway, so just take what's good, what you see is happening; let her guide it (in a preferred form). And the rest involved will specifically remember what's worthwile to them anyway - not everything there is to remember. What does it matter if you couldn't really remember it at will?
(or even "what does it matter" in grander sense - for example, what can we tell about our great-great-great-great-great-great-great-grandmother? You know, the one from the side of you father, then grandfather, then great-grandmother, great-great-grandmother, great-great-great-grandfather, great-great-great-great-grandfather, great-great-great-great-great-grandmother, great-great-great-great-great-great-grandfather. The basics would do - century, continent, language...
That won't change thanks to "digital age" in the way people imagine, IMHO; at most roughly as an input to statistical approaches / etc.)
Well, if somebody is really determined, cryonics might work...eventually.
One that hath name thou can not otter
People die, life moves on. Detailing her daily life so that you can remember everything will keep you from doing that. Instead, make a log of your important memories with her, and work on making new ones that you and her can cherish for the rest of her life.
Being Italian we tend to associate with Food. When my wife lost her mother we've spent the past few months finding recipes from my mother-in-law and building a family cookbook. Now when we make those dishes those memories return.
Honestly, you are wasting your time behind a camera. There is no innovative technological solution to immortalizing the dead. Everyone who suffers that kind of loss winds up forgetting, and later recalling little moments.
Take a cue from the movie 'Up'. Keep photos and cherished items. Use the tokens you preserve to jog your memory once in a while. But spend the time you have left with your wife fully engaged and enjoying every tiny slice of life as much as you can.
Did you watch Randy Pausch's Last Lecture? http://www.cmu.edu/randyslecture/
Would your wife be interested in doing something like this? I assume privately, but maybe she'd want to make it public.
Make her smile as much as you can and get as many moments all together as can, this will last your daughters and you a lifetime.
Have your wife write her thoughts to your daughters, and you, and help her write them if you have to. Keep journals around, but don't be too pushy. It's the rest of her life, so let her choose. Letters for important future events for your daughters could be really nice.
More importantly, put the camera down, stop worrying so much about the distant future, and worry about the time you have now. Don't use it too much to plan to remember. Use it to live.
The most fun, absolutely wonderful things. You, the girls, and your wife. While her health will allow it. Take a trip, for instance. And don't make it all stressfull, and don't invest it with too much meaning. It's a fun jaunt, the whole family
Those memories will last.
Tenemus pyrobolos atqui jacimus cognitiones.
For important birthdays, proms, graduations, weddings, birth of your daughter's children, have your wife record or write messages for your daughters.
A message saying she is proud, that she remembers when she did those things, a bit of motherly advise, a lot of love.
(I'd say I'm sorry, but I don't know you, her, anyone around you and I although it's bad, I can't really make myself feel anything).
In short. You're not the one that's dying, it's just not up to you. Let her do whatever think it's appropriate (telling her anything about it would be just imposing), and keep your own memories, however you want them (blog probably, although your head would suffice). Don't overdo it - otherwise your risk killing parts of you and your daughters in the process.
And, you seem too depressed to ask on Slashdot. Please, please, please, talk to someone, even a professional (even with the related social stigmata related to that). Don't try to offload this on a bunch of strangers, that's not going to work well anyway. We suck. Even though a lot of us lost someone dear sometime ago (me - about a week ago), it still doesn't make us any good in offering good advice on anything like this.
Seriously. Please 1) don't be an idiot 2) do what's right instead of using strangers to thing for you. Yes, you might fuck up, so what? You'll still remember her for what she was.
Really? Let's get sentimental: As somebody who lost my mother* as a pre-teen, I will defend my position by saying that different people cope with bereavement in different ways, one of which is humor which may seem inappropriate at the time. Even now, I insist that my friends treat me the same as everybody else as far as "I fucked your mom**" jokes go. My humorous yet realistic response to those jokes shows my strength and my ability to cope with trauma in a healthy manner.
As a supplement to the above, I advise submitter - I've been there as a kid, as a pre-teen. Whatever you do, do not force the issue with your children. When your wife passes, do not force your wife's memory upon them and insist that everybody constantly juggle her memories in each others' faces. Let them be sullen and withdrawn if they want to. They will recontextualize at their own pace, in their own ways. Attempting to shove their dead mother in their faces may be misguided and akin to pouring lemon juice on a wound. Just be supportive of each other and don't force anything.
And later, when you begin to find romance again, do not force your kids to call her "mom." Nobody will ever replace mom.
* It would be easier if I knew that she died. But, in the throes of schizoprhrenic psychosis, a product of an old-skool "tough-love" family who kicked their children when they were already down, she was last seen attempting to kill herself. She was erroneously released from the nuthouse on her own recognizance, never to be seen again.
** My friends sometimes tell me that they fucked my mom. I tell 'em that it must be the reason that they smell like malt liquor and piss, etc.
Nah. You want the takes with the tears.
If you mod me down, I shall become more powerful than you could possibly imagine.
