Doctors Seeing a Rise In "Google-itis"
It's one of the fastest-growing health issues that doctors now face: "Google-itis." Everyone from concerned mothers to businessmen on their lunch break are typing in symptoms and coming up with rare diseases or just plain wrong information. Many doctors are bringing computers into examination rooms now so they can search along with patients to alleviate their fears. "I'm not looking for a relationship where the patient accepts my word as the gospel truth," says Dr. James Valek. "I just feel the Internet brings so much misinformation to the (exam) room that we have to fight through all that before we can get to the problem at hand."
There's an app for that!
Welcome to the Panopticon. Used to be a prison, now it's your home.
I think every website that lists all these varied diseases should put a rarity score next to each illness. That way when you think you've got Wilson's disease, you can look and see with a simple number how unlikely it is.
As made up words go, google-itis is particularly stupid, since it literally means "inflammation or irritation of the google."
If libertarians are so opposed to effective government, why don't they all move to Somalia?
...which disease you have.
You mean I don't have Ebala?
No, sir, you googled a typo.
I'm sure I have it! Typos are one of the symptoms!
for those scientifically oriented, and aware of our natural cognitive bias, it is a fantastic tool to pin down the real problem, bringing relevant information to discuss with a doctor.
`echo $[0x853204FA81]|tr 0-9 ionbsdeaml`@gmail.com
Google obviously isn't the best place to get medical information, these people are twits. If you watch all the past seasons of House you'll figure out what's wrong with you. (hint: it's not lupus.)
There will always be hyperchondriacs and there always were. Technology isn't changing any of that.
I think House has inspired a bit of this as well.
I'll start. My wife had intense abdominal pains which her GP diagnosed as an intestinal blockage, and prescribed liquids, laxatives, and rest.
When she didn't get better, she "Googled" her symptoms, and found that the birth control Yaz had been linked to gallbladder issues, which fit the symptoms. She told her GP -- who had never heard of these side effects -- and had her liver enzymes checked. Sure enough, they were below average. My wife was scheduled for a ($20k) liver function test, and simultaneously taken off Yaz. The symptoms subsequently disappeared, enzyme levels returned to normal, and she opted not to get the test.
Now this may well be a coincidence, as I myself have pointed out, but if it wasn't, it's a clear case where Google-itis saved us 20 grand, since she never would have had the idea to stop taking Yaz if she hadn't found similar cases online.
https://www.eff.org/https-everywhere
A stinging sensation in the lower spine. It's Terellian Death Syndrome, isn't it?
We agreed you'd come to me before checking the medical database.
Well, this time I'm glad I did. Maybe we can stop the cellular decay before it's too late.
Reg, you don't have Terellian Death Syndrome.
- You're sure?
- I'm sure.
Then maybe it is Symbalene Blood Burn.
No. I don't see anything wrong at all. Wait a minute. There is a slight imbalance in your K-3 cell count.
My K-3s? No!
Barclay, I'm sure it's nothing.
I judt got a nre Kinesis keybiartf so please excusr ant egregiou typos.
One woman in my work makes the colleagues to go and look to her feces and feel the bumps in her breast... And she has a rare condition that is called pre diabetes, and once she said that her hymen had closed due to a very serious condition that she had down there.
That is has been a problem of sorts since the bombardment of TV and print ads for Rx drugs. Why do they feel they need to advertise them? You can't just go and buy them OTC.
"There might be intelligent beings created by God in outer space even if there are none here on Earth." -Anonymous
I had Ebola for five days two weeks ago. Maybe Googlitis weakened my immune system?
I read "Google-tits," and I thought, "What about Google-tits is suddenly making them perky?"
True story - I woke up one morning and my eyes were both full of floating debris and this circular ring. Also there were lots of flashes in my eye. None of this is a good sign so I googled the symptoms and it said I likely had a detached retina and I should go to hospital immediately. I did, and yes, both retinas had significant rips and needed multiple laser treatments, a couple of vitrectomies and a membranectomy before I was given the all clear. The morning I presented the doctor told me that it was very good that I had come in so quickly because it could quickly have deteriorated to a stage where it wouldn't have been repairable.
Of course, my symptoms were pretty obvious and I had an idea what it was before I even started looking but the first hit said 'go to hospital. Now'. Very good advice. I wonder how often the opposite is true and people use Google and find that it suggests it is nothing to worry about and they don't go to the doctor? My guess is that is rather rare compared with the hypochondriacs who have nothing wrong with them.
"I have the attention span of a strobe lit goldfish, please get to the point quickly!"
Having worked in healthcare information, I can tell you that many doctors are afraid of computers and information. When I hear of a rare disease/condition (which I would NEVER get from a TV show like, oh, say, "House") I often google it, but I use information from websites like mayoclinic.com, nih.gov, webmd, etc.- not joe's blog or nancy's health forum. As with all information and research there will be good info and bad.
Computers will improve medical diagnostics- when they are finally accepted (required?) and people can use diagnosis charts and checklists and do some of the background work before seeing the doctors.
On a positive note, most doctors and healthcare professionals are encouraging people to be more informed and involved in the process. In fact, if you're not, you're more and more at risk for medical mistakes. It's your life and health- learn and be informed.
Someday this will all be behind us and we'll wonder why we relied on perception and "gut feel" so much and so many problems were not diagnosed early enough (like my friend's dad who died unnecessarily of an otherwise curable cancer.)
