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Teen Diagnoses Her Own Disease In Science Class

18-year-old Jessica Terry suffered from stomach pain, diarrhea, vomiting and fever for eight years. She often missed school and her doctors were unable to figure out the cause of her sickness. Then one day in January someone was finally figured out what was wrong with Jessica. That person was her. While looking under a microscope at slides of her own intestinal tissue in her AP science class, Jessica noticed an area of inflamed tissue called a granuloma, which is an indication of Crohn's disease. "It's weird I had to solve my own medical problem," Terry told CNN affiliate KOMO in Seattle, Washington. "There were just no answers anywhere. ... I was always sick."

582 comments

  1. Was she the.... by Anonymous Coward · · Score: 4, Funny

    ...FIRST person do this?

    1. Re:Was she the.... by Cedric+Tsui · · Score: 1

      She probably shouldn't diagnose herself without a SECOND opinion.

    2. Re:Was she the.... by CAIMLAS · · Score: 1

      She must've not been seeing terribly competent doctors. Maybe her parents didn't care to get the good ones.

      I don't know about others' experiences, but Crohn's isn't exactly an "unknown" disorder. I've known several people with it. Yes, it appears vastly misunderstood (both by laymen as well as by physicians). But I'd think they'd at least look there. Sadly, I suspected Crohn's was her diagnosis as soon as I got half way through the symptom list. There aren't that many things which fit the description, and of the common ones, I'd suspect Crohn's to be near the top.

      Let's see:
      * ulcer
      * stress
      * IBS + ?
      * Crohn's

      How could they miss that with a description like "vomiting, diarrhea, stomach pain, fever"? That screams Crohn's.

      --
      ~/ssh slashdot.org ssh: connect to host slashdot.org port 22: too many beers
    3. Re:Was she the.... by timlyg · · Score: 0

      No need to be so surprising. Didn't you hear, her pathologists got embarrassed after looking up Crohn's Disease on Wikipedia.

    4. Re:Was she the.... by Anonymous Coward · · Score: 0

      ...FIRST person do this?



      Or more to the point "was she the first BLACK person to do this?"
  2. Engrish? by Anonymous Coward · · Score: 2, Funny

    Then one day in January someone was finally figured out what was wrong with Jessica.

  3. I suspect I may have Multiple Personality Disorder by Klistvud · · Score: 5, Funny

    ...but can't really say which of the multiple personalities established the diagnose. Does this still count as "self-diagnose"?

    --
    Intellectual Property: an immaterial non-entity, most fiercely contended by those with no proper intellect to speak of.
  4. Surprised? by dov_0 · · Score: 4, Insightful

    Crohn's disease is pretty common, so how come it wasn't diagnosed? The idiot medicos just pocketed the money for tests, hospital stays, appointments, medical certs etc for 8 years while the girl suffered? Hmmm. Come to think of it I'm not that surprised. There are far more quacks out there than decent doctors in my experience.

    --
    sudo mount --milk --sugar /cup/tea /mouth /etc/init.d/relax start
    1. Re:Surprised? by Kokuyo · · Score: 4, Interesting

      I've been struggling with lactose intolerance for a similar period of time and also had similar, unsatisfactory, experiences with doctors.

      The one to diagnose it, finally, was me with a little help from Dr. Google.

      My wife has made similar experiences with gynaecologists. Some were actually telling her that the pill had no side-effects. Unbelievable, really.
      Also, some doctors she consulted and whom prescribed drugs would say that said drugs did not interfere with the pill, when, clearly stated in the package insert, they did.

    2. Re:Surprised? by Anonymous Coward · · Score: 1, Interesting

      It's called capitalism. Ain't got cash? Well we ain't got the answer. Gotta love it. Survival of the richest, litteraly. How did this benefit mankind?

    3. Re:Surprised? by Kokuyo · · Score: 0, Troll

      It isn't much better here in Europe.

    4. Re:Surprised? by Anonymous Coward · · Score: 4, Interesting

      Meh, I had to diagnose myself as well (Addison's disease) after 5 year of suffering... Constant low blood pressure, hyperkalemia and hypoglycemia, and no doctor ever even thought like "hey, maybe we should do some more tests". I had to friggin ask to test my cortisone levels, they didn't even bother.
      "Yeah well, normal blood tests don't show nothing special, except those potassium and sugar values, but that's nothing to worry about." Not even when those values (elevated/reducted/...) were the same 5 years in a row.

      Really, I've kinda lost my faith in the diagnostic abilities of a lot of doctors

    5. Re:Surprised? by noundi · · Score: 1

      I have yet to hear about an 18-year-old european that had to diagnose her/himself. I don't know what that proves. I'm just saying.

      --
      I am the lawn!
    6. Re:Surprised? by Anonymous Coward · · Score: 0

      I'm fairly sure that in the recent history of mankind there has been at least one other American person who has diagnosed themself, and at least two European people who have diagnosed themselves. Even if these may or may not have been in the global media. Just saying.

    7. Re:Surprised? by Nutria · · Score: 4, Insightful

      It's called capitalism. Ain't got cash? Well we ain't got the answer. Gotta love it. Survival of the richest, litteraly. How did this benefit mankind?

      Then Louisiana must not be capitalist...

      My (self-employed, no insurance) sister was pretty rapidly diagnosed with Crohn's more than 10 years ago.

      Maybe it's just that doctors suck in Washington.

      --
      "I don't know, therefore Aliens" Wafflebox1
    8. Re:Surprised? by discontinuity · · Score: 5, Insightful

      Crohn's disease is pretty common, so how come it wasn't diagnosed? The idiot medicos just pocketed the money for tests, hospital stays, appointments, medical certs etc for 8 years while the girl suffered? Hmmm. Come to think of it I'm not that surprised. There are far more quacks out there than decent doctors in my experience.

      Well, Wikipedia can be suspect at times, but here's what it says (http://en.wikipedia.org/wiki/Crohn%27s_disease#Symptoms):

      Many people with Crohn's disease have symptoms for years prior to the diagnosis.[12] The usual onset is between 15 and 30 years of age but can occur at any age.[13] Because of the 'patchy' nature of the gastrointestinal disease and the depth of tissue involvement, initial symptoms can be more vague than with ulcerative colitis. People with Crohn's disease will go through periods of flare-ups and remission.

      Really sounds to me like a combo of on-again off-again symptoms and symptoms that are fairly generic (i.e., shared w/ lots of conditions) than doctors and labs trying to squeeze ever last buck out of someone and their insurance. Now, if there is a problem if the first thing they do is run expensive tests for exotic diseases or something like that. I mean, a responsible physician would consider the a priori odds of each condition. And while I'm sure there are plenty of "quacks" out there, I'm not sure that's the first conclusion I would reach for in this particular case.

    9. Re:Surprised? by alexhard · · Score: 3, Insightful

      I think it proves that the news outlets in Europe aren't having as many slow news days.

      --
      Infinite time means everything that can happen, will. You being you is absolutely incidental. You do not exist.
    10. Re:Surprised? by ArcherB · · Score: 2, Informative

      I have yet to hear about an 18-year-old european that had to diagnose her/himself. I don't know what that proves. I'm just saying.

      And before today, I had not heard of an 18-year-old American that had to diagnose her/himself. Although, that doesn't prove anything.

      From TFA:

      "As I get older, the disease can get worse," Terry told KOMO.

      Crohn's disease is often misdiagnosed or diagnosed very late, says Dr. Corey Siegel, director of the Inflammatory Bowel Disease Center at Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire.

      "Granulomas are oftentimes very hard to find and not always even present at all," Siegel said. "I commend Jessica for her meticulous work."

      Sounds like it's not that unusual to miss this early on. I assume the symptoms are not that pronounced until later in life and are not that obvious early on. Many diseases are this way. Breast cancer is usually not detected until a lump is felt or becomes visible via X-ray.

      --
      There is no "I disagree" mod for a reason. Flamebait, Troll, and Overrated are not substitutes.
    11. Re:Surprised? by meyekul · · Score: 3, Interesting

      It can be difficult to diagnose. I had an ex who had it, and had been diagnosed for years. She went to a new doctor who ran some tests and they said they couldn't find any trace of Crohns, and tried to re-diagnose her with IBS. Apparently the signs are not persistent, so depending on when the doctors did the test, its possible they could have missed the inflamed tissue and ruled it out early on. Or, they could just be morons.

    12. Re:Surprised? by Kokuyo · · Score: 3, Insightful

      My, what a decidedly uninsightful and outright nonsensical post.

    13. Re:Surprised? by Anonymous Coward · · Score: 0

      That's exactly right. They saw a dollar sign hovering over her head.

    14. Re:Surprised? by ArcherB · · Score: 5, Insightful

      Really sounds to me like a combo of on-again off-again symptoms and symptoms that are fairly generic (i.e., shared w/ lots of conditions) than doctors and labs trying to squeeze ever last buck out of someone and their insurance. Now, if there is a problem if the first thing they do is run expensive tests for exotic diseases or something like that. I mean, a responsible physician would consider the a priori odds of each condition. And while I'm sure there are plenty of "quacks" out there, I'm not sure that's the first conclusion I would reach for in this particular case.

      Exactly! Her symptoms could have pointed to IBS, poor diet, allergies, repeated food poisoning or even hypochondria. I don't expect a doctor to run every patient with a headache through an MRI. If this poor student truly was visiting quacks, they would have run every test known to man on her just to pocket the CHIP money!

      What I really want to know is how they got a sample of her intestinal tissue for a high school science class.

      --
      There is no "I disagree" mod for a reason. Flamebait, Troll, and Overrated are not substitutes.
    15. Re:Surprised? by Anonymous Coward · · Score: 1, Insightful

      Many diseases go un-diagnosed, on both sides of the pond. Just because your kids aren't smart enough to take care of business doesn't mean your health care system is any better. Certain statistics (and fans of Michael Moore) will disagree, but considering that medical care is the practice of crafting a unique solution to an ever changing set of problems for every single citizen, it's pretty hard to generalize with one anecdotal incident the superiority of any system. Get off your high horse, and go brush your teeth.

    16. Re:Surprised? by morgan_greywolf · · Score: 3, Interesting

      Yes. In fact, I know 3 people with Crohn's disease, and it is, in fact, difficult to diagnose. I realize 3 people doesn't make a study, but all 3 were undiagnosed for years, despite each having seen a veritable army of doctors. The problem is that symptom-wise Crohn's disease often looks like a lot of other stuff, like ulcerative colitis, dysteria (and other viruses), lactose intolerance, food allergies, various infections, etc. With the flare-ups as described, it goes like this:

      Patient: I've had diarrhea and cramps for 2 weeks now.
      Doctor: Huh. Probably an infection. Here, let's give you some antibiotics.

      A couple of weeks later, everything is cleared up, doctor assumes that the antibiotic worked. The patient then gets another flare up, doctor think it's something else, lather, rinse and repeat.

      (Disclaimer: my mother, my wife, and sister-in-law all have medical backgrounds, but I don't short of reading scientific articles generally geared at lay people, along with some professional journal articles. YMMV)

    17. Re:Surprised? by ILongForDarkness · · Score: 4, Funny

      Yeah a lot of self diagnoses probably revolved around: "It hurts when I pee ... that bitch/bastard" :-)

    18. Re:Surprised? by thedirektor · · Score: 2, Insightful

      The problem with package inserts (at least here in europe) is that if there is even a small chance of a rather uninteresting and non-dangerous drug interaction it will end up in the package insert, why? liability!
      And at least here the package insert usually doesn't specifiy which interaction has been encountered, and the same goes for the doctors version of "package inserts".

      Same goes for side effects, I'd say anything you do, eat, take or otherwise endulge in can have effects on your body that are undisirable.

      In my opinion the pill (well there are differenct kinds, i think we are talking oestrogen based) is a very save medication which has been tested for decades, and I often have to wonder how high the correlation (not even speaking of causality) between pill and sideffects realy is.

      Another interesting read btw.:
      http://www.newscientist.com/article/dn7915--most-scientific-papers-are-probably-wrong.html

    19. Re:Surprised? by albedoa · · Score: 2

      How did that happen? You told your doctors you were having problems every time you drank milk, and they neglected to draw a connection from the problems to the dairy? I can't imagine how stupid your doctors must have been.

    20. Re:Surprised? by Mong0 · · Score: 5, Informative

      According to the article her pathologist gave her the slides for the class project.

      --

      --- Errr......No I don't need more oral sex thank you, Windows goes down on me all the time.

    21. Re:Surprised? by Anonymous Coward · · Score: 0

      What I really want to know is how they got a sample of her intestinal tissue for a high school science class.

      That's *exactly* what I was wondering. I certainly don't recall being able to take internal samples of myself in my high school science classes!

    22. Re:Surprised? by RackinFrackin · · Score: 1

      You can add a 4th to that mini-study. It took a few years of being treated for GERD, H. Pylori infection, and a few other things before I was finally diagnosed with gastroesophageal crohn's disease. I went through the same thing you described above. On separate occasions I took combinations of antibiotics, reglan, H2 blockers, and proton pump inhibitors. Each one helped to temporarily ease things a little, but never made the problem go away. I was finally diagnosed after exploratory surgery.

    23. Re:Surprised? by Japie_H · · Score: 3, Interesting

      Wonder how they missed it (granulomas are relatively "easy" to spot). During lectures from pathology they would always show slides and point out a million different things only visible to them!

      That said Crohn's disease is really nasty because it is a transmural (contrary to ulcerative collitis in which "only" the upper layer is inflamed) and can occur throughout the whole digestive tract (from mouth to anus...) Quite a lot of patients need repetitive surgery to remove inflamed intestine.

      As other pointed out as well most of the symptoms are common which makes it a difficult to diagnose (cause you can't put every patient trough a endoscopy, for financial, patient well being and capacity reasons).

      There are off course typical cases but most patients do not have the decency to stick to the symptoms they should have according to the text book ;)

    24. Re:Surprised? by Anonymous Coward · · Score: 2, Insightful

      A single episode of diarrhea isn't very specific, but a history of 8 years of persistent diarrhea is sufficient to warrant a colonoscopy, just as you'd want to investigate a decade of headaches more closely than a single non-severe episode. Although the pattern of diarrhea and pain make IBS a differential, the vomiting and fevers aren't typical of it. Additionally, since IBS tends to be exacerbated by stress and because IBS sufferers have a higher prevalence of illness-related anxiety and depression, certain tests should be performed as "due diligence", to reassure patients that they do not have a life-threatening illness and to foster a good relationship between the patient and physician. This would greatly help in the setting of hypochondria and somatization as well. Recurrent food poisoning and food allergies should be tested with dietary changes and logging and patients should be reevaluated if symptoms don't clear up within several weeks.

      In other words, she absolutely should have been tested with the length of her history and with the suspected differentials. Each differential diagnosis in the list you had mentioned is a falsifiable hypothesis subject to the scientific method, and thus reasonable tests should be conducted to attempt to discard each. The hypotheses that remain are the most plausible.

      The interesting thing about this article is that she's probably had a colonoscopy with biopsies already, which must have come back clear. There's no other way I can see her getting the tissue. In this case, it sounds like the pathologist simply missed the granuloma the first time around, which illustrates the need for a second reader and/or computer-assisted diagnosis more than anything else. It shouldn't come to the point that the patient becomes that second reader.

    25. Re:Surprised? by ta+bu+shi+da+yu · · Score: 1

      I've yet to hear about an 18-year-old European who is capable of diagnosing her/himself. I'm pretty impressed with what this girl did and the system that made it possibe.

      The system that made it possible was the microscope, which was invented in The Netherlands. The Netherlends is located in Northwestern Europe. It's also, somewhat ironically, the country you use to justify your largely narrow-minded comments. Just so you know.

      --
      XML is like violence. If it doesn't solve the problem, use more.
    26. Re:Surprised? by ceoyoyo · · Score: 1

      Crohn's isn't always a clear cut diagnosis, particularly in early stages, in the young. It's also one of those diseases that doesn't have perfectly well defined boundaries separating it from the next disease.

      It's possible she was told "well, you probably have Crohn's or something similar" and that got translated by her, a journalist and an amateur Slashdot summary writer as "her doctors were unable to figure out the cause of her sickness."

    27. Re:Surprised? by hoooocheymomma · · Score: 1

      Really, I've kinda lost my faith in the diagnostic abilities of a lot of doctors

      Yep. I have no trust in any doctors. There have been so many times I have received conflicting information from different doctors, for just information that doesn't make sense to me from individual doctors. For a long time, I blindly trusted them and just assumed that medical conditions and their symptoms were supposed to be confusing and seemingly illogical.

      Of course, it turns out: if you're able to investigate any issue in the physical world with even a remote degree of aptitude, then you're probably able to get a pretty good handle on what ailments you have or DON'T have. NEVER take anything a doctor says at face value. They have a lot of patients, and they need to get you out of their office so they can get to the next one.

    28. Re:Surprised? by moosesocks · · Score: 1

      Are you serious? Half of the reason why we have such high medical costs are the over-the-top malpractice provisions we have in our laws.

      If she can prove that the doctor overlooked a simple diagnosis in favor of an expensive treatment, that doctor will likely never practice medicine again, and will be forced to choke up a heavy settlement.

      The physician might be stupid for missing the disease, but there's no way he's stupid enough to hedge his career on such a risk. Hanlon's Razor is generally a good guidline: "Never attribute to malice what you can to incompetence"

      --
      -- If you try to fail and succeed, which have you done? - Uli's moose
    29. Re:Surprised? by Anonymous Coward · · Score: 0

      stop being so negative you idiot.
      first of all, doctors in the united states have to go through a ridiculous amount of schooling to even become a doctor - besides having to come out at the top of their classes to even GET to medical school. the sheer AMOUNT of knowledge they need to graduate from med school is crazy, something you yourself probably wont ever have. i mean for christs sake, im a physics major and i have to give it to them, premed and med students are way more hard working than me or any other physicist i know. these guys are the best of the best.
      id love you see your ass do something that amazing. and id love for you to say what you just said to the doctors who are gonna save your life down the road.

      plus a disease like Crohn's disease is hard to diagnose. you have to get lucky enough to get the portion of the intestines that have the granulomas. stack on top of that the sheer amount of tests that a pathologist has to conduct in a day. its really easy to miss a certain slide. consider the error rate for a normal programmer. its not anything unusual or awful for a human to make a human mistake and miss it.

      so stop your whining and stfu. i hope you die of some disease that is easy for doctors to diagnose but dont because youre a tard.

    30. Re:Surprised? by gad_zuki! · · Score: 1, Flamebait

      >The idiot medicos just pocketed the money for tests

      US healthcare is a capitalist system. The idea that people can be treated properly is very much secondary to its main goal: maximizing profits. I think people are finally understanding what capitalism means in healthcare, thus the recent interest in socializing healthcare.

      Currently its 100% legal to drag someone several years through the the system to milk their insurance. The doctors can simply argue that they wanted to be careful. The people arent quacks, theyre economically successful and understand how to play the game better than the rest. You dont pay off two mortgages and three cars by doing a good job. You do it by maximizing profits. A quick diagnosis for Crohn's is only a couple billable hours. 8 years of tests? Yeah, thats practically a summer cottage.

    31. Re:Surprised? by bitt3n · · Score: 5, Funny

      Yeah a lot of self diagnoses probably revolved around: "It hurts when I pee ... that bitch/bastard" :-)

      if you can't remember whether the offender was a bitch or a bastard, you're probably partly to blame

    32. Re:Surprised? by Hognoxious · · Score: 2, Insightful

      It's called capitalism. Ain't got cash? Well we ain't got the answer.

      Even if you do have cash they don't have the answer. A cure means a one-off payment; palliatives are a long term revenue stream.

      --
      Confucius say, "Find worm in apple - bad. Find half a worm - worse."
    33. Re:Surprised? by Thansal · · Score: 1

      Then the doctor should SAY that, not just go "There is no possible side effects". Instead they should say: "Well, these are the possible side effects of taking X when you are already on Y. As that reaction is , I suggest you take the medication anyway", and because they are a doctor and should know these things, you should take their ruddy advice.

      --
      Do Or Do Not, There Is No Spoon, There Is Only Zuul. Everything in the above post is probably opinion.
    34. Re:Surprised? by mcvos · · Score: 1

      The system that made it possible was the microscope, which was invented in The Netherlands. The Netherlends is located in Northwestern Europe. It's also, somewhat ironically, the country you use to justify your largely narrow-minded comments. Just so you know.

      Are you seriously trying to say that being from the country where the microscope was invented makes a health care system beyond reproach?

      Also, you need more than a microscope to diagnose Crohn's. You need to know what you're looking for.

    35. Re:Surprised? by Anonymous Coward · · Score: 0

      Certainly it would have been irresponsible to run all the tests right away. But you have to imagine that these doctors "gave up" at some point in the 8 year time period during which they could not provide a diagnosis. Giving up when the Crohn's disease test is cheap (optical microscopy has been around for CENTURIES) means they were dumbasses. Eight years.

    36. Re:Surprised? by Anonymous Coward · · Score: 1, Insightful

      I'm sorry but parent and grandparent sound like medical industry apologists. I've been dealing with the same kind of ridiculous medical treatment (if you can call it that) for years, before figuring out what my problems is (celiac), and there's no damn excuse for the behavior of modern physicians, who seem to write everything off as paranoia, or hypochondria - despite some evidence that people with good information are quite good at self diagnosis. They are not doing their jobs as advertised. When I see them start to embrace information technology, then maybe I'll start to have some hope for them. Their out of date, out of touch, archaic - BS - authority system they have now doesn't cut it. Fewer and fewer people trust them, or even respect them, and their closed analog information and feed back (inter-doctor feedback - nothing from the public it seems) system is not helping them out.

    37. Re:Surprised? by Taibhsear · · Score: 2, Interesting

      According to the article her pathologist gave her the slides for the class project.

      How the hell did she pull that off? I can't even get my dentist to photocopy the xrays of my teeth for me to take home.

    38. Re:Surprised? by Emetophobe · · Score: 1

      I'm glad this girl was finally able to find out what was causing her digestive issues.

      Coincindentally, I've also been suffering for 8 years with severe digestive issues. I can barely eat anything without throwing up. Doctors here in Canada haven't been able to give me a diagnosis or help me at all. I've had dozens of tests over the last 8 years: endoscopes, upper and lower GIs, ultrasounds, cat scans, MRIs, blood and urine tests, etc.. Every test always comes back normal. Because I can't eat anything, I'm extremely frail and malnourished. I'm 26 years old, 5'9 and I weight just over 100 pounds. My entire body aches and I wake up every morning feeling like I have a severe flu. I have to take gravol every day to deal with my nausea. I'm so sick it feels like I have cancer, yet I've received no medical help or drugs to allieviate my pain.

      I was originally going to start college back in 2001. I've been programming since I was 13, both my parents are also computer programmers and it's always been my dream to be a programmer aswell. Right before I was about to start college I started getting sick. It's been 8 years now, time has really flown by. I've been unable to work or go to school and I've been on disability for the last 2 years. I've pretty much given up all hope of ever getting better or being able to do anything with my life. I've tried to kill myself numerous times, my mental is really deteriorating. The last 6 months have been particularly bad for me, I recently started going blind and my hearing is going out aswell. I'm scared, I know the end is near for me, I only wish it would come sooner.

      I have a lot of anger towards the medical establishment for not being able to help me. I know I have severe food sensitivities, if I eat diary, beef, pork or wheat/glutten I get extremely ill. I've had tests to see if I have Crohns or Celiac disease, but they came back negative. I've been told that it's hard to diagnose Crohns and Celiec disease, so maybe I have it and doctor's just haven't been able to diagnose it for 8 years, similar to the girl in this article?

    39. Re:Surprised? by SharpFang · · Score: 1

      But the symptoms she had discovered under microscope were on the same tissue samples doctors had used before, finding nothing out of ordinary - RTFA, these were the same slides that were used earlier by doctors to (unsuccessfully) diagnose her. Which means nothing else than sloppy work looking at the slides on their side.

      --
      45 5F E1 04 22 CA 29 C4 93 3F 95 05 2B 79 2A B2
    40. Re:Surprised? by pogle · · Score: 1

      You are essentially correct. I suffer from Chrohn's myself, and was only diagnosed about 2 years ago (I'm 27 now). I had periods of chronic flareups, including what I thought at the time were incidences of food poisoning, as far back as when I was 14. I never even saw a doctor for most of it. I ascribed it to certain foods (I suspected a lactose intolerance or possible issues with starch), and just tried to avoid stuff that 'didnt agree with me'.

      When I finally saw a doctor at the ER it was because I had a flareup that didn't end for several months, and was unable to eat towards the end and keep it down. The ER gave a tentative diagnosis as Chrohn's, but I was literally moving 2 states away the next day, and at the new location it took a specialist a further 2 months to confirm for sure it was Crohn's. They basically went with a process of elimination, dropping possible causes one by one, til Crohn's was really all that was left.

      It seems to be one of those conditions (of course there are many) which isn't fully understood, and theres only a slowly growing awareness about it; I see more and more stuff on it recently that wasn't around a couple years ago. Its not surprising that she went so long without a proper diagnosis given the way it behaves.

      I just wish there was a more reliable way of treating it when the diagnosis is finally made, and since that girl seems to have a pretty bad case, I wish her luck. I've been on prednisone for 2 years now, and the side effects from it are most unpleasant, but its the only thing thats worked.

      --
      http://thechubbyferret.net - Ferret pictures and informative links.
    41. Re:Surprised? by mickisdaddy · · Score: 0

      I had my thyroid removed 6 years ago and had to start taking thryroid pills. I started having symptoms of the thyroid hormone being off, but my doctor said the levels were fine. He wanted to give me medicine for depression, insomnia, etc rather than try adjusting my thyroid meds. I fired his but right then and there.

    42. Re:Surprised? by Anonymous Coward · · Score: 0

      I have crohn's disease. It took about 10 years before I FOUND a doctor who was able to diagnose it. The simple truth is that most doctors can't recognise the disease because they have never seen a patient like that before, and simply don't know which tests to perform. Once I found a doctor who was specialized in what I thought I had, the diagnoses was simple and fast after 1 test.

      What I really want to know is how they got a sample of her intestinal tissue for a high school science class.

      If you have crohn's part of it can come out together with your stool. It looks slimy, very recognisable.

    43. Re:Surprised? by Amouth · · Score: 1

      I was diagnosed with Chron's 2 1/2 years ago.. once they figured it out - it made my life make alot of sence.. i had always had pains and was constantly sick but nothing was constant it would come and go - but when it falmed up to the point where i couldn't move due to the pain - that is when they had to figure out what was going on. it took 2 weeks to figure out what it was.. and i was actualy mis diagnosed the first week and was given a "special diet" that caused me so much pain i wanted to kill my self.

      do i blame the doctors for that one? no.. the first one was a diagnosis from an ER unit.. they made the best with the info at hand and it all fit.. the second one was with a specialist with more info..

      now the fact that this girl had been seeing doctors for years and even got the "clean slides" from her pathologist means he is at fault here.. he should have seen it - and if he missed it then he isn't doing his job.

      if a doctor makes a mistake because of a lack of info that is understandable - but when the info is right there and they just overlook it.. that is careless and dangerous..

      while i know there are people with psycholigical disorders that make them thing they are constantly sick or have some uncurable or exotic desies.. but in reality.. i was say most people - if they are going to continue to go back and forth to the doctor over any amount of time.. legity have something wrong..

      --
      '...if only "Jumping to a Conclusion" was an event in the Olympics.'
    44. Re:Surprised? by pleappleappleap · · Score: 1

      Time to find a different dentist.

    45. Re:Surprised? by rgviza · · Score: 4, Interesting

      I thank god every time I go to my doctor. He's awesome. I met him because I needed a second opinion. I was developing carpal tunnel syndrome and my old doc wanted to operate, so I did the smart thing and got a second opinion. My current doctor was like "Take that brace off. Take one aspirin every morning and it will clear up within a week or two. Here's a strong analgesic to get it started. See your tendons are inflamed. The swelling causes the tendons to be sore because they are pushing out against the "guides" (he used normal person speak for me). This is a vicious cycle because this rubbing causes further inflammation. The aspirin will take the swelling down and allow the irritation to heal. You are definitely on your way to CTS, but you don't need an operation yet and it's preventable."

      Within a week it was gone. He's been my doctor ever since.

      He recommended that I start working out and biking to fix my chronic acid reflux problem, which also worked. My old doctor just put me on medication. I'm pain and completely medication free because of this guy. Not bad for someone my age.

      Great doctors are out there. Hope you find one, listen, and do what they tell you...

      -Viz

      --
      Don't kid yourself. It's the size of the regexp AND how you use it that counts.
    46. Re:Surprised? by Hatta · · Score: 1

      There are far more quacks out there than decent doctors in my experience.

      You really wouldn't be surprised if you ever took a class with medical students. Just about the only question I ever heard asked was "Will this be on the test?".

      --
      Give me Classic Slashdot or give me death!
    47. Re:Surprised? by JiveDog · · Score: 1
      As a Crohn's patient for the past 21 years, your appraisal of the situation is just plain wrong. Crohn's Disease is very hard to diagnose and when I first started manifesting symptoms, it took over 6 months to discover the disease. There is nothing straight-forward about the diagnosis since the symptoms, on the surface, appear to be any number of maladies.

      This girl is lucky to have caught it on her own, I know others who have gone for years without getting a correct diagnosis.

      As far as it being "common," 2 million affected puts it above some diseases but it's far from common.

    48. Re:Surprised? by Anonymous Coward · · Score: 0

      Really sounds to me like a combo of on-again off-again symptoms and symptoms that are fairly generic (i.e., shared w/ lots of conditions) than doctors and labs trying to squeeze ever last buck out of someone and their insurance. Now, if there is a problem if the first thing they do is run expensive tests for exotic diseases or something like that. I mean, a responsible physician would consider the a priori odds of each condition. And while I'm sure there are plenty of "quacks" out there, I'm not sure that's the first conclusion I would reach for in this particular case.

      Exactly! Her symptoms could have pointed to IBS, poor diet, allergies, repeated food poisoning or even hypochondria. I don't expect a doctor to run every patient with a headache through an MRI. If this poor student truly was visiting quacks, they would have run every test known to man on her just to pocket the CHIP money!

      What I really want to know is how they got a sample of her intestinal tissue for a high school science class.

      If you had read the article it states that she obtained the slide with the tissue sample from her doctor. The lab/doctor had it in their possession and should have picked up on it if a high school student in a science lab did.

    49. Re:Surprised? by thogard · · Score: 1

      Your doctor should have a big thick book that describes most drugs and the ratios of common and even very rare side effects.

    50. Re:Surprised? by Anonymous Coward · · Score: 0

      I have crohn's disease. I was a whole 95lbs at 5'8" by the time they figured it out. That's a damn stick figure. Even after I was finally diagnosed I'd be in wretched pain and on going to the doctor's office would be told I just have gas.

      I don't even know what to compare the pain to that someone without the disease could relate to; suffice it to say it used to be bad enough on some occasions to cause me to pass out.

      All the meds they gave me only prompted me to puke in rainbow colors and make my face explode (fucking steroids)

      I ended up being operated on when I was dragged in a semi conscious state to the hospital one night and had 3 sections of my intestines removed, amounting to a bout a total of 2 feet. That crusty old surgeon who retired almost right after my surgery and left me with a gaping scar is the only doctor I'll ever thank.

      That ended up doing miracles for me. Even after, the doctors wanted to keep me on a host of medicines I, as much as I knew how at that age, basically told the nit wit fuckholes to leave me the hell alone.

      And it was for the better. I live unmedicated, and happy, more or less symptom free. And after about 3 trips to MEPS and two months of constant doctors visits to prove my health, I even enlisted in the Marine Corps for 4 years. I was something of a oddity; people familiar with crohn's disease used to look at me with mild amazement.

      and fuck anyone who says, "I was gonna join, but..."; you just didn't try hard enough. Hope it feels good.

      I digress from my rant though...

      I commend her for taking control of her problem and finding out what the fuck it is that's causing her suffering. 1st half of the battle is over. Now she can tell the docs to go screw and work on the second part - living with the disease and figuring out how to deal with it in her own way.

    51. Re:Surprised? by rcamans · · Score: 1

      In order to make that particular diagnosis, you have to first get out of your mama's basement.
      So most /dotters just won't understand your joke.

      --
      wake up and hold your nose
    52. Re:Surprised? by MBGMorden · · Score: 1

      I gotta agree. I as in pain for ages. Had one doctor tell me it was just residual from breaking the leg earlier, and another tell me that I was flat footed and recommended that I get arched shoe inserts. Eventually I finally got a correct diagnosis of gout and began an allopurinol regime. I haven't had a flare up in over a year now (whilst I USED to get them every month).

      It almost seems a requirement these days to make 3-4 trips to different doctors to get a correct diagnosis.

      --
      "People who think they know everything are very annoying to those of us who do."-Mark Twain
    53. Re:Surprised? by djfuq · · Score: 0

      It's called capitalism. Ain't got cash? Well we ain't got the answer. Gotta love it. Survival of the richest, litteraly. How did this benefit mankind?

      I hate how slashdot will mod someone who is cynical, as a troll because their beliefs are challenged. The poster absolutely has a valid opinion that is based on experience. If you dont like it then that should be evidence you probably need to reexamine your perception of reality.

      I feel the same way about capitalism and medicine. They are two ideas that shouldn't merge for obvious ethical, moral and humanist reasons.
      I know this because:

      -: I grew up in this industry doing tech support and helpdesk.
      -: I have friends who are auto mechanics
      -: The more money you pay, the more interest in solving your problem
      -: have have been misdiagnosed by doctors just like her, and after that, through careful study I found the issue and presented it to the doctor who reacted most unprofessionally (like being caught selling malware posed as antivirus) and I had to eventually cure myself.
      -: I have since watched Michael Moore's SICKO and found through excellent journalism that my feelings were valid.

      Capitalism does not serve HUMAN needs well- we need to be creative and come up with a more ethical and intelligent way of rewarding people for work/goods rendered.

      --
      Dj fuQ [url="http://djfuq.org"]djfuq urges you to listen to the beats[/url] [url="http://djfuq.org"]http://djfuq.org[
    54. Re:Surprised? by Anonymous Coward · · Score: 0

      Well, that is why I always ask the pharmacist about drug interactions. It is their job to know.

    55. Re:Surprised? by Thuktun · · Score: 1

      I'm not surprised either.

      I ended up getting shunted to a nurse practitioner when I tried to see a doctor about numbness in the pinky and part of my ring finger in my left hand. She insisted it was carpel tunnel and had me wear a wrist brace.

      I've only had a single biology class in high school and nothing beyond that, but this didn't make sense to me. I dug out an anatomy book and noticed that this area of the hand was served by the ulnar nerve and passed by my elbow. Rather than being careful with my wrist, I needed to be more careful with my elbow, which I had been propping up on my desk and the door of my car.

      Granted, she's not a doctor, but I expect even RNPs have to take a physiology and anatomy course at some point in their studies.

    56. Re:Surprised? by Tim4444 · · Score: 1

      Why would they diagnose Crohn's disease? There's not much drug treatment for that. They probably diagnosed her with something that needs lots of lucrative prescriptions.

      btw. mad props to this girl for the diy initiative. i hope she makes a career in research.

    57. Re:Surprised? by tsm_sf · · Score: 1

      Your doctor should have an easily searchable database containing every drug combination and potential effect known to man.