No mod points, but this ^^^^^.
I lost my wife when we were 37. She went out visiting one night, and never came home.
Spend the time you have left with your wife, and the children with their mother *creating memories*, and not memorabilia.
I'm sorry for your family, that you have to go through this when the kids are so young. Be strong, man.
"Never attribute to malice that which is adequately explained by stupidity." - Hanlon's Razor
A digital memory is unforgiving; the video of a laugh you remember as a shining moment won't blur the ever-present fatigue. Where you remember a beautiful smile the camera will remind you of the pain she suppressed for that moment, the blackness under her eyes.
I would suggest not video taping anything other than the occasional interview; perhaps discretely video record your wife reminiscing with your daughters about their early childhood, and hers.
Instead of focusing on digital memories, spend that time with your wife and daughters forming memories of real events. Frisbee in the yard, swings, running through sprinklers, hiking in the forest. Learning to cook new things together, card games, board games, sewing.
We remember 'firsts' the best, usually. Do new things. Let your memories blur the edges of your wife's condition; your daughters lives will turn out the better for it, their memories of Mom that much fonder.
The last thing I wanted to remember about my mum when she fought a long battle with cancer was her final days. She finally died when I was 18.
Things are not pretty in those final years. Pale, tired, sick, moody but mostly high on drugs. And that is what you are leaving as a final memory to your kids. She was not that woman.
Go through existing photos of when she was a kid and make sure the photo albums (physical or not) are well documented and chronologically ordered. What was happening at the time, who was she with, how good of time was she having and how happy was she.
Go through photos of when the two of you met and dated. Document that. The happy times and the not so happy times. The two of you should go through each photo and describe the event.
I, for some reason, have only three photos of my mum. Two when she was sick (not so fun to look at) and one just before she met my dad. I would love to know where she was, what she was doing (was it during uni on break?), etc.
.
I know it might sound silly, but I would try to keep some good samples of her DNA.
Your wife's DNA may contain some beneficial medical information for your daughters, and it may help them to have access to it later on. Further out there, you never know what we may be able to do with DNA in 20 years. It doesn't seem impossible that DNA could be used to generate 3D portraits of deceased people. Imagine if your grand daughters could someday move a slider around on a computer, and see grandma as a child, then move it again, and see how grandma might have looked had she lived to be 80 years old.
Sorry to hear about your situation, but you must be certain that death is an inevitable part of life. It is certainly sad that some people may go away earlier than expected, and we have this notion that a person may somewhat "live a while longer" as we keep their memories alive with us. After a loved one dies, mourning certainly is an important period to help us get over this fact. No matter how many pictures, videos or journals you make of a person while he/she is alive, nothing will replace the fact that this person is really gone. Fading memories are part of an essential process where we leave them behind and move on with our lives. We will certainly remember and honor our loved ones at their best and most marking moments. But holding on to so many specific details about their lives takes an incredible unnatural effort. The longer we try, the more difficult it becomes to remember specific details. And this is natural! The more we strongly hold on to a person after he/she is gone, the more difficult it will become to keep living. Please, don't understand me wrong. Unfortunately, that's how life goes on. It's hard, but inevitable. I hope you make the best or your time together. And my suggestion is "stop trying to record every detail of her life and spent more time with her as a family". Your own memories of this time together should be well enough to help you get over the hard period when she's gone. In the future, when you look back, anything else will just make you seem like "the guy behind the camera".
Julio Henrique Morimoto juliohm@gmail.com
Regrettably I must agree with my anonymous colleague. Looking for compassionate, helpful posts for a topic like this on ./ is like seeking legal advice on the WoW boards.
"As the intrepid kobold companion continues his journey, he begins to wonder... if priests raises dead, why anybody die?
If you can, ask a friend to capture videos and photos some of the time so that you can spend the time you have left without being too busy documenting things.
Also, if you have the opportunity, you should consider clinical trials of experimental treatments. Even if they don't help, she'll be providing a lasting legacy by helping improve medicine so that others---maybe even your daughters---won't have to suffer the same fate someday. And if you can, consider a complete gene sequencing. It could provide useful information in the future for genomics studies related to certain types of cancers, again, potentially helping save your daughters from going through what your wife is going through. It's not much, but it's a legacy that might just have a huge impact on your kids someday.
And consider having her record some personal messages for each of the kids at various stages of their lives. Maybe a message for when they have their first dates, for when they lose their first boyfriends, for when they get married, for when they get divorced and remarried (okay, maybe not that last one)... you get the idea. And, of course, one message telling them goodbye. That's the hardest one of all, but it's also the most important.
One final piece of advice: leave nothing unsaid. Live life with no regrets.
Check out my sci-fi/humor trilogy at PatriotsBooks.
Your wife should make sure to wear her favourite perfume regularly and buy some bottles for the girls -- put the bottles away until they get a little older. You could also take her pillow and blankets and put them in one of those plastic things that you vaccuum the air out of. Take the blankets and pillow out when one of the girls is feeling badly (after a bad breakup with a boyfriend, say) and let her curl up on the couch with them. If you reseal them in the bag every time, the smell should last quite a while...