I asked my doctor once what the side-effects were for a prescription. He looked at me dumbfounded and never answered my question. That Doctor then became NOT my Doctor.
My karma is not a Chameleon.
It's a contagious form of medical student disease.
Even though they have textbooks, apparently they do the same thing. (...or at least it's been shown on a whole bunch of medical shows.)
A buddy of mine had severe sinus congestion. His doctor told him to take Afrin. Over the course of several years, his sinus congestion became worse. His doctor performed all sorts of exotic therapies, and continued to recommend Afrin. Thanks to Google, and Wikipedia, he discovered that long term use of Afrin can cause a dependency, and actually make the symptoms worse. A second opinion by another doctor confirmed his internet diagnosis, and he is doing much better.
One of our competitors trademarked the term "hypothesis". From now on, we will call them "boneheaded ideas".
...if Medicine wasn't such a members-only club. There's the "In" crowd and then there's the "Rest" of us.
Take other fields.... writing, education, programming, painting, online stock trading -- anyone can hop online or go down to their local bookstore, get How-To books, and start to do actual work in hundreds of different fields. But not in medicine.
Sure, you can learn some First Aid, and maybe even some more advanced techniques, but eventually you'll have to go to medical school to become a nurse or doctor, or at least attend weekly courses to become an EMT. And there are some safety reasons for training people in this fashion, as well as restricting access to certain drugs to only those people who demonstrably know their effects and interactions.
But just because there are some good reasons, some of the time, to lock up some medical knowledge or access to the tools of the trade, doesn't mean that there won't be hundreds if not thousands of motivated individuals that want to try to tackle their own medical problems the same way they do home improvement projects.
Quoth the doctor:
"I just feel the Internet brings so much misinformation to the (exam) room that we have to fight through all that before we can get to the problem at hand."
So here's one for you: Why can't you fight that misinformation before the patient even steps foot in the exam room? Why don't doctors create peer-reviewed, well-written websites to counter all of the confusion and pseudo-science currently available online? Won't patients gravitate to the more prestigious sites, especially if doctors point them there?
But I don't think that doctors want patients to ever try to self-diagnose, so they won't ever put this information online. Whether or not the doctors have the patient's best interests in mind, this creates a rift between the two parties, and does little to advance patient-centered health care.
coding is life
..one person actually cares about the patients health. Is it the one who made an appointment to go through an uncomfortable examination because they felt like something was wrong, or the one trying to squeeze as many credit ca... people through his business in an hour as possible?
Do your own research people. Go to your doctor armed with information, and don't let them brush off your concerns. Will your doctor like it? No, he went to medical school, and who are you to think you'd know something about your body that he didn't see in the 1.3 minutes he spent in the room with you so far?
To be fair, TFS seems to promote the idea of the doctor actually spending a few minutes with the patient doing the same types of searches they were doing at home, and when my daughters pediatrician did this for me and my wife around the H1N1 scare, we left feeling much better, so, I don't know.. am I building a strawman? I've heard it both ways.
Actually, a whole bunch -- http://blog.openmedicine.ca/node/223 . Given the rising cost of health care, this will certainly be a growth industry.
Family doctors are pretty much useless. Why do I need to book for an appointment, wait like 30-40mins at the clinic even though I have an appointment, and only able to talk to the doctor for 5mins?
I went to do my annual check-up with the family doctor a year ago, and I complained to him about my day-time sleepiness. The doctor simply dismissed it as "bored at work". I basically had to google the symptom myself afterward to discover that I might have sleep-apnea, and then book another appointment to tell the family doctor to just give me a referral to see a sleep specialist to do more comprehensive test. Lord and behold, my self-diagnose was confirmed by the sleep lab, and I even knew that the treatment would be CPAP before the sleep doctor suggested it.
The point of the story is, yes, there will be paranoid people who suspect they are dying of rare diseases because of their headache and whine to their doctor all day. For most people, they are better off googling their own symptom first, get a general understanding of what could be the cause of it, so that you can better talk to your family doctor on what test to do and which specialist to see.
Hey, you don't go to see a car salesman before doing your homework, why go see your doctor without getting a better idea of your own health?
Have to agree with you. Once pharma advertising budget surpassed pharma research it was game over.
.... not to say the two can't combine for a mega-cocktail -- especially when you consider pharma advertising recombining with GoogleDNA adsense.
Although it is a slightly different game than the googlitis
Have for sometime really been hating looking up health info online. It's just chucked with so many experts exchanges.
I think we're starting to go back on the pendulum started by Susan Sontag who was an early advocate of taking control of your health back when doctors would often conceal diagnosis from patients as to not excite them.
Turned out to be bursitis. To be fair, I didn't really google it but went to webmd so I didn't end up in hypochondriac hell. It was very specific about every symptom I had (swollen elbow, the sort of pain, the warmness), and it gave me a reasonable diagnosis (don't mess with it, use the body part as little as possible, see a doctor if it doesn't stop being swollen in about two weeks). It saved me a doctor's visit, but more importantly, it gave me peace of mind.
I'm very well aware that sites like those, particularly online versions of the DSM IV, are hellholes for developing hypochondriacs, but when used responsibly with reasonable expectations, sites that are more professional in tone can be very useful. And if you don't like what you read, or it gets worse, well, you get to make the call about going to the doctor instead.