      We're almost to 2010 here, people. Get with the program.

      --
      Literalism isn't a form of humor, it's you being irritating.
    58. Re:Surprised? by Anonymous Coward · · Score: 0

      Ask a pharmacist not a doctor for prescription complication info, doctors only know what the sales rep feeds them or what little research they do themselves.

    59. Re:Surprised? by filthpickle · · Score: 1

      I'm pretty sure that your pharmacist already does.

      I have to work with doctors sometimes...from my experience they would probably refuse to use it if they had it.

    60. Re:Surprised? by Anonymous Coward · · Score: 0

      Still, it took a highschool student looking through a microscope no nicer than the one in the doctor's office to make the diagnosis. If the doctor couldn't spare 10 minutes of a medical technician's time (Not even a specialist, just a med tech) to look for abnormalities, they would have had it. It's cool that the kid found it, but extremely disappointing the doctors didn't since according to TFA the doctor gave her the slide she looked at for class.

    61. Re:Surprised? by Grishnakh · · Score: 1

      Doctors suck. My wife got pregnant because her stupid doctor prescribed an antibiotic for her and neglected to tell her that it negated the effects of the pill.

    62. Re:Surprised? by nomadic · · Score: 1

      Are you serious? Half of the reason why we have such high medical costs are the over-the-top malpractice provisions we have in our laws.

      Have you even LOOKED at medical malpractice laws lately? I know in my state doctors are heavily protected. The statute of limitations is short and there are caps on both damages and attorneys' fees, and to even begin the action the plaintiff has to get an affidavit from a medical expert that negligence probably occurred.

      And you don't win a malpractice case against a doctor by proving the doctor gave the wrong treatment, but rather that the doctor failed to follow his or her standard of care, which is a lot harder.

    63. Re:Surprised? by Jah-Wren+Ryel · · Score: 2, Insightful

      US healthcare is a capitalist system. The idea that people can be treated properly is very much secondary to its main goal: maximizing profits. I think people are finally understanding what capitalism means in healthcare, thus the recent interest in socializing healthcare.

      Currently its 100% legal to drag someone several years through the the system to milk their insurance. The doctors can simply argue that they wanted to be careful.

      You appear to think that socializing healthcare will stop that phenomenon. Why?

      It seems to me that the phenomenon is due to the "insurance" side - the side that disconnects results from payment. Without insurance, people would pay for each treatment out of their own pocket and they sure as shit wouldn't put up with a constant series of procedures and tests that don't yield results. Seems to me that socializing healthcare would just mean even less accountability for excessive testing. It isn't like tests suddenly become zero-cost under socialized healthcare, the people doing them are still going to get paid for doing them. Unless doctors are forced into a quota system for testing, there is going to be just as much incentive to over-test as there is now. And I don't think anyone could argue that a quota system would improve healthcare, only arbitrarily cap costs without regard to effectiveness.

      What we really need is a system that tightens up the relationship between payment and results, not one that loosens it even further than it already is.

      --
      When information is power, privacy is freedom.
    64. Re:Surprised? by Anonymous Coward · · Score: 0

      Well, you want more proof that doctors don't know much about human bodies? Let's take a case of high blood pressure of 155/90 @ mid twenties (had it for at least a decade). Cause - primary hypertension (unknown causes). So, doctor gives me beta blockers. That hammers my heart rate from 65 to 30 and I feel like 80 year old. About a week later get him to switch me to ACE Inhibitor because beta blockers will just not cut it for active people. Well, the first ACE Inhibitor (Mavik) caused sharp headaches at top of my head and behind my left eye. Hell, the pain was very similar to all the symptoms for a freaking aneurism - got a CT scan of the brain. Nothing. Switched ACE to Perindopril and oops! Headache went away! ACE Inhibitor lowered BP to 145/80. Took that for about a year but started developing pain in my chest muscles. Sharp, localized pain in the muscles (always in same area). Intensified over a period of a year and doubling dosage of ACE. Also started developing funny little pain in my chest whenever I was put in any stressful situation. Doctor insisted it is NOT ACE Inhibitor. Well, eventually I stopped ACE. That actually caused the BP to drop for a week down to 130/80 before heading back up to 155/90. The pain disappeared within few months. Doctor still insists it CANNOT have been caused by the ACE Inhibitor. In the mean time, got put on a dietetic - BP lowered to maybe 145/90.

      In the meantime, I got a new family physician. Told the new physician about previous problems with ACE Inhibitors and maybe could try something else. Was given an ARB. Took 1/2 of the smallest dose available and BOOM, blood pressure went down to 115/70. Been there ever since. No pain, no side effects for the last few weeks. I hope it stays that way.

      No, doctors will not check ACE levels in blood. They will not even want to know if there is something interesting going on why ACE Inhibitors caused problems and did not result in blood pressure reduction, but ARB works so well at minimal dosage. Hell, they are suppose to act on the same system (though from other sides). And the specialist even told me that ARB are a fad and are no better than ACE Inhibitors - I guess I'm a proof that he's wrong :P

      So yes, diagnosis abilities of doctors sucks. You have to realize they are NOT scientists. More of an artsy crowd than anything else. Most doctors are not researchers. And most think they know more than they actually do. They'll tell you something is impossible, not improbable. They'll tell you that doesn't happen even if they just don't know anything about it. If a doctor cannot say "I don't know", then the doctor kind of sucks.

      Find a physician that can listen. That can say "I don't know" when they don't know :) Yes, they are out there!

    65. Re:Surprised? by Pranadevil2k · · Score: 1

      I read a story not too long ago about some guy in his 60s who was taking 18 different medications prescribed for things ranging from high cholesterol, exhaustion, arthritis, and depression, and he recently was experiencing forgetfulness, so his doctor was going to put him on Alzheimer's medication. He went to a friend of his who was a pharmacist, and the guy looks at the list and says almost everything he's taking drugs for is a side effect of a drug interaction. He writes up a list of other drugs he could be using and mails it off to his doctor, who refuses to listen to the pharmacist. So the old guy gets a new doctor and is now on 4 medications for his cholesterol and arthritis and all his other problems vanished.

    66. Re:Surprised? by Anonymous Coward · · Score: 0

      Furthermore, they all bitch and moan at having to take a few challenging courses, exclaiming that they shouldn't have to take the course! See: biochem

    67. Re:Surprised? by Grishnakh · · Score: 1

      It's definitely not, as this happened many years before we even met.

      Asshole.

    68. Re:Surprised? by Anonymous Coward · · Score: 0

      Exactly! Her symptoms could have pointed to IBS, ...

      Yeah, sure. It's always easier to diagnose some invented "syndrome" with an ICD number but no medical explanation and no cure, than an actual disease.

      or even hypochondria.

      Even better. I'm not saying there are no hypochondriacs, but most of the times it's a copout.

    69. Re:Surprised? by bretticus · · Score: 1

      Maybe a group of first years. Which I can sometimes understand, given the ridiculous amount of minutiae presented my some PhDs. I'm sure your research into enzyme XYZ is really interesting Dr. SoAndSo, but maybe you could teach us something a little more relevant instead of wasting my time?

      Show me the third year asking his attending what's going to be on the test.

    70. Re:Surprised? by Shabazz+Rabbinowitz · · Score: 1

      It's a well known fact that fifty percent of all doctors graduated in the bottom half of their class.

    71. Re:Surprised? by Anonymous Coward · · Score: 0

      "I don't expect a doctor to run every patient with a headache through an MRI."

      That has always pissed me off - an MRI machine is an electronic device. They should be running 24 hours a day. Moore's Law for manufacturing these things should apply, and they should be manufactured in China and cost $24.95 each by now. Everybody should own at least five of them. I DO expect a doctor to run every patient through an MRI, whether they've got a headache or not, and they shouldn't charge more than about 5 bucks for each one too.

    72. Re:Surprised? by sik0fewl · · Score: 1

      I know, what the fuck??

      After reading the first sentence my first guess was one of Crohn's, ulcerative colitis, or irritable bowel syndrome, leaning towards Crohn's because of the apparent severity.

      How can this not have been diagnosed?

      --
      I remember when legal used to mean lawful, now it means some kind of loophole. - Leo Kessler
    73. Re:Surprised? by Anonymous Coward · · Score: 0

      What I really want to know is how they got a sample of her intestinal tissue for a high school science class.

      I know, right?

    74. Re:Surprised? by Anonymous Coward · · Score: 0

      Crohn's disease is pretty common, so how come it wasn't diagnosed? The idiot medicos just pocketed the money for tests, hospital stays, appointments, medical certs etc for 8 years while the girl suffered? Hmmm. Come to think of it I'm not that surprised. There are far more quacks out there than decent doctors in my experience.

      Normally I would disagree with you, except that after reading only the first sentence of the summary I said "I bet it's Crohn's disease." For the record, I work in IT and have no medical training other than basic CPR. Of course I was also diagnosed with Crohn's 19 years ago, so I guess that gives me a bit of an advantage. Still, it seems odd to me that in 8 years nobody would have figured out what's wrong with her. It only took about 9 months and 13 doctors before I was diagnosed with Crohn's, and even that was ridiculously long.

    75. Re:Surprised? by dov_0 · · Score: 1

      I just went by the number of people I've known with either Crohn's disease or irritable bowel syndrome. As far as common, 1/1000 is considered reasonably common. For the record I also suffer from chronic illness (not Crohn's), which was diagnosed by my Mother after almost two years so bad I don't even have much memory of them. My Dad was diagnosed with the same condition after maybe 30yrs of suffering. The tests are straight-forward, the diagnosis easy. It's even pretty common, but most doctors don't have a clue about it. Go figure.

      --
      sudo mount --milk --sugar /cup/tea /mouth /etc/init.d/relax start
    76. Re:Surprised? by Anonymous Coward · · Score: 0

      your an idiot, she got her OWN sample... took it to school with her.... and diagnosed herself. and therefore OWNING THE SHIT (excuse the pun) OUT OF HER DOCTOR!!!!!!!!!!1

    77. Re:Surprised? by Anonymous Coward · · Score: 0

      Sounds like your Doctors are retarded. Addison's isn't rare enough to get a episode on House, I think John Kennedy had it.

      Where are you, the middle of Alaska ?

      I second your idea to find new docs.

    78. Re:Surprised? by Anonymous Coward · · Score: 0

      I can totally understand the problems with the pill. Just last week my Gyno insulted me when my Birth Control wasn't working correctly, insinuated that I was doing drugs because I was having problems with it. Then when I insisted that she give me something different (and after repeatedly telling her that I didn't want pills and that I had had bad experiences with any pill form medication) she shoved pills in my face. Completely ignoring the fact that I'd had serious stomach problems with lower dosage pills, and that I have heart problems (it's a well known fact that Oral Contraceptives can cause heart-attacks, and the pill she prescribed has a high enough dosage that if I don't react well, it could kill me). I've had chest pain, nerve problems, and haven't been able to eat properly since I started taking the pill.

      Also, as far as not being diagnosed, I have a similar (if unresolved) issue. I've been sick for 10, almost 11 years. I have severe joint pain and muscle aches, chronic headaches, chronic fatigue, and a host of other problems, and no doctor has ever taken the time to even consider figuring it out. They just tell me to take pain meds (which I happen to be non-responsive to. All pain killers) and send me home. I have more ideas than the doctors do.

    79. Re:Surprised? by Kokuyo · · Score: 1

      Chances are slim, but if you should happen to look at the replies here I'd like to point you at NFP.

      http://en.wikipedia.org/wiki/Natural_family_planning

      While many forms of it are not as effective as the pill or a condom by far, my wife, and many other women, successfully use it and have used it for years.

      The important part is under 'Limitations'. You do have to invest a bit of work. A combination of symptoms-based, calendar-based and basal-temperature-based methods prove to be just as secure as the pill itself without any of the side-effects (like the libido crash-landing and never getting back on its feet again).

    80. Re:Surprised? by Anonymous Coward · · Score: 0

      Another shout out for anybody suffering from an unidentified intestinal disorder...

      I "diagnosed" my Celiac's disease (Gluten-sensitive enteropathy) a year ago--the doctor still had to order the tests and do the endoscopy. It took years to figure out, but my symptoms were not that clear until recently.

    81. Re:Surprised? by ResidntGeek · · Score: 1

      Have you tried Remicade and/or Pentasa? I've been under control for years with either or both of those at different times.

      --
      ResidntGeek
    82. Re:Surprised? by Evets · · Score: 1

      It exists. Actually I've seen two versions. Not sure if either provide ratios, I didn't pay that close attention.

      I've seen a large one that a pharmacy student friend had. My pharmacist has a copy behind her counter that I recognize. I saw a pocket version carried by my wife's OB - which he referenced frequently whenever prescribing medication or asked about medication. The OB's book categorized drugs with a letter based safety code for pregnant women. He usually knew the answer, but always checked the book to verify he was correct.

      No other doctor I've been to has referenced one of these books in front of me. Maybe they are more confident in their knowledge, maybe they check outside the room. More likely, they prescribe the same things over and over and have a comfort level with them.

    83. Re:Surprised? by Anonymous Coward · · Score: 0

      When I was a child I was lactose intolerant, every night I suffered from stomach aches and would mostly cry myself to sleep. It took many doctors to figure out I was lactose intolerant. Which hits a nerve with me because no one in my family has ever been lactose intolerant; and they shouldn't rely so much on family history.

    84. Re:Surprised? by zevans · · Score: 1

      "Moore's law should apply" - well, it does to the post-processing of the images, but the big constraints are in the scanning technology, where fitting more logic gates onto the same amount of silicon just isn't going to help.

      http://www.wired.com/science/discoveries/news/2001/03/42583 - explains what the cheap and expensive aspects of the setup are...

      --
      "... and more and more now there are all kinds of electronic goodies available" -- Pink Floyd 1972
    85. Re:Surprised? by Lunzo · · Score: 1

      In Australia there was a case of a heart clinic performing scans on perfectly healthy people because the government was picking up the tab. The thing is they got away with it for a while but they eventually got caught and prosecuted. You can have socialized medicine and scrutinize how the money is spent, its not necessarily a black-hole for public funds.

    86. Re:Surprised? by Jah-Wren+Ryel · · Score: 1

      In Australia there was a case of a heart clinic performing scans on perfectly healthy people because the government was picking up the tab. The thing is they got away with it for a while but they eventually got caught and prosecuted. You can have socialized medicine and scrutinize how the money is spent, its not necessarily a black-hole for public funds.

      But who would you personally want scrutinizing the funds for your procedures - you, or someone for whom your death would be just another number?

      --
      When information is power, privacy is freedom.
    87. Re:Surprised? by pogle · · Score: 1

      My doctor has been reluctant to do Remicade; they've had me go through 3 other meds trying to avoid doing the hospital outpatient thing.

      They're setting me up for Cimzia now, but there was a screwup with my insurance (doctor ticked the wrong box on a form), and now I've got to wait out a stupid appeals process to get it covered.

      --
      http://thechubbyferret.net - Ferret pictures and informative links.
    88. Re:Surprised? by Anonymous Coward · · Score: 0

      And that would be why there are separate pharmacists from the doctors who know drug interactions way better than the docs themselves.

    89. Re:Surprised? by mackyrae · · Score: 1

      When it comes to Crohn's, it's mostly process of elimination. My boyfriend has it, and the way he figured this out, is his doctor told him to drop dairy so that his lactose intolerance wouldn't interfere. Did that help? No...ok, drop gluten. That help? No...ok.... and after lots of playing with his diet and some tests, you reach the point where it's "ok, this isn't IBS, it isn't your lactose intolerance flaring up, it isn't an allergy...must be Crohn's."

      Playing with his diet also had the added bonus of teaching him which foods cause it to flare up. He knows that red meat is the worst (too much work to digest), poultry just behind that, and fish after that. Plants only have him in the usual state of constant, mild pain (as opposed to the sharp pain animals cause), so he sticks to that.

      --
      look! it's a bird, it's a plane, it's....a girl? yes, a girl browsing Slashdot on Linux
    90. Re:Surprised? by 'The+'.$L3mm1ng · · Score: 1

      I'm lactose intolerant, too, but I don't like drinking milk. Suppose you get a problem from the salami pizza, then try the veggy pizza without problems. It can't be lactose then, because both pizzas had cheese, right? It was the salami then, right? Yes - because in many cases, for reasons beyond me, they put lactose into salami - while most types of yellow cheese contain barely any lactose. They put lactose in everything else though, where you don't expect it, so diagnosing LI is really not that easy.

      BTW: Digestive Advantage really helps, I ordered it to Germany because it's not really known or easily available here.

  5. Hmm by El+Lobo · · Score: 5, Interesting

    Interesting: while reading about her symptoms, Crohn's Disease was the first think that came to my mind. And no, I'm not a doctor. So what kind of doctors were seeing her? Veterinary ones?

    --
    It's time to realise that Abble's products are the biggest abomination these days. Just say NO to the dumb iAbble way!!
    1. Re:Hmm by Rosco+P.+Coltrane · · Score: 5, Funny

      I don't know, I used to suffer from the exact same symptoms during my years at university living on curry and cheap lager. Bad eating habits is the first thing that came to my mind personally.

      --
      "A door is what a dog is perpetually on the wrong side of" - Ogden Nash
    2. Re:Hmm by Anonymous Coward · · Score: 1, Informative

      Yes, the "for eight years" is a giveaway... And yes, i am a doctor... Though an *european* one...

    3. Re:Hmm by El+Lobo · · Score: 1

      Yes, it can easily be something else, but having the same symptoms for EIGHT freaking years and not making a simple test that could confirm or discard a so relatively common disease as Crohns... That makes me wonder.

      --
      It's time to realise that Abble's products are the biggest abomination these days. Just say NO to the dumb iAbble way!!
    4. Re:Hmm by Anonymous Coward · · Score: 1, Informative

      Interesting: while reading about her symptoms, Crohn's Disease was the first think that came to my mind. And no, I'm not a doctor. So what kind of doctors were seeing her? Veterinary ones?

      Without an AP science class, it took me 45 years to get a diagnosis for Chrohn's/Colitis.

      Yes, many if not most doctors are that worthless.

    5. Re:Hmm by TheRaven64 · · Score: 3, Interesting

      So what kind of doctors were seeing her? Veterinary ones?

      Unlikely; they'd probably have diagnosed it quickly. Vets have to have experience with a number of species and with patients who can't describe their symptoms. It used to be the case (not sure if it still is) that vets were allowed to practice as doctors without additional certification, while the reverse was not true due to the extra breadth of their training.

      --
      I am TheRaven on Soylent News
    6. Re:Hmm by cthulu_mt · · Score: 4, Funny

      Lots of people go to college for eight years...

      --
      Virginia is for lovers. EVE is for griefers.
    7. Re:Hmm by deander2 · · Score: 1

      living on curry and cheap lager.

      since she was 8? =P

    8. Re:Hmm by hey! · · Score: 5, Insightful

      Well, experts make mistakes too, and they're different than tyro mistakes.

      My primary care doctor is experienced and well known in the local medical community for his skills. One time I had an infection on the right side of my face; it was puffed up and rashy and I had a temperature of 103. He told me to get into his office right away; it sounded serious and he wanted to see me himself. He didn't want to leave this to some kid doing his residency at the emergency room. So he looks through my medical history, scrutinizes the rash, and in his best Sherlock Holmes manner announces that I have shingles. Shingles? Of course! I had chicken pox when I was baby, but the virus can stay dormant for decades, only to emerge as shingles.

      So he sends me home with a prescription for Acyclovir ( which makes me sick to my stomach on top of having an infection), and instructions to call if anything changes at all. So I take my antivirals, and the next day I'm not any better. The day after that, my temperature goes as high as 104 and now the left side of my face is starting to swell. I call him up and as soon as he hears that he knows he was completely wrong. Shingles spreads along nerve paths; it doesn't cross the center of the body. He gives me an antibiotic prescription and by my second dose I felt great. I had a temperature of a 100, but after 104 that feels wonderful. After a full day on the antibiotic I was pretty much back to normal.

      Every time I see my doctor now, he looks sheepish, because he made such a big point of not trusting my case to some kid straight out of medical school. The irony is that I'd have been better off with that kid just out of medical school. That kid wouldn't have been so certain based on his clinical experience of similar looking rashes. He'd have double checked, maybe done some kind of test, buy my doc had seen this situation before and dealt with is successfully. What I had was a staph infection, which can take on a wide variety of appearances. My rash apparently looked a bit like slightly atypical case of shingles. I must have been so satisfying when his memory dredged up my childhood chicken pox and made that connection. I'll bet that fact that it was a little atypical looking actually made the conviction more firm, because it made the deduction seem all that more clever.

      I understand this, though. I've dealt with enough experts in my work to recognize that this is the kind of mistakes experts make. A conclusion that ties up all the details of a problem tidily, yet so unlikely to be arrived at by a less experienced professional is almost irresistible. You can't expect even an expert to avoid mistakes. However, you do expect him to be on the lookout for mistaks and to correct them. The fact that the kid in this article had the problem for years but they never went back to the start of the decision tree to see where they went says something bad about her doctors.

      --
      Post may contain irony: discontinue use if experiencing mood swings, nausea or elevated blood pressure.
    9. Re:Hmm by Jason+Levine · · Score: 1

      Oddly enough, with Crohn's Disease, you can get flare-ups when you eat healthy. Fresh fruit and veggies are out and fried foods are in. As one nutritionist told a friend of mine with Crohn's: "We'll take care of your Crohn's now and treat your cholesterol later."

      --
      My sci-fi novel, Ghost Thief, is now available from Amazon.com.
    10. Re:Hmm by thesolo · · Score: 1

      Thank you, I was thinking the exact same thing, one sentence in. Maybe it's because I know people who do have Crohn's, but it seemed to me that it would be something you'd bring up as a possibility to a patient with recurrent symptoms.

    11. Re:Hmm by Anonymous Coward · · Score: 0

      Yeah, and I'm sure it had nothing to do with the fact that you subconsciously saw "Chron's disease" written a line or two below. :P

      I'm constantly amazed at how many times I want to comment something and then realize that not only has it already been said, but it's actually one of the popular tags that was staring me in the face. I know I subconsciously read ahead, so I'm guessing you do as well.

    12. Re:Hmm by mcvos · · Score: 1

      So what kind of doctors were seeing her? Veterinary ones?

      Don't mock veterinarians. They know their stuff. When granny dies, people just say her time had come, but when somebody loses a cow, they can get quite upset.

      (Apologies to Terry Pratchett)

    13. Re:Hmm by Anonymous Coward · · Score: 0

      What I want to know is how the hell did she get her own intestinal tissue on a slide in her high school science class? I wouldn't want to be her partner!

    14. Re:Hmm by kraada · · Score: 5, Insightful

      I call him up and as soon as he hears that he knows he was completely wrong.

      and

      Every time I see my doctor now, he looks sheepish, because he made such a big point of not trusting my case to some kid straight out of medical school.

      These two sentiments are why I'd trust your doctor. Everyone makes mistakes. Your doctor seems to be good at realizing when he did it, correcting his mistake quickly, and remembering it for a while (enough that he feels obviously guilty). That'd make me trust more that he'd care and do the right thing by me to the best of his ability.

    15. Re:Hmm by Hurricane78 · · Score: 1

      Well, guess what's the real source of most diseases? ^^

      But doctors do not care to find the real source. It only takes time. better give her some pain "medication", and see you next week. $$$

      --
      Any sufficiently advanced intelligence is indistinguishable from stupidity.
    16. Re:Hmm by Hurricane78 · · Score: 1

      European? Say your damn country, for goat's* sake!
      There is no such country as "Europe", and there will never be!
      No matter what those EU-dictators say.

      ___
      * Sounds about the same, has about the same chance of making your wishes come true. I like it. ^^

      --
      Any sufficiently advanced intelligence is indistinguishable from stupidity.
    17. Re:Hmm by Anonymous Coward · · Score: 0

      Just a quick reply, and no, I'm not a vet.
      Veterinary docs have multiple times the training in diagnosis than people docs for the specific reason that their patients can't tell them "What / where / why hurts"
      I'd rather be diagnosed by a vet any day.
      C

    18. Re:Hmm by ceoyoyo · · Score: 1

      This is why we haven't replaced physicians with medical enyclopedias. There are a bunch of diseases that match her symptoms. You thought of Crohn's because you're familiar with it. If she'd had something else, you would have thought "huh, sounded like it could have been Crohn's" and forgotten all about it.

    19. Re:Hmm by Threni · · Score: 1

      At the end of the day, though, no-one cares about you except you. You can pay people to care, but they go home at 5pm - you're stuck with a stomache ache. Look it up - I would.

    20. Re:Hmm by Anonymous Coward · · Score: 0

      good post, as a Pilot there are always two of us working trying to catch each other's mistakes....in the medical field I guess they call that a second opinion

    21. Re:Hmm by Anubis+IV · · Score: 1

      Most of us have been trained by years of watching House, ER, Grey's Anatomy, Scrubs, and whatever else to automatically diagnose people with an uncommon disease once they exhibit some matching symptoms. In the real world, those diseases just don't happen all of that often, so while Crohn's Disease may have been the first thing that came to mind for you, for a practicing physician, it would probably be one of the last.

    22. Re:Hmm by Barny · · Score: 1

      And yet its been proven that Crohn's doesn't benefit directly by foods except to avoid high-fibre and particularly hard seeds.

      The other problem is that one of the treatments for it uses a steroid group that causes lots of water retention and weight gain, meaning any fatty foods you eat end up making your head look like a beach ball.

      --
      ...
      /me sighs
    23. Re:Hmm by kklein · · Score: 1

      Heh, I wish I'd read this this morning. I was just trying to explain to my (non-native-English-language) writing students why it was important for any serious research to use as many sources as possible--because even really good researchers, etc., can make mistakes, and that doesn't mean they are bad researchers or doctors or whatever; it means they're human.

    24. Re:Hmm by Ambiguous+Puzuma · · Score: 4, Funny

      It's funny you should mention Scrubs--in one episode Dr. Cox teaches a lesson about exactly that.

      J.D.: So, judging from the ataxia dysarthia and the mental status change, I've concluded that Mr. Yeager is suffering from...Kuru.
      Dr. Cox: Kuru?
      J.D.: Kuru.
      Dr. Cox: Kuru.
      J.D.: Yes, Kuru.
      Dr. Cox: Wow. I'd actually never thought of that.
      J.D.: Hell, yeah.
      Dr. Cox: Were you aware that the only documented cases of Kuru were members of a cannibalistic tribe in eastern Papua New Guinea?
      J.D.: I was not.
      Mr. Yeager: Actually, Doc, I was in New Guinea just last week.
      J.D.: Really?
      Mr. Yeager: No.
      Dr. Cox: Newbie, do you happen to know what a zebra is?
      J.D.: That patient just mocked me!
      Dr. Cox: It's a diagnosis of a ridiculously obscure disease when it's much more likely that the patient has a common illness presenting with uncommon symptoms. In other words, if you hear hoof-beats, you just go ahead and think horsies -- not zebras. Mm'kay, Mr. Silly Bear?

    25. Re:Hmm by richlv · · Score: 1

      I had a temperature of 103.

      oh damn. first thing that came to my mind - "that would require increased pressure"

      --
      Rich
    26. Re:Hmm by Doctor+Faustus · · Score: 1

      Interesting: while reading about her symptoms, Crohn's Disease was the first think that came to my mind.
      I've seen someone else the same thing, but I expect the list of just the symptoms relating to the Chron's wasn't laid out so nicely for the actual doctors involved.

      I do think the pathologist who actually saw her slides should have seen it, though.

    27. Re:Hmm by Volante3192 · · Score: 1

      Yeah, they're called doctors.

      Wait a minute...

    28. Re:Hmm by musclemerc · · Score: 1

      I just wanted to say I commiserate. I had a small 'blotch' on my jaw that a Nurse Practicioner diagnosed as Viral as I did not have a fever the day I went to see her (my primary was not available). This despite my complaints of a fever and aches the day before and it being warm to the touch. In the next days it flared up and ended up exactly like your situation. The most noticeable side-effect was blisters on my ears, which after some reasearch on WebMD I knew could be shingles, but I also knew shingles was not very likely in my age group. In my case urgent care diagnosed it correctly as an infection (they said strep, but it could have just as easily been staph), and after some hard core antibiotics I was fine. At the time I thought it was very strange; it is comforting to have some company.

    29. Re:Hmm by fluxrad · · Score: 1

      That's the exact response I had. More importantly, any competent gastroenterologist should have tested for Crohn's disease after seeing her initially.

      --
      "It is seldom that liberty of any kind is lost all at once." -David Hume
    30. Re:Hmm by Anonymous Coward · · Score: 0

      Occam's Razor: he fewer assumptions an explanation of a phenomenon depends on, the better it is.

    31. Re:Hmm by Anonymous Coward · · Score: 0

      So what kind of doctors were seeing her? Veterinary ones?

      As a veterinarian, I feel compelled to chime in on your comment. As TheRaven64 pointed out, vets are experienced with multiple species, and our patients cannot talk to us. We get out information from owners, thorough physical exams, and tests that will yield the highest diagnostic value. In fact, vets are required to know things about humans also, because of zoonotic diseases. We have to educate owners about things like Toxoplasmosis and pregnancy, endo and ectoparasitic zoonotic potential, infectious diseases (WNV, H5N1, H1N1, foot and mouth disease, mad cow disease, etc). In fact a lot of veterinary specialists keep up with both human and veterinary medical literature.

      We don't claim to be physicians, but as veterinarians, we have to know a lot about various species, including their potential abilities to impact humans.

      An interesting sidenote is that Johne's disease in cattle is suspected to be similar to Crohn's disease in humans.

    32. Re:Hmm by risk+one · · Score: 1

      Also

      ... and instructions to call if anything changes at all.

      suggests that he may have actually expected something like this to happen, and you getting sick was a calculated risk. Maybe this was the best way to find out what was wrong with you, and the 104 fever was just a little higher than expected.

    33. Re:Hmm by Pranadevil2k · · Score: 1

      Playing devil's advocate:
      Crohn's Disease comes with infrequent flare-ups and not all symptoms present themselves at any given time. It's easy to say "Over the past 8 years I've had diarrhea, stomach pain, and vomiting," but a doctor looks at what she is having now. They treated her diarrhea with an antibiotic three months ago and it went away, so the vomiting now must be something new, right? If she'd had all the symptoms at once, it would be much more likely diagnosed.

    34. Re:Hmm by Anonymous Coward · · Score: 0

      Or maybe he wasn't wrong initially. An episode of shingles can predispose to secondary infections. Maybe you had an episode of shingles, which was treated appropriately, but you developed a secondary infection (from the staph which is always on your skin anyways...and an outbreak of shingles implies decreased immune defense). The shingles is self-limited anyways, and the antibiotic treated the infection. Wow, you're like the first person ever to have more than one concurrent medical problem.

      That's like saying you went in with chest pain, and while the doctor managed your myocardial infarction appropriately, your kidneys failed (which can happen after a heart attack) and boy was he silly for not treating your kidneys first.

      Keep your day job.

    35. Re:Hmm by Mex · · Score: 1

      Richard Feynman has a wonderful story about how he figured out his wife's illness on his own, going against the prescriptions of the doctors who were treating her.

      Truth is, doctors are usually so rushed most of the time, to see as many patients as possible, that they don't really pay attention anymore.

    36. Re:Hmm by Anonymous Coward · · Score: 0

      "In the United States, most standard academic programs are based on the four-year bachelor's degree (most often Bachelor of Arts, B.A., or Bachelor of Science, B.S.), a one- or two-year master's degree (most often Master of Arts, M.A., or Master of Science, M.S.; either of these programs might be as much as three years in length) and a further one or two years of coursework and research, culminating in comprehensive examinations in one or more fields, plus perhaps some teaching experience, and then the writing of a dissertation for the doctorate (most often doctor of philosophy, Ph.D. or other types such as Ed.D., Psy.D., Th.D.) for a total of ten or more years from starting the bachelor's degree (which is usually begun around age 18) to the awarding of the doctorate." [http://en.wikipedia.org/wiki/Academic_degree#United_States] ( * )

    37. Re:Hmm by Anonymous Coward · · Score: 0

      It's not Lupus

  6. Health Care by schmaustech · · Score: 5, Funny

    The story points out how our health care system is like the Geek Squad: poor troubleshooting. In the end the client has to figure out their problem.

    1. Re:Health Care by dangitman · · Score: 2, Funny

      The story points out how our health care system is like the Geek Squad: poor troubleshooting. In the end the client has to figure out their problem.

      Well, I wouldn't trust any of my systems, electronic or biological, to a group of people primarily employed to bite the heads off chickens.

      --
      ... and then they built the supercollider.
    2. Re:Health Care by GaryOlson · · Score: 1

      The health system is more like a bunch of teenagers: quickly moving from one medical fad to another. Then convincing the customer to pay money for whatever "cure" or "supplement" which the doctor can get a kickback^H^H^H^H^H^H^H^Hcommission. I really hate having to argue with the doctor to tell him I am not interested in his latest fund raising scheme. And, I have tried other doctors.

      --
      Every mans' island needs an ocean; choose your ocean carefully.
    3. Re:Health Care by Thanshin · · Score: 2, Funny

      The story points out how our health care system is like the Geek Squad: poor troubleshooting. In the end the client has to figure out their problem.

      "I've got a brainsplitting headache"
      "Have you tried switching it off and on again?"

    4. Re:Health Care by AndrewNeo · · Score: 1

      Everyone knows it's just easier to buy a new one! Wait..

    5. Re:Health Care by schmaustech · · Score: 0

      I think that is why Best Buy bought the Geek Squad. Mission: Frustrate the hell out of consumers so they just buy a new computer. What a racket, like the health care industry.

    6. Re:Health Care by T+Murphy · · Score: 1

      Geeksquad will probably just tell you to replace the whole computer, so are you suggesting your doctor can perform body transplants?

    7. Re:Health Care by Pranadevil2k · · Score: 1

      Oh, it wasn't plugged in. I'm glad you always ask me that question!

    8. Re:Health Care by kkrajewski · · Score: 1

      You always have to anyway. When I bring my car or bike to the mechanic I don't say, "Something changed in the brakes," I say "Can you please install this new master cylinder for me?"

    9. Re:Health Care by Anonymous Coward · · Score: 0

      my local geek squad does a great job =o

  7. Maybe an old Crohn's disease by AussieSlasher · · Score: 4, Interesting

    I thought this was a joke when I first read it. Crohn's disease is actually quite a common ailment so I cant believe no doctor diagnosed this. Where did she get a sample of her own intestinal tissue? I mean seriously...

    1. Re:Maybe an old Crohn's disease by kaaposc · · Score: 3, Funny

      Finger. Nail. (ouch!)

    2. Re:Maybe an old Crohn's disease by ArcherB · · Score: 1

      Finger. Nail. (ouch!)

      How is this a troll statement? What mod did this guy piss off in the past?

      Seriously though, how did she get a sample of her intestinal tissue? There are only two entry points to the intestines.

      --
      There is no "I disagree" mod for a reason. Flamebait, Troll, and Overrated are not substitutes.
    3. Re:Maybe an old Crohn's disease by DarthVain · · Score: 1

      First thing that I came to mind... She just happened to have a sample of her own intestinal tissue just hanging around.

      Also I guess this was the class where teacher is like "OK everyone, grab some tissue samples from you self and grab a microscope! Who said school isn't fun?"

      Maybe her lab partner got to extract a sample, they certainly got the fun part of the lesson that's for sure!