Just some off the wall ideas but I can tell you that the thing I miss most about my wife is her smell...
Give a man a match: warm him for an instant. Douse him in petrol and set him aflame: warm him for the rest of his life.
Make sure you have an remote backup of everything digital and a safe local copy ie. not on windows machine that accesses the internet a lot. I recently had to help out a family who'd lost pretty much all of their family photos when once computer lost data. Also at the moment I'm setting up a linux machine for a lawyers office after they had a trojan go through and make a mess of their windows machines. Almost lost 12 years of documents. Either an online secure storage site or dvd's at a relatives house could save your data.If you go the dvd method, buy high quality discs.
When your wife does pass away, allow your girls to choose a couple of personal items of their mothers for themselves to remember her by. Things like hairbrushes or even a favourite jacket or jumper might help them through the grieving process and also help them to remember the personal everyday moments they had with their mother as they grow older.
sudo mount --milk --sugar
When my dad past away from a stroke 4 years ago, we barely even wanted to look at a picture of him just because of the sorrow that comes with him. Recording memories is is nice but when the grim reaper finally has his way, it just doesn't get any happier. Even today the thought of my dad coming up in a conversation strikes everyone to be quiet. He was a good man and all but just the consideration of death is something that should be avoided. In my opinion, the only thing you should keep around is something like a family photo in the living room or something. Overwhelming your kids with a lot of information about their deceased mother when they ask about her will make them wonder (for a very long time) how she was and that will always leave a blank spot of continuous doubt if she was exactly like that. Even a video can be deceiving of ones emotions to how someone really acts in reality.
Check out Act One of this episode of This American Life.
Act One. Letter Day Saint.
Rebecca was 16 years old when her mother Elizabeth died of cancer. But before she died, she wrote letters to Rebecca, to be given to her on her birthday each year for thirteen years. At first the letters were comforting, but as time went on, they had much more complicated effects. David Segal tells the story. David is a reporter for The New York Times. (14 minutes.)
I only post comments when someone on the internet is wrong.
Professor Randy Pausch's last lecture.
This is a very interesting and moving lecture that he essentially put together for his children when he was dying of cancer.
Never ascribe to malice that which is adequately explained by incompetence.
I have copious photos and am taking as much HD video as I can without being a jerk, so images and sounds are taken care of (and backed up securely).
I'm not going to go to the extreme of the parent, but it sounds like you are spending a lot of time trying frantically to freeze your wife forever. I'v never been through something like this, but maybe everyone would get more out of it if you just--i don't know--forget that she is dying and spend as much natural time with her as you can. Then you (and your kids) will have memories of Mom as she was when she was happy with her family, rather than hours of video with an elephant in the room.
Mod points: Guaranteed to remove your sense of humor.
Side effects may include gullibility and temporary retardation
People like you disgust me. It's bad enough that the OP is losing his wife without scumbags like you trying to bilk him out of money.
An SQL query goes to a bar, walks up to a table and asks, "Mind if I join you?"
The best thing I can think of is the "Last Lecture" of Randy Pausch: http://www.youtube.com/watch?v=ji5_MqicxSo
Without being overbearing, now is the time to ask questions and make a permanent record of memories she has of her childhood; her experiences are what made her the person she is today, and this type of thing will really help other family members understand her a bit better. And once the person has passed away, this is otherwise almost completely lost unless an old acquaintance takes pity on you (and that's really not something to count on.)
I put together one of the deepest family genealogy sites on the net for my family - many thousands of well researched individuals going back to the early 1500's - and if there's one thing I've learned, it's ask [whatever] before someone passes on, or you'll probably never know.
And you know what? People are usually pretty happy to tell you the story of their life; all you have to do is ask questions and be a good listener. From the standpoint of your kids and later descendants, just add making a record. If photos are involved, make sure you carefully associate the stories with the photos.
Also from a genealogical standpoint, make sure you know as much as she does about her family connections. This information is all too easily lost.
You say you're making HD video; I suggest you make some audio recordings too. We can't always be watching a display. You might have her read a favorite book or poetry, or something else that can be listened to long-term while you or whoever is doing something else. Also, people are often more comfortable off-camera, especially if they are debilitated.
I've fallen off your lawn, and I can't get up.
The last thing you want is your last memories of her always being from behind a lens. You will regret it. By all means, take photos and record things, but never at the expense of being there. Nothing can be as good as the memories - and she'll probably want to spend her remaining time with you - not being observed by you.
-- Lattyware (www.lattyware.co.uk)
My wife lost her grandmother a few years ago... here are the things she wishes she could have gotten from her before she passed:
The story of her life : her earliest memories, what she remembers of her parents and grandparents, her brothers and sisters. All this will be relevant to your daughters once they grow up a little more and have children of their own... they'll want to know more about their family background and characteristics... and a lot of that information on your wife's side of the family will be best delivered by her. If you do http://www.geni.com/ or any other genealogical mapping thing, that might be a good way to start filling in blanks.