Physicians need to start putting computers in exam rooms not because of Google-itis, but because we desperately need to start using electronic medical records.
An extraordinarily low percent of hospitals are using EMRs. Source: study by the New England Journal of Medicine, reported here in the American Medical Association:
http://www.ama-assn.org/amednews/2009/04/06/gvsc0406.htm
Forget Google-itis, how about having a system where if one doctor prescribes a medication, an alert immediately pops up warning the physician that this patient is also taking another medicine that will cause severe reactions if the two are taken together?
Imagine an industry that has extremely high-tech factory production equipment (Advance MRIs, Gamma Knife non-invasive surgical devices), but has the back office operations run entirely on post-it notes and shuffling paper back and forth on shopping carts. Get the systems in there to prevent dumb medical mistakes and improve cost efficiencies. Preventing Google-itis is a small amusing beneficial side effect.
Ben
this is medical medicine...its complex, dangerous quackery not well suited for the average person...you need years of institutionalization before attempting it, and google will usually just suggest crazy things like a healthy diet and exercise...this is counterproductive to your well-being as it distracts you from your television.
We, the medical community, have contracted ineffably large pharmaceutical conglomerates and enlisted their superior knowledge of your symptoms in order to diagnose and treat many major illnesses you may, or may not, or may in the future should you decide to, be suffering from. Conveniently and enlighteningly peppered throughout your favorite episodes of House, the informative commercial programming from bloated clearinghouses of pharmacopoeia are designed to ensure you the lay-consumer are well armed should you decide to change, increase, or consume ever more of these life preserving drugs through your responsive and caring doctor-type sales representative.
Good people go to bed earlier.
dilbert replayed there health plan with google
Information is bad, leave it to the specialist!
I've been diagnosed with ADD, went to the neurologist to talk if I should take any drugs. The guy prescribes me something, I google the medication before buying, and it was some hardcore anti-seizure drug with a lot of bad side effects. Went to another doctor, and he said WTF. Google saved me money and my health.
Most of the doctors I have met, love when pacients look up to them and trust every single word they say. And they hate it when people try inform themselves.
I think every website that lists all these varied diseases should put a rarity score next to each illness.
I'd want such scores for the opposite reason. My doctor Googles everything I tell him about, and concludes I never have anything. He doesn't "suffer from" his patient's Googling. That's how he practices medicine!
If Google is wrong, maybe I really DON'T need a hysterectomy and a vasectomy.
I spent years looking for reasons I use linux on google, I came up with aspergers as a self diagnosed issue.
Wikipedia lists sources that have referred to it as cyberchondria.
Well if we want to get right down to the brass tacks of the issue...
PEOPLE ARE DOING THIS BECAUSE DOCTORS DONT DIAGNOSE ANYMORE!
Sorry for the shout... but the facts are quite apparent... 99% of the GPs (general practitioners) ONLY care about the symptom and what drug they can perscribe to (in most cases) MASK it. You doctor wants to see you walk into his office and the next thing he wants you to do is WALK BACK OUT as quickly as humanly possible.
Anyway... sure let the doctors and medical societies MOCK and LAUGH at 'the great unwashed public' as they try to self diagnose... but %#*(%*() if the %(*%()$ ^ doctor isn't going to diagnose you then what choice do most / all people have?!
I can understand why people do this with doctors though. I have gone into exams for a particular problem, have sat through the exam thinking we were working the problem, and then be given so stock drug that may or may not solve the problem, never being told what the problem is. When ever diagnosis seems to be for the benefit of the pharmaceuticals...
"She's a scientist and a lesbian. She's not going to let it slide." Orphan Black
PROTIP: As you finish a course of treatment with oxymetazoline nasal spray, use it in one nostril at a time, alternating between doses. This way you can still breathe through the rebound congestion.
This happened Feb, 2004.
2 months after finishing college and starting a new job in a new area, I woke up one morning with an odd stomach pain. I didn't think anything of it, so I went to work. By lunch time, the pain did not relax at all. It didn't get worse... just a steady piercing pain. I told a co-worker I was taking a half day. By 5pm, I was starting to get really worried because this was not a normal feeling stomach pain, and it was still there.
I went to Google and typed in stomach pain, and that's when I was starting to really get worried. Several websites started directing me to Appendicitis. After reading more, I had all the Appendicitis symptoms except "nauseated". I called a friend, and he said, "Nah, man! It's probably just something you ate! You said you aren't feeling nauseated, right? I'd wait until you were nauseated."
I had crappy insurance. I didn't want to go to the hospital unless I needed to, but since everything I read online was pointing to Appendicitis, I eventually decided that peace of mind was worth an out-of-pocket exam, so I jumped in the car and drove myself to the ER.
I went to the front desk, and he asked, "What do you think is wrong?"
I said, "I think I have Appendicitis."
"All right, fill this out and sit over there."
When I got to finally see a nurse, I said, "I think I have Appendicitis."
"Does this hurt?" "Yes."
When I got to finally a doctor, I said, "I think I have Appendicitis."
"We'll run some tests."
They ran a blood test. Came back positive.
They ran some x-ray type test. Came back positive.
By 10pm, the doctor came and said, "You have Appendicitis." By 5am, they were operating on me.
I'd had an operation in my neck which was pretty deep in for a nerve tumor.