    4. Re:Maybe an old Crohn's disease by Anonymous Coward · · Score: 0

      I didn't RTA, but - the CNN report a couple days ago said she requested her lab samples from her doctor.

    5. Re:Maybe an old Crohn's disease by Billly+Gates · · Score: 1

      The tests are probably more expensive.

      Accountants and not doctors make the decisions on the tests as most PPOs and MMOs refuse to cover any unnecessary tests. Meaning they will test for years and years before performing the more expensive ones. Also if the disease is serious like cancer the patient can die quicker which could save them more money. Insurance companies are evil SOBs who delay cancer treatment and other diseases as long as possible to get patients to die so they can cut costs.

    6. Re:Maybe an old Crohn's disease by againjj · · Score: 1

      Seriously though, how did she get a sample of her intestinal tissue? There are only two entry points to the intestines.

      From her pathologist.

    7. Re:Maybe an old Crohn's disease by thepotatoman · · Score: 1

      I remember having to do cheek swabs, which I guess is part of your digestive tract. Does that work with Crohn disease tests?

  8. So what by Rosco+P.+Coltrane · · Score: 4, Funny

    I diagnoezd my own disleksya at skool yeers ago. Since zen I'v goten a lott beter.

    --
    "A door is what a dog is perpetually on the wrong side of" - Ogden Nash
    1. Re:So what by TaoPhoenix · · Score: 0

      "Since zen...lott"

      What is the sound of Trent Lott campaigning on racial compassion?

      --
      My first Journal Entry ever, in 8 years! http://slashdot.org/journal/365947/aphelion-scifi-fantasy-horror-poetry-webzine
    2. Re:So what by Thanshin · · Score: 1

      I diagnoezd my own disleksya at skool yeers ago. Since zen I'v goten a lott beter.

      Ha ha, yu rote "dysleksia" uith teh "i" frist!

      Yur dumb.

    3. Re:So what by Anonymous Coward · · Score: 0

      I used to enjoy reading before I got the downs.

    4. Re:So what by kidgenius · · Score: 1

      Dislexia.....or from the sounds of it, you're German ;-)

    5. Re:So what by Anonymous Coward · · Score: 2, Funny

      As I always tell others:

      I put the sex in dyslexia!

    6. Re:So what by Anonymous Coward · · Score: 5, Funny

      That's not funny. My brother died from dyslexia.

    7. Re:So what by krenshala · · Score: 1

      didn't read the stop sign fast enough?

      --

      krenshala

    8. Re:So what by AndrewNeo · · Score: 1

      "TOPS? Well, okay!"

    9. Re:So what by Anonymous Coward · · Score: 0

      Even worse, my brother was born because of dyslexia
      - my mother keeping all her pills in the same drawer.

    10. Re:So what by Anonymous Coward · · Score: 0

      That's not funny. My brother died from dyslexia.

      Okay, I'll bite. How did he die from dyslexia?

    11. Re:So what by Hognoxious · · Score: 1

      You know those little sachets, the ones with "Silica gel - do not eat" written on them...?

      --
      Confucius say, "Find worm in apple - bad. Find half a worm - worse."
    12. Re:So what by Anonymous Coward · · Score: 0

      Dyslexics of the world, untie!

    13. Re:So what by Kingrames · · Score: 2, Funny

      No, he went to a convenience store with acid reflux, and someone shot him when he asked for some SMUT.

      --
      If you can read this, I forgot to post anonymously.
  9. They couldn't diagnose her? by tygerstripes · · Score: 4, Insightful

    For eight years her doctors were unable to diagnose Crohn's Disease? Shit, that's appalling. It's not exactly an obscure condition requiring House MD's staggering intellect, is it? It's been known about for at least a century, and while it's known to be difficult to diagnose with certainty, you'd think someone would have considered it...
    Still, kudos to her.

    --
    Meta will eat itself
    1. Re:They couldn't diagnose her? by Bigos · · Score: 2, Insightful

      probably she was diagnosed with hypochondria :-(

    2. Re:They couldn't diagnose her? by pz · · Score: 1

      For eight years her doctors were unable to diagnose Crohn's Disease? Shit, that's appalling. It's not exactly an obscure condition requiring House MD's staggering intellect, is it? It's been known about for at least a century, and while it's known to be difficult to diagnose with certainty, you'd think someone would have considered it...
      Still, kudos to her.

      Yes, kudos to her.

      I have a hard time believing that her doctors were unable to diagnose such a common, and often hereditary disease. I'm highly suspicious. The pathologist involved (read the article) must not have done a very good job --- but the fact that they took an intestinal biopsy means that Crohn's was suspected. Perhaps the real lesson here is to remember that nearly every medical test has a certain rate of accuracy, and the rate is rarely 100%.

      I have two distance cousins with Crohn's, and it isn't quite as bad as the article makes it out to be, at least in their cases. It's often highly treatable with stomach acid inhibitors (prilosec and the like) and controlled diet.

      --

      Put my fist through my alarm clock with its ding-dong death inside my ear. - The Blackjacks.
    3. Re:They couldn't diagnose her? by Subverted · · Score: 1

      Not that surprising, really... I lived with symptomatic celiac for 14.5 years w/o knowing it. I never liked sandwiches and self-regulated. Only when I was in HS did I start taking in enough gluten to actually make it impossible for me to function anywhere near normally(I missed 80 days of school in one quarter of the year). Even with all that going on it took doctors 3 years to figure it out. And then it was a test that wasnt supposed to be run but was a typo. The joys of not fitting the one major symptom(frailty/stunted growth from malnourishment) but rather being 6'2" and 265lbs and thus not having the doctors check for it at all... After being diagnosed, almost all the illnesses in my life made sense, which is just excellent evidence that simple things do slip by doctors, even doctors who are specialists in a certain field.

    4. Re:They couldn't diagnose her? by jamesoutlaw · · Score: 2, Informative

      The disease affects each person differently. I got diagnosed with it about 5 years ago and did not have the usual symptoms. I developed some pain in my abdomen that I initially thought was a pulled muscle ... it got progressively worse over a couple of days and I ended up going to the emergency room. As it turns, out my small intestine had ruptured and a large abscess had formed in my abdomen. The following day a surgeon removed about 30 cm of my ileum as well as about 15 cm of the lower part of my colon. I've been in remission ever since and have not experienced any other problems. However, a biopsy did confirm that I have Crohn's. I've been on 50 mg of azathioprine since then and also have to get monthly B-12 injections because my body can no longer absorb that vitamin properly (most of it is absorbed in the ileum).

      A friend of mine has been suffering with it since he was a teenager (he's in his 40's now). He has had multiple surgeries and his colon is in horrible shape. Because of his condition he now has a permanent ileostomy and no longer has the use of his colon.

      If you are interested in a really severs case, please read the story of "RandyNoGuts" ... http://www.randynoguts.com/

      I feel pretty lucky to have gotten off with a "mild" case, but there are many thousands of people who are not so lucky.

    5. Re:They couldn't diagnose her? by Anonymous Coward · · Score: 0

      I believe it. After over 15 years of symptoms, I self-diagnosed Ulcerative Colitis and Celiac disease. Years later, I finally have some of the energy I used to have when I was a child.

  10. Where did she get the intestinal tissue? by kenh · · Score: 3, Insightful

    While looking under a microscope at slides of her own intestinal tissue in her AP science class

    --
    Ken
    1. Re:Where did she get the intestinal tissue? by filtersweep · · Score: 2, Informative

      Either a fecal smear, or from her own testing at the doctor. You decide.

      --


      Those that suggest you "dance like no one is watching" really want to see you make a complete fool of yourself.
    2. Re:Where did she get the intestinal tissue? by Anonymous Coward · · Score: 0

      Foreign lab objects in the ass?

    3. Re:Where did she get the intestinal tissue? by Anonymous Coward · · Score: 0

      Either a fecal smear, or from her own testing at the doctor. You decide.

      Okay everybody, look the other way while I prepare my slide!

    4. Re:Where did she get the intestinal tissue? by Anonymous Coward · · Score: 0

      From her hamster.

    5. Re:Where did she get the intestinal tissue? by pz · · Score: 2, Insightful

      While looking under a microscope at slides of her own intestinal tissue in her AP science class

      That's what I wondered as well, until I read the article:

      In her Advanced Placement high school science class, she was looking under the microscope at slides of her own intestinal tissue -- slides her pathologist had said were completely normal -- and spotted an area of inflamed tissue called a granuloma, a clear indication that she had Crohn's disease.

      The logical inference is that some doctor had suspected Crohn's, ordered a biopsy (which, for intestinal tissue, is a non-trivial procedure) and had slides made up for pathological evaluation. Somehow young Jessica managed to get the slides, probably because she had good relationships with the doctor and pathologist on the case. She even had (or was able to discover) the email address of the pathologist so as to send him an image from the slide.

      I'm thinking the story isn't quite one of such significant medical ineptitude as the article makes it out to be.

      But, in any case, it really does help to read the article before asking questions that are answered in it.

      --

      Put my fist through my alarm clock with its ding-dong death inside my ear. - The Blackjacks.
    6. Re:Where did she get the intestinal tissue? by Anonymous Coward · · Score: 0
    7. Re:Where did she get the intestinal tissue? by russotto · · Score: 2, Interesting

      The logical inference is that some doctor had suspected Crohn's, ordered a biopsy (which, for intestinal tissue, is a non-trivial procedure) and had slides made up for pathological evaluation. Somehow young Jessica managed to get the slides, probably because she had good relationships with the doctor and pathologist on the case. She even had (or was able to discover) the email address of the pathologist so as to send him an image from the slide.

      I'm thinking the story isn't quite one of such significant medical ineptitude as the article makes it out to be.

      Well, it lets the doctor who ordered the biopsy off the hook, but it makes the pathologist look pretty inept.

  11. How is it possible? by adokink · · Score: 0, Redundant

    The only news here is that until her age nobody had imagined it was Crohn's disease. It is a pretty common disease!

    1. Re:How is it possible? by MichaelSmith · · Score: 1

      The only news here is that until her age nobody had imagined it was Crohn's disease. It is a pretty common disease!

      Yeah it happens. My 14 year old nephew has fungal meningitis. You expect that to happen if you have a suppressed immune system due to age or disease. In his case there just isn't a reason.

  12. Hmm... pretty self-evident by Anonymous Coward · · Score: 0

    Having ulcerative colitis and having had had my colon removed due to colon cancer which was caused by it, I could have told her without even looking at the microscope that she had either ulcerative colitis or Crohn's. I don't know what makes it so incredibly hard for doctors to diagnose. In my case I had symptoms for about 6 months before I realized that I must have either one. From this point on it took 4 different doctors before they could tell what it was. The first 3 were just incompetent morons thinking that "hey, I don't see any hemorrhoids in your ass, but you're bleeding from your ass, so it has to be hemorrhoids!".

    In my case I had my samples misdiagnosed by the first pathologist, but pressed my doctor to send them to another one. He immediately recognized what it was and even told my I had developed dysplasia which later developed to cancer. Way to go doctors!

  13. Science, is that what medicine doctors lacks off? by La+Gris · · Score: 1, Interesting

    Do doctors only rely on pre-mashed medical condition patterns as a rotting knowledge to help patients?

    I often wondered how it look like so difficult as a patient to get proper diagnosis and treatment most of the time. And this look so weired from a computer literate point of view.

    At some point, animals tend to get better medicine.

    Perhaps patients would benefit better treatments if doctors practiced more science than magic art.

    --
    Léa Gris
  14. The fresh pair of eyes have it by richardcavell · · Score: 5, Insightful

    The original CNN story mentions that sometimes a fresh pair of eyes can spot something that the first pair didn't see. Coders and authors will be familiar with the idea. Sometimes you've looked over something and worked on it so much that you can no longer analyse it from the beginning, and it takes someone else to verify one's work. That's why nurses aren't allowed to dispense medicine unless they get another nurse to check that they have selected the right medicine and the right dose and the right patient. Also, the fact that this patient had a vested interest in making the diagnosis means that she would have examined the slide thoroughly. (Doctor) Richard Cavell

    1. Re:The fresh pair of eyes have it by mrboyd · · Score: 5, Insightful

      Also, the fact that this patient had a vested interest in making the diagnosis means that she would have examined the slide thoroughly. (Doctor) Richard Cavell

      That's what I would expect from my doctors!!!

    2. Re:The fresh pair of eyes have it by GaryOlson · · Score: 0, Troll

      Dr Cavell -- the Slashot OSS doctor.
      Do you have a CVS where I can upload by medical records and lab samples for a second opinion? Has anyone seen a Subversion plugin for lab samples?

      --
      Every mans' island needs an ocean; choose your ocean carefully.
    3. Re:The fresh pair of eyes have it by BinaryOne · · Score: 1

      The whole reason for a second opinion. Having watched three woman in my family develop Breast Cancer only to find out that the lesions were visible for years on prior x-rays and were missed by the original radiologists. In the era, you have to be your own medical advocate.

    4. Re:The fresh pair of eyes have it by tsstahl · · Score: 0, Troll

      That's what I would expect from my doctors!!!

      No, that is what you _desire_ from your doctor. What you should expect is a level of effort commensurate with the reduced compensation rate 'negotiated' between your insurance carrier and the physician's practice.

      Pathologists and lab work in general make money on volume of results, not quality. Mere ethics are supposed to maintain quality.

      Now, free medical care for everyone is better how?

    5. Re:The fresh pair of eyes have it by mcvos · · Score: 1

      Exactly. If an untrained highschool student can find the problem, a doctor should be able to do it too. It's ridiculous to say that having a vested interest is more important than having medical training. That just means the doctor wasn't really trying.

    6. Re:The fresh pair of eyes have it by Fallingcow · · Score: 1

      Now, free medical care for everyone is better how?

      Why don't you look at the couple-dozen working, years-to-decades-old, real-world examples and figure it out for yourself? It's not like universal care isn't provided in, oh, every other "first world" country. Loads of data out there.

      Theory and ideology are fine. Observation trumps them, though, and we're fortunate to have a wide variety of UHC systems to observe.

      I recommend you start by watching this.

      Note: the program assumes that you understand how awful our system is compared to those of other comparable countries. If you don't already get that, maybe you should just start with Wikipedia and some Google searches. I'm confident you'll be convinced in short order as I've yet to find anything compelling in favor of our system, and I've looked for it.

    7. Re:The fresh pair of eyes have it by ceoyoyo · · Score: 1

      Someone with a lot of time on their hands can comb through a microscope slide very thoroughly too, while a pathologist really doesn't have a week to spend on one patient.

    8. Re:The fresh pair of eyes have it by mrboyd · · Score: 1
      I'm not about to lose sleep over their wages.

      Profession / Mean Wage
      Physician (MD/DO) $155,150
      Dentist $147,010
      Pharmacist $98,960

      Seems enough to me to do a thorough job.
      source: http://www.studentdoctor.net/2009/02/students-realistic-about-salary-expectations/

    9. Re:The fresh pair of eyes have it by Anonymous Coward · · Score: 0

      An actual M.D. may not analyze all tissue samples to start with, in fact that's rare, moreover I expect the pathologists in any department are so far overworked it's a wonder they find anything, not amazing they overlook things by mistake.

  15. Wow. by TheSpoom · · Score: 1, Insightful

    That it took them eight years to (fail to) diagnose something like this almost sounds like malpractice.

    Get a new doctor, kid, you deserve better.

    --
    It's better to vote for what you want and not get it than to vote for what you don't want and get it.
    - E. Debs
  16. Moral of the story... by the-bobcat · · Score: 2, Funny

    Don't send a professional to do a teen girls job ?

  17. I wonder... by teh.f4ll3n · · Score: 4, Funny

    ... if she now gets sued for "stealing" from "Private Doctor Association of America" (I'm sure there is one) by diagnosing her own self and not by paying a doctor to do it? Even though she did visit a pathologist.

    --
    Given the choise between Hitler and RIAA/MPAA I'd go for the first one - at least he knew when to shoot himself.
    1. Re:I wonder... by Anonymous Coward · · Score: 0

      "Private Doctor Association of America"

      Otherwise known as the AMA. No, they're not nice. No, most people don't realize the bastard organization is the root of most medical cost problems that gave rise to the HMO. No, they aren't going to solve the current health crisis, despite their backing of health reform (they only are because they realize they are now on the short end of the stick and this would open up the industry cap giving the new major player, namely the government, will be expanding care and patients). Yes, they are responsible for the doctor shortages, the accreditation limit, the foreign doctor restrictions, the state restrictions, and looking out exclusively for themselves.

      "by diagnosing her own self"

      Not so bad yet. You are allowed to diagnose yourself, but not treat yourself. Namely, you are unlikely to be able to acquire the medication if you are not licensed. You have to go through a doctor. Such is the nature of licensing.

      Most states additionally have restrictions against who can treat, in addition to the aforementioned limited access to approved drugs issue.

      "and not by paying a doctor to do it? Even though she did visit a pathologist"

      She's probably on solid ground because in most states, you own your medical records. That usually extends to written and film. I'm not sure about pathology slides, but I imagine it includes that, since it was turned over and the service paid for (usually if there is an issue, who paid for it and who was it in service of determines who owns the materal).

      There are many similarities here with copyright, people just don't seem to realize it. People generally hold doctors in high esteem, but for the most part, doctors are part of the problem, not the solution.

    2. Re:I wonder... by DarthVain · · Score: 1

      Don't you need some kind of license to practice medicine? I smell lawsuit!

    3. Re:I wonder... by martas · · Score: 1

      This would only be an appropriate analogy if RIAA/MPAA sued people who listened to music they recorded themselves without paying for it.

      Oh wait...

  18. What did they think it was? by Chysn · · Score: 5, Informative

    If you go to "My Electronic MD (dot com)", tell it you're a female, and give it the symptoms "chronic diarrhea" and "fever," Crohn's Disease is the first of three things to pop up, along with Ulcerative Colitis and Infectious Colitis.

    Of course, anyone can diagnose him or herself with a computer. It's encouraging that this young woman did it with a microscope.

    --
    --I'm so big, my sig has its own sig.
    -- See?
    1. Re:What did they think it was? by TheRaven64 · · Score: 5, Insightful

      It makes you realise what a waste of time most medical training is. We expect medical students to spend a massive amount of time and effort memorising lists of symptoms for particular diseases, when a relatively simple expert system could give them this information more accurately. Spending those seven years focussing more on their deductive reasoning and communication skills, rather than memorisation, would likely produce much better doctors.

      --
      I am TheRaven on Soylent News
    2. Re:What did they think it was? by Chysn · · Score: 1

      It makes you realise what a waste of time most medical training is.

      I certainly wouldn't generalize to that extent. If I'm sick, I'd still prefer a doctor with medial training.

      --
      --I'm so big, my sig has its own sig.
      -- See?
    3. Re:What did they think it was? by TheRaven64 · · Score: 3, Informative

      I'm not saying that medical training is worthless, I am saying that it is not an efficient use of seven years. Given seven years over which to train someone, a less memory-focussed program would be likely to give much better doctors.

      --
      I am TheRaven on Soylent News
    4. Re:What did they think it was? by ceoyoyo · · Score: 1

      So which one is it? Three possibilities is not a diagnosis.

    5. Re:What did they think it was? by Kozz · · Score: 2, Insightful

      I think your strategy is sound provided you promise to contract only the most common of diseases and maladies. :)

      --
      I only post comments when someone on the internet is wrong.
    6. Re:What did they think it was? by FreelanceWizard · · Score: 4, Interesting

      There was an expert system developed some time ago called Mycin. What made Mycin interesting is its high performance rate relative to other subject matter experts. In fact, to the extent to which this area's been pursued lately in academic circles (which is to say, not much; the current hot topics in AI are computer vision, emotion detection, embodied cognition, and robotics), the results have been similar. The expert systems produce results on par with, or superior to, experts in the field.

      That said, there's strong pushback in this area from doctors, just as teachers and school administrators are typically opposed to intelligent tutoring systems despite their excellent outcomes. Integration with other systems and the user interface have been issues as well; academic software tends to be of the "stovepipe" variety. There's also a legitimate concern about overreliance on the technology.

      It is worth noting, though, that the limited quality (in terms of sensitivity and specificity) of medical information means that the expert system actually needs to be relatively complex. You don't want the expert system to return thousands of equal probability diagnoses, or alternatively to leap to the wrong conclusion based on sparse data.

      --
      The Freelance Wizard
    7. Re:What did they think it was? by Nevyn · · Score: 1

      Crohn's & Colitis are linked for a reason, in fact the way to work out if you have Colitis is usually to test for Crohn's and if the test is negative you probably do (although you might still have Chrohn's).

      Saying that, C&C are "infamous" for being undiagnosed/misdiagnosed.

      --
      ustr: Managed string API with ave. 44% overhead over strdup(), for 0-20B
    8. Re:What did they think it was? by Anonymous Coward · · Score: 0

      Three possibilities is not a diagnosis

      No, but it should give you three tests to run to figure out what's going on.

    9. Re:What did they think it was? by ceoyoyo · · Score: 1

      Sure, but "you might have one of these three things" is unlikely to satisfy a patient. Why, years later they might even tell a reporter that "none of my doctors could figure out what was wrong with me!"

      If you do have infectious colitis it might be nice to know that, rather than thinking you have a chronic disease. Or being given antibiotics or immune suppressants, the usual treatments for Crohn's and non-infectious colitis.

    10. Re:What did they think it was? by Anonymous Coward · · Score: 0

      I don't say this to dispute your point; it's just funny to me.

      Several years ago, I had a bump on the back of my neck that was growing. If I prodded at it, I could feel that it was full of fluid. It was a boil. When I went to the clinic to get it fixed, the first person who saw me sat me down in a room and ran through the prompts of an expert system on her computer. When she was done, she looked very grave as she pulled the printout and left the room. After a bit, the doctor came in, looking at that sheet of paper. "Let's see this lump," she says, and I show it to her. "Well," she says, "the good news is, you don't have cancer."

      I think expert systems are great, but they can only be as good as the people who design them. That this was a boil was patently obvious to any human, but the computer was confused.

    11. Re:What did they think it was? by TheRaven64 · · Score: 1

      Which is why expert systems are not a replacement for human doctors. Expert systems used by competent doctors trained in their use, however, are much better than doctors expected to memorise everything, or expert systems operated by non-experts (although, I suspect, triage nurses may also have a lot of use for them).

      --
      I am TheRaven on Soylent News
    12. Re:What did they think it was? by b4dc0d3r · · Score: 1

      A person can make connections better than a computer can. Even if you reduce emphasis on memorization, you still have to give people a solid base knowledge. Especially if they work in emergency or live environments like ER or surgery. Since you can't know which ones will end up where, you have to teach everyone to memorize bunches of stuff.

      I think what you mean is, teaching medical students to rely on their memories is a horrible idea when the information is available electronically. Memorizing things and depending on those memories - that's the distinction.

      Teach them to put together information from their heads, medical journals, reference sources, other people, and any other source.

  19. Medical Community by gte275e · · Score: 1

    I have a lot of friends that have Celiac's disease, IBS, and/or Crohn's disease and the lack of medical personnel that know about these diseases is stunning. Especially Celiac's disease. It's an issue and as the prominence of these illnesses increases, more medical personnel will be educated about them which is good but right now, people with real issues, pain, and discomfort will continue to be misdiagnosed. I have one friend that found the 1 doctor in town that actually knew about Celiac's and another friend whose wife is having severe GI issues and the doctor has never even heard of Celiac's. It's a problem and we have to rely on the doctors to have the initiative to stay up to date on the current medical research.

  20. Not quite as easy as it seems by Cougem · · Score: 5, Informative

    In a year's time I will be a doctor, and have just spent a year learning about pathology, so I thought I'd put my view forward. The interesting thing about Crohn's disease, in contrast to the other big type of inflammatory bowel disease (Ulcerative colitis) is that it is characterised by skip lesions. The disease is not confluent over the entire gut, in fact it can be anywhere from mouth to anus, in small patches. Now do you start to see why a pathologist may miss it? They will have taken many specimens from the girl's GI tract, and if this is the only sample with a granuloma, then it's not too unforgiveable that a patch of cells only around 30 cells-wide is miss. Yes, it sucks, but pathology is actually a fairly bloody hard speciality, with an very vigorous set of examinations, at least in the UK, so don't imply that these pathologists don't know what Crohn's is. Life isn't black and white, and medicine is just the same.

    Maybe you guys instantly thought Crohn's, but there are plenty of other rarer diseases it could have been. Without a positive biopsy it would have been incredibly immoral to slap a Crohn's diagnosis on this girl and medicated her for it. It would have proved interesting were she have had say tropic sprue and you were to treat her with the immunosupressants.

    1. Re:Not quite as easy as it seems by kidgenius · · Score: 2, Insightful

      Here's what I'm thinking probably happened. She probably was taken to a doctor a few times when it first happened years ago, and it was attributed to something she ate, stress, etc. So the doctor(s) probably didn't order any kind of tests done. Then, after a while, she just stopped going until it was really bad, because her parents figured it was the same thing as before, so why bother paying a doctor. I would think that any doctor that saw her more than a few times would send her to a specialist to get a colonoscopy and some labs. Maybe her parents figured it was too expensive, and since this might have happened every 6-18 months, they just passed it off and figured they could deal with it at home. I'm suspecting there is some more to this story that isn't being told and I have a really hard time believing that the medical community would miss something like this for so long if the patient and the parents were doing their part. Or maybe I'm giving doctor's too much credit. I think it's probably a combination of both, coupled with CNN wanting to paint the picture of the "little guy" doing something that the "big guy" was unable to do. People love stories like that.....

    2. Re:Not quite as easy as it seems by BarMonger · · Score: 1

      Someone should mod this guy up.

      It's very easy for all of us armchair doctors to make a hindsight diagnosis of the illness.
      She most likely visited a number of skilled professionals but was very unfortunate with their diagnosis. This stuff happens now and then, people make mistakes.

      It's just unfortunate that no one cares about a story on doctors who diagnose their patients correctly.

    3. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 1, Interesting

      If your hypothesis is even remotely like what happened that's a rather interesting commentary on society. You see, many people have developed this attitude that you should never go to the doctor. It's not explicit. They implicitly avoid the doctor's because you have to stay healthy. In America diagnosis equals sick. So as long as you are undiagnosed you are "healthy" and can get health coverage. Should you get diagnosed as sick or with a persistent disease you will be harder to insure and have periods of your life as you move around the US or change jobs where you are not covered by health insurance. That's because pre-existing conditions are often not covered by US insurance so that means ... you can't have any problems for the first few months that you are at a new company.

      Even though its supposed to be illegal employers can identify who has a pre-existing condition and encourage those people to leave the company to increase the company's overall healthiness and lower its bills. Small cumulative effects like that build up in people's decisions. Having a persistent condition that requires treatment means you life will be more expensive and troubled.

      So our girl with the microscope just ensured she will be harder to employ, have a harder time keeping a job, and will pay more for all forms of insurance for the rest of her life. I could imagine that perhaps someone was trying to protect her from all that.

    4. Re:Not quite as easy as it seems by yabos · · Score: 4, Informative

      Reading the article, it says that she was looking at the exact slides that the doctors said were normal:
      "...slides her pathologist had said were completely normal..."

      So to me it sounds like the doctors missed it if she could find it on those slides.

    5. Re:Not quite as easy as it seems by Thanshin · · Score: 1

      Life isn't black and white

      Unless you suffer from a severe case of color blindness.

      Or you're blind and have an electronic vision implant.

      Or you're not human but a member of some creature that only sees the presence or absence of light.

      Or you're a radical fanboy of a certain game, fruit of the forbidden union of Populous and a Tamagochi.

    6. Re:Not quite as easy as it seems by Dravik · · Score: 1

      Your leaving out the other extreme. The parents did there part, but the doctor didn't listen to the patient. After all, they aren't doctors and patients can't be trusted. When they tried to shop around for other opinions they didn't get a serious look since a doctor had already written it off as nothing.

      --
      The purpose of language is communication, If the idea is clear the grammar ain't important
    7. Re:Not quite as easy as it seems by kidgenius · · Score: 2, Insightful

      I think the writer of the article took some liberties there. These are the "same" slides, in the way that they are slides of her GI tract, not that they were the actual exact same physical slides.

    8. Re:Not quite as easy as it seems by Cougem · · Score: 4, Interesting

      Yes, I've acknowledged that - as I said the pathologist will have been presented with many many samples, turned into slides, looking for a few, if any, granulomata, which are tiny in size. I even said "Now do you start to see why a pathologist may miss it?" It is very hard, if not impossible, to scan every single slide in its entirity, for a granuloma. Fortunately this girl found it, when the pathologist didn't. Props to her,

    9. Re:Not quite as easy as it seems by sjames · · Score: 1

      Of course, the pathology report was just one part of an 8 year long search for a diagnosis. Crohn's does immediately spring to mind, and there are ways to confirm or deny the diagnosis so it wouldn't be a matter of treating blindly. It's hard to believe it took the better part of 7 years for a doctor to even think of looking for Crohn's.

    10. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      BULLSHIT!

      First, the kid was sick for 8 YEARS. I think 8 years is [explicit language omited] long enough to scan each and every slide a thusand times for every possible form of granulomata.

      Second, how many slides could there that makes it "impossible" to scan them? Why the [explicit language omited] ask fo so many specimens if they are of no use? Or, maybe, it's that it's impossible to do between golf games?

    11. Re:Not quite as easy as it seems by Cougem · · Score: 2, Informative

      I'm sorry, where's the evidence saying it took 7 years to look for Crohn's? These slides may have been taken years ago. Really you do need endoscopy with bopsy, which this girl had and unfortunately came back negative. Whilst radiographs like CTs etc. and barium enemas/swallows can show lesions, this is only really with small bowel involvement leading to strictures, which she may well not have had. There are no specific antibodies like you get with Coeliac's diseases (anti-gliadin/anti-endomysial), and whilst you might get inflammatory markers like CRP/ESR raised in the blood, or leukocytes etc. in the faeces, these aren't remotely remotely specific for Crohn's, and would be expected in most GI pathology.

    12. Re:Not quite as easy as it seems by johnlcallaway · · Score: 1

      And one assumption is just as much a guess as another and proves nothing.

      --
      I rarely read replies, it's my opinion and if you thought about your opinion a little more, I'm OK with that.
    13. Re:Not quite as easy as it seems by DriedClexler · · Score: 1

      It is very hard, if not impossible, to scan every single slide in its entirity, for a granuloma.

      Right, except that that's your fucking job, genius. What do you think they're paying you for, the calm and reassuring voice?

      The girl found the granuloma because she was scanning the slides as if someone's actual health were at stake, rather than, as if it were something keeping her off the golf course.

      I'd have sympathy except that this matches the experience of every doctor I've had, like a neurologist who can't be bothered to tell the nurse the right medications I'm supposed to be on (this was a few years ago, thanks for asking) and so a pharmacist has to catch the dangerous drug interaction.

      --
      Information theory is life. The rest is just the KL divergence.
    14. Re:Not quite as easy as it seems by NeoSkandranon · · Score: 1

      "Maybe you guys instantly thought Crohn's, but there are plenty of other rarer diseases it could have been. Without a positive biopsy it would have been incredibly immoral to slap a Crohn's diagnosis on this girl and medicated her for it"

      If the symptoms match, why would it be immoral to attempt to treat for the most likely candidate to see what happens as opposed to letting someone suffer because you can't figure out what the fuck else it might be?

      --
      If you can't see the value in jet powered ants you should turn in your nerd card. - Dunbal (464142)
    15. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      If you are going to become a doctor in short time, please look up on the use of immunosupressants and their side effects, versus the use of cannabis and the side effects. No, I'm not trolling, I'm not trying to be a smart ass, and I'm not trying to knock you around. The use of immunosupressants and steroids for Crohn's is the textbook answer. But it just doesn't work. If you ever have a patient with Crohn's and you treat them that way, you can be pretty sure to see them in ICU eventually. Most likely it will be curable (but painful), but eventually there is a high probability that the day will come when it is fatal. With the use of cannabis, you may not even see the patient for 10 years while they go on with their lives as if there's nothing wrong. Depending on where you live, it may not be easy, practical, or even legal to prescribe or even suggest cannabis, but please do keep it in mind. Don't take my word for it though, look it up.

    16. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      I disagree; I went through this last year. I had similar symptoms and had the same discussion with my doctor. Ultimately, he couldn't decide either and we both agreed to try some gentle medication to see if it helped. THE POINT IS TO MAKE IT STOP, not to understand what it is. If there are medication options that aren't extreme, go for it.

    17. Re:Not quite as easy as it seems by pz · · Score: 5, Insightful

      Yes, I've acknowledged that - as I said the pathologist will have been presented with many many samples, turned into slides, looking for a few, if any, granulomata, which are tiny in size. I even said "Now do you start to see why a pathologist may miss it?" It is very hard, if not impossible, to scan every single slide in its entirity, for a granuloma. Fortunately this girl found it, when the pathologist didn't. Props to her,

      Absolutely. Agreed.

      We must remember that, unlike computers that are often highly deterministic, biology is often non-deterministic, and any given test has a certain rate of accuracy that is rarely 100%. Any given test especially includes ones where there's a human who must interpret observations. Unlike with computers, false positive and negative rates on biological tests are rarely zero.

      Jessica had a false negative on an intestinal biopsy for a test that has a poor false negative rate. Not a big deal.

      Also, recall that Jessica is far more highly motivated to look for long times at her slides than a pathologist is. A pathologist cannot afford to spend hours gazing at slides, but a high school student can. Not surprising at all, then, that a difficult-to-detect granuloma would, at some point in modern human history, be detecetd by a student and not a pathologist.

      This is an interesting story because of initiative shown by the student, but not a very provocative one because of implied medical ineptitude.

      --

      Put my fist through my alarm clock with its ding-dong death inside my ear. - The Blackjacks.
    18. Re:Not quite as easy as it seems by six11 · · Score: 1

      Personally, the more I experience from the M.D. community, the more I think they are largely just witchdoctors. My perception is that physicians substitute confidence for competence, and that many of them lack ethical standards for practicing medicine. And it's not like I just haven't gotten to know medical docs: I have friends in med school, and another just took on a job as an attending. This is a "crisis of the profession" that really, really should be addressed.

      A friend of mine also has an undiagnosed digestive tract issue, which may or may not be related to a hormonal (thyroid) problem. She's been to several doctors, none of whom have been helpful at all. She has explicitly requested certain tests and was told either (a) they were unnecessary because other tests or symptoms did not indicate the test would yield anything, or (b) that maybe she's not being forthcoming about what her symptoms really are.

      I don't understand what the motivation is for (a). These are not expensive, time consuming tests. I suspect it has something to do with preserving the ego of the doctor. In one case, a doctor refused to do a test because he simply didn't believe that the condition exists (reverse T3). Last fall I spent several weeks doing observations in the ER of what is considered a really good hospital. At one point I overheard a conversation between one of the residents and one of the med students. He explained that doing a diagnosis is really just following a bunch of if-then rules. He even brought up a web site that used Bayesian Networks that tell the doctor what to do next. Some of the possible diagnoses were made less likely by some information, and if there is insufficient evidence for a condition, it means that condition won't be tested until enough other factors have been ruled 'out'. Right there, I can see a bug in his program: in the 18 yo girl's case, Crohn's might have been ruled 'out' because of an unlucky biopsy sample, until nothing looked possible. (Is this *really* something a seasoned veteran doctor does??)