It's a good opportunity to just set up the camera / recorder somewhere out of the way, and forget about it and have a pleasant discussion face to face. I'd even go so far as to recommend that you get a friend to conduct the autobiographical "interview", because people talk about different things to outsiders than to family... I've always found out more interesting things about my own family by listening to them talk about that kind of thing to strangers.
I've sure you can think of other interview questions, but here are a few to get started:
Have fun! Not everyone gets the opportunity to make peace and say goodbye...
Save some of her clothes, her favs, both dress-up and casual, including shoes. Put em away well. The little girls will grow up and get to see and maybe wear some of mom's clothes later on. And especially the wedding dress. Who knows, one of them or a grand daughter might want to wear it when they get married. Oh, and her jewelry, you'll need to divvy that up later on when they are near-adults as well. Next, some of her fav books, stuff like that. Any hobbies she had, the creative stuff, keep a representative sample.
But don't make a mausoleum inside the house, don't go that far, and don't keep everything, donate it away. Eventually you will meet a new person, they will be uncomfortable if the whole house is a mausoleum dedicated to the person they aren't and never can be, if you get my drift..
I recommend dipping them in bullet-proof lucite!
With all due respect, the correct answer is carbonite. Please surrender your troll and geek cards on the way out.
I still cannot find the droids I am looking for...
My mother died a little over a year ago. Photo's are great, but in my case the videos don't do a huge amount for me (although it is interesting to watch how she moved). My brother has her cell phone though, so when we call him we get her voice-mail message....I really miss that voice. Dad went through her travel diaries and typed them up so we all have a copy of those. That's nice because it records the way her mind worked in some of the happier times of her life. The smell of perfumes may also be important, coconut cream always reminds me of her and that phase happened when I was a very young child. Shopping lists, notes, and such are also important. Sometimes it is the way we do little things are say the most about how we were.
Beware of recording to much of her in her final stages. They need to remember her as she lived, not as she was dying. Good luck though. You are in for a rough ride and it will take a long time to regain some sense of balance.
I reserve the write to mangle english.
I lost my mother from a cancer about 9 years ago... And I still miss her and I'm still crying at some times... For example, when my son was born (she would have liked so much to know him).
But I would NOT recommend you to take any step to preserve her memories... Because all that you'll do will be artificial, it won't be her.
You'll have to move on, be ready to be grieving for about one year, the time needed to hit each anniversary and special dates... And it'll be the same for your daughters. And you'll have to help your daughter going through that, by having they think about something more happy (you may talk with them about the good times before the illness then go on to good times they can have with you (their dad) now).
Creating a "sanctuary" is probably the worse thing that you can do... My only advice would be to enjoy all the moments that you can still enjoy with her, try to have some good time during these grim moments...
Except for her last weeks, my mother was on chemiotherapy... We changed your life to adapt to her cycle... 1 week ill, 2 weeks tired and 1 week when she was feeling well. We didn't celebrate birthdays and other on the official date, we learned to celebrate them during that good week. And we had quality moments in family during these weeks.
Don't talk or think about her death, it won't bring anything good (well, to be a little cynic, you could get run over by a car tomorrow and die before her), try to enjoy all what you can.
Also, keep in mind that by taking photos and videos, you're making memories of her illness, not of the good time BEFORE her illness... And even if memories fade away, the most important won't disappear...
Find the nicest picture of her BEFORE things went bad, and put it NOW in a good place in your living room, if possible among other pictures of the family. Even better, find a picture where you're all together. By doing it now, while she is still there, you won't be making a "sanctuary" but displaying family pictures... It'll help to remember without linking it to the "souvenir" (sorry, I'm french-speaking) of when she died.
You may forget her voice, you won't forget her words. You may forget her face, you won't forget that you loved her smile/hair/... You may forget the last moments, you won't forget the happy one. No need for a time capsule for that...
Live the moment.
To document:
Relive the time you dated. How you got together. The decisions you made together. The first car, apartment, ...
For right now:
Ask your wife. She will know what is important.
Talk about what is going to happen. Kids and parents.
The NewYorker about terminal illness:
http://www.newyorker.com/reporting/2010/08/02/100802fa_fact_gawande?currentPage=all
I agree here. I lost my father when I was 21 in a car accident - my whole family (mother and 2 sisters) were in the car and he was the only one injured.
Spend time with your wife. Let your children experience her as the naturally do. Drop the camera and live the moment. Take pictures when you would if you didn't have the knowledge. The reality of the recording media can sometimes dilute the memory. I'm sure some of the memories of my father did not happen the way I remember - but they are my memories and I look back at them fondly when I think of my father. I'd rather remember the memories fondly rather than potentially have a "digital archive" show me that it really didn't happen the way my memories recorded them (or potentially having my current view of life polluting the memory.)