After it, I noted intense pains when I was hungry and then after a few months super sensitive skin on my cheek and face on that side. After trial and error, I figured out that the pains came from my salivary glands, so eating hurt, some foods were worse than others. I went to the doctors and they couldn't figure it out, some though it was my jaw, they looked at ear and were talking about breaking my jaw and reseting it.
I was watching Downfall and reading about the various Nazis on Wikipedia as I watched it, along comes Magda Goebbels and I read about Trigeminal neuralgia. I paused the show and asked my girlfriend to listen to a list of symptoms and tell me if it applies to my condition.
"The disorder is characterised by episodes of intense facial pain that usually last from a few seconds to several minutes or hours. The episodes of intense pain may occur paroxysmally. To describe the pain sensation, patients may describe a trigger area on the face, so sensitive that touching or even air currents can trigger an episode. It affects lifestyle as it can be triggered by common activities such as eating, talking, shaving and toothbrushing. The attacks are said by those affected to feel like stabbing electric shocks, burning, pressing, crushing, exploding or shooting pain that becomes intractable."
We emailed my doctor and she had me come in for a face to face, then referred me to someone else and he diagnosed it. Later that year I was accepted for a Medtronics nerve stim which had reduced the pain by 80-90%.
Without my case of Google and Wiki-itis, I may not have ever been diagnosed.
http://books.google.com/books?id=Qk7bOlZ0knoC&pg=PA12&lpg=PP1&dq=three+men+in+a+boat&hl=en#v=onepage&q&f=false
...or so she thought. She was convinced she had a brain aneurysm. She'd had an MRI that maybe showed something and the doctor called telling her to get a higher-res MRI that day. She started searching on-line and became certain she had an aneurysm and she could die at any moment. She thought about writing notes to the kids, making a video, all sorts of "I will be dead in 48 hours" things.
The subsequent MRI and follow-up with the neurologist showed no aneurysm, no cancer, no abnormalities. Or as I helpfully pointed out, "see honey, I told you they wouldn't find anything in there."
My preferred term for "google-itis" is cyberchondria...I've long called her a cyberchondriac. I'm hoping her "brush with death" will help cure her of that.
When I can get a free estimate from an auto mechanic, but have to pay a specialist just to ask me 10 questions and take my pulse & blood pressure (which I can do for free at most super markets) ... I'm going to Google my symptoms first so see if I can save $100+ from a doctor just telling me "take some aspirin and drink plenty of water."
If doctors are so concerned, maybe they should offer preliminary screening services at a competitive price as Google ... free.
..three times. I have gone to doctors over a span of years who have never correctly diagnosed a few issues I have. Always saying it's one thing or another. Well, over the last five years I've diagnosed, presented and suggested treatments for each issue to my present doctor. I have hyperhydrosis of the palms. It's not severe, but it definitely makes shaking hands or trying to open a pickle jar problematic. I had a GP who had never seen this type of issue before, and wanted to schedule me for specialist sessions with both a neurologist and a dermatologist. I told him to let me think about it as I was living paycheck to paycheck at the time, and had cobra health care that wouldn't cover it. Fifteen minutes of searching online gave me an answer to what the issue was. To which I presented to the GP, he looked up, and verified. Which subsequently answered my next problem, dyshidrotic eczema; which randomly affects my hands. Again, not in a severe manner, and isn't noticable unless I were to point it out, but something my GP couldn't identify himself. In the end, both of these were caused by a third issue, an allergic reaction to certain metals in my diet. For each of the issues Google was able to identify, diagnose, and offer treatment plans for. All of which my GP researched after being presented with and acknowledged. If I had gone to the specialists would I have been diagnosed correctly? I'm sure I would have. So does this mean I am as well versed as a specialist over a standard GP? No. But it certainly has saved me cash along the way.
I am rather paranoid now about companies such as Anthem-WellPoint canceling your insurance for pre-existing conditions or errors on your insurance application when you get something serious. Next they'll obtain your search history to see if you were aware of pre-existing symptoms. Inurance contracts will probably bury such permission in the fine print at some point in the future. Furthermore, I google strange diseases when I hear of friends' and relatives' illnesses or read something quirky in the newspapers.
Theoretically this practice called recision goes away in four years under the new health care law. However, there have been several newspapers already about insurance companies looking for all loopholes around this law.
Query: "My <any of the above/> hurts"
Google: "Did you mean.. to ask your mother?"
That argument only holds water if you can show me examples of doctors who aren't overloaded.
If your doctor is *voluntarily* accepting more patients than he or she can handle, while other doctors are being under-utilized, then yes, you could argue that your doctor is greedy.
However, if all doctors are overloaded (as would be suggested by your comments,) then there really are only two alternatives: turn away patients, which will not receive any medical care, or attempt to fit as many patients as possible into the available time.
The quality of care will suffer, but everyone will be seen.
You can argue about whether or not that method is the best way to provide medical care, but you really can't make the argument that the system exists out of greed.
I'd be very surprised to find that Doctors themselves like the way the system is currently operating.
First of all, no offence, but who is Doctor Valek? and SouthTownStar.com? Bring me a refereed journal article next time...
As a counterpoint to all the anecdotal Google saved my life (and I have no problem with the claims), was the time 6 months ago when I went to the ER after I had misidentified my swollen uvula as the epiglottis, and after googling swollen epiglottis, found out I was likely to die if I didnt get to a hospital (which is true). When I got there, the ER doctor was pretty amused, and sent me home with a hard copy of http://en.wikipedia.org/wiki/Palatine_uvula after he googled it for me... then my wife laughed a lot.