      Part (b) is equally troubling. Her doctors would tell her to start exercising and stop stuffing her face with pastries (but more politely). Maybe they assume she is a liar, or maybe they think she is a hypochondriac. But in reality, she works out 3-4 times a week, jogs often, and is obsessive about eating right. She used to be a professional tennis player, for Christ's sake.

      At this point she is in pain about 70% of the time, and has given up trying to find a competent doctor until she can move back to the US. There she will (hopefully) be able to shop around for a doctor who might engage a brain cell or two and put the decision tree down.

    19. Re:Not quite as easy as it seems by KiahZero · · Score: 1

      Really? You think someone decided to "protect" her by leaving a disease untreated, a disease that can be fatal if left unchecked?

      Also, pre-existing condition exclusions don't really apply if you had heath insurance within the last 63 days (called a "significant break" by HIPAA). So long as she maintains coverage, the Crohn's will remain covered when she changes to new insurances.

      --
      I'm a lawyer, but not yours. I wouldn't represent someone who thinks taking legal advice from Slashdot is a good idea.
    20. Re:Not quite as easy as it seems by forand · · Score: 3, Insightful

      Perhaps doctors should speak with Astronomers about finding needles in hay stacks. It would appear that the problem is with too much information. That is a solvable problem by computers and people. Computers reduce the data and humans decide what is what. That is if a human can see a contrast or pattern difference then just have a computer highlight the regions of each slide which "differ greatly" from the "standard." If you cannot define a "standard" then the problem is clearly much harder than anyone above is making it out to be.

    21. Re:Not quite as easy as it seems by Cougem · · Score: 4, Insightful

      Don't be crass. You obviously don't understand the level of investigation we're talking here. It is just not possible in a patient like this to examine every single piece of sampled tissue 100%, not unless you want to spend a day on every patient and reduce the wellbeing of the population, to eliminate an already very unlikely diagnosis. Do you know how small cells are? The sample's we're talking are many macroscopic lumps if tissue, cut in cross sections into many more slides, the granulomas we're talking about are groups of 30 or so cells. This could have been the only one. How long do you expect the doctors to look for it? It would be stupid to expect to look all over every sample.

      And I find your example a bit hard to swallow - sorry the nurse shouldn't be TOLD the drugs, she should read them from the drug chart, to eliminate human error. Also, you imply that if he had used the right name then the nurse would have spotted the drug interaction? No, sorry, no nurse in the world will argue with a specialist about drug interactions - doctors and nurses are incredibly important in patient care, and they fulfil completely different roles - the nurses role is NOT to spot drug interactions, they are not taught about them, and the doctor knows best about these things. Similarly, I wouldn't expect the doctor to tell the nurse how to do aspects of her job.

    22. Re:Not quite as easy as it seems by sjames · · Score: 1

      The article states quite clearly that she suffered for 8 years. Those slides could have come from earlier, but surely doctors know that pathology reports can be wrong and at some point in her 8 years of suffering might take a second look. TFA demonstrates that having a second pathologist look freshly at the same slides can catch errors.

      More than anything, I suspect this is a 'symptom' of moving away from the long term doctor-patient relationship where doctors decided how to examine and treat patients and insurance companies paid any reasonable bill as opposed to today where every time your employer gets a slightly better deal from a different HMO you are expected to choose a new doctor from the new approved list.

    23. Re:Not quite as easy as it seems by Sobrique · · Score: 1

      I am so very glad I live in a country with a national health service.

    24. Re:Not quite as easy as it seems by Cougem · · Score: 2, Insightful

      Now this I do agree with - I think one thing this story may highlight is the problems of the American healthcare system. I like to tell myself that this wouldn't happen in the UK - where there is huge pressure to keep up ones skills, every doctor having annual appraisals, relationships build between the patient and his local doctor/hospital etc. - I regularly get attached to smaller peripheral hospitals and there really is a sense of community

      I'm not sure if this is actually true, or just wishful thinking on my part. I don't expect the biopsy to be dealt with any better in the UK, but I like to think that we would lose fewer patients in the system, like this. As you said, there is little incentive in the US to look over old biopsy samples, whilst in the UK it would be a relatively cost-efficient investigation. Who knows?

    25. Re:Not quite as easy as it seems by Sobrique · · Score: 1

      I get told "You're overweight, fix that and everything else will go away". Whilst I appreciate that being fat might well not be helping my general health, it's a perpetual irritation to get fobbed off every time I go see a doctor.

    26. Re:Not quite as easy as it seems by TheHawke · · Score: 1

      Oh that person has every right be crass. If someone's life is on the line and the medical staff is doing 9-5ers without regard for that person's life, then they need to be fired. The majority of the good doctors are detectives. The ones that are not are the ones that oftentimes get patients in trouble, or worse. This girl had a difficult-to-diagnose disease and her caretakers did not take the time to perform a full grid search of her biopsies, or the time to actually make ANY effort outside of what they are being paid for, to resolve this mystery.

      Bottom line are the morons didn't think outside their little boxes.

      I'll bet their post-it notes are an inch wide! (Meaning, closed minds.)

      --
      First rule of holes; When in one, stop digging.
    27. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      1) Not sure if she had the exact slides or if she had recuts. If they were recuts then the facing of the block and the additional levels may have shown the granuloma that was not present on the original slides.

      2) Pathologists are human and we do make mistakes. Thats why medicine is "practice." We are constantly trying to improve

      3) There are some shitty doctors out there.

    28. Re:Not quite as easy as it seems by russotto · · Score: 1

      Now this I do agree with - I think one thing this story may highlight is the problems of the American healthcare system. I like to tell myself that this wouldn't happen in the UK

      I'm sure in the UK you'd get the right diagnosis the first time. Unfortunately you'd still have to wait 8 years for it.

    29. Re:Not quite as easy as it seems by radtea · · Score: 1

      Now do you start to see why a pathologist may miss it?

      No, I don't. Not on slides that the girl used to diagnose herself, which had already been screened by a pathologist.

      Stop making excuses. This is an all-too-common case of medical failure. I'm betting the primary reason it took so long to diagnose is that no single individual took responsibility for her care, so she got shunted from department to department without anyone really realizing how long things had been going on for.

      And no one anywhere here as suggested "slapping her with a Crohn's diagnosis and medicating her for it" without having a proof of that diagnosis.

      --
      Blasphemy is a human right. Blasphemophobia kills.
    30. Re:Not quite as easy as it seems by mcvos · · Score: 1

      The disease is not confluent over the entire gut, in fact it can be anywhere from mouth to anus, in small patches. Now do you start to see why a pathologist may miss it? They will have taken many specimens from the girl's GI tract, and if this is the only sample with a granuloma, then it's not too unforgiveable that a patch of cells only around 30 cells-wide is miss. Yes, it sucks, but pathology is actually a fairly bloody hard speciality, with an very vigorous set of examinations

      Yet a highschool girl was able to find what the pathologist had not been able to find in the same piece of tissue!

      Maybe you guys instantly thought Crohn's, but there are plenty of other rarer diseases it could have been. Without a positive biopsy it would have been incredibly immoral to slap a Crohn's diagnosis on this girl and medicated her for it.

      But if it could be Crohn's, and that's an obvious diagnosis, how can it remain undiagnosed for 8 years? I can understand that it takes a couple of months. Years, maybe. But if a highschool girl can find the granuloma in a piece of tissue that the pathologist had already examined, then he just wasn't looking very hard. It's his job. He's the specialist. What use is he if an 18 year old girl can do it better?

    31. Re:Not quite as easy as it seems by mcvos · · Score: 1

      So our girl with the microscope just ensured she will be harder to employ, have a harder time keeping a job, and will pay more for all forms of insurance for the rest of her life. I could imagine that perhaps someone was trying to protect her from all that.

      But when I may have a disease that requires tissue to be examined carefully, I'd want her to do it.

    32. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      When you're done here, why don't you go troll the encryption threads, saying that we should decrypt files by trying every possible key. That would make about as much sense.

      cougem is mostly finished with his MD, and you're just some idiot spouting crap.

    33. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      You're confusing a one off scenario of a girl obsessing over slides for hours/days, because she is very sick, and a very busy pathologist looking at slides in a way which will catch 99.9% (but not 100%) of all diagnoses. Don't be fucking stupid and imply she's a better pathologist than him.

    34. Re:Not quite as easy as it seems by Fallingcow · · Score: 1

      Tell that to my mom.

      She can't leave Kansas unless she wants to pay 4-5 times as much for a fraction of the coverage she has now. Most insurers won't even take her. The only one that's said it would wanted to charge insane rates and wouldn't cover anything that mattered (her back trouble, any heart problems, many types of cancer, a dozen other things--why even bother, then?), which leaves her with the insanely-expensive and only-slightly-less-worthless state insurance which is--guess what--administered by the same insurance companies, at no risk to themselves.

      No break in insurance, but she has to switch if she moves to another state (or even certain regions of the same state). Missouri is where she's moving now, and it looks like she'll be going with the shitty state option. Hope she never gets sick, or my pretty-damn-well-to-do parents will probably be bankrupt in a few years' time.

      She also discovered (much to her surprise) that those family history sheets you fill out for the doctor sometimes get passed on to the insurance company. Good thing I know, so now I can stop filling those out. Thanks, American Health Care system! I'm so glad we're sticking it to those dirty socialists!

    35. Re:Not quite as easy as it seems by ceoyoyo · · Score: 1

      You've never looked at a set of slides for a particular small feature, have you?

      The question is basically the same as "how come it took so long to find Steve Fossett? They've got satellites don't they?"

    36. Re:Not quite as easy as it seems by ceoyoyo · · Score: 1

      It might be solvable, but it's very difficult. Computer vision is getting to the point now where it looks like it might be possible for it to be useful in some applications within the next few years.

      And yes, I do medical imaging research. My background is computer science, but I've worked with astronomers, physicists, geomatics engineers and mechanical engineers, to name a few.

    37. Re:Not quite as easy as it seems by KiahZero · · Score: 1

      What you describe isn't an issue of pre-existing condition exclusions, but rather higher premiums on the basis of coverage.

      The problem is that attempting to get health insurance as an individual means you're not spreading the risk amongst a group; since you're already sick, the risk is instead a certainty. I'm dealing with this same problem right now, as I have to pay $500 / month for COBRA, which is still cheaper than finding the same coverage in an individual form.

      A pre-existing condition exclusion is when they say "Sure, we'll take your money, but we won't pay out for any claim based on this condition." The duration of those exclusions are limited to one year, and any creditable coverage reduces the duration of that exclusion (and, if memory serves, any condition arising during prior creditable coverage doesn't qualify as a pre-existing condition).

      --
      I'm a lawyer, but not yours. I wouldn't represent someone who thinks taking legal advice from Slashdot is a good idea.
    38. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      I'm a Systems Engineer. I have a considerable amount of education. I find it laughable when I see doctor's trying to diagnose a rare disease. They rarely follow a methodology of any sort. Logic seems to escape them. I have been sick for over a year and finally diagnosed myself with a rare form of virus (CMV). I asked my doctor to test me for it and the test came back positive. Needless to say that I have wasted over 6 months seeing "specialists" of every sort. None of them ever pulled out a book or did any research - they more or less guessed at would the problem could be. It would seem that they no longer (if they ever did) teach research methods or problem determination in medical school.

      Very disappointing.....

    39. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      Perhaps computers should replace (or be used in parallel with) human eyes on slide analysis. Maybe there is similarity between the cell sample and some of the CAPTCHA that continue to be broken by software.

    40. Re:Not quite as easy as it seems by Fallingcow · · Score: 1

      A pre-existing condition exclusion is when they say "Sure, we'll take your money, but we won't pay out for any claim based on this condition."

      Actually, I described that too. The only insurer that would cover her at all would only do it if they could exclude pretty much everything that could possibly go wrong, plus all the stuff she's already got.

    41. Re:Not quite as easy as it seems by BGrif · · Score: 0

      Yes, the symptoms that the girl had are that of Crohn's disease but the symptoms are also that of hundred of other problems. So why don't they have a standard methodological approach to how you deal certain symptoms when doctors come across them. This approach would be what tests are ran, what order the tests are conducted in, quality check that are built in, etc... I am sure the medical profession has these to an extent but having it completely laid out would save money, save time, reduce errors, and reduced malpractice lawsuits because there was an approach that was followed and nothing was missed. This is not taking anything away from the doctor because they are still needed very much for their expert opinion. Just to prove that it will not take anything away from the doctor, this kind of approach is used in certain types of consulting which people pay a premium for. In my profession we follow strict procedures (as I am sure doctors do) but even things like what order to test EVERYTHING in has to follow our methodology and if we stray away from our methodology we leave ourselves open to be sued from the client. It seems like when it comes to testing and procedures of diagnosing diseases that there is a lot left to the doctor to decide what to do and not standard approach.

      This would be a case that would benefit from a software program that makes the connections of the symptoms with the related diseases. From there it could tell you the tests that need to be ran and in what order to reduce the the list even further. The software would not be so much of a replacement to expert opinion but a compliment to reduce errors and save time.

      My point is that everyone has off days and I don't want to pay for unnecessary tests.

    42. Re:Not quite as easy as it seems by infinite9 · · Score: 2, Interesting

      It would have proved interesting were she have had say tropic sprue [wikipedia.org] and you were to treat her with the immunosupressants.

      I take a medication that's used to treat Crohn's disease (Enbrel). It's a shot i self-administer twice a week. I take it for severe plaque psoriasis. It's a freakin miracle drug. Without out, those spots you see on peoples' knees and elbows cover 50% of my skin severely limiting my mobility, lots of cracking and bleeding. During a flair, it feels like a second degree burn... on 50% of your body. And it's rather disfiguring. Anyway, while it technically is an immunosupressant, I have virtually no side-effects. I don't even get sick more often. And I don't have an increase in infections of any kind. It's a tumor necrotizing factor inhibitor, so I think it's fairly targeted. Based on my experience, I doubt it's dropping my white blood cell counts much. It wouldn't be such a terrible drug to try out, although it is expensive and takes a while to start working, at least with psoriasis.

      --
      Disconnect your television. Do your own research. Draw your own conclusions. They're probably lying. Don't be a sheep.
    43. Re:Not quite as easy as it seems by DriedClexler · · Score: 1

      You obviously don't understand the level of investigation we're talking here.

      No, you obviously don't understand. We're talking about a girl who doesn't even have the pre-requisites (high school diploma) for the pre-requisites (college diploma) for the pre-requisites (medical degree) for the pre-requisites (specialization) to be qualified to look for this. Do you think she spent all day? No, she had limited lab time. And she STILL outdid an immense team of doctors.

      Which one of us "doesn't understand" what's going on here?

      And I find your example a bit hard to swallow - sorry the nurse shouldn't be TOLD the drugs,

      First of all, work on the reading comprehension. I said the pharmacist caught the interaction because the pharmacist caught the interaction, not the nurse. Second of all, no shit they weren't following basic procedure -- that's how they made the mistake in the first place, and that's not to the health care system's credit!

      Here's how it went down: my primary doctor has me take medications A, B, and C. I get a referral to a neurologist. There, I don't get to write down what I'm taking, I have to say it verbally to a ditzy nurse that can't figure out computerized system. Neuro puts me on D. I call back to report on how it's working -- as I was told to -- and spoke to a nurse. Then I get a call back to stop taking D and take E instead.

      Then I do my part to clarify: "So, I should be on A, B, C, and E then?" "Yes." THEN I go to the pharmacist to pick up E, who tells me, "Just don't take any B with this." WTF?

      So I call back and explain what happened -- to a nurse, of course, doctor can't be bothered to be involved at any point in patient care. Later, I get a call back saying "Oh, um, yeah, you're not supposed to be on B."

      Oops.

      You don't believe it because you're clueless about how the system actually works.

      --
      Information theory is life. The rest is just the KL divergence.
    44. Re:Not quite as easy as it seems by KiahZero · · Score: 1

      They might say that, but they aren't including the important caveats. The maximum exclusion period is one year, and any creditable coverage counts against that period. Thus, if your mother has been insured for more than a year without a significant break (63 days), there is no legal way to apply a pre-existing condition exclusion to her.

      --
      I'm a lawyer, but not yours. I wouldn't represent someone who thinks taking legal advice from Slashdot is a good idea.
    45. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      "If someone's life is on the line and the medical staff is doing 9-5ers without regard for that person's life, then they need to be fired."

      Because it is entirely worthwhile for a doctor (a person with his OWN life and hardships) to dedicate days or even weeks to help diagnose ONE person...

      (if you are only talking about the GP's situation, and not TFA, please ignore)

    46. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      Read the fucking post. "It would have proved interesting were she have had say tropic sprue [wikipedia.org] and you were to treat her with the immunosupressants."

      From wikipedia "it has been suggested that it is caused by bacterial, viral, amoebal, or parasitic infection." Assume Crohn's disease because its the mostly likely canidate, give immunospressants, and then the patient dies when it turns out to be tropic sprue and the bacteria overrun her body

    47. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      Her pathologist gave her the slide, one that he had looked at and confirmed it was fine. FAIL

      Stop sticking up for a failed profession that you entered because daddy didn't hug you enough and you want to "Make him proud" .....or is it that he hugged you too much

    48. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      I would recommend that your mom take a look at http://www.naschip.org/states_pools.htm

      Pretty much all states have a high risk insurance pool available. The amount of coverages at least superficially is about the same and the rates are similar. I can't tell you much because we don't know enough information but I would strongly urge you to look at this website and see if you won't be better off.

    49. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      Also, recall that Jessica is far more highly motivated to look for long times at her slides than a pathologist is.

      Perhaps the lesson is that doctors should make it easier for "highly motivated" individuals to make self diagnosis. In my experience it is usually difficult to get access to the data (x-ray, MRI, biopsied intestinal tissue etc.) that would be useful in making a self diagnosis.

    50. Re:Not quite as easy as it seems by Volante3192 · · Score: 1

      You're given a barren field with pennies scattered in it. You get to take 10 random samples and prove there's a penny in the field.

      Better pick your samples wisely.

    51. Re:Not quite as easy as it seems by Fallingcow · · Score: 1

      Interesting.

    52. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      > Maybe her parents figured it was too expensive, and since this might have happened every 6-18 months, they just passed it off and figured they could deal with it at home.

      Maybe it was too expensive.

    53. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      As as thrid year medicine resident, my thoughts were pretty much verbatim what you posted. Of course her doctors were thinking of Crohn's in this girl's differential, they just hadn't been able to prove it. Having the pathology report come back as normal sent them down a number of other diagnostic pathways, I'm sure.

    54. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      The disease is not confluent over the entire gut, in fact it can be anywhere from mouth to anus, in small patches. Now do you start to see why a pathologist may miss it?

      She got these samples from her pathologist who hadn't seen anything in them. She didn't scrape them out of her own rectum. There's a healthy limit to self-diagnosis.

    55. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      What do we have computers for? Why should spotting granulomata require a human eye and brain?

    56. Re:Not quite as easy as it seems by radtea · · Score: 1

      You're given a barren field with pennies scattered in it.

      Your example has nothing to do with this case. She diagnosed herself looking at a slide a pathologist had already looked at.

      So your example should be, "You're given a barren field with pennies scattered in it. A highly paid, highly trained expert with a legal monopoly on searching for pennies takes some samples and declares them all penny-free. You later look yourself, and find a penny."

      Better pick your monopolist wisely.

      --
      Blasphemy is a human right. Blasphemophobia kills.
    57. Re:Not quite as easy as it seems by TimothyDavis · · Score: 1

      Where the hell is image recognition in this area? You would think that we would be able to utilize computers to do much of the slide evaluation, which could go through the dozen or so slides taken for this particular case.

      I am interested in seeing what happens over the next few years with the medical industry. If you can provide your symptoms to a computer, which drops the choices down to a short list of problems - these problems can be then further evaluated through specific tests. Might be Crohn's disease? A technician would then use a probe or specific tissue samples to further investigate.

    58. Re:Not quite as easy as it seems by Anonymous Coward · · Score: 0

      Jessica had a false negative on an intestinal biopsy for a test that has a poor false negative rate. Not a big deal.

      Except that Jessica found a granuloma on the exact same slide that the pathologist rated negative.

    59. Re:Not quite as easy as it seems by uniquegeek · · Score: 1

      Or especially in the case of thyroid problems, but you can't lose weight because of the thyroid problem.

      Even more fun if you're subclinical in TSH. The doctor sees you in the low normal range, and says you're fine, never considering you're subclinical. Heaven forbid they should do the more accurate tests for T3 and T4, because those cost more money.

      It's bloody hard to have to fight to get better and get medical care when the reason you're going in the first place is because you're so exhausted you can barely do anything. I guess the medical system lucks out in that those people don't come back for many repeat visits as often as they should because they're too busy feeling miserable. But surely the people who have to make repeat appointments because their problem isn't being solved costs the system a lot more than if more time was correctly spent with the patient in the first place?

  21. this is poverty of health. by markringen · · Score: 1, Interesting

    this is what u get without basic health care, it's not something to marvel at it's something to cry about. it's sad that people can't just goto a doctor at a young age and just get better.

  22. Do it your selfers by mcfatboy93 · · Score: 1

    well its a lot cheaper than going to a doctor. besides if that was crone's wouldn't she have an ulcer if that was going on for 8 years?

    --
    Its not my fault, someone put a wall in my way.
  23. it's called evolution... by way2trivial · · Score: 4, Funny

    survival of the richest means those with the ability to earn more could reproduce more and dominate the gene pool.
    - except they don't
    for questions-- see the first 15 minutes of "idiocracy"

    --
    every day http://en.wikipedia.org/wiki/Special:Random
    1. Re:it's called evolution... by Shipwack · · Score: 4, Interesting

      There is a flaw in your reasoning... Having lots of money does not mean you have the -skill- to make money, nor does it mean you are smart or even particularly skilled. See "trust fund babies".

    2. Re:it's called evolution... by stdarg · · Score: 5, Informative

      True but most rich people didn't inherit their wealth (http://www.smartmoney.com/spending/rip-offs/10-things-millionaires-wont-tell-you-23697/ "or take the most common path: running your own business. That's how half of all millionaires made their money, according to the AmEx/Harrison survey. About a third had a professional practice or worked in the corporate world; only 3 percent inherited their wealth.").

    3. Re:it's called evolution... by Insanity+Defense · · Score: 5, Insightful

      True but most rich people didn't inherit their wealth (http://www.smartmoney.com/spending/rip-offs/10-things-millionaires-wont-tell-you-23697/ "or take the most common path: running your own business. That's how half of all millionaires made their money, according to the AmEx/Harrison survey. About a third had a professional practice or worked in the corporate world; only 3 percent inherited their wealth.").

      So what percentage of those "self made" people had wealthy parents who could pay to put them through the best schools and connect them with those who could help them succeed?

      Take Gates for example. His parents were well to do lawyers who sent him to Harvard and it was his mother who directed IBM to him for DOS. If he had been born to minimum wage parents would he be wealthy now? Maybe but much less likely.

    4. Re:it's called evolution... by pwfffff · · Score: 2, Informative

      So either A) you don't have money, and wouldn't have gotten treatment under either system, or B) you do have money and can still afford to cut out your own cancer.

      Sounds good to me.

    5. Re:it's called evolution... by Anonymous Coward · · Score: 0

      That's a problem with the single payer system. Obama has said single payer is off the table. Never was even on the table. You watch a lot of Fox News dontcha?

    6. Re:it's called evolution... by daem0n1x · · Score: 4, Interesting

      Pure FUD.

      I live in a country with socialised medicine and it's funny, because we also have private medicine and insurances, but people with really bad diseases get sent to the public system because the privates refuse to spend money treating them. And they lack the equipment, anyway. It's expensive.

    7. Re:it's called evolution... by jcnnghm · · Score: 2, Insightful

      Take Bill Clinton, Larry Ellison, or Andrew Carnegie (the 2nd wealthiest historical figure) for example. All three started poor or close to it, and achieved great heights. Don't feel too sorry for yourself, or fall into the trap of blaming your shortcomings on others advantages. There's a reason people that inherit there money are often referred to as "the rich man's idiot son". The wealthiest person I ever met quit school in 7th grade to get a job on a farm because his parents were very poor. He once told me that he isn't a really smart guy, but the secret to his success was working from 6AM to 6PM 6 days a week for sixty years.

      --
      You don't make the poor richer by making the rich poorer. - Winston Churchill
    8. Re:it's called evolution... by nizo · · Score: 3, Interesting

      Try searching for medical insurance won't pay treatment on google and let me know if any of the 21 million results make it clear to you why people would look to have a choice other than a for profit insurance company or paying out of pocket.

    9. Re:it's called evolution... by EddyPearson · · Score: 1

      And what percentage of the wealth did that 3% inherit relative to those who made their own money?

      Not even trying to be a smart-ass, genuinely interested.

      --
      You feel sleepy. Close your eyes. The opinions stated above are yours. You cannot imagine why you ever felt otherwise.
    10. Re:it's called evolution... by rcamans · · Score: 1

      Hey, how about the parents of the guy who gave away dos to Billy Gates?

      --
      wake up and hold your nose
    11. Re:it's called evolution... by ildon · · Score: 1, Insightful

      But it's just so much easier to blame your lot in life, declare that it's already too late, and be lazy and not try to be successful.

    12. Re:it's called evolution... by Billly+Gates · · Score: 3, Insightful

      Slashdot had a study on this and the fact is Larry Ellison and Carnegie just were lucky at the right place and time.

      Bill Clinton earned it through dishonest special interests.

      Hard work does not pay off as the people I see the hardest are the ones illegal here working 10 hour shifts building houses for minimal wage in the hot sun. Work just pays the bills.

      Taking initiative to get ahead can get you middle class and that work does pay off in that regard to its max. The rich are just lucky as the industrial revolution or computer revolution just started and they were at the right place at hte right time.

      Its about working smart and not hard and not everyone gets the opportunity to work smart as bills and responsibilities keep them from getting the right education and meeting the right people.

      It sounds counter intuitive but the poorest people I know work the hardest and upper management who makes 10x times their salary play golf twice a week and yack on the phone in their climate controlled offices. The good news is that this inequality in this deep recession si changing this as it rightfully should.

    13. Re:it's called evolution... by jcnnghm · · Score: 0, Flamebait

      That's the really pathetic thing about people like you. You actually believe that the only way to get ahead is through dumb luck. That's also why you won't be rich.

      --
      You don't make the poor richer by making the rich poorer. - Winston Churchill
    14. Re:it's called evolution... by nine-times · · Score: 1

      Or don't take Gates as an example, take Paris Hilton as an example.

      Or hell, take Donald Trump as an example. Yeah, you think Donald Trump is some kind of a self-made genius businessman, until you learn that his dad was a wealthy New York real estate tycoon who left the Donald a ton of money, and Donald Trump's business ventures have flopped almost as often as they've succeeded. The guy got rich off of getting rich, and then got famous for being famous, which is no great accomplishment.

      Yeah, I don't doubt that he's made money at times, and his net worth may be far larger than his original inheritance, so you can talk about him being a self-made man. But it's a lot easier to make $100 million dollars when you have $100 million to begin with.

    15. Re:it's called evolution... by Jah-Wren+Ryel · · Score: 0

      That's the really pathetic thing about people like you. You actually believe that the only way to get ahead is through dumb luck. That's also why you won't be rich.

      I've got a couple of million in the bank, all earned by my labor - not inherited, not from investing, its all cash - I sat out the markets during the previous 10 years or so.

      I'm a smart guy, but I know plenty of people smarter than me with less money. The only reason that I have earned as much money as I have is because I was in the right place, at the right time and had the big brass balls to negotiate really hard for about 2 weeks. That's it. Being an audacious negotiator at one critical point in my life does not make me any more of a valuable contributor to the world than being a good long-distance spitter would. I do rub shoulders with a lot of other "self-made" men and I can tell you, most of them are in the same boat as me, they found themselves with the right set of circumstances and took advantage of the situation. That's all just dumb luck.

      Sure there are some people who do work hard to climb the ladder, but I'm pretty sure that most of those guys only got the chance to apply themselves because of finding themselves in the right set of circumstances.

      --
      When information is power, privacy is freedom.
    16. Re:it's called evolution... by EvolutionsPeak · · Score: 1

      It always amazes me how many people think the way you do, but there are several things wrong with this kind of reasoning.

      First of all, it completely ignores past work. The rich don't become rich overnight. Their hard work starts in high school if not earlier. Even if they have rich parents to help them pay for the best schools they still have to get good grades, and then spend another 4+ years in college. There is a small minority who have parents powerful enough to push them through those things with poor grades, but it is not as if every kid with well off parents becomes well off themselves.

      Second, you have to look at the skill involved in what they do. Anyone can hammer nails into a house, or use a leaf blower on the streets. It takes a lot more knowledge to successfully make something out of a business. Not only does it require a large amount of technical knowledge, it requires critical thinking, and people skills as well.

      Third, you may think you see the upper management doing nothing but yakking and golfing but that is far from the truth about how much they actually work. When the roof builder goes home, he leaves his work completely. The management types never leave work. When they go home their work follows them. It even follows them on vacation.

      Now, don't take this to mean that I don't think there are CEOs and management out there that are bad at their jobs and are vastly overpaid. There are. But for most of the successful people, "being in the right place at the right time" is a matter of always being there, so that when an opportunity comes they have the chance and skill to take it.

    17. Re:it's called evolution... by nausea_malvarma · · Score: 1

      Inherit Shmerit. You can still be rich AND stupid with no inheritance needed. Just luck. Sure, you need to be smart to be a doctor or lawyer. But any idiot can be CEO if they kiss the right asses, have the right connections. And if they do a horrible job of running the company: bailout. Need proof that idiots make the most money? Think about everyone above you at your job - your bosses, managers, ect. Now think: Are they really smarter than you? The stereotype of the Pointy Haired boss exists for a reason.

    18. Re:it's called evolution... by nausea_malvarma · · Score: 1

      So I assume you know the secret to being rich then?

    19. Re:it's called evolution... by Anonymous Coward · · Score: 0

      You act like only one media branch is biased. I know it's "the thing" and all that to bash Fox News, being the only one that seems to lean more conservative, but really, pull your head out of your ass.

      Single player may be off the table, but you'll still end up with even more of a failure of a health care system. Our current system may not be perfect, but I prefer it over all the other problems other systems have.

    20. Re:it's called evolution... by Anonymous Coward · · Score: 0

      Naming famous anecdotes does not a strong case make.

      There's countless stories of poor immigrants coming to the US with hardly a cent and becoming successful through starting their own business. I know several personally. They all started working their asses off a lot more than 10 hour shifts, but because they were entrepreneurs and created value for other people, they were rewarded.

      You're obviously not rich yourself, and have no idea about what it actually takes to become so. No one chose for you to work 9-5 making your boss rich but you. Writing off rich people's successes as luck is just an excuse so you don't have to look at why you're not successful yourself.

    21. Re:it's called evolution... by Jah-Wren+Ryel · · Score: 1

      Now, don't take this to mean that I don't think there are CEOs and management out there that are bad at their jobs and are vastly overpaid. There are. But for most of the successful people, "being in the right place at the right time" is a matter of always being there, so that when an opportunity comes they have the chance and skill to take it.

      You have it precisely backwards - for every hard-working joe who was there at the right place and the right time, there are 99 other just as equally hard-working people who did not have the good fortune to be there at the right place and the right time. Sure there are plenty of slackards who also didn't have the fortune to be there at the right place and the right time, but that's not the point. The point is that the majority of the "successful" people don't have anything over their peers except good fortune.

      --
      When information is power, privacy is freedom.
    22. Re:it's called evolution... by Anonymous Coward · · Score: 0

      Yeah! I mean, now you don't have money to treat your cancer, you just die! Just as it should be? Right? /sarcasm

    23. Re:it's called evolution... by spinkham · · Score: 1

      There was a story about how the people in the top .0000001% got that way by a combination of hard work and really good luck.
      That doesn't mean that hard work and normal luck can't put you in the top 25%, or even 5%.

      I know "Millionaire" doesn't mean quite the same as it used to with inflation, but I know a number of self-made millionaire teachers, butchers, and other tradespeople who are retired and live quite comfortably. I know some people who were good salespeople who later ran businesses and retired quite well off. The only common factors that holds these people together is that they lived through the great depression and learned to live cheaply and work hard. None of them have mansions, but all of them are enjoying life.

      Yes, you probably won't be a titan of industry, but that doesn't mean that hard work and sacrifice don't work. "Hard work" doesn't mean just manual labor though, it means valuing investing over spending, with your money, time, and energy. Get more education, learn a better trade, be willing to take the risk of job and location changes, increase your people skills, etc.. Those are extremely difficult things to do, especially when just surviving takes most of your time and energy, but many people do in fact do it. They just don't do it over night.

      --
      Blessed are the pessimists, for they have made backups.
    24. Re:it's called evolution... by mackyrae · · Score: 1

      "Third, you may think you see the upper management doing nothing but yakking and golfing but that is far from the truth about how much they actually work."

      Consider also: that may be work. How do you get a potential new client to sign that lucrative contract? Well, yak on the phone for a while to convince them, and if that's not working, meet them in person to chat--for example, at lunch or over a game of golf.

      --
      look! it's a bird, it's a plane, it's....a girl? yes, a girl browsing Slashdot on Linux
    25. Re:it's called evolution... by mackyrae · · Score: 1

      By the way, my step-dad grew up with a single mom on welfare. He eventually decided he didn't want that scary welfare man coming around anymore, so he took extra shifts at the ice cream parlor (including during his lunch break at school) to make enough money to support him and his mom without welfare when he was a kid. When he got older, he did landscaping. He worked hard and he *talked to people*. Working hard on a wealthy person's front garden and making sure they got to know him and know that he worked hard helped a lot. Then he could get recommendations as a good, hard worker. He says, "be the best at whatever you do. If you're a busboy, be the best damn busboy around. If you're the guy making boxes at the warehouse, be the best box maker around." The key is that if you work hard, someone will take notice and want to hire you to work hard on what they need done.

      Oh, by the way, he's the President & CEO of...I've lost count, either 4 or 5 businesses, I think.

      --
      look! it's a bird, it's a plane, it's....a girl? yes, a girl browsing Slashdot on Linux
  24. Mmh... by Anonymous Coward · · Score: 0

    I'd thought that it's a lupus...

  25. Not the last one by Krneki · · Score: 3, Insightful

    With the developing of technology and Internet more and more people can diagnose their problems quicker.

    When I was bitten by a tick I diagnosed borreliosis before going to the doctor, by just browsing the Internet. When I visited the doctor I already knew everything I had to do to cure it, still it was nice to get a professional confirmation.

    Get used to it, the more you know, the better you can help yourself.

    --
    Love many, trust a few, do harm to none.
    1. Re:Not the last one by kidgenius · · Score: 1

      Though it is good to be read up on different things, I'd say that sometimes reading the medical information without the proper education can lead to some problems. The big problem is when an untrained person does a self-diagnosis, goes to the doctor, the doctor tells them what they have and it is different from the self-diagnosis, and they believe their own diagnosis over the doctor's. Are there times where the doctor is wrong and the patient correct? Sure, but I'd be willing to bet that the opposite happens quite a bit more. As long as you go into your appointment with an open mind and not fixated on what you think you might have, then that's fine.

    2. Re:Not the last one by GaryOlson · · Score: 1

      ...reading the medical information without the proper education can lead to some problems.