We as human beings have survived many many hundreds of years without digital archives. We remember or ancestors. You don't want to look back and think - "I should have been on the other side of that camera."
in the reverse situation where it was he who had metastatic cancer.
Sorry for you and your family, but if there are any insights to be learned from Alex's blog, I refer you to it here: http://akaran.wordpress.com/category/the-fight/
To-do List: Receive telemarketing call during a tornado warning. Check.
Not really. The whole idea sucks. Preserve your memories by spending time CREATING memories. This is about as useful as travel or wedding pics - nobody wants to see more than half a dozen at one sitting.
The asker mentions "backed up securely", but I have to wonder if that's onsite or off (I know from personal experience with a housefire). Your mention of Carbonite (even though it may not have been intentional) is a good one, though I tend to recommend CrashPlan by code42. I have used both, and personally feel much better about CrashPlan ( They've an added extra in that they support other backup destinations beyond the just their site). As always, do your research, and find one that suits you, but I find that I can't go wrong with the $100 a year CrashPlan family plan, unlimited backup of my households computers. Anyway, I'm sorry for your situation, and wish you the best of luck with what may come. Oh, and don't let a good offsite backup lull you into not keeping a decent onsite backup - redundancy is the name of the backup game. And forgive this post if you're already doing offsite backup.
"Gratuitous complexity is akin to chaos" - True Vox
If you spend all your time worrying about "preserving her memory" instead of enjoying and getting the most out of your time left with her, you will regret it for the rest of your life. I've had two friends lose their spouses to cancer and they both made the same mistake. They got so caught up in "I gotta record this!" and "oh wait I have to get the camera!" and all that, they ruined all of those special moments by reminding themselves of what was coming.
My advice: live the moments while you're in them. Don't ruin them by trying to save them for later.
You'll find the right balance. My dad died when I was young. Before grade one. Relatives tried to archive him with the tech of the day -- audio tapes, photos, etc. But I don't have anything but his watch.
I have many memories of doing yard work with him or sitting on the back steps going over the financial pages of the newspaper. Probably one of the few four year olds who knew what a P/E ratio was -- knowledge that served me well in the dot com bubble, I might add.
I may not have a photo of him, but feel connected to him following the markets, doing maths or working in the yard.
This is VERY insightful and I wish I had mod points today. All but only distant members of my family are gone. I have very little left to remember anyone by and it hurts a great deal. What I regret most is the loss of my grandparents and of not being smart enough or mature enough to have sat them down and had them tell me stories that I could record. One of my grandparents in particular had quite a few adventures and had told me about WWII and some of the engineering he did. I have these only in memory now and would so much rather have had them recorded and heard more of them. But I was a kid and later on he got Alzheimers which left him unable to even recognize me or his wife. By then it was too late! I do not recall ever having heard such interesting stories from my parents although I'm sure I did. My parents were all taken early from me and again I was too young and too immature to think this far ahead. I tell others not to make the same mistakes and not to procrastinate - you never know what tragedy may befall someone you care about when you least expect it. To be left with only fleeting memories and to know nothing of the childhood of your family is awful, memories need to be passed down. Stories of rides in biplanes, trips where tires were repaired over and over on rocky muddy roads, WWII stories that were never reported in the papers - all of this should be preserved and more if possible.
It twists my gut to hear what this person is going through, if there's one disease I'd like to see cured it's cancer followed closely by debilitating disease like Alzheimers that rob a person of their mind...
I fucking HATE people like this, trading on desperation. They remind me of the Laetrile wackos in the 70's and 80's. It's no more legitimate than the frantically dying who spend their last few pennies going to Lourdes, or giving money to "doctors of healing of the Lord." My wife's mother did this when my wife was 12 and her description of the outright robbery by the assholes who run the place and the surrounding "guesthouses" made me nauseous.
He claims "in vivo" success, then spouts some BS anecdotal "I've seen miraculous Stage 4 cures" rubbish. You have proof of in vivo success in properly executed peer reviewed studies? Post the links or STFU. I'll bet you aren't interested in naysayers. Just the desperate with a checkbook.
He describes theoretical, early-stage research which MAY, one day, have some use, after it is peer reviewed and proven legitimate. Right now, I see nothing but the most early suggestions of biochemical ideas, and FAR from any "unified theory" by biochemists. That's just silly.
This boob is simply suggesting a variation on the long-discredited Induced Hypoglycemic Therapy bullshit, and doing it in a really inappropriate place. Hey Sparky, if low sugar starved cancer cells, why aren't diabetics cancer-free? BTW, neurons starved of glucose die way before any other cells. "Avoid sugar, not just HFCS." Pfffft. IHT is DANGEROUS.
Posting rubbish like you did in this thread is fucking ghoulish and if there is any real karma, you just burned a whole lot of it.
"The pie shall be cut in half and each man shall receive.....death. I'll eat the pie."