W
...that sadly doctors are mostly full of shit. What I mean is that they are so mind-boggingly arrogant, even when they are not even remotely up-to-date. An example is the typical 60-year-old doc who hasn’t had a further training for 30 years, but does still say “There is no cure.” instead of “I don’t know a cure (yet).”, as if he knew that there never ever could be a cure, ever, because if he doesn’t know it, it can’t exist.
My brother told me, that that is a big problem, and well-known as the god complex.
And that is not the worst part. The worst part is that doctors seem to have no interest at all in actually finding the cause, and removing it. Instead you get everything you need, to hide away the symptoms. Pain killers, and all kinds of pills that only “make it go away” as long as you take them. Half the doctors I had to do with even acted insulted, when I demanded that they pursuit the actual cause, and tell me what it is.
Nowadays I don’t even bother anymore, and just learn the stuff myself. I only go to a doctor if I need to do tests, for surgery, or for stuff that I can’t get without a doc signing it off.
Especially in everything brain- or behavior-related they still live in the dark ages.
Any sufficiently advanced intelligence is indistinguishable from stupidity.
Google is invaluable for identifying health problems that haven't been around for long enough to have permeated the medical community. For example:
My wife and I developed a condition where for several days everything we ate/drank had a very strong metallic, sour, soapy aftertaste. Our doctors had absolutely no clue what the cause was. A quick Google search identified the problem as coming from eating oxidized pine nuts. The problem has only begun being reported within the last two or so years (likely as a result of some new cultivation technique or reaction of some new preservative being used), and so is not well known within the medical community.
I was sick for 6 years. Every few months I got a little sicker. I kept going in... they flagged me as a Hypocondriac. It was suggested that I see a shrink. I kept getting sicker. They started intentionally performing unconfortable procedures on me like colonoscopys, prostate exams, pin prick exams, etc... to try and stop me from coming in. Finally my symptoms started to increase exponentially over a few weeks. My hands were shaking so violently that I couldn't type any more, my vision blurred. I felt like I was having a 24hr heart attack. I started googling things... went to the doctor and asked them to test my thyroid. They said they didn't think that was necessary. I DEMANDED IT. Finally they relented and tested me. I had graves disease. A few weeks later they irradiated my thyroid and put me replacement therapy. I was so sick for 6 years that it prevented me from going to college, from getting a promotion... it ruined countless familly vacations all because my health plan didnt bother to do a $30 blood test on me. The Drs can screw themselves. They don't care about you, me or anyone but themselves. I pay more for health insurance than I do for my Fing house, I'll demand any damned test I please. The director of patient relations at my NEW HMO (yes I switched) knows me by my first name. I have her desk phone now. I plan to be a problem patient for every doctor I ever meet.
I went to bed and heard her moaning and groaning in the next room, and figured that she was just having some fun with her BF. When I got up in the morning, I found her in the living room, doubled over in pain, and still moaning (with the useless BF just watching). I called in that I would be late to work, and took her to the hospital/emergency. We waited for a long time in the (empty) waiting room, to see some nurses (and one person who may or may not have been a doctor) who took a quick look at her and came up with the conclusion that as she'd recently had a period they were just menstrual cramps, that she was being overly complaintive, and told me to take her home.
Luckily we ignored that advice, waited around a bit longer and a doctor who knew what he was doing. After a quick X-ray, it turned out she had an ectopic (sp?) pregnancy. Essentially sperm and egg had met in-tube during her period, and it was then developing in her tubes rather than the uterus. It's a dangerous, and potentially fatal, condition. She was rushed to a bigger hospital, and they were able to take care of things.
If we had gone home straight off as told, she might have ended up dead or at least severely damaged and/or unable to have children in the future.
Sleep apnea is one of the best cases for reliable self-diagnosis. Or maybe "partner-diagnosis". If you're sleeping with someone who has a bad case of sleep apnea, you'll know it. You just may not know what to call it.
I had sleep apnea when I was in my mid-20s. I didn't know what it was. This was 30 years ago and doctors weren't aware, either. All I knew was that I was waking up in the middle of the night with my heart trying to pound it's way out of my chest.
My GP sent me to a cardiac specialist of some sort who did a stress test and diagnosed me with "Hyperkinetic heart syndrome". He put me on beta-blockers. Over time, he convinced me the beta-blockers were saving my life, so I kept taking them even after my mother saw an episode of Oprah that talked about sleep apnea. She had heard me sleep and had an immediate epiphany. I went to a sleep lab and got diagnosed. (Wanna know how long ago that was? The sleep lab was the biggest in Houston at the biggest hospital in Houston and it only had two beds. A tech had to monitor and write down readings from analog gauges every few minutes, all nite, for three nites. And the CPAP machine that I received had an external pressure regulator that was set with a really hi-tech tool: a big ol' screwdriver.)
Yet, nobody thought to take me off the beta blockers. Look up the side effects and know that I suffered from the worst of them (at least, the worst of them from the point of view of a generally-healthy, heterosexual male in his mid-20s to late30s) for more than a decade.
I respect doctors. I've seen them do amazing things. But I don't trust them and never will. Everything they tell me, I verify. Back in the day, that meant reading lots of thick, boring books. Now it means Google. And I'll never apologize for it.