      Then let's get some proper education. Ensure people can read, write, and analyze information and make critical decisions effectively. That is probably cheaper than any other "medical initiative".

      --
      Every mans' island needs an ocean; choose your ocean carefully.
    3. Re:Not the last one by Krneki · · Score: 1

      I never argued against a doctor decision.

      --
      Love many, trust a few, do harm to none.
    4. Re:Not the last one by TheRaven64 · · Score: 1

      Which is why communication skills are vital to being a good doctor. It's not enough to be able to make the diagnosis, you have to be able to explain the reasoning and explain what observations you made that contradicted the patient's diagnosis.

      --
      I am TheRaven on Soylent News
    5. Re:Not the last one by tsstahl · · Score: 3, Funny

      Get used to it, the more you know, the better you can help yourself.

      Certainly true to a point. Last year I was convinced I had cervical cancer after typing my symptoms into the intertubes.

      In a panic I went to my doctor. I was relieved when he explained that people with a penis generally are immune to cervical cancer. Who knew? :)

      -----

      Point being, an amateur can accurately diagnose a more common issue (i.e. higher odds of occurring), but a professional is better able to pick the zebra out of a herd of horses.

    6. Re:Not the last one by Krneki · · Score: 1

      Good for you, better be safe then sorry.

      --
      Love many, trust a few, do harm to none.
    7. Re:Not the last one by Kashgarinn · · Score: 1

      Slap a +5 insightful on this one, because we have a winner.

      Take a vested interest in your own problems. Doctors are problem diagnostics and solvers, much like IT crew, or any repairman; They're human, with human faults.

      No one has as much interest to solve your problem as you do, and if you already do a bit of groundwork, you're able to do more than just nod your head at doctors who all apathetically shrug their shoulders.

    8. Re:Not the last one by Anonymous Coward · · Score: 0

      On a related note, doctors sell more and more placebos (feel free to find the relevant slashdot references :-) )

    9. Re:Not the last one by ceoyoyo · · Score: 1

      "With the developing of technology and Internet more and more people can..." convince themselves they know what's wrong, quicker.

      People have always "diagnosed" themselves, whether it's through the Internet, a home medical encyclopedia or talking to that old woman who lives up the street. It sounds like, had your doctor not confirmed your suspicions, you would have listened, which is great. Unfortunately, many, many, people either wouldn't go see the doctor in the first place, or wouldn't listen if he contradicted "the Internet." And for every story where someone gets it right, there are a lot of stories that we either never hear about or we forget about where someone got it wrong.

    10. Re:Not the last one by Krneki · · Score: 1

      I'd never argued against a doctor decision. I'm sorry if I didn't make it more clear.

      But if they have no idea what is wrong you need to do the work for yourself.

      --
      Love many, trust a few, do harm to none.
    11. Re:Not the last one by ceoyoyo · · Score: 1

      Unfortunately, most people don't realize that if you don't know what's wrong, it's usually best not to do anything, or to only do a few general, fairly harmless things. Far too many people get a "don't know, let's watch it" from the doctor, go home, diagnose themselves, then demand treatment (or worse, treat themselves).

      So if they have no idea it's fine to do some background research yourself, then go talk to a doctor again, but keep very carefully in mind that self diagnosis is almost always a really bad idea.

    12. Re:Not the last one by Krneki · · Score: 1

      Unfortunately, most people don't realize that if you don't know what's wrong, it's usually best not to do anything, or to only do a few general, fairly harmless things. Far too many people get a "don't know, let's watch it" from the doctor, go home, diagnose themselves, then demand treatment (or worse, treat themselves).

      So if they have no idea it's fine to do some background research yourself, then go talk to a doctor again, but keep very carefully in mind that self diagnosis is almost always a really bad idea.



      You consider us idiots who don't know what they are doing. I know this can be the case, but I trust common sense to judge what is the appropriate action.
      --
      Love many, trust a few, do harm to none.
    13. Re:Not the last one by ceoyoyo · · Score: 1

      There is considerable evidence, from all sorts of situations, not just medical, that when a person is emotionally involved with a decision his or her common sense is usually not trustworthy.

      If you want to take that and consider such people (by far the majority) idiots, then that's your problem.

      Also, you should note that doctors are discouraged from diagnosing and treating themselves, or close family members.

    14. Re:Not the last one by Krneki · · Score: 1

      Valid point.

      --
      Love many, trust a few, do harm to none.
  26. Re:I suspect I may have Multiple Personality Disor by plover · · Score: 5, Funny

    It only counts as self-diagnosis when one of your personalities is biopsying your brain tissue. Let us know how that works out for you.

    --
    John
  27. She should sue her doctors then! by kyriacos · · Score: 1

    Maybe that will teach them to take their patients more seriously.

    1. Re:She should sue her doctors then! by oodaloop · · Score: 1, Insightful

      Yes, that's just what our country needs. Sue for millions, and raise the price of medical care for the rest of us so she can be a millionaire. Everyone should do that!

      --
      Tic-Tac-Toe, Global Thermonuclear War, and relationships all have the same winning move.
  28. Re:One more such case,...me by Rosco+P.+Coltrane · · Score: 4, Funny

    Never having had any medical schooling but with a little engineering background I made some changes to the protocol for the operation

    Sentences like this usually have "duct tape" somewhere in them.

    --
    "A door is what a dog is perpetually on the wrong side of" - Ogden Nash
  29. Not weird at all by syousef · · Score: 2, Informative

    I live in Australia. Not a 3rd world country, or so we like to think. The standard of medical care here has been on the decline for a long time. I have seen some of it first hand. I won't repeat my first hand accounts here again because the last time I did I got called a liar.

    That's not to say there are no good doctors and that no one cares. They're just few and far between working under a system starved of resources. Wose, the medical profession tends to work against the patient - if you self diagnose you're thought of as a crackpot. As if giving a damn about your own well being makes you a hypochondriac. I fear it's only going to get worse.

    --
    These posts express my own personal views, not those of my employer
    1. Re:Not weird at all by dbIII · · Score: 1

      I live in Australia. Not a 3rd world country, or so we like to think. The standard of medical care here has been on the decline for a long time

      Around ten years ago a few lobby groups convinced the government to restrict the number of medical specialists and the number of medical graduates in an attempt to drive prices and profits up - all good "free" market economics if you can control the market. General practice was also made a specialty as well in a rather stupid move for everyone apart from large medical centres that could pay fully qualified doctors with hospital experience an "apprentice" rate for three years while charging patients full price. Then insurance companies and medical administrators got more control over which medical procedures would occur. Then an insurance crisis from incredibly bad management got turned into a medical crisis causing a lot of doctors to leave the industry instead of paying enormous lump sums yearly for insurance (up , what was it, around 300% in one year?). The slack was taken up by third world doctors with medical administrators very reluctant to verify qualifications since they were happy to get anyone. Ten years to break it, probably twenty to fix it, and meanwhile naturapaths and other confidence tricksters are thriving and making their fortunes from not only the sick but now taxpayer subsidised insurance companies.
      There are many more problems than can be blamed on such corrupt bastards as Wooldridge (who tried to run off with the rural specialists fund), but the majority of the decline is due to the rather stupid policy of restricting supply to try to drive up profits as pursued by the former Federal government and the unintended consequence of a lot of overworked doctors. It could have happened to any mismanaged, merely timeserving government of any political colour that could be swayed easily by a few rich people with impressive qualifications (and impressive donations).

    2. Re:Not weird at all by Max+Littlemore · · Score: 1

      Ten years to break it, probably twenty to fix it, and meanwhile naturapaths and other confidence tricksters are thriving and making their fortunes from not only the sick but now taxpayer subsidised insurance companies.

      Hhhhmmm. Naturopaths are a lot like doctors. There are those that are really good at what they do, then there are those who see patients as a way of making money. The "take this script and have a lie down" sort. So I assume by "confidence trickster" you mean the qualified doctors who unthinkingly prescribe the drugs the companies push? Yeah, I hate that they are government subsidised too.

      I studied shiatsu and a major part of our ethics class involved understanding when we can treat someone and when we can't, or when someone else can provide more effective treatment. We were encouraged to meet practitioners of all forms of medicine in our area and know who to refer people to if we couldn't help. Some things, for example feeling potential tumours in soft tissue, would mean immediate stop work, bring them back and send them to a doctor. Other things might involve sending them to an Osteopath, for example, or a good kinesiologist.

      I have always found the "complimentary medicinal practices are all mumbo jumbo" attitude disburbing. There are things that work medicinally that we know work but we don't fully understand why in a scientific sense. Chicken soup for treating a cold, for example. That's a really old one, but only recently have we understood the anti-viral nature of a chicken stock.

      Trouble is that big pharma runs the whole industry, so doctors have a massive incentive to not do there jobs appropriately, so many will prescribe anti biotics *just in case* you have a secondary infection, thus killing gut flora you will need to fully recover, and tell you to go to bed while neglecting to tell you that garlic is a good enough antibiotic to deal with most secondary infections, and that chicken is anti-viral. (BTW, after a dose of anti-biotics, plain yoghurt is really good.)

      These are the quacks, they are the confidence tricksters. Occasionally you get a doctor who bothers to understand how diet can effect health, or how stretching in particular ways can relieve some types of headaches, but sadly so many are just in it for the money and the sense of authority that comes with being a doctor.

      It's a shame doctors aren't given similar ethics ethical training. It would be great if they referred people with particular types of asthma to someone who can assist with posture rather than relying on drugs. Unfortunately doctors are trained to think they are the authority on everything and always know best while a good practitioner of complimentary medicine will freely admit when they don't know.

      --
      I don't therefore I'm not.
    3. Re:Not weird at all by dbIII · · Score: 1

      Where I am people who do acupuncture call themselves acupuncturists, people that prescribe chinese medicines call themselves something else, as with shiatsu practioners etc - but the outright confidence tricksters are calling themselves naturopaths. It's becoming organised crime here with really expensive courses taking advantage of students (I used to share a flat with one student and the course material was dangerous bullshit). You can forget about ethics from a group (Australia College of Natural Medicine) that was caught out in the largest tax avoidance scheme in Australian history. You can distinguish them from all the others because there is nothing that resembles any other form of alternative therapy. They just pretend to be doctors, prescribe pretend medicine and are never going to admit when they don't know. Your shiatsu is safe - they will not have even heard of it. That is the sort of slime that has taken advantage of the shortage of doctors, people that just pretend to be doctors as closely as they can get away with and who just use different pills under a cloud of psuedoscience.

  30. This does not surprise me at all. by OneSmartFellow · · Score: 5, Insightful

    When my daughter first started school - many years ago - she caught impetigo. Now, I had had impetigo as a child myself, but I had completely forgotten the symptoms. All I knew was that my daughter had acquired some kind of skin disease, and that it was spreading.

    I took her to our local GP who actually admitted that he didn't know what it was, BUT STIIL PRESCRIBED a topical steroidal cream (which did absolutely nothing to cure the problem). A week later, with even more spreading, I returned to the same doctor, and he again admitted he didn't know what it was, and this time prescribed some kind of internal anti-biotic. At that point I asked him, If you don't know what it is, WTF are you doing prescribing medication, and why don't you recommend a specialist. At which point I took my daughter by the hand and walked out the door.

    The next morning I was sitting in another GPs office, waiting for him to arrive, and as he walked in the door, he took one look at my daughter, whom he had never met before, and said, "Oh, you poor little girl, you've got impetigo, well, let's get you looked at, and we get that cleared up in a jiffy."

    Moral of the story: most diseases are actually well known - if you find a competent doctor. Unfortunately, most doctors are incompetent. Impetigo is an amazingly common problem especially for children of primary school age. For any GP to not have recognized the symptoms is simply an indictment of the complete lack of competence.

    As long as the medical community continues to hide the fact that 90% of their job is to memorize symptoms, and accept payola from pharma companies for generating prescriptions , and prescribe medication unnecessarily I will continue to treat them like scum sucking lawyers, used car salesman.

    1. Re:This does not surprise me at all. by Swampash · · Score: 4, Funny

      most doctors are incompetent

      1. Most people are incompetent.
      2. All doctors are people. ...
      4. SOCRATES IS A MAN!

    2. Re:This does not surprise me at all. by Schraegstrichpunkt · · Score: 1

      I took her to our local GP who actually admitted that he didn't know what it was, BUT STIIL PRESCRIBED a topical steroidal cream

      Uh, you realize that one way to help with a diagnosis is to give the patient some drugs and look at the response, right?

    3. Re:This does not surprise me at all. by tsstahl · · Score: 1

      I took her to our local GP who actually admitted that he didn't know what it was, BUT STIIL PRESCRIBED a topical steroidal cream

      Uh, you realize that one way to help with a diagnosis is to give the patient some drugs and look at the response, right?

      Uh, not if incorrect treatment could aggravate the condition, or KILL the patient.

      Granted, prescribing a topical steroid is pretty generic for skin irritations, yet can aggravate skin cancer, and even cause nerve damage.

      IANAD

    4. Re:This does not surprise me at all. by OneSmartFellow · · Score: 1

      Uh, you realize that one way to help with a diagnosis is to give the patient some drugs and look at the response, right?

      Note to self: Don't EVER go to a doctor that thinks this way.

      The trial and error school of medicine has been debunked more times than I have plucked nose hairs. If your doctor (if you're a doctor) think(s) this way, it's time to change doctors (or throw away your certificate).

    5. Re:This does not surprise me at all. by Anonymous Coward · · Score: 0

      WTF are you doing prescribing medication

      He's doing diagnostic medication. The time and money it would cost to visit a specialist far outweighs the time and money it would take for you to try a few generic solutions, so long as they have low side effects.

      How would the specialist ever get any work done if he was constantly having to treat people with something a simple topical cream or antibiotic would have cleared up? Now when you see him, I guarantee one of the first diagnostic criteria he'll use is "does not respond to _____"

    6. Re:This does not surprise me at all. by FuzzyHead · · Score: 1

      This assumes that All doctors fit in the category of most people. It could be the doctors actually are actually not apart of the category most people... Well logically speaking that is. Based upon experience, I would say most doctors are doing the best they can with the patient loads they have.

    7. Re:This does not surprise me at all. by Bob+The+Cowboy · · Score: 1

      Just because "3." is always "Profit!" doesn't mean you can just leave it out.

      Traditions must be observed! Especially by 7-digit UID's.

    8. Re:This does not surprise me at all. by SoTerrified · · Score: 1, Troll

      When my daughter first started school - many years ago - she caught impetigo. Now, I had had impetigo as a child myself, but I had completely forgotten the symptoms. Moral of the story: most diseases are actually well known - if you find a competent doctor. Unfortunately, most doctors are incompetent.

      WAIT A MINUTE. Your daughter got a disease that you had... Now, most people will only get a handful of diseases in their lifetime, so you forgot a disease in a very small sample set. Whereas the doctor missed a disease among the thousands that he's responsible for diagnosing... And you have the gall to say the doctor was incompetent? You couldn't even recognize one disease in the maybe (being generous) dozen diseases you've had in your life, and you have the temerity to say the doctor failed because he didn't recognize it right away?
      All I'm going to say is that if the doctor was 'incompetent', then as a parent, you must be worse than 'incompetent'.

      Or maybe we could be logical for a moment and all agree that maybe the job isn't easy and that's why sometimes things are missed?

    9. Re:This does not surprise me at all. by nine-times · · Score: 1

      Yeah, I'm not really doing anything but rambling on about your point that you already made, but it wasn't long that I was in the workforce that I realized most of the people I worked with in my field were deeply incompetent. Even when dealing with people with good professional reputations, they didn't know what they were doing. We hired a consultant at one point who was an upper-level troubleshooter for a big/major vendor, and the consultant knew less about their own product than I did after a few months of use. I was very concerned.

      And then I mentioned that to someone who worked in another department for the same company, and he was like, "Yeah, I know what you mean. Everyone in my department is pretty incompetent too. [Employee A] never does any work, and [Employee B] makes mistakes that a smart highschool kid wouldn't make, even though he's been working in our field for 20 years." I talked to lots of other people from other fields, and at least everyone who seemed at all smart and dedicated agreed: most of the people in their field were not good at their jobs.

      It's scary to think about. The people in our government, in our military, running our power plants, working in our hospitals, preparing our food, etc. Most likely, a large percentage of the people in each of those fields are simply bad at their jobs, and they might not even be trying.

      Even in my own experience, doctors don't seem to be the exception.

    10. Re:This does not surprise me at all. by Trojan35 · · Score: 1

      What does everyone call the guy who graduated last in his class at medical school?

      Doctor.

    11. Re:This does not surprise me at all. by Dhalka226 · · Score: 1

      I took her to our local GP who actually admitted that he didn't know what it was, BUT STIIL PRESCRIBED a topical steroidal cream (which did absolutely nothing to cure the problem). A week later, with even more spreading, I returned to the same doctor, and he again admitted he didn't know what it was, and this time prescribed some kind of internal anti-biotic [. . .] As long as the medical community continues to hide the fact that 90% of their job is to memorize symptoms, and accept payola from pharma companies for generating prescriptions , and prescribe medication unnecessarily I will continue to treat them like scum sucking lawyers, used car salesman.

      I'm not going to defend him on his inability to diagnose the particular condition. If it's as common as it seems then yes, he probably should have gotten it. Everybody makes mistakes.

      That said, speaking as somebody with chronic skin problems throughout my life, I can tell with this with certainty: Very few skin issues are treated with anything other than steroids (topical or otherwise) or antibiotics, and steroids is by far the more prevalent. There is essentially no risk to short-term use of a steroid cream, so he took a shot that probably had an 80% chance of being right and prescribed some. When it didn't work, he tried the only other thing it was likely to have been--and despite your walking out on him in a huff--justified or not--it sounds from a quick Google search about the treatments that he actually would have had it the second time.

      If this makes you want a new doctor, that's fine. It's certainly your prerogative. But to go on that little rant about payola and imply he must be in the pocket of pharmaceutical companies is just ridiculously idiotic hyperbole. There are a lot of problems in the medical community, and almost all of them begin with patients, not drug makers. If you want to start attacking people for unnecessary prescriptions, start with the idiots who want drugs for their flu even though antibiotics won't kill viruses; who are too ignorant to realize that what little help any drugs we have for the flu may be are almost always too late to help by the time you realize you have the flu and go to see a doctor about it; who will bitch and cry and moan and scream at that doctor if he had told him he didn't know what was wrong, regardless of what it turned out to be. Bitch at patients who walk into their doctors' offices demanding they be written a prescription for drug-they-just-saw-on-TV-and-self-diagnosed-they-need. Bitch at the patients looking for any reason at all to sue a doctor into the ground simply because the doctor has more money than they do if you want one of the most major causes of why doctors are scared to diagnose today.

      If you don't think all of this happens, you're wrong. I know *many* people in the medical field from nurses to doctors and it happens every day. If you don't like your doctor, if you don't think he's competent, find a new one. But check that hyperbolic crap at the door. Most of these people are good, intelligent people doing the best they can in jobs that would overwhelm the vast majority of people in the world.

    12. Re:This does not surprise me at all. by Anonymous Coward · · Score: 0

      What was step 3?

    13. Re:This does not surprise me at all. by Schraegstrichpunkt · · Score: 1

      The trial and error school of medicine has been debunked more times than I have plucked nose hairs.

      Really? Where? A quick search of Google for 'trial and error medicine' suggests that we might one day be able to do away with it.

  31. Re:Science, is that what medicine doctors lacks of by MichaelSmith · · Score: 2, Interesting

    When my son was young he would get infections from time to time. Some doctors and nurses would tell us that panadol is a good way to get his temperature down, others would say that panadol can't do that. Seems like a pretty easy thing to test to me.

    Years ago when I developed knee problems from cycling I took it to several doctors. One doctor who claimed to be a sports injury specialist told me to put a bandage on it and it should be okay. Eventually I went to a bike shop which caters to the racing crowd. They do a lot of static training there after hours. I paid them to fit my bike to me and bought extra gear to get the fit right. The owner recommended an osteopath he knew who rides bikes and understands the issues. The combination of the two fixed the problem. Doctors were worse than useless.

  32. diagnosis by DarthBender · · Score: 1

    A lot of people are wondering why it took so long to diagnose. Well I have Crohns, diagnosed 4 years ago, even though I'm sure now I've had it since childhood. Growing up I thought that's just how my body worked. I thought I was just a little different than other people in that I had to urgently go to the bathroom a lot, And the painful cramping I thought was from my diet that I was constantly trying to change around to avoid problems. It can be an embarrassing subject to talk about, and if you had it since a child you don't know any better so I'm sure many people don't even talk about it to a doctor until it's an emergency. I never brought it up to doctors and just lived with it until 4 years ago when I went to the ER in just awful pain. Part of my colon was so damaged they removed about 20cm of it. And let me tell you bowel surgery is hell. The pain killers worked great but they take you off of them quickly because they also slow down the digestive system which they want to get back running again. I remember the first time they got me up to walk I took about 4 steps and had to give up. Now I'm managing well, can't complain.

  33. The article says they had been taken for pathology by Cougem · · Score: 5, Informative

    She obviously just requested her own tissues, RTFA

    "she was looking under the microscope at slides of her own intestinal tissue -- slides her pathologist had said were completely normal"

  34. Cron's disease? by Anonymous Coward · · Score: 2, Funny

    Let me guess, her body has trouble performing its repeating functions on a regular schedule?

  35. See? We don't need government-run health care by Anonymous Coward · · Score: 1, Funny

    This is a perfect example of why we don't need government run health care. People are just lazy whiners expecting everything to be done for them. With a little bit of effort, you can set up a lab in your house. And we have the Internet now; you can look up any rare disease. Hell, you can even become a doctor yourself and make a profit from the other lazy asses who aren't willing to get off their couches and be as ambitious as you.

  36. Not surprising by turing_m · · Score: 4, Insightful

    This is not at all surprising to me, although most people would look at me funny for saying so.

    If you are:
    1. Smart (she is in AP science class)
    2. Motivated (you are if you have an illness - it sucks; this is powerful and sustaining motivation)
    3. Can spend as many hours of your spare time as it takes. This could be 10-1000+ hours.
    4. Are willing to experiment.
    5. Live in the internet age...

    You can often diagnose and solve your own problems.

    The key is to realize that:
    1. The info is out there on the internet... somewhere. Probably on a forum, newsgroup post, whatever. (Chances are very high that someone has the exact same problem as you, and has written about it. You just have to figure out what combination of words are on that page and not on others.)
    2. Although the signal to noise ratio is not great, if you are smart enough you will eventually learn to filter the noise and retain signal.
    3. You may go down a wrong path, but since you are doing a type of extensive depth first search (but since you give up on non-promising leads by using your intelligence, you will eventually hit all the breadth), the search will start to approximate exhaustive.
    4. In combination with 3, because you are experimenting, you learn when to curtail one of your search lines and try another.
    5. Because you are smart, you will learn when one of your search lines fails but yields a clue to success, and because you are persistent you will get closer to a solution.

    Thus, an exhaustive search will very often find the answer. The key enabler of all this, the "intelligence multiplier", is the internet.

    Contrast this with a typical expert, such as a doctor. A doctor has 20 minutes to diagnose your problem, and has to remember something he studied for maybe half a day twenty years ago (if at all), in combination with the limited number of patients he has has both seen and successfully diagnosed in his life (compared to the vast collective experience of the internet). He can bill another N clients $$$ for another 20 minutes, or he can research your problem in his spare time. Guess what he usually does? He didn't make it through 90+ hours of internships etc. for the fun of it or to "help people" (maybe 1 in 100). He has student loans to pay off, a current model BMW, a trophy wife or girlfriend, a house in the best suburb, expensive wines to drink, classmates to impress at the reunion, and he has to start at age 30 or so.

    And if you get a second opinion from someone who DOES diagnose your problem, does he get the feedback? Does he see your medical records from your new doctor? Usually not.

    Another thing to realize with doctors is that many (of course, not all) of the people who go into medicine are not natural problem solvers. They are reasonably smart people who have good memories, good English skills, can cram well, and want the lifestyle that goes with being a doctor. A natural engineer by contrast, is better at diagnosis - figuring out what is wrong and fixing it. But often a good engineer will want to do engineering and not medicine. Note that I'm not saying that great doctors aren't out there. They are. But even the best doctors don't have expertise in all areas.

    --
    If I have seen further it is by stealing the Intellectual Property of giants.
    1. Re:Not surprising by martas · · Score: 1

      Chances are very high that someone has the exact same problem as you, and has written about it.

      I agree. In fact, one of my Laws of Life is that any question you ever ask, someone has asked before you.

      Except if you're trying to fix networking in linux under vmware.

    2. Re:Not surprising by domatic · · Score: 1

      A natural engineer by contrast, is better at diagnosis - figuring out what is wrong and fixing it. But often a good engineer will want to do engineering and not medicine.

      A engineer is a better diagnostician but the best diagnosticians aren't necessarily engineers. Look at what demo coders on old 8-bits do. They make them do things that even the people who designed them wouldn't have thought possible. And the skillset of a master mechanic does not perfectly dovetail with that of an automotive engineer. The engineer knows how to design a system say an engine that meets any number of criteria and doubtless understands the correct functioning of that part. The mechanic on the other hand will have a long list of unconscious heuristics for how the system behaves when a part of the engine is degraded or nonfunctional entirely. Troubleshooting is a world all of it's own. And I agree with you that many many doctors don't understand troubleshooting. If they did, I think you'd see much less of the shotgun approach most of them take with tests.

    3. Re:Not surprising by boa13 · · Score: 0, Troll

      Let me guess. You are not a doctor, and you are a natural engineer, whatever that means. You are so prejudiced, it's not funny.

    4. Re:Not surprising by JDevers · · Score: 3, Insightful

      90+ hours of internship? A whole two weeks huh? Try a typical four years of residency with 60-80 hour work weeks. The last year of medical school is often called an internship, but really the definition more fits residency. So instead of the 90 hours you think, it is more like 18,000 hours.

      Also, any doctor worth his license would try to diagnose something and if unable to would at least send one out to a specialist who DOES have significant experience in the area of the issue and if specialist isn't able to diagnose the problem they SHOULD send the person out to a subspecialist if one happens to exist in that area.

    5. Re:Not surprising by 1s44c · · Score: 1

      She's discovered what I started suspecting some years ago: that most doctors aren't really very good...

      I'm sure you are right for general practitioners. With the best will in the world they just can't be competent at everything. They are the first line support of the medical profession.

      Some specialists are pretty good within their area.

    6. Re:Not surprising by kheldan · · Score: 1

      Some specialists are pretty good within their area.

      To be completely fair about it, right now is the first time in my life I've ever had PPO instead of HMO coverage for health insurance, and I think it's going to be a better experience, having hooked up with a doctor in a private practice instead of in one of the huge oversized HMOs like Kaiser or Mercy. We'll see how it pans out over the next, say, year or so though.

      --
      Are YOU using the TOOL, or is the TOOL using YOU? Think about it!
    7. Re:Not surprising by turing_m · · Score: 1

      90+ hours of internship? A whole two weeks huh? Try a typical four years of residency with 60-80 hour work weeks. The last year of medical school is often called an internship, but really the definition more fits residency. So instead of the 90 hours you think, it is more like 18,000 hours.

      Sorry for the confusion, I meant to type 90+ hours per week. That's what my highschool friend who is now a surgeon seems to have worked.

      Also, any doctor worth his license

      Unfortunately not all doctors are worth their license.

      --
      If I have seen further it is by stealing the Intellectual Property of giants.
    8. Re:Not surprising by turing_m · · Score: 1

      Let me explain. I had the grades to do medicine. So did 3 other people from my graduating class. Two of them were what I would call natural engineers - you could see this from the way they solved problems and understood them. One wasn't. Regardless of who took medicine, I would be skeptical of taking a difficult to diagnose problem to the man who wasn't, simply because he wasn't great at grokking problems or how the underlying systems worked in order to solve the problem. He was the sort of guy who would shy away from changing the oil in his car. He got his grades through cramming more than anyone else. Of course, he would be able to diagnose average problems, like most GPs.

      Of the other two people, both were natural engineers, great problem solvers. One did engineering, the other did medicine. The one who is now a surgeon would have been a great engineer. As it was he coded various applications in his spare time, learning different programming languages, taking CS courses with me, etc. He got an HP48GX and taught me why it was good, both the RPN and the applications you could download. I copied him and got one myself. I would trust him to diagnose virtually anything if he was motivated to do so.

      --
      If I have seen further it is by stealing the Intellectual Property of giants.
    9. Re:Not surprising by turing_m · · Score: 1

      A engineer is a better diagnostician but the best diagnosticians aren't necessarily engineers. Look at what demo coders on old 8-bits do...

      Thanks for your comment. You are right. Problem diagnosis and reverse engineering are subtly different skills to design. Especially design out of whole cloth with not much in the way of prior art, versus design by taking the best features from existing designs and combining them, perhaps with some small component that is new.

      I guess looking back on it, I think that some people are born with the ability to intuitively see examples of systems and quickly grok how they work or are supposed to work, and apply them in new and inventive ways. They can then think of how to make the design better, use the design in a novel way or wring the last ounce of performance out of the design (e.g. the 8 bit demo coder), or see where there the design has a fault that needs fixing. I guess this is the domain of the "hacker" (original connotation). Someone with the hacker mindset tends to get a kick out of hearing people say that you can't do something, then thinking a bit, then saying "Well... technically, you can do that, you just have to do x, y and z...", to which the person who said it couldn't be done will either wryly smile and give kudos to the hacker (usually if they are a hacker themselves) or if they aren't, they say that you aren't supposed to do it like that, that it could be dangerous, that the operating manual didn't specify that function, etc. etc.

      To relate it back to medicine, for expert diagnosis you need someone experienced at troubleshooting in general, and specifically in the domain of the problem (unless they have time to develop the experience on their own). For medical "design" per se, I can't see any other way to do it than have the hacker mindset. The human body is an existing and intricate system, even if it formed as a product of its environment through natural selection. All fixes are hacks. All hacks require understanding how the system works, and hacking on bits or tweaking it somehow. Whoever created laser eye surgery, artificial hearts, knees, designing drugs etc, was performing a hack.

      --
      If I have seen further it is by stealing the Intellectual Property of giants.
    10. Re:Not surprising by turing_m · · Score: 1

      Except if you're trying to fix networking in linux under vmware.

      Almost always someone has asked the question. Occasionally the answers are thin on the ground.

      --
      If I have seen further it is by stealing the Intellectual Property of giants.
    11. Re:Not surprising by Anonymous Coward · · Score: 0

      Indeed - self motivation and searching is huge! Solved my ichthyosis problem thanks to the net. The flaky, scaly dry skin plagued me for years. Peers told me to use lotion (like I hadn't thought of that already?), eat more fruit, etc, etc. Docs said to use lotion. Finally determined it after finding a pic that matched up very well and that eventually led me to alpha hydroxy acids. Now I'm fine as long as I use the lotion I add AHA to. Took 20 years to get no answer from the doctors (including a dermatologist!) compared to scant intermittent research on my own. Now it's my preferred way of solving any health ailments.

    12. Re:Not surprising by boa13 · · Score: 1

      Your comment is hard to understand. Apparently, from three persons you know, two were great problem solvers, one became an engineer, the other did medicine. The third one was not a great problem solver, and you won't tell what became of him. Weird.

      My anecdotal evidence is that one of my friends is a great problem solver (and tinkerer), and is a dentist. Several of his dentist friends are good problem solvers. I believe he's a better problem solver than me, and I'm an engineer. Several of my engineer coworkers are not that good at problem solving, but can cram quite a lot.

  37. hmm by x4r · · Score: 0

    most Hippocrite modern collegues is just big fat stupid(or cnning?)idler/liers !! how shameful !! people dying(sometime), while they simply DON't want they'r(WELL paid !!) job !

  38. Re:One more such case,...me by Anonymous Coward · · Score: 2, Interesting

    Not exactly. My stomach had been flipped from my belly into my chest. There it had crumbled my left lung and pushed aside my heart. What I did was losing some weight and the extra room it gave helped me use my right lung to pump up my left lung again. (capping my nose). Not only did new air get into my left lung, also blood started to flow better resulting in a very noticeble drop in blood tension. The bigger lung pushed my stomach back to my belly. Which by the way is an enormous sickening feeling that lasted about six hours. New MRI scans proved it worked leaving the specialists more than amazed any patient would do this at home without prior consulting. Anyway, the operation to stitch everything togeter went fine, and they wrote a report on it in a medical magazine.

  39. Well spotted by Obel · · Score: 0, Redundant

    Not lupus, then...

  40. Re:One more such case,...me by Viridae · · Score: 2, Interesting

    Pubmed is free access? I am a scientist (cancer research to be specific). One of the students in the lab I work in got a chemical splashed into her eye. She was taken to emergency and there she was treated by a doctor who raved about this fantastic website he had found that would tell him what effect the chemical would have on the eye. Turned out that website was pubmed. You can possibly only appreciate the hilarity of that if you are in bio science. But for you non-bioscience people: pubmed is the single most used literature database. And this doctor thought he was very special for discovering it.

  41. unfortunately by jipn4 · · Score: 2, Funny

    While looking under a microscope at slides of her own intestinal tissue

    Unfortunately, her scientific career was short-lived because she was thrown out of school after she had actually obtained the sample of her own intestinal tissue in class.

  42. Re:The article says they had been taken for pathol by Anonymous Coward · · Score: 1, Insightful

    WTF!? Her symptoms, along with the EIGHT YEARS part had me thinking "Crohn's?" before I even finished the summary. And here are doctors, that had tissue samples, that couldn't diagnose it? The girl gets kudos, but the doctors should turn in their license before they end up in a malpractice suit... Granted, there are half a million conditions that could match those simple symptoms, but Crohn's should have been high on the suspicion list after 2 years and conditions didn't appear to get better. And yet they had tissue samples and STILL couldn't figure it out!? Was she outsourcing her medical advice to a call center in India or something!?

    But now that she HAS figured it out... here's to hoping she lives in a compassionate state that allows medical marijuana. Otherwise she'll be stuck with the same incompetent doctors that will have nothing else to do but prescribe her drugs that will practically leave her nonfunctional, and will occasionally perform surgery when the going gets bad, despite the medication.

  43. Doesn't surprise me. by dtmancom · · Score: 2, Interesting

    I survived a serious disease a few years ago IN SPITE of the specialists I had studying my case. You can't know the frustration of being told "oh, you just have stress" when your own immune system is destroying your nervous system, and being prescribed Valium. In the time that was wasted before I got the correct treatment, I forever lost my ability to walk. I no longer have any respect for doctors. If there isn't a bone sticking out, they don't have a clue.

    1. Re:Doesn't surprise me. by Anonymous Coward · · Score: 0

      I have lost all respect for the medical profession being seriously ill for five years. I have never seen a sloppier group of thinkers. Almost everyone with real issues I speak to feels the same.

    2. Re:Doesn't surprise me. by an+unsound+mind · · Score: 1

      As someone who has suffered from incredible pain and fatigue for six years now - I do feel much the same.

      I got labeled a fat hypochondriac and was suggested exercise and whining less. Eventually, the real cause was discovered - congenital brain damage.

  44. Finally, a viable solution... by Anonymous Coward · · Score: 0

    --for U.S. Universal Health Care. We don't need no stinkin' doctors.

  45. I have to ask... by hyades1 · · Score: 2, Funny

    Is this what they mean by "Private Health Care"?