Yeah, I wanted to ask my grandmother on mothers side (weird stupid borked English language) about some memories from when they where young, though maybe I asked mostly about the gandfather. Anyway it never ended with me actually asking her but she rather wrote some stuff down. It was some but not all of course .. One of my grandfathers sisters is still alive so she could eventually give some more details, but who knows for how long. Both parents on my mothers side are dead.
On the other side I guess it doesn't really matter what happened in dead peoples lives, sadly.
I've talked some with my dad but I was younger then, didn't meet him as much as I should had done the last 10 years and since he died of in Alzheimers last November there won't be any more stories of his youth either.
My idea from the beginning was to let the laptop record the conversation to. Less work and everything gets caught.
In an unrelated event, but maybe something I share with many fellow Slashdotters, I sometimes wonder how life will become in a not too distant future. I'm 31, mom is 66, I've got a sister. Dad, both grantparents on my mothers side and grandfather on my fathers side are dead. His mother is above 85 I think so she will most likely not stay for long. I've got no friends, don't work, has never had a girlfriend. So I do wonder how empty life will be once the family is gone. Sure it usually end up being more lonely for everyone, but most often at 70+ or something such? And still with some children and such which may eventually visit or call you atleast sometime.
Should had meet my father more as said, but I knew that already back then, but it's hard to decide and get going and then there is the next day, and the next, ..
Would suck if the filming reminded of death though. Even though it can be good to think about it sometimes so you don't end up just wasting your time.
This might also touch on one somewhat accepted (how true? - hey, take what you want from it) observation about memories and time perception, BTW. When life gets monotonous (hence also not many memories to speak of; going too far with preservation efforts might push things somewhat towards that area...), it drags on while it unravels...but seems to be a blink of an eye when looking back.
Filling it with experiences tends to make it seem like it flashes by, OTOH. But it's suddenly so full, so long, when remembered.
Take your pick.
One that hath name thou can not otter
I'm dealing with a loss of my mother as well. I tried doing video recordings, but the problem I faced was that they weren't terribly candid. My mother was always a camera whore however, so in one sense it was natural for her to seek and find the camera in the room, then play up to it; in another sense I was never able to capture the candid moments when mom was just being herself.
The OP has likely weighed the worth of capturing the last moments of his wife's life, knowing full well how painful the moments will be (the visual effect of her illness, etc.).
I recommend creating new memories and documenting those with recordings. Go out, take a day trip. These things need not be expensive. Record yourself spending time together be alive and not merely acting. Write letters to each other. Share old memories, remind each other of your life spent together. A written letter, not some blog entry that only exists digitally, will have more value. Create physically tangible pieces of memory, be it toys you buy each other, or polaroids you shot of each other. Things you can hold, things that don't require a computer, will mean a lot to you.
The point of all this is to create new memories that don't anchor you or her to the illness. Make the illness a non-issue.
As for preserving old memories. I recommend that any video or audio you have be archived losslessly to very durable storage medium. I recommend digital tape. Even my old VHS analog tapes have proven more durable that things written to DVD-R. But do keep copies on more easily consumable mediums such as flash cards and DVD-Rs. For photos, I recommend developing your photos, archiving lossless originals as above, and then keeping high quality JPEGs for easy digital access. For personal belongings, I use durable plastic containers that can be sealed. Zip-loc bags are useful too.
The point here is you'll find yourself wanting to archive a lot of diverse materials. Being Slashdot, we immediately think about media, but there's other things too like stuffed animals, christmas ornaments. etc. A wide variety of things. Also, I recommend photographing those things. I would also digitally scan letters and other documents. Save things from your outings. I have movie tickets. They bring back a lot of memories.
It's a lot of heartbreaking work. At the moment, I can't even look at the material I've collected, but I know someday I will want to revisit it.
The poster may just be the follower/believer of a Quack Doctor, not a Quack Doctor himself. After all, for Quack Doctors to make money scamming people, they'd need a number of believers already.
I'm not looking for insightful comments from a focused group of individuals who have been through this. There's plenty of that. I am asking a group of people in a community I have long lurked/participted in. Of course I understand the responses are going to run the gamut, but I usually find there is a post or two that are insightful that are from members of a community I obviously must feel reflects me in some manner. So your responses were expected along with the many other types of responses that make this community what it is.
I wish there was a fscking blue pill
Hmm, I'd probably make some kind of complicated puzzle (or set of puzzles) for her to solve, with a "map" leading to "some buried treasure." (I don't literally mean a treasure map to pirate gold. Too much chance the professional treasure hunters would get involved.)
Lot's of stuff written by me along the way, and just difficult enough that she'd be working on it for a while.
Obviously, the treasure should be something somewhat valuable but probably more for sentimental value than real money.
The fun is in the trip, not the destination. I guess I always dreamed of being Hari Seldon. (Oh, and speaking of Seldon, probably you'd want some way to reveal steps to her over the years automatically if she started falling behind. Not sure how I'd do that.)