Any doctor that tells me not to look up information online or who complains about patients who do so is a doctor that I will only visit once.
The sad truth.....there is very little science in medicine.
Doctors tend to get an excellent medical education which teaches them a ton of information. They then use that information, and their personal experience, as their foundation for testing and diagnosis. Unfortunately, that is not real science. Far too much personal bias. Far too little recognition that there are things they personally haven't seen yet, but are common knowledge elsewhere. Real science would include far more testing and recording of observations.
Have you actually read your medical records or charts? Chances are good that you are more familiar with them than your doctor and his/her 30 second speed-read. Those "records" would get laughed out of an 8th grade science fair. My insurance application has a more comprehensive medical history. It is time to move medicine out of the dark ages.
I have 5 children. We moved around the country alot. I have confronted multiple doctors during 2 pregnancies and at least a dozen different sick visits, when they were just flat-out wrong in their diagnosis. These are seperate incidients with different doctors, at different hospitals. That's ridiculous considering I'm an IT guy and never spent a day in Med school.
Little things like a doctor saying "Looks like she has the flu, it is going around. Give her some fluids...." and me interrupting and saying "no, you quack, it's the frickin chicken pox, like I put on the form and told the tech when I brought her in. Why don't you actually trying LOOKING at my child? The clear little blister-like things might be a clue."
Ok, I don't have any hard data, but it seems to me that in reality today for every patient with mis-informed "Googleitis" there are ten or more people who are getting better medical care because they are informed about their condition or even have already correctly self-diagnosed. Some of the comments right here to point.
But doctors are upset because they are not used to having informed patients. They are used being the godlike arbitors of secret knowledge whose judgement will be trusted 100% because of their degree. But in reality of course they are human and all too fallible, and even more so nowadays that they are increasingly simply pharmaceutical salesmen rather than healers and don't really have or take the time to actually know their patients.
Before doctors found it easy to be confident... because hardly anyone ever questioned them. Now things are getting a bit more difficult. Poor doctors? I'm finding it difficult to be sympathetic.
There may be a lot of information of questionable quality on the Net, but overall I have not a shred of doubt that the empowerment the Net has brought to the individual in this regard has been a boon to public health.
Am I the only one that read the headline as "Google Tits?"
Many others have already stated situations where research prevailed and the doctor's prognosis was inaccurate or just plain lazy. My wife is also on the same boat having been diagnosed intestinal issues when it was a cyst on her ovary. Two years and four doctors later, she's finally being treated properly.
What we have learned from our experiences is that there is a reason why doctors PRACTICE medicine. Sadly, it seems that some need more practice than others.
Your health, your responsibility. Period. Many doctors can be dismissive, usually with good cause, that is their experience. However even good doctors can be surprised. None are suspecting that rare condition. The only way they will test for it is if you are insistent. Some not even then, in which case you shouldn't be afraid to see a new doctor. The internet is a powerful tool, and can be very useful for a savvy user. One just has to be aware that not all sites are reputable or of the same quality. Also there is a lot of things out there, and to not get worked up about what could be wrong with you and looking at worst case scenarios. Finally, your not a doctor, so using your own judgement and what you can glean from the internet, go see a doctor is you feel the need to. True story: I felt I was having trouble breathing and chest pain. This was dismissed as stress (I was young 30). However having read too much about worse case, quickly turned into panic attacks and anxiety making it worse in a sort of feedback loop. Anyway I figured it out, but it wasn't fun. During this time I remember talking to a friend of mine who gave me the speech about being your own health advocate, and being responsible for your health not a doctor. When she was younger (early 20's) she was dismissed by many doctors, but through persistence was diagnosed with cancer. Which she beat. However had she not been as persistant things might have been different. She was young, and healthy, and it was a rare diagnoses, but it happens.
So I guess what I am trying to say is that:
1) Ultimately your health is your own responsibility using the internet to help you is a good idea,
2) However temper your imagination, and try not to get worked up about possible outcomes.
There are some good doctors, but they're very few among the many who suck.
These days doctors mostly just see as many patients as they possibly can per hour, look for symptoms identified by drug corps, order standard tests run by labs and returned with diagnosis attached, then prescribe drugs. They're just gateways to testing and drug corps.
Of course they don't want to talk about what you googled. That just slows them down. And they often don't have any deeper understanding of the diagnosis and treatment they're charging for than google gave you.
We need more doctors, with rigorous periodic testing for them to keep their licenses. And published track records of their accuracy in diagnosis and treatment. Increase the supply to meet the demand, force them to compete with each other, watch quality increase as price decreases. And watch us all get healthier from it.
--
make install -not war
There is reasons to question the doctor. My dads doctor claimed he was just tiered and over stress - no blood test or any test. Just a visual guess. After 5 trips to the doctor and my dad insisting something was wrong we convinced the doctor to do a simple blood test just to humor him... turned out to be stage four cancer... 97% survival rate if it was detected and treat when he first came in with the issue. To bad it was too late - he died two weeks later.
Humm now will goof ball doctors like that running around do you even have to wonder why people are actually interested in their own life and well being?
A friend's wife spent three weeks at a 'top' US hospital where many tests were performed. None of twenty-two doctors could diagnose what was wrong, and each passed the issues on to the next doctor. My friend listed the symptoms and posted them on a medical advice forum called 'wrongdiagnosis.com'.