    --
    I've calculated my velocity with such exquisite precision that I have no idea where I am.
    1. Re:I have to ask... by OzPhIsH · · Score: 3, Interesting

      Frankly, I think self, or at least at home diagnosis, IS the future of health care. Med tech needs to be sold at the consumer level and incorporated into the daily hygienic routine, in a non intrusive way. The bathroom of the future will have diagnosed this problem. After you take your morning piss, or crap in in your space toilet, it will analyze the contents and report back any, uh, interesting findings, proposed causes, solutions, possibly give the option of scheduling an appointment with a doctor, etc.

      Hell, doctors are ALREADY being giving PDAs with diagnosis software based on data mining techniques. Type in the list of symptoms, and let the program compare with a repository of data to kick out a diagnosis. I think we're heading to a point, probably still in the far future, where "doctors" in the traditional meaning are irrelevant. They will probably be needed to perform actual procedures, or to diagnose more complex sets of health issues, but for simple "analysis" of basic or common, health problems, machines in every home will be plenty sufficient, as well as add the benefits of early warning.

      However there will probably be obstacles in the way of moving med tech to a consumer product for self diagnosis in home. Namely various doctors/medical associations that are looking out for their own interests, and busybody government buerocrats seeking to "protect" you from the possibility of self-misdiagnosis while actually protecting the profits of a somewhat marginalized profession.Similar to what we see happening in every industry where tech marginalizes former moneymakers...

      Anyway, good for this girl!

      Now make me a space toilet!

      --

      "To lead the people, you must walk behind them"

  46. Re:One more such case,...me by Anonymous Coward · · Score: 0

    What I did was losing some weight

    I assume you're familiar with root cause analysis?

  47. No threat to doctors by xednieht · · Score: 1

    Few will be eager to perform self-administered colonoscopies....

    --

    Hope is the currency of fools
    1. Re:No threat to doctors by Anonymous Coward · · Score: 1, Funny

      Others would jump at the chance!

  48. not enough information was:Re:Surprised? by damn_registrars · · Score: 2, Informative

    how come it wasn't diagnosed?

    We don't have enough information to know why it wasn't diagnosed. It said that she had the symptoms for 8 years, but it doesn't say how many doctors she saw about them, or where or when. This could just as easily be a communications breakdown as much as a problem with quack doctors; if she changed doctors over the 8 years (which is a common patient reaction when they have undiagnosed problems) then the records might not have followed her completely. For that matter the article doesn't say if the family ever moved in the last 8 years; it is unfortunately rather common for patient's records to be incompletely copied from one clinic to another when patients change their primary care providers.

    Also worth noting from the article:

    Crohn's disease is often misdiagnosed or diagnosed very late, says Dr. Corey Siegel, director of the Inflammatory Bowel Disease Center at Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire.
    "Granulomas are oftentimes very hard to find and not always even present at all," Siegel said. "I commend Jessica for her meticulous work."

    --
    Damn_registrars has no butt-hole. Damn_registrars has no use for a butt-hole.
  49. Oh, gross. by Logical+Zebra · · Score: 1

    While looking under a microscope at slides of her own intestinal tissue in her AP science class...

    How the hell do you get samples of your own intestinal tissue? And in AP science class to boot?

    --
    I have a bad feeling about this...
  50. I hope she goes to medical school. by Shag · · Score: 3, Insightful

    Seems like she'd make a good doctor. :)

    --
    Village idiot in some extremely smart villages.
    1. Re:I hope she goes to medical school. by ajmilton · · Score: 0

      the CNN article says she's going to nursing school

  51. It's Slashdot Editrish. by Anonymous Coward · · Score: 0, Flamebait

    Apparently Slashdot editors spend all their free time playing video games, so that's all they know. Learning their own native language isn't as exciting as killing monsters on a video screen.

  52. NO ANAL FOR YOU!! by Anonymous Coward · · Score: 0, Troll

    For I am the Anal Nazi, and anyone with Crohn's disease may not have my secret lube recipe!!!

  53. Diagnosis is not impressive... by Lumpy · · Score: 1

    The fact that she did her own biopsy if her intestinal tissue at school is impressive!

    What, you gotta assume that if she did it all herself then she did it ALL herself.

    That's gotta hurt.

    --
    Do not look at laser with remaining good eye.
  54. Two way street by dcray2000 · · Score: 1

    Her "non-diagnosis" issue is probably two fold. First, almost every doctor out there just wants you in and out and quick as possible. In their mind the negotiated rates with insurance companies is making it difficult to afford their lifestyle compared to other doctors. This is usually further worsened by bad data models. They usually don't remember you and the computer or paper files they have access to are not built for their ease of use. It's not uncommon for me to go into a doctors office and after a few minutes of talking to them, realize they have the wrong patient's information loaded on the computer.

    The other issue is the ego. Some doctors tend to think that if you don't "fit the pattern" of something they know then you are either faking it or crazy. I've gone between two doctors before. While one was familar with my issue and wanted to help, the other pretty much looked me like I was crazy and started babbling non-sense just to get me out of the room.

    So, in the end you do have to trust your doctors, they have the background, but at the same time you have to stay alert to when they are being ego fools, or being shortchanged by a bad data model. Don't be afraid to stick in their face that you don't feel like they are listening or understanding your issue.

    This is even more dangerous for kids for don't have the life experience to tell when a doctor is in uncharted territory. So, it's important for parents to stay involved.

  55. Self Medication by Anonymous Coward · · Score: 1, Funny

    Yet to reach a diagnoses, but I've successfully self-medicated.

  56. This does her no good... by PHPNerd · · Score: 1

    There's no cure. From Wikipedia: "There is no known drug or surgical cure for Crohn's disease;[8] treatment options are restricted to controlling symptoms, maintaining remission and preventing relapse." I suppose perhaps peace of mind in knowing what it is that's wrong, but there's still nothing she can do about it.

    1. Re:This does her no good... by Lord+Ender · · Score: 1

      If she gets it bad, there are some drugs to control the symptoms in most people. If she has a minor case, it's really just an occasional annoyance. And either way, she won't have to wonder what she caught whenever she gets a fever; she will know the real cause.

      --
      A slashdotter who didn't build his own computer is like a Jedi who didn't build his own lightsaber.
    2. Re:This does her no good... by vorpal22 · · Score: 2, Informative

      As someone with severe Crohn's Disease, I can say that it's important that you don't over look the exact phrase you mentioned: controlling symptoms dramatically increases quality of life, and preventing relapse reduces the damage to her intestines and will in turn hopefully reduce the number of surgeries she will need later on in life. So yes, I'd say that while she can't cure her Crohn's, now that she has an arsenal of medications at her disposal, there's plenty that she can do about it.

    3. Re:This does her no good... by Anonymous Coward · · Score: 0

      Also, seat belts don't stop car crashes and are therefore no good.

    4. Re:This does her no good... by Pranadevil2k · · Score: 1

      It can't be cured but it can be treated with immunosuppressants when symptoms present

    5. Re:This does her no good... by Anonymous Coward · · Score: 0

      Hookworm

      The University of Western Australia did studies with giviving sufferers a hookworm infestation. They then give you medication to control the worms - not kill them totally.

      A low level of the parrasite in your system apparently shifts the focus of your imune system so it reduces and in some cases removes crohns symptoms .

      I think they had good results controling the damage caused by the disease , but how do you package, patent, brand and sell a live parrasitic organism.

    6. Re:This does her no good... by Anonymous Coward · · Score: 0

      In quire on the brain slug planet
      Not wearink any hel met

  57. Strange... by rmadmin · · Score: 1

    Not really my area of expertise... but where/how did she get this tissue? Extracting intestinal samples doesn't sound like something we did in high school...

  58. Re:The article says they had been taken for pathol by DarthVain · · Score: 1

    HA! You must be new here!

    Your doing it wrong.

    Your not supposed to read anything but the headline, and then make wild assumptions and accusations.

    Get with the program, sheesh!

  59. Re:The article says they had been taken for pathol by kenh · · Score: 1

    I didn't mean to imply anything wrong (and she is certainly entitled to samples of her own intestinal tissue), but it seems a bit unusual, doesn't it? I mean I ask for the parts to be returned when I go the the auto repair shop, but I never asked for slides of tissue samples from my doctors.

    To be 100% clear, I think it's great she did, I'm happy she was able to diagnose her disease, and if I were her I'd look for an entire new set of doctors. Hopefully, she'll find a way to ride this "news" for a slot in a good pre-med program when she graduates from HS.

    --
    Ken
  60. Re:The article says they had been taken for pathol by Anonymous Coward · · Score: 0

    She lives in or near Sammamish, Washington. So, while they do have some medical use, they're not all that open. Considering that possession of little more than an ounce or cultivation of any kind is still a felony.

  61. Re:Science, is that what medicine doctors lacks of by mutube · · Score: 1

    When my son was young he would get infections from time to time. Some doctors and nurses would tell us that panadol is a good way to get his temperature down, others would say that panadol can't do that. Seems like a pretty easy thing to test to me.

    Just for the record, panadol (paracetamol) is very effective at reducing temperature ("antipyretic") even at low doses - and is often used specifically for that purpose.

  62. Re:Science, is that what medicine doctors lacks of by rjstanford · · Score: 1

    I often wondered how it look like so difficult as a patient to get proper diagnosis and treatment most of the time.

    The thing is, it isn't. The vast majority of diagnoses are accurate. They just don't make news, just like the millions of trans-Atlantic flight-miles that don't result in a plane crashing into the ocean.

    Its "obvious" now that this girl had Chron's disease, after you know what to look for. Of course, even with that knowledge, she didn't match the symptoms that a vast majority of patients had, and her tissue biopsy was hardly staring anyone in the face (if they hadn't ordered the biopsy at all I'd expect more righteous indignation).

    This is hard - and ordering the wrong treatment can be fatal, especially if you're not completely sure what's going on. Not somewhere you want to just throw darts and see what sticks.

    --
    You're special forces then? That's great! I just love your olympics!
  63. Medicine has Changed by Anonymous Coward · · Score: 0

    I spoke with an older retired Doctor a while back and he said listening to the patient is the best way to diagnose their problem. He was pretty successful during his years of practice (he's been retired probably for a decade or two). My wife has had medical problems recently and almost every doctor we've been to barely has time to listen to what's going on beyond just a real brief overview. They they run a large battery of blood tests every time and if the bloodwork shows nothing, they conclude nothing is wrong even if all the symptoms are pointing to a certain disease.

    While I know there are still "old school" type doctors out there, it seems the majority of them now just rely on blood tests for everything. It's almost as if Doctor's assume you are lying unless bloodwork says otherwise. It didn't used to be this way. And if universal health care gets pushed through, the problem is going to be 10 times worse!

  64. Re:The article says they had been taken for pathol by drinkypoo · · Score: 1

    See, that's the part that makes me mad in all of this. The evidence was right there, how come it took a teenage girl to find it? They clearly weren't that interested in actually doing their jobs. We've all been guilty of this kind of thing when making some french fries or writing a TPS report, but it's just unacceptable when we're talking about a human life.

    --
    "You're right," Fisheye says. "I should have set it on 'whip' or 'chop.'"
  65. Tissue sample by phorm · · Score: 1

    One might think so, but the question I would have then is where did the sample *she* used come from. According to TFA:

    "she was looking under the microscope at slides of her own intestinal tissue -- slides her pathologist had said were completely normal"

    Assumedly she hadn't performed a self-biopsy for the samples and had actually received them from the pathologist. I believe the error might have been a bit more easily forgiven if they had biopsied and not gotten a sample indicating the disease (fairly common, my grandfather's lungs, though riddled with cancer, took multiple biopsies to find an afflicted sample). However, this was in from their own sample, which from the article had already been "passed" as normal.

  66. Wow by Anonymous Coward · · Score: 0

    So, not only did she diagnose herself, she did it with information that her doctor had, but was unable to diagnose her with?

    Anyone else smell a malpractice suit?

  67. What I want to know by sfraggle · · Score: 1

    What were they doing in this science class that involved students examining tissue from their own intestines, and how was this tissue acquired?

    --
    were you expecting to see a sig here? perhaps you'd rather see the inside of an ambulance!
  68. Re:The article says they had been taken for pathol by jshackles · · Score: 1

    She lives in or near Sammamish, Washington. So, while they do have some medical use, they're not all that open. Considering that possession of little more than an ounce or cultivation of any kind is still a felony.

    That's right, she lives in or near Sammamish, WA, which means she's about 2 hours from Vancouver. Hmmm....

  69. Re:The article says they had been taken for pathol by Anonymous Coward · · Score: 0

    Hmm. Sounds to me like it should be pretty easy to show a court that after eight years of suffering and a couple of hours in a lab with a microscope, a high school student with no medical training could identify this when a licensed pathologist, with specialized training specifically in analyzing and reviewing tissue slides, was asked (and paid a significantly higher wage than the legal minimum wage) to render a professional opinion, that said pathologist was completely negligent and incompetent in performing the task they were paid to perform, as a licensed medical physician.

    I just hope her lawyer does a better job than her pathologist.

  70. Remeber it is practicing by Anonymous Coward · · Score: 5, Insightful

    This is why they call it 'practicing medicine'. Not many Doctors are that good at it yet.

    Seriously. The most common form of practicing medicine is actually better phrased as 'statistical medicine'. If you have a complaint with a set of symptoms, the Doctor will look at your overall and family health history, your age and basically look at what is most likely to be the diagnosis. If your real issue is not blatantly obvious to see, or you just happen to be unfortunate enough not to fit this well oiled set of statistics. Then you are likely to go undiagnosed. Very few Doctors and specialist will take the time and effort with every patient to hit that few percent that fall outside. They almost always figure they will get a second shot at it at least without causing to much harm or risk to the patient.

    The practice of practicing statistical medicine is well known in the profession. There is plenty of literature within the various disciplines about the situation and costs involved. What I don't understand is that the title should not have been this individual diagnosed herself. More appropriately. 'How many patients routinely find the cause of their illness' before the medical profession does, like this woman did. I would hazard a guess that a 'Specialist' level of failure is statistically related to the statistics they use, on your specific complaint. To put it another way. If we still deal with only the specialist level of care, then over one year period. If 10 patients of the same demographic come into the office with the same complaint and the actual disease has only a 1% chance of hitting that age group. But for argument sake all actually have this disease. He will either get only 1 wrong or he will get it wrong for all but one. Guess what really happens? Use statistics if you wish. :)

    1. Re:Remeber it is practicing by MMC+Monster · · Score: 5, Informative

      Slightly offtopic rant: IAAP (I Am A Physician), and we have to practice statistical medicine. But first and foremost, we have to listen to our patients. A good story beats statistics 9 times out of 10. But that means we get burnt 10 percent of the time. The patient population understands that. The health care industry understands that.

      There's the old saying, "If you hear hoofbeats, look for horses, not zebras". If you want to practice medicine in a different way, go for it.

      --
      Help! I'm a slashdot refugee.
    2. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      how many time you take your colon on a microscope?

    3. Re:Remeber it is practicing by Lord+Bitman · · Score: 5, Insightful

      I've had a cough for about eight years now. Is there a secret code word I can use to say "No, really, I _have_ looked into this before, several doctors have, and it's probably not horses because they've given me medication for horses and it doesn't work. Maybe it's zebras? I'm not supposed to be the one coming up with ideas, here. No, I don't want zebra medication, I'm just saying I want you to actually look into this, take some blood or ask a couple or non-basic questions. Can I please actually be diagnosed instead of given whatever samples of allergy medication [with the same active ingredient and a newer more-relaxing name!] got dropped off by a salesperson last week and that I really don't need?"

      See, It's fine if 10% of people get screwed over the first time, but if 10% of people get screwed over the first time and have no way of saying "that didn't work, I'd like the non-statistical one now, please", that doesn't work.

      --
      -- 'The' Lord and Master Bitman On High, Master Of All
    4. Re:Remeber it is practicing by MozeeToby · · Score: 2, Interesting

      How many patients routinely find the cause of their illness' before the medical profession does, like this woman did?

      Another good question would be 'how many patients do ten minutes of googling and decide that they have some horrible disease when all they really have is a cold?'. My point is that this cuts both ways.

      There's a reason that doctors use statistics to diagnose patients, it works the majority of the time. Where you get into problems is when people have a difficult to diagnose, chronic disease that isn't immediately life threatening. When you're at the doctor several times a year and several doctors aren't able to treat your condition, future doctors will often assume that you are a hypochondriac or an attention seeker. My college roommate lived with Chron's for almost 15 years of his life, until he finally got sick enough that he was admitted to the hospital, 24 hours later he had a correct diagnosis.

    5. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      Slightly offtopic rant: IAAP (I Am A Physician), and we have to practice statistical medicine.

      Understood. And you know, not all Slashdotters hate our docs. I surely don't. Hell, I've moved twice and have to drive 45 mins to see mine when I could drive 5 mins if I'd be willing to switch practitioners. Once you get a good one you don't want to let em go, and mine is golden.

    6. Re:Remeber it is practicing by Thuktun · · Score: 1

      I've had a cough for about eight years now. Is there a secret code word I can use to say "No, really, I _have_ looked into this before, several doctors have, and it's probably not horses because they've given me medication for horses and it doesn't work. Maybe it's zebras? I'm not supposed to be the one coming up with ideas, here. No, I don't want zebra medication, I'm just saying I want you to actually look into this, take some blood or ask a couple or non-basic questions. Can I please actually be diagnosed instead of given whatever samples of allergy medication [with the same active ingredient and a newer more-relaxing name!] got dropped off by a salesperson last week and that I really don't need?"

      Curiously, this sounds similar to a customer service issue I had, probably coincidentally related to health care billing. To make a long story short, an entire remote office of a large software firm spent about nine months having ***ALL*** of our medical claims through our company-sponsored Blue Cross/Blue Shield medical plan denied. For those nine months, every customer service representative I talked to (as well as Human Resources at our own company!) insisted on looking for horses again, no matter the amount of pleading and demanding for something more. Nothing happened until it affected someone who reported directly to the CFO. He complained to his boss, then suddenly forward motion occurred.

      Given this, I theorize that this occurs when nobody with any significant control over the situation really gives a crap. Doctors are human, too.

    7. Re:Remeber it is practicing by MaerD · · Score: 2, Interesting

      Agreed. I had chronic stomach issues for several years (throwing up, being unable to keep much down). I had doctors who would just treat it as if it were a stomach bug, or the flu, or acid reflux. I would feel better in a couple weeks, and continue to feel better for a couple months.

      A few years into all of this, I spent a week being unable to really process any food and finally got sent to a G-I specialist. Apparently I had a Volvulous (sp? basically, one intestine had wrapped around another, causing blockage) and needed surgery NOW or I would probably die.

      Please, doctors listen when a patient says "This keeps happening to me".

      --
      I put on my robe and wizard hat..
    8. Re:Remeber it is practicing by Wandering+Wombat · · Score: 4, Informative

      Trust me, I've been there. Here's a common scenario from my teenaged years:

      Me: I'm having seizures.
      Doc: No, you're not.

      After six years, four doctors, and one car crash, I finally get hooked up to an EEG machine.

      Doc: Oh, hey, check this out. You have epilepsy.
      Me: I know. I told YOU that.

      --
      I like to place meaningful quotes in my sig, so people will know that I know what meaningful quotes are.
    9. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      "Crohnâ(TM)s disease is an inflammatory bowel disease, the general name for diseases that cause swelling in the intestines. Because the symptoms of Crohnâ(TM)s disease are similar to other intestinal disorders, such as irritable bowel syndrome and ulcerative colitis, it can be difficult to diagnose. Ulcerative colitis causes inflammation and ulcers in the top layer of the lining of the large intestine. In Crohnâ(TM)s disease, all layers of the intestine may be involved, and normal healthy bowel can be found between sections of diseased bowel"

      doesnt sound so cut and dry to me.

    10. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      Agreed. 100%. And furthermore, where is the case management oversight? If 5 specialists from 5 different areas of medicine all have their own simple statistical recommendations, and none of them truly solves the issue but instead causes other issues in other areas of focus, which are then "diagnosed" by those other specialists, then all we're doing is creating a cocktail of medicine/treatment-induced "second generation" issues.

      Why can't every patient have a regional case manager who is WELL-trained and WELL-paid (for having to have been so well trained), and who oversees the entire set of symptoms, diagnoses, treatment attempts, results, and side effects? But these case managers must be held accountable for their knowledge. We're talking about people who know nearly everything about everything in the medical field. If there is a disease that affects 1 in every 1,500,000 people, this case manager had better know about it. This should be standard practice in American medicine. Then we can pay the statistical specialists what they're really worth, which I am very confident is less than what we currently pay them and also would cover the costs of the case managers (considering there would be a one-to-many ratio of case managers to specialists/patients).

    11. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      I've had a cough for about eight years now. Is there a secret code word I can use to say "No, really, I _have_ looked into this before, several doctors have, and it's probably not horses because they've given me medication for horses and it doesn't work. Maybe it's zebras? I'm not supposed to be the one coming up with ideas, here. No, I don't want zebra medication, I'm just saying I want you to actually look into this, take some blood or ask a couple or non-basic questions. Can I please actually be diagnosed instead of given whatever samples of allergy medication [with the same active ingredient and a newer more-relaxing name!] got dropped off by a salesperson last week and that I really don't need?"

      See, It's fine if 10% of people get screwed over the first time, but if 10% of people get screwed over the first time and have no way of saying "that didn't work, I'd like the non-statistical one now, please", that doesn't work.

      I'm with you on this one. I've seen a string of 5 physicians. Each one of them has tried their 3 favorite diagnostics tools. When that doesn't turn anything up, they give up, telling me that some people just have pain, and would I please stop bothering them so they can diagnose some easier patients.

      My favorite was when I create a comprehensive report of all the doctors and treatments. It earned me a one way ticket to a skeptical doctor that wanted me out of the office in as few visits as possible.

      The kicker? A physical therapist diagnosed my problem. All it took was 20 minutes of asking questions and poking and prodding in the right places.

    12. Re:Remeber it is practicing by Fnkmaster · · Score: 1

      Look for a doctor who is willing to spend some time talking to patients and working through a diagnostic problem. Treating horses is easy, quick and profitable. Trying to figure out if you're dealing with Zimbabwean or Nigerian Zebras may be rewarding, but it's time consuming. And may or may not be a profitable enterprise.

      In particular, you should go to a specialist, not just a general practitioner who deals with sniffly noses and common issues all the time. Find a pulmonologist who can scope your lungs (bronchoscopy), take chest X-rays, do a blood work-up, spirometry tests, and maybe a CT scan. Not saying you need all those tests, but they should be willing to use all those tools to diagnose a respiratory issue.

    13. Re:Remeber it is practicing by Silas+is+back · · Score: 1

      Very few Doctors and specialist will take the time and effort with every patient to hit that few percent that fall outside. They almost always figure they will get a second shot at it at least without causing to much harm or risk to the patient.

      Yes. That is the single most effective method to separate the really ill from the "I think I am ill" population. IAAP (though into research now), and believe me, if you want to work less than 70 hours a week, you have to go by that rule. It's not the optimum for every single patient and there will be a few tragic cases, but it's not doable otherwise.

      If 10 patients of the same demographic come into the office with the same complaint and the actual disease has only a 1% chance of hitting that age group. But for argument sake all actually have this disease. He will either get only 1 wrong or he will get it wrong for all but one.

      That's not exactly how statistical medicine works. ;)

      ... should not have been this individual diagnosed herself.

      Well, _technically_ she did not diagnose herself. Her doctors knew it was IBD, so it had to either be Crohn or Colitis Ulcerosa. To proof either, you need hard facts, if they are missing you don't decide. Now they gave her a sample of her own intestine, and in there she discovered a granuloma. Would the pathologist have kept this sample for himself and given her another one, she would have been diagnosed by her pathologist and would not have gotten her 5 minutes of internet popularity. ;)

      --
      this sig is useless
    14. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      "Very few Doctors and specialist will take the time and effort with every patient to hit that few percent that fall outside"

      Fixed: Very few Doctors and specialist can take the time and effort with every patient to hit that few percent that fall outside"

    15. Re:Remeber it is practicing by GreekGeek · · Score: 1

      Statistics should never be a part of human life when it comes to wellness.

      Human nature always focuses on "hunches" while business nature focuses on "statistical economic optimization" (i.e. make the most money).

      American healthcare is the latter while European has the former.

      My wife had a cough for months and most of the time was relegated to the couch and the bed. We went on a trip to Europe to get away and decided to go to a doctor while there. In a matter of minutes, she was properly diagnosed and within a couple of weeks was cleared of her issue.

      The only cost was 40 euros for the doctor's time and he gave us some drugs to hold us over until we came back for free.

      This was a case of using a hunch instead of statistics. A good doctor knows when to move away from statistics and into hunches.

      This is what US doctors should be trained to do.

    16. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      Slightly offtopic rant: IAAP (I Am A Physician), and we have to practice statistical medicine. But first and foremost, we have to listen to our patients. A good story beats statistics 9 times out of 10. But that means we get burnt 10 percent of the time. The patient population understands that. The health care industry understands that.

      Actually, I doubt very much that many patients do understand that. Most often, you hear their dire screams of "What do you MEAN you don't know what's wrong with me!?!

      I've been around a whole lot of people with sick family members, or people who have various health conditions themselves, and I have seen the agony of a non-diagnosis due to statisical medicine. "My family doesn't know what's wrong with me, I don't know what's wrong with me, DOCTORS don't know what's wrong with me... what am I gonna do?" etc.

      Mostly, it's all about saving time and money. You don't wanna put the effort into doing the necessary tests, so you diagnose based on what it's likely to be, rather than confirming what it is. I wonder how many improper medicines get handed out because of this practice.

      Naturally, there are situations where you can't sit around all day and wait for test results to come back, or it's just plain uneconomical to do so. But by that same token, not every medical situation is like the ones you see on TV where "Time is running out." And NO ONE with a chronic problem should have to suffer through 10 misdiagnoses before finally getting the right treatment.

      P.S. Zebras are horses, and they have hooves.

    17. Re:Remeber it is practicing by JWSmythe · · Score: 1

          Doc,

          Honestly, in any industry we all do that. I do IT work professionally, and work on friends and do a whole variety of other things (work on cars, fix houses), as well as light medical diagnostics almost always followed by "now go see the doctor."

          Sometimes when you're closer to the subject, you collect more information and can give a better response. The girl in the article had a very intimate relationship with her patient (herself), so she spent lots of extra time on it, I'm sure.

          I don't go to the doctor very often, usually because there's something really wrong that I can't treat, and I give a good educated rundown on what's wrong with me so they have a better chance at guessing. When I lived in Los Angeles, my ears had been ringing really badly. They've been ringing for a long time, but it had been almost unbearable for about 2 months. The doctor was a very nice guy, and he was honest. He told me, 99% of the time, patients can be sent off to specialists, spend lots of money, and still find that there's no discernible cause. I understood. He gave me a good look over anyways. He could see my eardrums were bulging because of pressure behind them, because my eustation tubes were blocked. I didn't show any other symptoms of being sick. We both had a good laugh about the air quality of Los Angeles, and then he gave me one prescription and two OTC recommendations. I was that 1% this time. The ringing settled back down to normal in a few days. I know they get irritated pretty easily, and it's kind of hit and miss when I fly. If I have any sort of upper respritory infection, it can be painful. Only once did I have an eardrum burst on a rapid descent. Now I only fly with pressure earplugs in.

          The last time I was sick and went to the doctor, it's because I had to go. I couldn't breathe. When I woke up in the morning, it felt like I was drowning. I went in, told him the rundown of my symptoms with decent descriptions. He listened to my back, starting low, skipping to the middle, and then asked if I wanted prescriptions or to go straight to the hospital for pneumonia . He wrote me a stack of prescriptions that would make a druggie drool, and I was spitting out phlegm for the next two days. Not just a little. Entire mouthfuls every time. It was really disgusting, but I was happy I could breathe. I had already diagnosed myself, I just knew I couldn't get the right drugs OTC and I was running a risk of dying if I didn't get treatment. Statistically, he knew just about every patient with those symptoms needed those drugs to solve their problem, so there's no harm in that. Now the one patient that comes in with pneumonia symptoms and is actually suffering from lung cancer and didn't know, that's a bad thing. Should every patient be tested for every possible thing? Only if they're rich. :)

      --
      Serious? Seriousness is well above my pay grade.
    18. Re:Remeber it is practicing by bwcbwc · · Score: 2, Informative

      "If you hear hoofbeats, look for horses, not zebras"
      Unless of course, you live in Africa. Then it could be anything from antelope to wildebeest. Not to mention zebras.

      Statistical medicine is all well and good for making sure you get the best probability of curing the problem on the first shot, but too many doctors seem to get fixated on the initial diagnosis (or lack thereof) and don't continue the investigation for less likely scenarios.

      In the case of the original article, this looks more like a case where the pathologist missed the granuloma that the student spotted. So it was more a case of hearing the hoofbeats, but not getting a good view to see if the animal had stripes. Apparently spotting a granuloma is a black art comparable to scanning a mammogram.

      --
      We are the 198 proof..
    19. Re:Remeber it is practicing by MushingBits · · Score: 1

      "A good story beats statistics 9 times out of 10."

      So what happens if the doc never bothers listening to your story? Unfortunately they are often in such a hurry they don't seem to listen beyond the 5th word out of the patient's mouth, and if the patient persists attempts to communicate they often cop an attitude and/or try to run the patient out of the room.

    20. Re:Remeber it is practicing by nine-times · · Score: 4, Insightful

      Yeah, I have to call bullshit on some of this. Not because I'm calling you out personally, but from my experience with doctors, they aren't looking for zebras, but they aren't looking for horses either. When you tell them you're hearing hoofbeats, they say, "Meh, noises happen sometimes. Most likely harmless. If it is a horse, let me know after you've been trampled and I'll see if I can patch you up then. See you next time!"

      I've had a few different doctors in the past few years. I came in complaining of a set of symptoms one year, and the doctor said, "Meh, probably nothing. Don't worry about it." The next year, I made the same complaint to another doctor, and he blew me off too. The next year, I was hospitalized for a condition that was completely connected to the prior symptoms. Gee, might that have been worth looking into?

      Still, no diagnosis. The doctors I've gone to don't know what it is, but don't want to do any more tests, either. I have insurance, but they still give me the run-around. Every time I go into the doctor, I can tell that he hasn't done any research, reviewed my records, or put a single thought into my situation other than during the 10 minutes I'm in the room with him. He opens up a little folder, looks at his notes from last time, says, "Nope, still don't know what it is. But you're not doing too badly right now, so let's not worry about it. See you next time!"

      I don't want to offend you personally, but your profession sucks. I used to fix computers for a living, and if I put in as little effort into my diagnostics as the doctors that I've seen in my life, I would have gotten fired. Still every doctor that I go to acts as though he's doing me a favor, like he's my boss and gets to tell me what to do.

      The only excuse that I've heard that I find at all understandable is, I've read that PCPs are overloaded because there's a shortage, and they're forced to spend their time dealing with insurance companies rather than treating patients. I don't know if that's politically motivated hogwash, but either way, these "professionals" aren't doing their job.

    21. Re:Remeber it is practicing by Sinbios · · Score: 1

      Can't you just ask for an EEG? I don't know why any doctor would refuse to perform one.

      When I had chronic stomach cramps, I asked my doctor if there's any procedure they could do to check it out. He said "weeeell, I could do a colonoscopy, but that's gonna suck for you." I didn't take it ;)

      --
      Anyone can "stand up for what they believe", but it takes a very brave individual to change what they believe. - Loundry
    22. Re:Remeber it is practicing by canuck08 · · Score: 1

      It is neurological. You are imagining the irritation that is causing your cough.
      It is probably neuro-encephalitis.
      You should do a brain tissue biopsy.
      Do you have a cordless drill?

    23. Re:Remeber it is practicing by OldSoldier · · Score: 1

      A good story beats statistics 9 times out of 10. But that means we get burnt 10 percent of the time. The patient population understands that. The health care industry understands that.

      There's the old saying, "If you hear hoofbeats, look for horses, not zebras". If you want to practice medicine in a different way, go for it.

      But shouldn't the approach be to only get burnt the first time 10% of the time (with the implied goal to get it right eventually)? I think the problem most folks in the US have with their healthcare (after cost) is that most doctors treat the most probable cause as the ONLY cause. To more correctly phrase your zebra analogy:

      "If you hear hoofbeats, look for horses, NEVER zebras".

      Statistics should provide a first guess, there should still be a verification to that guess and if the verification fails, statistics should indicate the second guess, repeat until done. Somewhere in there of course, doctors gotta start questioning whether the patient is being rational and/or telling them the whole truth, but it seems more often than not that if the first guess isn't right it's because the patient is confused.

    24. Re:Remeber it is practicing by Wandering+Wombat · · Score: 2, Interesting

      He wouldn't refer me for an EEG because he didn't believe a word I was saying. I had to try for years just to get referred to a specialist, and then wait 8 months because neurologists are just REALLY busy.

      --
      I like to place meaningful quotes in my sig, so people will know that I know what meaningful quotes are.
    25. Re:Remeber it is practicing by malus314 · · Score: 1

      I agree, unfortunately doctors seem to be way to dependent upon statistical analysis for making diagnoses. The statistics will show you a possible path to take in thinking what MIGHT be wrong, but you have to be willing to put in some original thought, too. In my experience it seems that most doctors think like this: Ok, we're going to start out looking for horses as they're the most common. Ok, there are apparently no horses, so I'm going to ask you all the standard questions all over again. Ok, it appears that there are no horses, so rather than look for zebras (which as every good physician knows, are statistically very rare and therefore are non-existant) I'm going to tell you it's all in your head and send you home. (Or sometimes he'll insist it's horses and send you home with the appropriate non-effective meds) So apparently to be a good doctor, you just need to know all the common diseases and their symptoms, then insist it's one of them when a patient complains of x set of symptoms even if the treatment isn't working. Don't refer them, just pack them full of the standard meds and they'll be fine. Even if they aren't.

    26. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      The solution here is obviously to start selling the pills they keep giving you, and to use the money to buy better healthcare.

    27. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      It's great that you're okay with ignoring 10% of your patients. I'm sure it makes your practice a ton easier to just bounce the ones you can't figure out to other doctors, and your patients must be incredibly understanding with you when they keep coming back after they realize that they have a better chance of winning a free Coke on a bottle cap than getting a correct diagnosis. But maybe once you've eliminated horses and you're still hearing hoofbeats, you should try looking for some stripes, eh?

    28. Re:Remeber it is practicing by Belial6 · · Score: 1

      Basically, there are three diagnosis that usually get made for non-obvious problems. Virus, Allergies, IBS. All are 'just go home and deal with it.' diagnoses. The IBS is the worst. Since it stands for Irritable Bowel Syndrome. Syndrome being a list of symptoms. So, the patient comes in and says "Doctor, my bowels are irritated. It hurts!" The doctors diagnoses. "You have IBS." Great help that is. Repeating back what the patent just said in acronym for isn't a diagnosis. No one should ever leave a doctors office with a "diagnosis" of Irritable Bowel Syndrome. A doctor making that their final diagnosis is the same as saying "your too much trouble to bother with."

    29. Re:Remeber it is practicing by Impy+the+Impiuos+Imp · · Score: 2, Interesting

      > The kicker? A physical therapist diagnosed my problem

      Which was?

      While a college student, my brother went from doctor to doctor for six months for intestinal and stomach problems. Nobody could figure it out.