Now, my grandmother gave me my grandfather's beloved train set. Unfortunately, I got it way to young, and even if it hadn't been a problem for me I have a much younger sibling who went through a "Destroy Everything" phase. So that's just a regret.
"MIT betrayed all of its basic principles."
I'm sorry for your situation. I do agree that it's important to not spend so much time archiving that you and your children spend her limited time and energy making new memories.
That said, all the digital technology in the world lacks something especially when you're only recording her in her terminal illness. A sketch artist can capture something that the photos can't.
I'm surprised not to have seen this...
Note and learn to cook her favourite recipes! My Mum did this for my Grandma as did Grandma before her. It still brings a smile when I cook something I enjoyed visiting 'Oma' as a small child. Its a nice bit of family history/tradition too ... the recipes are hand-written and some have fun stories ('the day your Dad ate 2 whole cakes') associated with them.
The orthomolecular biochemists
This word doesn't mean anything in scientific circles. "Orthomolecular" is a relatively new fad term for holistic nutrition/medicine. Examine here for an example.
have a unified theory of cancer and it's reversible now.
There is a unified theory of cancer, it primarily states that living things get cancer in the same way that iron rusts. It is inevitable, as a consequence of the fundamental properties of the system in question. It is not "reversible", a nonsense term in the biological context, and every specific cancer will require a different specific treatment.
Salvesterols
Google "salvesterols", 256 hits. Google "salvestrols", 35400 hits. Neither term is used in chemical/biochemical/molbio literature. The basic concept is that all "diseased cells" have specific enzymes which will convert specific plant-derived salvestrols into poisons, thus killing the bad cells. Evolutionarily, there is no way this would be maintained. The first mutant cell lacking this special enzyme would proliferate and the salvestrol would be of no use. See here for a representative site.
exploit the CYPB1P1 metabolic pathway; the Cytochrome P450-1 enzyme converts them to
There isn't a "CYPB1P1 pathway". CYPB1P1 is an enzyme involved in the oxidative breakdown of a variety of substrates. These enzymes are often used by animals to detoxify minor toxins from food. In the case of Aflotoxin poisoning, these enzymes are responsible for the production of potentially fatal liver damage by modifying the initially neutral compound into a potent mutagen/carcinogen/toxin.
picotannins
The word "picotannins" doesn't exist in the chemical/biological literature, or on the web according to Google. Perhaps you meant tannings at low ("pico") levels? Tannins are plant compoinds and are not synthesized by any known animal metabolic pathways. At low levels, some tannins may have benificial effects on diet. In larger ammounts, they tend to be poisonous to animals not specialized in consuming them. Specialized animals tend to have enzymes in their saliva to bind and inactivate tannins before they can be absorved in the gut.
which selectively, in vivo and in vitro, kill only tumor cells.
Not exactly true, but since technically the chemicals you're speaking of don't exist, I suppose I can't say.
I've met end stage lung cancer patients whose cancer has been rerversed.
This is wonderful news for them and irrelevant to your claims.
I'm not interested in any nay sayers or claims of quckery. I'm just not interested.
It is good to know you've decided you don't need to learn anything about a topic to which you obviously have no expertise, before making potentially life-changing decisions based on that erroneous assumption.
Contact me directly if you need more information or sources; I can point you to (free) biochemists who can explain this much better than I can and offer guidance. It's extremely important to avoid sugar; whereas our cells use atp for energy, cancer cells use sugars directly.
Cancer cells cannot use sugar "directly" in the way you imply, nothing can actually. All cells use ATP for energy, with a minor sprinkling of GTP. Some human cell types (brain/neurons) will only accept sugar from the blood as a food source, while others (muscle/skin/etc) will also accept amino acids, cholesterol, and triglycerides from the blood to use for food. Your liver actually synthesizes sugar (glu
I know this has been covered by a few dozen people, but backup your backup's backup.
Having worked tech support for storage devices over the past 5 years, I've had to personally tell many people that their drive is corrupted/broken, and thus all of their family photos/baby's first steps video/wedding photos/life's work is either unrecoverable or exceedingly expensive to recover. This is the hardest part of my job, and it never gets any easier to take. I can't even imagine how it is to hear something like that.
Do NOT depend on RAID... just cause it's "Redundant" doesn't mean it's backed up. RAID only protects you against a single failure mode: a failed drive.
RAID will simply not protect you against:
power fluctuations (power loss, brownout, spikes, surges...)
bit rot, stripe and filesystem corruption,
acts of god ("crap, the basement flooded"),
acts of human ("which folder did I just delete?"),
etc, etc.
You CANNOT protect data 100%. There is ALWAYS some coincidence that can happen to mess everything up. The best you can do is have as many layers of backups as financially possible, and make sure you don't keep them all in the same place! Keep AT LEAST one offsite (different state) backup.
In short, if you can't replace something digital, then make sure you have multiple backups of it, with some in a completely different location.
A friend of mine died nine years ago from colon cancer. She had a then 4-year old boy when she passed.
There were a handful of things that she did for her son that were pretty well received as he grew older.