When several people on the forum suggested a diagnosis that fit all the symptoms, he printed out information about the diagnosis and gave it to the primary doctor. The doctor studied the information, ordered yet another test to verify the diagnosis, and said he was right.
So, after 22 doctors performing tests, not one could suggest a diagnosis that fit all the symptoms. A post to a free forum yielded better information that was verified by the primary doctor.
There are good reasons people study health and medical information online before seeing a doctor.
Thats because Western Doctors are lazy a**holes and merely use cookbook medicine.
Sure, we can exchange lots of opinions. Does all this medical information on the internet help or hurt overall? One way to find out, just as with any proposed medical practice. Do a study. Until then, no one really knows.
My friend was at the doctor's office for a sprained ankle and witnessed the nurse Google sprained ankle treatments!
Retroactively, it's often pretty easy to tell whether a doctor got it right or not. In my experience, doctors make mistakes fairly frequently, maybe about 1/3 of the time.
"The Food Pyramid of the Insane"
http://www.diseaseproof.com/archives/debunking-diet-myths-the-food-pyramid-of-the-insane.html
Not that these doctors all agree, but there is a lot of overlap and they cover the essentials (typically lots of organic veggies, fruits, beans, nuts, seeds, maybe fish, vitamin D, and very little processed foods or factory farmed meats):
http://www.drfuhrman.com/
http://www.drmcdougall.com/
http://www.drweil.com/
http://www.mercola.com/
http://www.vitamindcouncil.org/treatment.shtml
Occasional fasting may help some conditions, too:
http://www.healthpromoting.com/Articles/articles/PleasureTrap.htm
This is a good video about the future of medicine based on nutrition, including teaching people how to shop at the grocery store, how to cook at home, and how to order in restaurants to stay healthy:
http://www.drmcdougall.com/health_10_day_program_video.html
Another video on curing disease by better nutrition:
"Eat For Health - Joel Fuhrman, M.D."
http://www.youtube.com/watch?v=wPiR9VcuVWw
Someone (not a doctor) who puts a lot of these ideas together into cooking advice:
http://www.andreabeaman.com/
"Read Andrea's inspiring story, The Whole Truth - How I Naturally Reclaimed My Health, and You Can Too! A story you can relate to as you make diet and lifestyle changes in your own life. Learn how to make health-promoting food taste absolutely scrumptious with the Eating and Recipe Guide. Infused with humor, in depth knowledge about food, and over 120 easy recipes, this is a wise tool to have in your kitchen."
A group helping communities be healthier by changing their public infrastructure:
http://www.bluezones.com/makeover-about
Anyway, most disease in the USA could be prevented by better nutrition, moderate exercise, less stress (like through meditation), good sleep, adequate vitamin D from sunlight, more and better community interactions, more positive thinking, and a few other similar basic things.
A 21st century issue: the irony of technologies of abundance in the hands of those still thinking in terms of scarcity.
Why not? After all, the biggest value of medical education is a familiarity with diseases in general and the language to describe them precisely. I can read Up To Date and be... up to date on the latest diagnostic and treatment regimens in very short order.
actually I don't feel well and I'm lazy cuz of it- my name is Mindy and I'm 27 and disabled and undiagnosed
I had abdominal pain, blood in my stool, and a history of wretched period cramps. I googled my symptoms and came across endometriosis. Everything I experienced pointed straight as an arrow to endo, so I went to a gyno and told her that I thought I had endo and explained my symptoms. She readily agreed that it sounded exactly like endo and scheduled me for a lap and ablation. Sure enough I do have endo. When the surgery offered no relief, like it was sposed to, I went back to her and she said to me that I couldn't possibly be in pain like I claimed because she had cured me. Having done research I knew that wasn't possible, so when she prescribed Lupron I looked that up and decided I wasn't' putting myself through that. I called her office to tell them I wasn't making an appointment for the Lupron injection at all as I already have been experiencing hair loss, respiratory problems, and when you have the mental diagnoses I do you don't welcome mood swings into your life. I asked to come in for a uterine scrape to be sure I don't have cancer and my doctor refused to see me unless and until I came in and got my Lupron injection. They'll do it for free, even, they have samples. I was crying in pain every time I saw her or spoke to nurses on the phone, so clearly my body is tryin to tell me etwas. So keep in mind that some doctors are just drug pushers in clean white coats. By googling the things I experience I found an MS support forum and have learned that almost all of my ills can be attributed to that. Now I'm in the process of ruling out everything else. After I had a couple of experiences of swelling and pain in my fingers after touching cold objects I googled THAT and found out I have Raynaud's. I hadn't even been sure that it was related to the cold since there are so many random things, but now I can avoid that painful experience thanks to google.
Since there were many quacks, confidence tricksters and perverts happy to take peoples money or play with them we ended up with medicine being a regulated profession.
We'll get a reminder in a few years when someone famous dies at the hand of a naturopath and it gets a lot of press, or when a pervert is caught using a front of some sort of "complimentary" medicine to fondle little girls. It will just be another generation learning that if you are going to give somebody a lot of personal power over your life, health and death they should be trustworthy.
I had pertussis last year (although I had been vaccinated as a child) - the GP dismissed my guess out of hand despite the signature cough.