      Eventually he figured it out. He was drinking the equivalent of 2 two-liters of Coke a day.

      I find it hard to believe physicians wouldn't ask what you eat on a regular basis when having reports of long-term gastrointestinal issues.

      On the other hand, if you're one such doctor, add drinking waaaaaaay too much pop as something to check in the first round of diagnosis, especially of younger people.

      Hehe, two 2-liters' worth a day. Would make a good House case.

      --
      (-1: Post disagrees with my already-settled worldview) is not a valid mod option.
    30. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      The problem, it seems, is that most Doctors these days are strictly there to meet the minimum requirements of their job description, and not genuinely interested in correctly diagnosing or "curing" a patient's ailments. I've only met less than a handful of Doctors that actually go beyond the call of duty and take pride in treating their fellow humans. Me and a few friends in college tested this theory in film class...by faking symptoms to see if we can trick doctors into giving us crap, without actually confirming we needed said crap. Wish I was still in contact with those guys so I can show the video. It's really was mind boggling (Funny film too! :-P). It kind of opened my eyes. As a kid, I used to think Doctors were immune to the normal evils/selfishness of people in general. Boy, was I way off.

    31. Re:Remeber it is practicing by Lost+Race · · Score: 1

      Why cordless? So he can do it in the car, on the way to the hospital, just in case?

    32. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      Why not say exactly that, and also tell them (ideally have it documented on paper so you can just give them a copy rather then trying to remember it and orally tell them) what you have done to try and solve it (i.e. I quit smoking, I got rid of my cat, I've moved3 times so it's unlikely to be environment specific to my house, I took medications X, Y and Z with Q, etc.).

    33. Re:Remeber it is practicing by WarlockD · · Score: 1

      Got first hand experience with this. I have always had this pain at the right site of my hip. After trips to the ER and a doctor that thought it was a "stress muscle" it took my Mom to get cancer before they diagnosed me with gall stones and a non functioning gall bladder.

      See my mom came in to the doctor because her pee was red. They did an ultrasound, as she has been doing this for a while, and come to find out one kidney is completely consumed by a tumor . Parents thought it be a good idea if I got one too.

      Its not that doctors don't care, its just what do you expect from a general practitioner. The ER said nothing was wrong with me and charged me $200 because I didn't have a hole in my body. The doctor both me and my mom went to doesn't handle alot of serious chronic cases when he apologized. I bet if I went to a heart doctor, he would of thought something was wrong with my heart.

      The real problem with our current medical overruns and malpractice by doctors is that we just don't have a good diagnoses process. If they could figure out whats making you sick in under a few days, that would solve a lot of our medical payment issues:P

    34. Re:Remeber it is practicing by canuck08 · · Score: 1

      safety first... all that blood you know... you could electrocute yourself. The battery is safer than the mains.

    35. Re:Remeber it is practicing by jc42 · · Score: 1

      There's the old saying, "If you hear hoofbeats, look for horses, not zebras".

      It's always fun to see people using old sayings that turn out to be bogus. In this case, the bogosity is because, if you are looking for a horse, you are in fact also looking for a zebra. If you see a horse, you are also seeing a special case of a zebra.

      People usually distinguish them, mostly because of the superficial difference in their appearance. But the domestic horse (Equus caballus) is in the same Equus genus that includes the zebras. Of the three surviving zebra species, one (E. zebra, the mountain or Hartmann's zebra) is more closely related to the domestic horse than either is to the other two zebra species. As the cladists would express it, the term "zebra" is biologically nonsensical unless it includes horses, because any clade that includes all three zebras also includes horses.

      Actually, it turns out that there is some small debate over the exact relation between these four species, and the best approach would be to wait for further DNA research. But the current classification based on partial data says that horses are a species within the group of zebras, and chances are pretty good that it's correct. Horses are an odd kind of zebra, since horses usually don't show stripes, but that was also true of the quagga, which has been extinct for about a century. Quaggas had stripes only on their necks and front legs, but they were still considered zebras. And breeders will tell you that crosses between very different strains of horse often produced offspring with visible stripes, so the pattern genes are lurking in the horse genome.

      Old sayings can be fun to use, and often have some sort of factual basis. But if the saying turns out to be based on incorrect information, and some of your audience knows this, it can sorta detract from the effectiveness.

      --
      Those who do study history are doomed to stand helplessly by while everyone else repeats it.
    36. Re:Remeber it is practicing by Tybalt_Capulet · · Score: 1

      Crones disease isn't exactly one of the most unheard of diseases, if she had the symptoms, the doctors should have checked for it.

      Statistics may say that 1% of the age group will get it, and it may be statistically unlikely that those people will walk into the office with the same disease, it's possible.

      A coin-flip will come up heads or tails, but two coin-flips will not necessarily come up heads and tails.

      --
      Has the old saint in his forest not yet heard of it? That God is dead?
    37. Re:Remeber it is practicing by ninnie9 · · Score: 1

      It appears that almost every slashdot user is more intelligent than the majority of doctors in this country, and would be better at 'practicing medicine' even though the doctors have received years of extra school and training in their various specialties. This is what my ideal doctor would do. First, he tells me what my problem is, and how certain he is about the diagnosis. Next, he either recommends me to a specialist or gives me the options for treatment, detailing the pros/cons of each. Many doctors stop here, and leave the choice to the person. I want my doctor to tell me what treatment he recommends, because I trust that he knows more about it than me.

    38. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      Quit smoking.

    39. Re:Remeber it is practicing by Impy+the+Impiuos+Imp · · Score: 1

      You have no idea what you're talking about, do you?

      --
      (-1: Post disagrees with my already-settled worldview) is not a valid mod option.
    40. Re:Remeber it is practicing by Thinboy00 · · Score: 1

      IANAL. Sue for malpractice.

      --
      $ make available
    41. Re:Remeber it is practicing by jafac · · Score: 1

      Same deal here.
      Severe lower back pain. Numbness in parts of my legs.

      Doctors, MRI's, pain specialists, chiropractors - nothing.
      (Of course, ins wouldn't pay for surgery! - unless there was "loss of functionality" - ie. I became paralyzed)

      A physical therapist checked me out, and said that the therapy the Dr. ordered was a waste of time for me, and had me try something else - and FINALLY, after 5 years of suffering, my condition improved. I'm not ALL better - but I caught the damage before there was permanent impairment.

      --

      These are my friends, See how they glisten. See this one shine, how he smiles in the light.
    42. Re:Remeber it is practicing by GregGardner · · Score: 1

      Perhaps you are going to bad doctors that aren't doing there job. However, there is one problem with your analogy between doctors and computer technicians. Computers don't sue you when you try to fix them and you accidentally make things worse.

    43. Re:Remeber it is practicing by nine-times · · Score: 1

      Computers don't sue you when you try to fix them and you accidentally make things worse.

      The computers themselves won't, no. But there's no guarantee that the computer's owner won't sue me. All the more reason to do good work, instead of ignoring the customers' complaints and failing to diagnose their problems.

    44. Re:Remeber it is practicing by Tetrad_of_doom · · Score: 2, Insightful

      This makes me wonder what a physician's place in the modern world is. Given a set of symptoms a layman can do an internet search and find the most common condition fitting those symptoms, and also find a list of treatments. I guess physicians are supposed to be objective, but you could get a lawyer to do that. The prescribing of drugs could be done by a pharmacist.

      If all you are going to do is apply a statistical model to your patients, you should probably be replaced by a computer.

      I guess surgeons have a useful skill.

    45. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      "Is there a secret code word ... "

      Yes indeed! The secret code to use is "I am not a drug seeker."

      It took me 15 years before my cluster headaches were finally diagnosed.
      I thought I had a brain tumor, sinusitus, allergies from hell, etc etc etc.
      I was literally on the verge of killing myself when a cluster would begin, these things were so
      unbelievably painful. I'd go into the ER, and most doctors thought I was just going through
      some elaborate act to try to get pain drugs (which couldn't touch these things anyway), so they
      weren't really interested in figuring it out.

      Shortly after I met the person who is now my wife, she nailed it. She was an
      OB-GYN, which probably helped.

    46. Re:Remeber it is practicing by bretticus · · Score: 1

      You are way oversimplifying what a physician does. How does the computer know what questions to ask? Sometimes relevant symptoms are not noticed by the patient until the physician asks. What computer can do an adequate physical exam? Can a computer recognize psychiatric symptoms when interviewing? Who does all of the procedures? Who reads the imaging?

    47. Re:Remeber it is practicing by Nekomusume · · Score: 1

      There's also the fact that a lot of doctors are lazy. Once they have defined the problem, they stop looking, even if the medical definition of the problem is the name for the collection of symptoms, rather than any given cause for that collection of symptoms.

      I read a book some time back regarding ADD/ADHD. The author, a doctor, gave all kinds of examples of kids that had been diagnosed with ADD/ADHD, but rather than stopping there, and just throwing ritalyn at them, he actually took the time to investigate and found various causes for the symptoms, and treated those causes instead of just masking the symptoms with ritalyn.

    48. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      'how many patients do ten minutes of googling and decide that they have some horrible disease when all they really have is a cold?'.

      I have done sufficient research on ADD, ADHD, Asperger's, and depression and on the drug treatments for them that I know the dosages and side effects of the drugs that my son and I have taken/are taking better than any of the general practitioners, paediatricians, clinical psychologists, or psychiatrists that either of us have been to.

      And for some of the medical practitioners I have seen, ten minutes of googling exceeds their knowledge.

    49. Re:Remeber it is practicing by lsatenstein · · Score: 0

      Since doctors are skilled at memorizing, and not at diagnosis, there is a justification that only 5% to 10% can analyse a problem. That means actually, that only 5% to 10% of doctors are researchers, while the others are golfers.

      --
      Leslie Satenstein Montreal Quebec Canada
    50. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      Try going to the same doctor. They realize the same thing doesn't work relatively quickly. I say relative because my idiot doctor, Karen Sylvara D.O. here in Kirksville, MO missed my cancer for three years while I was coming to her crying once a month. Eventually I did fire her, and got it figured out, but not until it had done some serious permanent damage to the quality of my life, and certainly not until the statute of limitations had worn off... hurray for no discovery clause in the state of Missouri.

    51. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      Are you on any drugs that have coughing as a side effect ? A number of blood pressure drugs, ACE inhibitors, such as Enalapril, have this as a side effect.

      Also, consider a University teaching hospital.

    52. Re:Remeber it is practicing by Phoghat · · Score: 1

      I'd like to know how she got that sample of intestinal tissue.

      --
      Think of how stupid the average person is, and realize half of them are stupider than that.
    53. Re:Remeber it is practicing by RockDoctor · · Score: 1

      Look for a doctor who is willing to spend some time talking to patients and working through a diagnostic problem. Treating horses is easy, quick and profitable.

      What has the profit motive got to do with medical practice?
      Oh, let me guess - you're in a "developing country" which doesn't have a proper medical service.
      Fire the country and move to the civilised world ; more likely than not that'll solve your problem. Assuming of course that the civilised world allows immigration from your country.

      --
      Birds are not dinosaur descendants;birds are dinosaurs, for all useful meanings of "birds", "are" and "dinosaurs"
    54. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      "we have to practice statistical medicine" "patient population understands that"

      Wrong, on both counts.

      You don't have to be a greedy SOB who spends 3 and a half minutes with each patient so that you can rake in 7 figures a year. You could actually do your job. If you took your car in because it pulls to the left, would you be satisfied with, "We changed your oil and topped off the washer fluid, give it a few weeks and see if that helps. That'll be $737.50." You wouldn't even get a block down the street before you were bringing it back demanding they fix it. You wouldn't take, "You've gotta give that oil change a chance to work, make an appointment with my secretary to come back in a couple weeks."

      I know it's probably unfathomable to you, but most people with jobs learn to get by on 5 figures. Doctors, being much smarter than the rest of us, probably could learn to do so as well. Then you could afford to actually take the time to do your job like the rest of us.

    55. Re:Remeber it is practicing by cloudmaster · · Score: 1

      So, why haven't you fired your Dr. yet? He's working for you, not the other way around. If he's not providing you with acceptable service, find another one. You understand that you'd be fired if you did as poorly for your customers...

    56. Re:Remeber it is practicing by nine-times · · Score: 1

      I've "fired" several doctors, and the new ones aren't better.

    57. Re:Remeber it is practicing by pommiekiwifruit · · Score: 1

      Colonoscopy: £1500 (which probably translates to $20,000 with US health system inflation, I don't know). Doesn't investigate your stomach. Preparation really sucks. Anaesthetic gives you glowing feeling afterwards though. Chance of perforation and possible death if you are unlucky (1 in 2000). Handy for preventing colon cancer - worth it as a 40th birthday present for a man :-) If its in your *stomach*, you might want an endoscopy instead (through the mouth rather than the other end). This is very unpleasant with local aneasthetic but the doctor can look for stomach ulcers.

    58. Re:Remeber it is practicing by Bigjeff5 · · Score: 1

      Honestly, it sounds like you greatly assisted your mis-diagnosis. Perhaps if you had stuck with the first doctor, instead of seeing a different doctor each time, it would have been spotted a full year sooner, hmm?

      My paraphrase of doctor visit #2:

      "Doctor, I r having that thing again" "Meh, prolly nothin" "Tahts wut u said last time" "Orly? Lets run some tests..."

      See, if you see a new doctor each time, you start at the beginning each time. Do a little research, find a decent doctor, and see them more than once about a chronic issue! Good night, it's not that hard. If it's a rare case any doctor will miss it on the first shot, unless you are dying from it (even then they probably will miss it the first time, medicine is hard!).

      Seeing new doctors will not help if they are all taking that first shot at it. They will probably miss it too.

      --
      Security is mostly a superstition... Avoiding danger is no safer in the long run than outright exposure. - Helen Keller
    59. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      yeah, it's always the patient's fault.

      See, if you keep complaining, you're a hypochondriac or psychosomatic
      [Never mind that males are usually not attention whores with the Ohmynotfeelingwell and hysteria stuff and must be dragged to the doc. Dissimulation is also common, because if you tell the quack about trifle she will have a nice excuse to send you just to some other moron to "check this out" nevermind the REAL PROBLEM]

      Off to Psycho the rapist you go

    60. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      I think you're full of it. First of all, she's not a "woman". She's a high school girl. Granulomae are highly detectable and, given her symptoms, would have led the doctors straight to Crohn's. It's not an uncommon disease, and serves as a perfect model for the apathy and disregard for patients that exists in our healthcare system today. Don't say, "It's ok to make a mistake." Doctors are doctors for a reason; they get paid thousands of dollars to relieve suffering and preserve life. It's their job.

    61. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      One cause of colon cancer is untreated celiac (which is hell in other respects too).
      Eating 0.00 junk food like grains or bread prevents this cause.

      Celiac isn't always diarrhea (or you don't notice because it sneaks up on you and you think going once per day is normal). It can fuck with your whole immune system, thyroid throat eye skin nails, plus the malnutrition. Since the test/cure is cheap and good for you anyway, anybody, especially asperger & co should be on a zero gluten diet, confirmed or not.

      How putting tubes into these holes "prevents" cancer I do not see. If they "find" something they have a nice excuse for the ahh cutting you up and the oy veh cell toxins. Oh, yes. Prostata is gold mine too.

    62. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      Have you tried Marihuana? - ingested in food, not smoked, that would probably help as much as hurt.

    63. Re:Remeber it is practicing by nine-times · · Score: 1

      Yeah, sorry, but your criticism is retarded. I'm not saying I only talked to each doctor once, I'm saying after a year of the first one patting me on the head and saying, "whatever, you hypochondriac, it's nothing," I tried to find a new doctor and he did the same thing. After a few years of doctors giving me the brush off, it flared up seriously enough to put me in the hospital for 3 days.

      And even after that, the second doctor was like, "Oh, well, it's not so bad at the moment that you need to be hospitalized again, at least not yet, so don't worry about it. Hopefully it just won't happen again, in spite of the fact that your symptoms haven't gone away."

      And these aren't some loony back-ally doctors. These are board-certified physicians with successful practices. I think it has to be something systematic in the medical field.

    64. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      So this happens to people with private insurance, too! I'm on Medicare, Medicaid on which the state just paid $20 billion to a new subsidiary of a big insurance company to save them money, etc., and I've been through several primary care doctors, one of which got paid almost a thousand dollars for an interview by a non-doctor and a decision by a bookkeeper not to see us. I've called dozens of doctors they lsted as members of their plan hwo said they werre not and would not consider becoming members, dealt with their Vision Care subcontractor who didn't know what a therapeutic optometrist, an opthalmologist, or a nystagmus condition was, and been referred to one by one of their allreed M.B.A.s for an eye exam, after explaining a complex condiiton, who asked only what I could see witout any correction, which they already knew was just the big E, charged $500.00, and referred to another doctor with more credentials who did the same thing. With a persistent problem I could and did look up on the Internet, I've been bounced to several specialists, given innumerable exensive tests, some of them twice because they couldn't read the first one, or lostthd records. My hospital records, for which they tried to charge me, consist of a stack of pages with everyything but a white dot blacked out. Neither I nor any of my doctors can get a copy of my medical records even for the past year or two. They quibble about whether a cough I can pin down to a spot the size of a dime above mycollarbone is in the throat specialist's jurisdiction--she says it isn't--or that of some one of several other doctors to whom I have been bounced. All most ever do after the first visit is schedule repeat visits, during which they spend about two minutes, don't know what they put me on, and bill for an hour. Earlier, I was put, and kept for months, on medication the FDA and maker's warnings said were "NOT recommended" for anything I ever had or anything they said I had, whileI was hoospitalized for three months with symptons all of which were listed as known side effects of this and which cleared up once another doctor discovered they had not taken me off this when the had said they had and corrected it. My records contain alleged statements I never made to doctors I never met, among other things shown to be incredible lies on the record. Earlier, my sister was kept in a hospital for 114 extra days after her doctor discharged herbecuse they had run us out of insurance and wouldn't let us take her home, as though she were a car in the shop subject to a mechanic's lien. My mother's autopsy showed she did not have what they had been treating her for. We knew someone who went in for a routine test and died of something they gave her in the hospital--and they billed her for care for that. Two friends' parents were told they were brain dead and to pull the plug and finish killing them, and one's deth certificate was signed more htan once, and both were sentient and in good jobs using their minds when I met them later. I don't dare tell you the details, but we know someone who is allegedly being treated and prescribed for by a doctor who has never been within 200 miles, and a physician's assistant 560 miles way from, her, in a nursing home where records show she was at least the twelfth person to catch meningitis and which is on the National Watch List. Our vet knows more, is more honest, cares more, and does more work treating our dogs, but I can't get a referral to him.

    65. Re:Remeber it is practicing by Evets · · Score: 1

      What was it that you tried? Someone close to me has been experiencing chronic back pain (both lower and upper at alternating times). Doctors have come up dry so far.

    66. Re:Remeber it is practicing by zevans · · Score: 1

      "cheap and good for you"

      Actually, i's slightly more expensive for most people, because the alternatives to the wheat-based foods you cut out are more expensive. I still haven't decided whether this is economies of scale or blatent profiteering. Maybe it's a bit better in the States because you tend to put corn products in cheap food, whereas over here it tends to be wheat flour and maltodextrin in TV dinners.

      It can also be bad for you, because there's a lot of nutrients in bread and cereal that you will no longer get by default, notably folic acid, several of the B complexes, vitamin E... and you really have to pay attention to eat enough pulses, greens, and fish to replace what you've lost.

      So it CAN be good for you, but it's not a given - be careful. Me, I have no choice, but when I first stopped eating wheat my skin and hair got noticably worse until I figured out the right foods to use as replacements.

      --
      "... and more and more now there are all kinds of electronic goodies available" -- Pink Floyd 1972
    67. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      i have been sick for quite a few years, i get tested and have gotten so many tests done to me im sick of tests, id rather just be sick 5 days outta the week then go through more tests. something tells me im not the only one in this boat, the way it seems is that the doctors are looking for zebras and not horses, maybe its them...

    68. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      See, It's fine if 10% of people get screwed over the first time, but if 10% of people get screwed over the first time and have no way of saying "that didn't work, I'd like the non-statistical one now, please", that doesn't work.

      Oh, golly -- don't worry. It'll all be sooo much better when Obamacare comes to town. Gov't-run healthcare is gonna make the DMV look like a well-oiled machine. I can hardly wait.

    69. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      I've never been asked any insightful or interesting questions by a doctor. WebMD, on the other hand, does ask questions, and doesn't charge. A paramedic with no college with a WebMD style checklist and 20 minutes to spend with a patient would probably get better diagnoses than an MD with 10 minutes. But doctors cost 10 times as much as paramedics per hour, even though we let them save lives every day.

    70. Re:Remeber it is practicing by mackyrae · · Score: 1

      "junk food like grains or bread"

      Uh huh...fiber is junk food? Since when? Throughout history and in just about every culture, the traditional way of eating has been 70% grain & 30% bean/protein. That's what we evolved to eat. You're supposed to get a lot of fiber. It's good for your digestive system, cleans it out a bit. If you're not getting any fiber, you're doing some major damage to your body. Yes, you can get fiber from fruits too (mmmm prunes), but I bet next you're going to tell us that fruits are bad for you because they naturally contain sugars.

      --
      look! it's a bird, it's a plane, it's....a girl? yes, a girl browsing Slashdot on Linux
    71. Re:Remeber it is practicing by Anonymous Coward · · Score: 0

      ::"junk food like grains or bread" :Uh huh...fiber is junk food?

      What to the what now, grains or fiber?
      Grains are not especially high in fiber, unless you eat them whole, which is not recommended.
      Unmilled grains (bad idea) contain extra-raw fiber and lots of other phytotoxins.

      Milled grains are about 80% starch (carbohydrates) and contain not enough protein (usually in the range of 10 %). The protein (gluten) causes all kind of problems. High carbohydrate and low protein is risk for Diabetes type II or undiagnosed Diabetes type II aka Metabolic syndrome aka fattie.

      Grains come with some vitamins too, unfortunately those are mainly in the part with the phytotoxins.
      Overall grains are cheap calories and unless corn, rice, sorghum or pseudocereal, risky due to gluten. Now this is essentially different from "junk food" how?

      "Throughout history and in just about every culture, the traditional way of eating has been 70% grain & 30% bean/protein"

      Statements from telescreen may be less true than they appear to be. Nomads, hunter/gatherers and eskimos certainly did not grow beans.

      "That's what we evolved to eat"

      You, maybe. There seems to be a genetic component (European hunter/gatherer descent).

      "You're supposed to get a lot of fiber. It's good for your digestive system, cleans it out a bit. If you're not getting any fiber, you're doing some major damage to your body."

      Who told you so? Telescreen?
      Nutrition is a sorry pseudoscience, even taking into account that it's a branch of quackery already. "Fiber prevents colon cancer" was a silly idea and it has been known not to work for a long time. As to the "cleaning out", if you appreciate intestinal troubles that's your decision. I struck endivies from my diet. Loved the taste though.

      "Yes, you can get fiber from fruits too (mmmm prunes), but I bet next you're going to tell us that fruits are bad for you because they naturally contain sugars"

      They do contain an unholy amount of fructose (energy content of fruit juice rivals soft drinks), which is suspected to be rather bad. As long as you don't overdo it the effects are probably mitigated by vitamins and other micronutritients, or maybe there are even special secondary substances to help you cope. Better than HFCS or diet soda in any case.

      I take it you will all buy my Cooking for Hackers e-book? Mhhm, buckwheat popcorn. (In small amounts and not daily)

      -k

       

  71. No cure doesn't mean no good by phorm · · Score: 1

    There are plenty of things without a cure. Severe allergies (although these often wax/wane with time), diabetes, various forms of epilepsy, and many other conditions. Knowing the issue allows you to address the issue in a manner that can be life-saving or at the very least life-extending/improving.

    If you have epilepsy, it might not be curable but the medication can help prevent seizures which means you don't die twitching on the floor, and in many cases can even drive a vehicle etc (which you'd otherwise be unable to do).

    Knowing one's allergies allows you to carry medication such as an epi-pen if they're severe, or know to take allergy meds when symptoms that are often very similar to other conditions crop up (one thing I personally know a lot about, allergies can cause skin, stomach, breathing, flu-syptoms or many other issues ).

    Diabetes: knowing one is diabetic, and thus monitoring+adjusting one's blood-glucose can save you from an early death and other nasty side-effects

    Yes, a cure is the optimal solution. But after 8 years of painful symptoms, I'm assuming that being able to suppress said symptoms over a long term is still a whole lot better than "no good" and "nothing she can do about it". It's not just peace of mind.

  72. Poor Grammar by WebmasterNeal · · Score: 1

    Is it just me or does this sentence not make sense - "Then one day in January someone was finally figured out what was wrong with Jessica. That person was her."

    "Someone set us up the bomb"

    "We Get Signal"

    "Hello Gentleman, All Your Base Are Belong To Us"

    --
    "During My Service In The United States Congress, I Took The Initiative In Creating The Internet." -Al Gore
  73. Are there no nurses in her family? by Anonymous Coward · · Score: 0

    Apparently, there are no nurses in her family. In my experience, floor nurses tend to be better diagnosticians than almost any doctor I've known. Probably because they (the nurses) tend to spend hours and hours, each day, with the patients (and talking with the patients and families), whereas the docs spend just a few minutes a day, at most, with either the patient or the family.

    Note to doctors ('specially the new one reading this thread): be nice to the nurses - they can save your hide, or let you get sued.

  74. That's pretty much what I did by Brian+Stretch · · Score: 1

    to diagnose Convergence Insufficiency. It's an incredibly simple eye problem, should have been caught in grade school but wasn't. Anyone who's having trouble keeping their mind focused while reading should get tested. I drove myself crazy, thinking I had ADD (that catch-all for "brain no work good"), until I stumbled across this. It might have been tolerable to ignore CI before we all started staring at computer screens all day and could easily get high paying jobs that didn't require serious reading, but now it's not and it's worth the cost of an optometrist's exam that you're likely overdue for anyhow. The CI website will direct you to doctors who know what to check.

  75. Re:Science, is that what medicine doctors lacks of by hey! · · Score: 1

    It's not that doctors are useless. It's the medical system that's useless.

    The knee problem, for instance. The word "doctor" means "teacher". In the days when doctors were essentially the servants the wealthy, that's what they did. If you were lord of the manor, you'd have a social relationship with the local doctor and unlimited access to his time. In the modern system, doctor time is factor of production, and expensive one. Profits are maximized by getting enough results that patients don't give up in droves with the minimum amount of doctor time. Alternative medicine may sometime succeed where conventional fails because it operates on a more personal level.

    The panadol business is a direct result of the way drugs are developed and marketed. Pharmaceutical companies compete by finding a drug that occupies a successful market niche and copying it. So doctors have a plethora of medications that do the same thing. They go with what they know (sometimes that depends on marketing). At the same time focusing on blockbuster niches means others aren't served yet -- e.g. pediatric treatments. So doctors have to adapt and do off-label applications. These aren't scientifically supported, so you can't blame doctors who haven't tried them for not believing in them.

    --
    Post may contain irony: discontinue use if experiencing mood swings, nausea or elevated blood pressure.
  76. Re:Science, is that what medicine doctors lacks of by ceoyoyo · · Score: 2, Insightful

    My friend's mother got cancer. They tried all sorts of "natural" treatments. By the time they were willing to give up and try real medicine it was too late and she died.

    This, and what you wrote, are known as anecdotes. They are known to be very poor for generating actual knowledge that is likely to be correct. Something called data is known to do this convincingly, and to provable confidence levels.

    Data indicates that doctors are not worse than useless, but osteopaths may very likely be.

  77. Re:I suspect I may have Multiple Personality Disor by risk+one · · Score: 5, Funny

    IWtR woerkedd oouth briplliantly fopr me . Engvry bok;dy shold tryuk oit. Nevtr fgelt nbetytere.

  78. How to get intestine cell? by timlyg · · Score: 0, Interesting

    How does one obtain one's own intestine cells? Direct on the point answer please, thanks!

    1. Re:How to get intestine cell? by snowraver1 · · Score: 1

      I was wondering the same question. I'm guessing that is was from a fecal sample.

      --
      Copyright 2010. All rights reserved. This comment may not be copied in any way including, but not limited to caching.
    2. Re:How to get intestine cell? by Anonymous Coward · · Score: 0

      If you'd read the article you'd know.

      Ahahahaha, I kill me.

    3. Re:How to get intestine cell? by JWSmythe · · Score: 1

          I was really wondering that too. I didn't see it mentioned in the article. Did she look at a fecal sample in class (eww), or did she have a classmate stick something up her rectum to get it? :) Either way, it's not something I'd exactly expect to happen in a classroom.

      --
      Serious? Seriousness is well above my pay grade.
    4. Re:How to get intestine cell? by fredrickleo · · Score: 1

      How does one obtain one's own intestine cells? Direct on the point answer please, thanks!

      She had sample slides that had previously been taken by her pathologist. How her pathologist got them? I'm not a doctor and I've never had an intestinal sample taken.

      --
      Yay me! ^^
    5. Re:How to get intestine cell? by timlyg · · Score: 0

      Neither was she, and she solved her own medical problem.

    6. Re:How to get intestine cell? by FatLittleMonkey · · Score: 1

      Are you asking for pictures? Coz...

      --
      Science is all about firing a drunk pig out of a cannon just to see what happens.
    7. Re:How to get intestine cell? by mackyrae · · Score: 1

      Her pathologist gave it to her to use for the school experiment.

      --
      look! it's a bird, it's a plane, it's....a girl? yes, a girl browsing Slashdot on Linux
    8. Re:How to get intestine cell? by timlyg · · Score: 0

      cute girls, both of you...in each's own way.

      Who else can answer my question?

  79. Her own tissue? by Broken+Bottle · · Score: 1

    where does an 18-year old get samples of her own intestinal tissue? When I was in biology in high school, we were content to stop at looking up a frog's ass in the name of science. Something is fishy about this story. Crohn's Disease isn't a rare malady. It's easily diagnosed by any doctor that specializes in digestive disorders. It seems weird to me that it couldn't be identified by a qualified doctor but an 18 year old could figure it out based on what she saw under a microscope in science class...

    1. Re:Her own tissue? by JDevers · · Score: 1

      My thoughts exactly. How would a high school class even go about GETTING intestinal tissue? Also, a granuloma usually isn't seen microscopically initially but via XRay and can mean many different things.

      From my own experience in the medical field, I would say that Crohn's Disease is probably OVER diagnosed, not under. I'm thinking either the whole story is fake or some significant details have been left out.

  80. Incompetant doctors! by slashhax0r · · Score: 1

    What the hell? Chron's isn't some super rare thing, this should have been diagnosed by her doctors years ago. kudos to her for figguring it out though.

  81. Re:The article says they had been taken for pathol by Anonymous Coward · · Score: 0

    I don't know. As far as legality, Canada is as much of a tossup as the US.

  82. Some times you need to be your own advocate by hAckz0r · · Score: 5, Interesting
    My hat is off to this individual for being so resourceful at such an early age. I suffered from a parasitic disease for 37 years without any diagnosis, before buying all kinds of lab equipment and discovering the cause myself. The doctors never even tried to diagnose it, and some just labelled me as being a nut case, or something. I saw SO MANY doctors I have lost track, and not one of them really even tried to come up with an explanation, or send me for tests that might have even had a chance at diagnosing the actual problem. Not even so much as a guess. In short, they were incapable of 'thinking outside the box'.

    The answer was http://en.wikipedia.org/wiki/Schistosomiasis, which I contracted as a young child. It ruined my life, for sure. The trouble is, if you ask any doctor here in the US they will tell you it does not even exist here, only in west Africa and South America. I've never even been anywhere near there, or outside the country at the time at which I contracted it. If you have ever been labelled with IBS but have other symptoms as well then you might want to read the above wikipedia article.

    Because the doctors are not aware of the disease, they do not diagnose it.
    Because doctors do not diagnose it, they do not collect any statistics.
    Because the disease is statistically insignificant, the medical schools do not teach much, if any, about it.
    Therefore the doctors don't know about it.

    Anyone see a problem with this situation?

    What really hurts is that when it really started affecting my health my primary care physician at the time was an EXPERT in those diseases, and she just blew me off because it would bee too hard to think, or to send me for actual tests of some kind. You would never know her ineptitude by looking at her wall of certification she earned in medical school in west Africa. Of all doctors, including at least three infectious disease specialists, this one completely boggles my mind how she could have missed this diagnosis!

    After 37+ years of damage it took my buying my own 1600x stereo microscope mounted with a CCD camera to collect some indisputable evidence, one day to use it, one doctor visit to present my case, three days just to find a source in the US to fill the prescription, and only 24 hours to actually cure it. The damage was done, and nothing can ever give me back my health, or a normal life for that matter. The real kicker is my dog gets that exact same 'cure' every month, but it took me three days to find a supplier for a 'human' prescription for the exact same drug. All I can say is at least my dog has someone that actually cares about his health!

    1. Re:Some times you need to be your own advocate by kkrajewski · · Score: 1

      In what ways other than dosage does the canine version differ? I hear it's not unfathomable that one working for or very friendly with a vet might receive a prescription for their "170 pound" dog.

    2. Re:Some times you need to be your own advocate by Anonymous Coward · · Score: 0

      I am really sorry to hear about your suffering. I suppose there is some affect to your central nervous system. Interestingly, the wikipedia link for the treatment, Praziquantel seems to indicate that in most people the damage is largely reversible:

      "Praziquantel has a particularly dramatic effect on patients with schistosomiasis. Studies of those treated have shown that within six months of receiving a dose of praziquantel, up to 90% of the damage done to internal organs due to schistosomiasis infection can be reversed."

    3. Re:Some times you need to be your own advocate by Anonymous Coward · · Score: 0

      You should have just taken your dog's prescription, then. Why wait. It's not like it will kill you just because it's for dogs.

      Anyway, obviously big f***ing huge kudos for your persistence, and for not losing the mind.

    4. Re:Some times you need to be your own advocate by b4dc0d3r · · Score: 1

      I'm assuming here, and forgive me if this is too obvious, that you went back to every one of those doctors you could remember and told them this story? Write a letter once and mail it to everyone as you remember them? Or visit them personally and look them in the eye as you tell them your story?

      Sounds like you're trying to pass the word on, so I assume you already told all the docs who missed it, so they'll be unlikely to miss it again. And maybe they can collect some statistics now that they are aware of the problem?

      For the good of all mankind, it wouldn't hurt to contact medical schools, or have the doctor who wrote your prescription finally to contact some people and let them know of this as well?

    5. Re:Some times you need to be your own advocate by Anonymous Coward · · Score: 0

      Could you elaborate on your symptoms? The wiki link mentions "...schistosomiasis is a chronic disease. Many infections are subclinically symptomatic, ...".

      I've had some of these symptoms off and on for decades now. The Diarrhea is particularly bad. (My doctors told me I had IBS and to learn to live with it.)

      Wiki also mentions freshwater snails, which I used to have in my aquarium as a kid. Source unknown, but a lot of those fish & whatnot came from out-of-country.

  83. Re:not enough information was:Re:Surprised? by Barny · · Score: 1

    Yeah, done a fair bit of reading into this since I was diagnosed with a slightly more rare version, Crohn's Colitis.

    They don't know what causes it (diet and other things used to be suspect, but in recent years have been disproved), they can't cure it, but with a ballanced course of medication it can be lived with.