She left letters or recordings for him at various milestones. Graduation. age 21. Age 25. Wedding. Etc. Nothing too specific, but things talking about how she hoped things turned out for him.
A recording of her singing Happy Birthday, that she gave him on CD. He played it every year until he was 12. After that, I don't know if he continued to play it, but it was a nice touchpoint for him as he grew older.
That's really about it. Too much stuff, I think, and the survivors have issues getting over the loss. And too much past stuff, and people seem to feel a little out of touch. It truly makes people think they were loved if their parent thinks about future events before the child even does.
That's all I have.
Reeses
On first thought that is a scary thing and the road you now have to travel for the (statistically) next 1 to 2 years is not really an easy one.
But on the other hand you now have an opportunity not many of us have. Thing is, we are all dying. There is a fair lot of people here on this board who will be dead long before your wife passes away. And many of them would have wished to have known this two years in advance. Statistically there are about 160000 people who will not see the next sunrise. And some of them might be readers on slashdot.
So you have some albeit limited time left to focus on the important things in life.
- Don't waste time focusing on the sickness. Like talking about this. What I learned about talking with my children is that whatever you tell them they will perceive 10fold. So if the sickness is an important thing during the time to come it will be ten times as much important for your children as it is for you. And don't try to hide the sickness from your children. I don't know how much they can realise already, but children understand much more than we can imagine. At least on an empathic level. Try to be "normal" about your wife.
- Focus on the time you have as a family. And focus on your children. Supposing you are doing a standard 9 to 5 job having the weekends off you should start using the weekends for short trips, like camping and stuff. I don't know what the physical condition is your wife is in right now, but start _doing_ things. If it is possible, go on as many bicycle trips as you can. Travel around. My wife and me are currently in the process of bying a campmobile. Since I am working on a freelance basis the weekends are the times we can share as a family. And with my oldest son starting school this year our holiday time will be focused on the main holiday seasons, which are extremely expensive. So buying a campmobile and doing weekend trips seems like a good thing for me.
- Give your kids memories of good times. By spending time together. They will remember their family in a way everybody should have been able to remember their family. In the end this is what matters. How did we perceive our parents while they were with us. And the foundation for this is being laid while the kids are young.
As mentioned in the title I thought about doing this for my kids for various reasons. My way of doing this will be to start taking short videoblogs for my two sons. With the built in camera of my mobile (htc legend). These videoblogs will be short and will focus on letting them take part in my daily life. And maybe I will try to incorporate the fact into these videos that my sons will get older. So I will try to record videos for times when they are older. For storing purposes I will put them on cd and on sd-cards. Copied multiple times with one set of copies being stored in a safe-deposit box. My wife will know about this and I will put instructions about that into some sort of testament.
But how many of them you take it will always be like looking through a box full of pictures of lost ones. They cannot replace the real thing. In the end it will be your job as a father to help your kids focus on the future. This is where our road heads to. And the future is where your kids will need you.
Yt,
Gunnar
I used to have this discussion with a librarian whose dissertation was about archival materials. Thinking in terms of "archival" seems appropriate here; while you are rightly concerned with preserving memories for you daughters, there will eventually be grandkids who are interested in the grandmother they didn't know. My librarian friend's opinion was that there only one practical medium available to the general public with proven archival properties: pigment-based ink on acid-free paper. Acid-free paper is readily available; inkjet printers that use pigmented ink are available but pricey; contemporary monochrome laser printers provide near-archival qualities; color laser printers somewhat less so.
My librarian friend's strongest argument for making analog copies on paper was the passive nature of that medium. You can tuck the paper away for 30 years and it's still good when you take it back out. Digital archives tend to require active copying from time to time. Digital files from 30-40 years ago are largely unreadable today, even if the medium is in good shape, for a number of reasons: the necessary hardware is no longer available, operating systems don't support the file system, the file format is no longer supported. In general, preserving a digital record for 30 years requires that intermediate copies be made.
However, archival work is something that can be done anytime in the next few years. Worry about other things now.
I too am sorry to hear of your situation and wish you, your wife, and family the best in these trying times. Not sure if anyone else has mentioned http://www.fatcyclist.com/ The author, otherwise known as Fatty, faced a very similar situation as yourself and shared a lot on his blog. His humanity, wit, sense of humour, and honesty was breath taking and an awesome read. Still is a year after his wife's passing. He might be a good resource for you in many different ways. Give him a read, and drop him a line. Sure he'd be happy to offer thoughts and ideas.
"This technology stuff is just plum crazy!"
If the OP wants to choose to remember his wife in this way, and help preserve a legacy for his/her daughters by recording everything he can about her, than that is his choice. The fact that this information is not of interest to YOU is entirely irrelevant. This data isn't for you to consume, and I'm not sure how you could possibly evaluate the worth of this.
Given that his wife is in Stage 4, and the daughters so young, the ability to create memories is likely not great, and getting worse. If recording memories is all he can put together, so be it.
SirWired