He finally shrugged and ordered a blood test, I was right. Ordinarily I wouldn't give a damn but you have to be very careful not to spread it to infants for whom it can be fatal.
Google-itis is bollocks, there's a much bigger problem in people finding bogus information about vaccinations on the web and not getting their kids done.
Sure this is probably inflating an existing problem, but "before the internet" people were either self diagnosing or getting 'advice' from friends that was equal to what they're finding on the internet these days.
"My aunt Luann had a rash just like that and she died six months later."
No sig for you. YOU GET NO SIG!
Back in January, I had a few symptoms of what I assumed was a minor illness, typed them into wrongdiagnosis.com, and it suggested I had pneumonia. I chuckled at this ridiculous idea, and at myself for Googling in the first place, but took myself to the doctor when I felt worse the next day. The real diagnosis? Pneumonia.
You have the nail squarely on the head about why it is a problem that patients are doing this and simultaneously managed to cluelessly identify (with your IT analogy) why it is also a problem that doctors are forcing patients to have to try to do this.
In the world of health care, the various flavors of Nurses are "Level 1" Support and most Doctors are your "Level 2" Support. In both IT and health care it is right and good that folks have to start by seeing the less knowledgeable diagnosticians available as Level 1 Support.
But at least in the IT world, once you've run through those and been passed up to the next level of help they don't go back to assuming you've got a basic problem that could've been helped by Level 1's standard scripts and make you jump through those hoops again. Patients have been forced to try to self-diagnose because their Doctor won't spend time to actually *think* about the diagnosis until the third or fourth visit and that can range from expensive to painful all the way up to deadly.
I'm still p-o'd at my GP for pushing me with cough suppressants, inhalers and other crap for weeks when there was a known (to the CDC, anyway) outbreak of pertussis going on all because he was too lazy to wait the 5-10 minutes for my next paroxysm wherein he could have heard a textbook-classic 'whooping' cough. I was persistent enough about insisting that I had whooping cough rather than asthma that he finally sent me for a blood test ... which confirmed the whooping cough.
Unfortunately too many doctors are still trained with obsolete information about the rarity of zebras. Per the National Lung Health Education Program, in a series of 75 patients with chronic cough lasting longer than 2 weeks, 21% had pertussis.
Wasn't there a Brady Bunch episode where one of the kids reads a medical reference book and concludes from some of his (quite general) symptoms that he's going to die of some rare disease?
This is just the internet doing what medical reference books used to do.
I live in Sweden. We have 10M citizens. Earth has 6B. Thus it is only 1/600 chance that I am swedish, right? Thus we can dismiss the silly notion with no further concern.
Anyone who reads (in "What do you care what other people think") about how his wifes TB was misdiagnosed, after he himself had done some research, would know never to completely trust the doctors.
I work in a nursing home and quite frequently come into contact with GPs in my small city. The fact is, many (most actually) are arrogant and just don't care. They frequently ignore information provided by the nurses relevant to the residents condition and their response to almost any problem is to prescribe antibiotics. They/re extremely reluctant to prescribe any sort of pain relief medications to palliative care residents, most of the time recommending we just give them panadol.
The local hospital frequently returns residents we send there for more serious issues without doing anything, or in a few cases running tests unrelated to what we sent the resident there for and doing nothing about the illness they were supposed to address. More often then not, they return residents sent there the same day they arrive (keeping in mind we never send a resident to hospital unless it is very serious as we know they will recieve better care with us).
Even non elderly patients are treated poorly quite frequently in this city, with the most common response it would seem is for the doctors to prescribe either antibiotics or antidepressants. To give you an idea of just how bad it can be here my flatmate was prescribed Zoloft after seeing the doctor because she couldn't keep any food down, and i had to see five different GPs before one ordered a blood test and determined i had glandular fever. The previous four kept prescribing antibiotics.
Just like with computer/network troubleshooting, doctors are taught to look at the most likely and simple things first. Computer jocks are lucky in that most customers don't try to trouble shoot their computers before calling us. OTOH, everyone has a body and thinks they are expert concerning it ... when we are not. Some people are pre-conditioned to think they are "special" and "different" since their mothers told them they were. It isn't usually true. Statistically, 99% of us are the same.
For a computer that isn't working, you don't check the 3rd RAM stick if it doesn't boot at all. You check that it is plugged into the wall, there is power in that socket, the PSU is powered on, the power connections are all connected (reseated) first. That's what doctors due too.
I have a relative who couldn't get a diagnosis for issues for over 10 years. She kept looking and looking. I still think it is in her head, but I'm not her. She discovered she was allergic to her favorite cognac in the process. My family has 3 MDs and they all believe the issue is in her head. Her insurance doesn't cover mental health issues. Fortunately, she joined a cult which is providing the needed mental support to her. I think she is just bored and needs to get a job, exercise and eat right to solve all her issues. At least she won't be sitting at home feeling "everything."
I was talking about this with my doctor yesterday and we agreed that while there are arguments for becoming informed about your own diseases and conditions, it's very difficult to look at the big picture when you don't know what the other half-dozen or so variables may be. I'm fortunate to have a family physician who will take the time to discuss the big picture with me as it pertains to me but I'd never be so foolish as to think I know everything about it.
bring 'm on! ;)
--- I am known for the ones who want to find me on the net. Is that a privacy risk or a privilege? One might wonder..
Three men in a boat, chapter I.