    She is lucky in a way, regular crohn's attacks the intestines and lower stomach region, there ain't much in the way of nerves up there. It can be worse, from time my symptoms started to flare to time I was diagnosed it was about 6 mths, toward the end of that time I could barely walk.

    What is it? Its when your immune system just decides, kinda out of the blue, to attack your digestive tract. Treatable with anti-inflammatory (not good, the most effective one, prednisolone, also has some REALLY bad side effects), and immune suppressors.

    --
    ...
    /me sighs
  84. O/T by NiteShaed · · Score: 1

    yeah, it's off topic, but I had to really read that carefully a couple of times before I even noticed the extra "was" that was in there. It's amazing how the brain sometimes edits things as you read them to "fix" mistakes as you go without you even consciously noticing it....

    --
    Some bring out the best in others, some the worst. Some bring out far more.
    1. Re:O/T by Anonymous Coward · · Score: 0

      It's amazing how the brain sometimes edits things as you read them to "fix" mistakes as you go without you even consciously noticing it....

      I think that is a good point. A human wrote the sentence so it is still understandable by other humans even with the errors (we are not machines!). Too many people (gamma Nazis) look at the sentence and seemingly see "syntax error" and feign not being able to understand what is being expressed.

      That said, there is really no excuse for someone calling themselves an Editor letting something like that through.

  85. Re:Science, is that what medicine doctors lacks of by Hognoxious · · Score: 2, Interesting

    Did you tell these useless doctors about the cycling?

    I used to joke that if people gave their doctors the same quality of information as we used to get in our bug reports, they'd go home sicker than they went in - if they went home at all.

    Then I was talking to a doctor and he said they do. Smoking is the thing they usually lie about.

    --
    Confucius say, "Find worm in apple - bad. Find half a worm - worse."
  86. Tough diagnosis by sjbe · · Score: 1

    My primary care doctor is experienced and well known...

    That kid wouldn't have been so certain based on his clinical experience of similar looking rashes.

    This isn't necessarily a critique of your particular doctor but primary care doctors are *not* usually experts in rashes. I know this because my wife is a dermatopathologist and constantly complains about the skin "diagnosis" she gets from general practitioners. According to her, it is fairly rare to find a non-dermatologist doctor who is particularly competent or sophisticated at identifying skin conditions. There are a LOT of skin conditions that can mimic other skin conditions and the differences can be subtle to non-existent. Every doctor gets fooled - the more interesting question is how often? Your doctor might be good at skin conditions (or might be bad) but the best way to know for sure is to ask a pathologist. But even that is imperfect because pathologists get fooled too.

    Doctors go with the story that makes sense but sometimes their first instinct is wrong. Fortunately in most cases the consequences of being wrong are minor. They have a saying that when you hear the sound of hoofs you think horses, not zebras. As a rule of thumb you don't treat the unlikely condition until you've ruled out or have reason to suspect the common condition is not present. I don't know the particulars of your case beyond what you've presented but I've heard many stories like yours. Sometimes the clues lead doctors down a wrong path.

    The fact that the kid in this article had the problem for years but they never went back to the start of the decision tree to see where they went says something bad about her doctors.

    Maybe but maybe not. The article leaves out a lot of information. We don't know how actively she (the patient) pursued getting a diagnosis. We don't know her medical history. We don't know what tests were tried and we don't know the results of those tests. We don't know what was discussed with the doctors and we don't know the qualifications of the doctors involved in her case. We don't know what she was treated for and what her differential diagnosis was. Some conditions simply are hard to diagnose even when you have all the facts. My wife is a pathologist and according to her it is apparently surprisingly easy to miss a clue on a slide. The better pathologists stress over this fact endlessly. Some conditions require looking at the slide on high power for a single unusual looking cell among many thousands. Sometimes the clues are breathtakingly subtle and the best "diagnosis" available is a list of conditions that cannot be ruled out - sometimes a long list of conditions unfortunately. A granuloma is apparently noteworthy but might not be diagnostic by itself. It could easily be missed with a moment's inattention. What I'm saying is that we should be careful about judging the physicians in this case because we very clearly do not have all the facts.

  87. Not surprising by kheldan · · Score: 1

    She's discovered what I started suspecting some years ago: that most doctors aren't really very good, and that medical science in general should only have the term "science" applied to it very, very loosely. We seem to have barely scratched the surface of how biological systems work, and that's a statement I'll only apply to those who are at the very top of their fields. The average run-of-the-mill HMO doctor I believe to be pretty clueless, which is only made worse by people who won't or can't question the decisions they're making for their health care.

    --
    Are YOU using the TOOL, or is the TOOL using YOU? Think about it!
  88. At least it wasn't... by uberjack · · Score: 1

    crone's disease! *rimshot*

  89. Hard to diagnose by Anonymous Coward · · Score: 0

    My niece has Crohn's disease and it was diagnosed when she was about 12, but that was after at least a couple years of my sister taking her to different doctors. I'm not sure why it seems so hard for doctors to get this one right. Maybe because the symptoms are common to a lot of other ailments and because the intensity varies. My niece has learned to control the disease by altering her diet and without any medication, and she has grown up very healthy. Of course, her mom is a nutritionist, so that helps.

  90. 9 out of 10 doctors agree... by mypalmike · · Score: 1

    1. Get your money. (Profit!)
    2. Next patient.
    3. Repeat.

    --
    There are 0x40000000 types of people: those who understand 32-bit IEEE 754 floating point, and those who don't.
  91. I've done this too by Wyatt+Earp · · Score: 1

    Mine was Atypical Trigeminal Neuralgia, and while I didn't find out from a slide, there was a year of Doctors not diagnosing and my discovering what it was and pitching that to my neurosurgeon and getting a treatment that worked.

  92. I believe this is called... by CannedTurkey · · Score: 2, Funny

    Republican-style Universal Health Care

    --
    Ingredients: Turkey, Mechanically Separated Turkey, Water, Salt, Flavour.
    1. Re:I believe this is called... by Archangel+Michael · · Score: 1

      I'd mod you troll, if I had mod points. If you want universally bad health care, don't make me buy into it. If you see "free", it isn't. The best health care is not free, and free healthcare isn't the best.

      But the reality is, humans make mistakes, and any system that tries to eliminate mistakes is itself error prone, and can be and usually is worse than the system it replaces.

      No system is perfect, because humans are not perfect, and we are part of that system.

      --
      Agent K: A *person* is smart. People are dumb, stupid, panicky animals, and you know it.
  93. worst medical student by Anonymous Coward · · Score: 0

    There are good doctors, but many more bad ones... unfortunately.

    It reminds me of that old joke: What do you call the medical student who came in last in class? Doctor.

    Frightening but true.

  94. Re:I suspect I may have Multiple Personality Disor by RealGrouchy · · Score: 3, Funny

    Someone in my family had self-diagnosed Alzheimer's disease, but I can't remember who.

    - RG>

    --
    Hey pal, this isn't a pleasantforest, so don't waste my time with pleasantries!
  95. Re:The article says they had been taken for pathol by Anonymous Coward · · Score: 0

    RTF What?

    Obviously you're new here...

    She obviously just requested her own tissues, RTFA

      "she was looking under the microscope at slides of her own intestinal tissue -- slides her pathologist had said were completely normal"

  96. i still don't understand.... by Anonymous Coward · · Score: 0

    how was she able to sample her own intestinal tissue?

    1. Re:i still don't understand.... by JSBiff · · Score: 1

      It never said she sampled her own intestinal tissue. From the article, it sounds like she got the slides from her doctor, after the pathologist had already 'examined' and missed the inflammation in the tissue. Honestly, she should probably be suing the pathologist for malpractice for declaring the slide to be 'completely normal', when it was not. This is also why second opinions are probably a good idea. One doc finds nothing wrong with a tissue sample? Ask to have a second doctor, not affiliated with the original hospital/practice, examine and give a second opinion.

  97. Re:I suspect I may have Multiple Personality Disor by ObsessiveMathsFreak · · Score: 1

    Dnon'pt lijsetin too hiemm! Thhaat fowul bpotchchedd tehh hwole oupparaasion! Weere roooined!!

    --
    May the Maths Be with you!
  98. Interesting ... by SlashDev · · Score: 1

    ... how Jessica often missed class, yet she was in advanced placement; she must be really smart. Good for you Jessica and hats off!

    --

    TOP DSLR Cameras Reviews of the top DSLRs
  99. There has to be some training problem by Anonymous Coward · · Score: 0

    Did anyone else read the symptoms in the first sentence and go - "oh she has Crohn's disease"
    Then read the second sentence and think - " WTF it was undiagnosed? "

    I mean come on, 8 years of classic symptoms

    I can't help feeling her doctors were either idiots, poorly trained or just didn't care.
    Something is wrong if 5000 milers away I can read her symptoms and get it right but her doctors missed it after consultations.

  100. Incompetent MD by cdn-programmer · · Score: 1

    My wife was in a nursing home in a coma and the GP in question was too stupid and too lazy to call the neurosurgeon and inquire what the proper med levels were. She should have known. I did. Her own mother died of the same type of brain tumor.

    There are many thick doctors out there. But where I live I have NEVER heard of a doctor having their license revoked. Sure - some diagnosis are difficult to make.

    But I'm talking about adjusting the level of the steroids which in this case was Dexamethasone.

    http://en.wikipedia.org/wiki/Dexamethasone

    This is a pretty common steroid to be administered to patients with a brain tumor. Further more the dosage in her case was up to about 15 mg/day because of her small stature. To let her lapse into a coma at 8 mg/day is malpractice in my books.

    I was the one telling the nurse - but this was a nursing home - not a hospital. She needed to be in an auxillary hospital and were she there perhaps it wouldn't have happened.

    I was the one who told the neurosurgeon what was going on and he was shocked and called the nursing home immediately and changed the prescription - OVER THE PHONE.

    Yes the doctor on call had his number. I gave it to her.

    I could have pulled her before the College of Physicians and Surgeons but I knew they would do nothing. I wonder how many patients were similarly treated by that incompetent witch doctor.

  101. Why I never worked for Microsoft by cdn-programmer · · Score: 1

    Well - that is why I never worked for Microsoft. That was 1984.

    You see my wife had a brain tumor and I live in Canada. We have universal health coverage.

    I thought of emigrating. I would NEVER consider recommending to anyone that they move to the states.

  102. RTFA by Anonymous Coward · · Score: 0

    You could... You know... read the article.
    It... MIGHT say something about how she got the sample.

    "she was looking under the microscope at slides of her own intestinal tissue -- slides her pathologist had said were completely normal"

  103. Docs take away by cockpitcomp · · Score: 1

    Never give slides to patient.

  104. not surprising by roc97007 · · Score: 2, Interesting

    I don't find this surprising at all. Doctor's offices are assembly lines these days. A convenient good for a convenient number. Real life isn't like House -- unless you're a senator, successful diagnosis of obscure problems is unlikely, and probably prohibitively expensive for the patient, even with insurance.

    It would be in our favor to become more educated about how this complicated machine called the body works. I'm not suggesting bizarre treatments only available in third world countries, but a more complete understanding of cause and effect.

    For instance, the most common treatment for back pain is "weaponized" muscle relaxers and pain killers, commonly leading to hopeless addiction. I know of at least two cases (one of them my own) where the true cause of the pain was due to ergonomic issues, and changes in the environment accompanied by proper exercise solved the issue. Doctors are not likely to tell you that. I don't even believe it's something nefarious like kickbacks from the drug companies. It's simply because giving you a prescription frees up an examining room faster than trying to find a cause.

    And then, there is the expense. I had an ailment that was costing me $400 a month in office visits, lab tests and drugs, after insurance. At some point I realized that I wasn't getting $400 worth of relief, and just stopped going. A little research produced alternates that provided 90% of the effect for 5% of the cost.

    We don't have their training, but we do have a much higher regard for our own health than do most doctors, and access via libraries and the net to most of their information. The body is just another machine -- although a very complicated one -- and can be understood by an educated person, at least partially, via research.

    Mind you, if I need surgery I'm going to the hospital. I'm not an idiot. But I stopped taking steroids for eczema, for instance, and switched to Bag Balm, available at the feed store at negligible cost. Works great.

    --
    Oliver's law of assumed responsibility: If you're seen fixing it, you will be blamed for breaking it.
  105. Re:The article says they had been taken for pathol by Anonymous Coward · · Score: 0

    I tried requesting my own tissues but all that came out was poop!

  106. Translation by ThatsNotPudding · · Score: 1

    "It's weird I had to solve my own medical problem."

    Translation: typical US health insurance. I can only assume when she went to her GP, he told her to 'walk it off' (while insurance company vultures perched on both his shoulders).

  107. Science reveals all we want and don't want to know by Anonymous Coward · · Score: 2, Interesting

    An anecdote from my AP anatomy class - we were testing blood types on our own blood, when a girl discovered her blood was AB-. Struck her as odd considering her parents both had the A+ bloodtype. She went home, confronted her parents, and promptly found out she was adopted. The teacher doesn't allow students to test their own blood anymore.

  108. Re:I suspect I may have Multiple Personality Disor by JWSmythe · · Score: 1

        I'd reply with something intelligent, but you probably won't remember that you posted the original message. Now go take your Thorazine and stop calling me Billy.

    --
    Serious? Seriousness is well above my pay grade.
  109. Seems obvious by 1s44c · · Score: 1

    chronic stomach pain
    chronic diarrhea
    chronic vomiting
    chronic fever

    I'm no doctor but that reads like a list of Crohn's symptoms to me. Maybe what she really needs is a better GP.

    1. Re:Seems obvious by djp928 · · Score: 1

      The problem is, it's also the list of symptoms of any number of possible diseases, from the catch-all IBD to colon or stomach cancer.

  110. Kegwell by Anonymous Coward · · Score: 0

    She is probably trying to get a head start on diagnosing her disease before the government takes over health care and she is dead before the government can even file the forms.

  111. KOMO is CNN affiliate now? by treeves · · Score: 1

    When I used to live in Seattle it was an ABC station. I didn't even know CNN had broadcast stations. What the hey?

    --
    ...the future crusty old bastards are already drinking the Kool-Aid.
  112. Doctors were useless, except that osteopaths by Anonymous Coward · · Score: 0

    ARE Doctors! They get a D.O. instead of an M.D. but have the same authority to perform diagnosis and prescribe treatments.

  113. Ahhh... by geoncic · · Score: 1

    The more and more common 'House Complex'. Did he grab your boob and call you an idiot, too?

  114. Wait, a minute... by Anonymous Coward · · Score: 0

    "While looking under a microscope at slides of her own intestinal tissue"...

    Are we really supposed to believe that a teenager actually *biopsied her own intestines* for a high-school science class? It's one thing to take a sample of epithelial tissue by swabbing one's cheeks... the intestines are a bit more difficult to get to.

  115. Re:Science, is that what medicine doctors lacks of by Anonymous Coward · · Score: 0

    My friend's wife got cancer, went on chemotherapy immediately and was dead a month later from a poisoned liver. A bullshit placebo treatment would have been a lot less painful and lethal.

  116. Re:Science, is that what medicine doctors lacks of by dlelash · · Score: 1

    "Everybody lies."

    -- Dr. House

  117. They have tests for that... by Anonymous Coward · · Score: 0

    I was diagnosed with Crohn's disease about 40 years ago, after years of symptoms similar to Jessica's. When I finally decided it *wasn't* something I ate, and contacted my doctor, he made arrangements for me to see a specialist, and the specialist determined through various tests that I did indeed have the disease. It's not surprising that Jessica's doctors missed the diagnosis early on, but after far less than 8 years I would think someone with specific training in gastroenterology would be called in. Now that she knows what she's dealing with, I wish her best luck with managing this fairly tedious condition.

  118. I feel for her by curtix7 · · Score: 1

    I have crohn's and wasn't correctly diagnosed for almost 3 years after I started complaining. The Doctors were like "shit Idk take this stuff 3 times a day" and after a while decided I had ulcerative collitus and started giving me medicine for that.

    "Luckily" I finally found out what it was and was able to get "correct" treatment.... correct treatment being one of a many different options of which most fail and the ones that do work only work sometimes.

    see if you can go 2 for 2 and cure it as well jessica, lol.

  119. Sampling error? by Anonymous Coward · · Score: 0

    If her pathologist gave her the slides for a class project, then perhaps he had to cut more sections to have slides for everyone. When a pathologist receives a specimen, she doesn't examine the whole thing. A few representative sections are analyzed. If there was a rare granuloma, perhaps the sections that the pathologist initially reviewed truly did not contain any granulomas. Perhaps a granuloma was found only after the additional sections were cut for the class project.

    You could argue that the entire specimen be analyzed for every biopsy but this is just not practical. Imagine how many 20 micron sections you can generate from even a small specimen. This would increase the work required to read a specimen by 3 or more logs. A $100 fee for examining a slide will turn into $100K.

  120. It takes two to tango.... by PrimalChrome · · Score: 1

    Maybe if you stayed with the same GP instead of shopping docs, and kept a copy of your records it would allow you to receive the level of care you seek. Most doctors I've been referred to from my GP or had records sent to actually read them or look at the referring physician's notes and are able to determine if it's time to start laying zebra traps.

  121. Doctors scare the hell out of me. by Anonymous Coward · · Score: 0

    Doctors scare me because they are not the ones who decide how the diagnosis goes, it is the insurance companies. They probably missed it because the insurance would not pay for the test the girl did herself! Americas finest doctors are nothing more than pawns for the pharmaceutical and insurance industries. I suffered from allergy symptoms for my whole life, what did the Dr. give me antihistamine after antihistamine, oxymetazoline HCL, phenylepherine HCL, Zyrtec, loratadine, nothing but damned side effects and more allergy issues.
    My Neighbor and old Indian Lady gave me a neti-pot and showed me how to use it, voila problem solved, several thousand dollars in drugs and several years of suffering trumped by a clay pot of salty water. All hail modern medicine, and its priorities the 36 hour boner.

  122. Re:News? by Anonymous Coward · · Score: 0

    So people mod this down because Foxnews wasn't the target?

  123. Re:Science reveals all we want and don't want to k by JSBiff · · Score: 1

    I blame the parents. Adoption is a wonderful thing (or at least can be - of course, if adoptive parents abuse the kid, then it's not wonderful), but you should probably sit down with a kid sometime *before* they are old enough to be in a high-school biology class, and explain something like that to them. If a kid finds out from you, I imagine they are likely to be much less upset than if they find out about it on their own, later.

    At least the answer was adoption. I thought your story was leading up to a "Your father was the postman" sort of ending. Better adoption than cheating, although testing one's own blood could lead to discoveries like that.

  124. Re:Science, is that what medicine doctors lacks of by MichaelSmith · · Score: 1

    My friend's mother got cancer. They tried all sorts of "natural" treatments. By the time they were willing to give up and try real medicine it was too late and she died.

    Thats absolutely terrible. I am sorry to hear about it. I have never suggested that people with cancer should do other than see the appropriate medical professional.

  125. Re:Science, is that what medicine doctors lacks of by MichaelSmith · · Score: 1

    Did you tell these useless doctors about the cycling?

    Yep, but the bit the doctor doesn't understand (and the bike shop does) is that by height (193cm) is too high for off the shelf bike frames. I tend to ride around with the seat too low, hence the knee pain. Of course most bike shops will still sell bikes which are too small for the owner. There is no ethical standard which requires them to put the welfare of the customer/patient before getting a sale.

  126. Self Diagnosis can be Dangerous too by ajlisows · · Score: 1

    For some demented reason I enjoy "studying" physical and mental illness and reading about pharmaceuticals in my spare time. Right out of college I was a more arrogant little bastard and thought I knew enough about everything to be an expert.

    I don't want to get too deep into the issues, but I dealt with 7 people plus myself who got wrong advice/medications/treatments from doctors. I would lay out all the evidence I could accumulate and the patient would take it to their doctor and say "This is what is wrong" or "You put me on this medication and I feel like crap, maybe it's because it reacts this way to what you are already giving me." I just got lucky a few times. I was always spot on. I looked like a freaking genius. It got to the point where quite a few family and friends would call me before and after going to see a doctor. This didn't really help with my arrogance problem.

    My mom has a long history of mental illness. Her doctors put her on some more pills that I considered to be foolish in the situation. I actually had the nerve to insist that she stop taking them and I acquired different medication for her (schedule IV stuff...I wasn't smuggling oxycontin or anything) and she started taking it. Long story short, three weeks later she had totally gone off the deep end. She destroyed a bunch of stuff in my parents' house, ripped up most of my dad's clothes, starting threatening homicide and/or suicide until finally my dad had to call the police. They gave her a three day restraining order and she kept coming back that and getting more beligerent before until finally five cops and the county psychiatric van pulled up and took her away for a little vacation.

    That was quite an eye opener. I blew it. Bad. Looking back, I don't know what I was thinking. I had some problems of my own that I refused to attempt to treat/seek treatment for I did some good things for some people but helped cause a lot of problems for my parents.

    This is a great story because it is important to be active participant in maintaining your health. Doctors are not infallible and you know your body/get more time to think about the issue than they get. When it comes down to it though, remember to seek the opinion of at least one, maybe more in important cases, actual medical professional.

  127. Intestinal sample? by Anonymous Coward · · Score: 0

    The only thing that sticks out as odd to me in this is that the girl seems to have taken her own intestinal sample somehow. I don't know about you, but that's not something I do on a regular basis. Even if I were taking an AP biology class, I don't know what situation would call for me to sample my own intestine. Seriously? Weird.

  128. House says: by L33TRice · · Score: 1

    It's not Lupus.

  129. what?! by Anonymous Coward · · Score: 0

    Doctors didn't diagnose the problem, so all doctors are incompetent? My computer program has a bug, so all programmers are incompetent? The elevator door got stuck, so all engineers are incompetent? The goalie didn't stop the puck, so all goalies are terrible? I couldn't find my shoes, so all people are idiots?

  130. Re:I suspect I may have Multiple Personality Disor by Anonymous Coward · · Score: 0

    If you managed to biopsy that part of your brain, you've got a bigger problem.

  131. She's not out of the woods, yet... by Anonymous Coward · · Score: 0

    For 2 months now out of my 34 year existence, due to the discovery that ALL of those symptoms can be caused by cat allergies, I have experienced a reduction in symptoms masquerading as lactose-intolerance, food-allergies, chron's, and uc. 34 years! ...and I'm finally gaining weight on the mend!

    I'm sorry for the loss of health, but better late than never -- I mean, I definitely don't blame anyone for "missing" it in a diagnosis because I've always considered myself doctor #1 (even though ianap). To be fair, none of my research indicated it was allergy related, either, because the short-term symptoms we *all* overlooked were being dwarfed by the the much more dangerous long-term symptoms centered around my digestive system. In retrospect, theories and tests were not so much "disregarded" as "over-shadowed" thus leading to a similar disregard by those trying to solve the mystery. All of us are having a hard time believing it was as simple as a cat allergy. Thankfully, the major symptoms have only had me for 14 years, and I am still unnaturally young in many ways due growing up sick and turning it into an opportunity by becoming hard to kill =) Avoidance is working and In comparison I feel like Superman! ...and I can't help but wonder how many other super-heroes lie in wait like I did.

  132. Problem Is by logicnazi · · Score: 1

    These people. If you had a code plenty of people who figured they needed the "real meds" would use it wrongly. Of course in your case it's worse since the effective medications to suppress coughing are mainly opiates so if you don't have a long history with the doc they may worry you are trying to score some drugs.

    --

    If you liked this thought maybe you would find my blog nice too:

  133. Common Usage by logicnazi · · Score: 1

    Unfortunately that would convey a falsely inflated sense of risk to most listeners.

    I mean if your friend asks, "Hey, does anything bad happen to you if you eat a mentos after drinking coke?" The correct answer is NO not, "Well there is a small chance you will choke." Also consider what happens when news agencies report on super small risks from common products or behaviors. People often take a risk to mean something common enough to be worth worrying about.

    Moreover, what the package insert says is often totally bogus. I believe they have to include the side effects found in the clinical trials even when those side effects occurred less frequently than they did in placebo. Even when it's right it can be misleading as it won't mention the risks you avoid by taking the medication (birth control helps prevent some conditions).

    In short the doctor has a choice of providing the listener with what they really want to know, "Do I need to worry about anything because I'm taking this product?" or give a literally correct response that will be harmfully misunderstood by many patients.

    --

    If you liked this thought maybe you would find my blog nice too:

  134. Shes not an uncommon case. by Anonymous Coward · · Score: 0

    If they think that's amazing they could have 90% more stories. Hell Ive diagnosed myself and even my mom. She had a broken ankle once, and the docters said it was "Just sprained", then as a "just in case, lets take an X-ray" happened they we proved them wrong.

    Other time I proved to a doctor I had mono, which guess who was right ^_^?

  135. RE:IAAP by Anonymous Coward · · Score: 0

    The perspective you give, Doctor, is quite fascinating. Speaking from experience on the other end of the labcoat, as many times as I have been to the doctor, I must personally qualify your statement that the "patient population understands that," but only as it pertains to me. As ill as I have been, I have gained a great deal of familiarity with the process. I also worked as a lab assistant and a pathology transcriptionist. Got out of the medical field when funding really started to collapse, leaving the hospitals terribly understaffed.

    But, my case is clearly one of an enhanced understanding of medical procedures, medical terminology and I dare say familiarity with medical skepticism due to statistics. I take issue on two points: the first, quite obviously already elucidated - that the average patient has not a clue, the second is the epic fallibility of statistics. An infinitesimal percentage may protect you from a malpractice lawsuit, and further testing may endanger your the funding of your practice. But, that does not take away whatever small percentage is offered in that statistical possibility. Remember the example of the coin. It lands three times on heads. What are the chances that it will land on heads again?

    I know you know it's still 50/50. The problem with the modern view of statistics is that it is rarely properly contextualized. But, you're clearly aware of that as you stated. Now I realize that you have taken an oath to help, and that you are doing everything within your power to do so. I just have a feeling that you might need a little 'push' to trust your gut.

    Either way, I honor you for all the good you have done! I commend your great qualities, and wish you well. May the road rise, etc.

    Because registration is a p.i.t.a, i'll just leave my e-mail:

    rajacafe@yahoo.com

  136. Kind of disapointing really... by Anonymous Coward · · Score: 0

    It's pretty sad if an 18 year old girl stood up a bunch of old people who went to school to treat sickness. And, this poor individual suffered for years before she took matters into her own hands. Regardless of statistics, you think all of that money that has to be payed for medical shit a, statistical success rate should atleast pay of 100%, I mean a fucking cast 800$. Her seeing the doctor 200$. Its bullshit a doctor who gets payed so much but, fails to treat a patient regardless of how much they're paying. FUCK YOUR STATISTICS IF THEIR STILL IN DISTRESS FIX THEM.

  137. Umm... by Anonymous Coward · · Score: 0

    How the hell did she get a sample of her own intestinal tissue into a microscope slide in the middle of science class??? Ewwww.....

  138. the hippocratic Luciferean( Apollo) oath by AvenueOfLight · · Score: 1

    Do some real digging here.... for the true big picture....
    It is all the same Luciferean satanic System of blood sacrifice since cain slew Abel.

    relating to the doctors(continued medical INQUISITION). Big Pharma....(sorceries(Revelation 18:23)

    I.G.Farben//aka: The Bayer Aspirin Co.//Baxter

    Wanna see how far down the rabbit hole you really are?

    Here are 2 sites....Regarding this SUN SYSTEM used in "YOUR FACE"! and you have no clue... Matt does a pretty good job in revealing these things UNseen b 4 YOUR eyes....
    when you are done; look at my site and study it in depth and not just a cursory first page, first paragragh view. They are all Freemasons//catholics as are all lawers, judges, politicians that are adjoined to the New World order (Novus ordo Serclorum) Great Seal//back of the dollar bill.

    http://www.matthewdelooze.co.uk/viewpage.php?page_id=2

    http://www.matthewdelooze.co.uk/readarticle.php?article_id=48

    "The truth WILL set you free." STUDY, STUDY, STUDY, STUDY, STUDY.... The Georgia Guidestones, The Lucifer project, Project vatican, Nasa's Casinni(Jesuit) spacecraft//program, Project Bluebeam.....STUDY!

    http://www.xanga.com/avenueoflight

  139. I can really sympathize with this kid by wwphx · · Score: 1

    I've had pneumonia four times since February, and we don't know what's causing it, first bout was in February, last bout was last week. That's a loss of almost six weeks of work and gross wages of almost $6000. But we're doing a bronchoscopy Friday and have numerous immunological tests being conducted, so hopefully we'll come up with something soon. All bloodwork, thus far, has said is that I have an infection. Well, DUH!
     
    Yeah, a lot of medicine is played by the numbers. Though it's a lousy book, Travis Taylor's Warp Speed has some interesting observations on the non-science of modern medicine, which strongly corresponds to the statistical medicine that you describe.

    --
    When you sympathize with stupidity, you start thinking like an idiot.
  140. Re:Remeber it is practicing (remeMber) by AvenueOfLight · · Score: 1

    Yeah, none like to caught with their pants down.....!

      The medical PROFESSion is a cult within a cult. It is another form of the Inquisition(medical) which has never ceased. They are between 2-10 members who readily pass the patient from one to another bleeding them dry(monetarily AND or physically).

    This Luciferean Satanic System has been on planet Earth since Eve became Illumined! They all are, in bottom-line; trained in sorcery and witchcraft from Georgetown University under the hands of the Jesuit Order. Joseph Mengele was adjoined to this same system as was Hitler."EVERY (man-made) religion on this earth is adjoined to the very same Luciferean, Satanic SUN System Unaware; "MY PEOPLE" are destroyed for "LACK" of knowledge! This is just another form of DEpopulation used in the blood sacrifice that all the CULTures have used for paying homage TO THE "SUN"; (Horus, Amen-RA, ) the "ONE" "rising in the East", the Lightbearer, the Bright and Morning Star, the thousand points of light, the all-seeing eye Great Seal//(dollar bill) capstone UNattached(their Great Work, Grand Design, Utopian Scheme)!

    Look up: The Georgia Guidestones, Fatima Crusader, the Lucifer Project, Project Bluebeam, The Holy Word Of GOD. All declare "OPENLY" their planned genocide and intentions.

    It is "ALL" (SUN) worship representing Lucifer//Satan (Babylon Mystery Religion//Katholocism (Organized Christianity)with it's High Priest "Pontifex Maximus" (Pope)//Black Pope//Jesuit General (Adolfo Nicholas). They have planned to execute the DEpopulation from 6.2 billion people down to 5 1/2 million; thus even killing 1/2 of their own.For there are 1.2 million Catholics Today.... How Godly are they??????????

      Jesus Christ is the Saviour, NOT the destroyer! Who are they worshiping? Wake up!!!!!!!!!!!!!!!!

    I.G.Farbin created Zyklon B, the gas used to kill the jews(others) in GERMany. Who are they Today in ameriKa? The good old Bayer Aspirin Company//Baxter. Do YOU take aspirin???????????

    Better not cast aside what i have written here. It "IS" a witness and a testimony; either for or against. Countless millions have died at the hands of this branch of Inquisitors being "LICENSED" to butcher amd mame you for MONEY(lust, greed)PLEASURE of which their 8 years of school cannot be REfunded otherwise....
    What exactly is....."SOCIAL SECURITY"? (FASCISM)
    They have incurred great massive debt! and owe countless favors. They are "ALL" either Freemasons OR Katholic??????? (Illuminati)//JESUIT..... as are all.... judges, lawyers, cops, politicians, etc.... WAKE-UP! Here's a taste:

    http://www.matthewdelooze.co.uk/viewpage.php?page_id=2

    http://www.matthewdelooze.co.uk/readarticle.php?article_id=48

    Revelation 18:23 And the light of a candle shall shine no more at all in thee; and the voice of the bridegroom and of the bride shall be heard no more at all in thee: for thy merchants were the great men of the earth; for (by thy sorceries) were all nations deceived. Look up sorceries... Pharma, Pharmaceia, pharmaceutical....drugs!!!! witchcraft, sorcery, Look up the blue CROSS and blue SHIELD insignia(Caduceus)... Look up Hermes, Look up the Hippocratic oath; they "SWEAR" to Apollo(Lucifer) and the other gods? OOOOPS!

    If you seek the truth you SHALL find it.

    www.Xanga.com/avenueoflight

  141. Not surprised by awarrenfells · · Score: 1

    I am honestly not surprised at this. Dr's seem to be particularly crappy at diagnosing this disease. It took my dad hundreds of hours of researching medical files, books, and various documents till he was able to diagnose my mom likewise. Since then, she has been in much better health. Before then, she had seen numerous doctors, none of which were able to appropriately diagnose her.

  142. Re:I suspect I may have Multiple Personality Disor by Anonymous Coward · · Score: 0

    It worked out brilliantly for me. Everybody should try it. Never felt better.
    Either you need a new keyboard or you need to take a typing, spelling,and IQ test. You could always just get a zebra prescription.

  143. the sample? by Anonymous Coward · · Score: 0

    How did this girl get an intestinal sample?

  144. I guess the anaesthetics have improved :-) by Anonymous Coward · · Score: 0

    I had one about 20 years ago - prep sucked, procedure sucked more, anaesthetics didn't do much for my central nervous system (though probably they gave me some local topical stuff?) Didn't get the perforation-and-death parts. Another unpleasant day or two until the barium paste was gone. Didn't have any of the new cool forget-it-ever-happened drugs they apparently use today.

    Turned out to be nothing serious - ulcer and other damage from too much ibuprofen, which they treated with drugs and physical therapy for the back problems that I'd been taking the ibuprofen for - but the symptoms had been enough they'd worried about colon cancer or whatever.

  145. Vitamin pills are cheap by billstewart · · Score: 1

    Most of the B vitamins, E, folates, etc. are additives in the bread anyway - you can get them just as easily by taking vitamin pills, and unless the UK interferes with that industry much more than the US does, it'll only cost you a few pence a day for a reasonable-quality generic multivitamin pill. (At least, if you're not allergic to yeasts, which tend to be an ingredient of most of them.) It's not a substitute for a balanced diet, of course, but it'll cover you for a range of nutrients.

    On the other hand, just because we use lots of corn in the US doesn't mean we're not also using wheat - a lot of it goes to high-fructose corn syrup as a competitively-subsidized sugar alternative, and corn oils and corn starches are pretty common (I've got friends with corn allergies who are always hassled by these), and most corn-based breads are still half wheat because the texture's more controllable with some gluten in it.

    --

    Bill Stewart
    New Fast-Compression-only CPR http://preview.tinyurl.com/dy575ks
  146. There's a pneumonia vaccine by billstewart · · Score: 1

    Don't know if it covers the type you've got or not, or if it's something that you can take when you're already sick, but it's a really good idea as a preventative.

    --

    Bill Stewart
    New Fast-Compression-only CPR http://preview.tinyurl.com/dy575ks
    1. Re:There's a pneumonia vaccine by wwphx · · Score: 1

      The vaccine is designed for the viral forms of pneumonia, what I've been getting is the bacterial form, but it would offer some protection. I mostly haven't been well enough to get the shot, sadly! But right now I'm doing better, and it looks like a possible source may have been found for what's been causing my ills: a lovely thing called hypogammaglobulinemia. If confirmed, it looks like my body isn't producing enough gammaglobulin to support a healthy immune system, thus I get sick lots.

      --
      When you sympathize with stupidity, you start thinking like an idiot.